Charleston Bound, part 2

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  • montrial
    montrial Member Posts: 48
    edited September 2013

    Catie2013 and PinkHeart --  Sounds like you two are nearing the end of your reconstruction process.   We may "pass in the night" as you are both scheduled for procedures on November 15th and I will be awaiting doctor's release from Stage 1 at Homewood Suites about that time (surgery on November 7th).  Where will you all be staying?  Best of luck as you wrap things up.  Hope all goes without a snag.  I have, and will continue to, appreciate your input on this site.  Montrial

  • cascader
    cascader Member Posts: 599
    edited September 2013

    Wow Pink and Catie, you two are on the same schedule again. Pink please let us know how this next part of the journey goes, you are a courageous woman going thru so much right now, stay strong. Are you Dr. K's first Brava? Catie will this be the last for you? If you are having nips made ask for the extra large variety :) Mine has shrunk down to barely a bump, but still happy I had it done. Montrial, I know it can be scary reading of some of the complications, after a failed implant recon I was so afraid that things would go wrong again. I waited until my head was in the right place and then just forged ahead and I am now done,no complications.  It is nice to know that no matter what your experience, there are women on here who have been there done that and can help. Stay positive, take this time to get in good shape, Nov 7 will be here before you know it.  I am so happy that just a little over a year ago I started this process and it has been truly life changing. I don't come on here as much as I used to, which I suppose is a good thing, but I wish all of you ladies the very best. If I can help anyone, please PM me.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Montrial - I should be in town on the 4th of Nov for a pre op consult with Dr K and check up with Dr Baron on the 5th. Will be staying at the Homewood Suites for both (have to make my reservation!!!!) thanks for reminding me! Would be great to meet you!!!!!'



    Cascader, hoping its the last!!! That's why I e scheduled a pre op 10 days prior to surgery - so I can know what needs to be done with a clear mind. I'm still debating the nips - again not sweating it right now - going to wait and see how I feel in November. Right now my dad is fighting a losing battle with brain mets that he isn't aware of!!! Challenging to say the least.



    Hugs

  • cascader
    cascader Member Posts: 599
    edited September 2013

    Catie, it must be very difficult,lost my mom to Alzheimer's. Certainly puts things into perspective, will keep you in my thoughts.

  • montrial
    montrial Member Posts: 48
    edited September 2013

    Catie -- My Dad is also succumbing to Alzheimer's.  He lives next door.  So, so sad to see the person you love "disappear".  Stay strong!  Montrial

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Thanks, Cascader and Montrial - so sad for sure, sorry you are having to go through that as well. Wish there was a way to help him.

  • lbrewer
    lbrewer Member Posts: 766
    edited September 2013

    Its a method developed by Dr. Khouri in Miami that uses a suction kind of system instead of surgery.  He has had good results with it.  You can Google Brava.  There is a PS here in Orlando that does it also, but his wife told me that her husband hasn't been able to get as big boobs as Dr. Khouri does! 

    Pink, I envy your weight loss!  I have beenn doing the Paleo thing for 3 weeks now and have not lost a single pound. And since I went back on Arimidex, I've gained alomst 10. 

    I think we should rename October to Breast Cancer Sucks month!

  • Davy
    Davy Member Posts: 114
    edited September 2013

    My stage 4 is November 14th! Finally a date close to some other "regulars" :)

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited September 2013

    Davy,



    Looking forward to meeting you before, during, or after your hospital stay!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited September 2013

    Hi all,



    I am still scheduled for BRAVA and then surgery November 15. I saw Dr Kline, Chris, and Kim last week to get measured for device. Today they asked me to send pictures. I have gained a few pounds with 10 to go. Wine has a lot of calories right? It's currently TGIF happy hour.



    ... I left Charleston and came back north this week to interview at two companies, one being my former employer. If I get a call from certain Charleston companies, I will jump in my car and head south to interview. I have to go where I can get a paycheck soon. Divorce still ongoing.



    Hope it's CHS in the end. It was 100 degrees up here two days ago, and now tonight a low of 45!



    I'm not giving up my flip flops until it snows. :)

  • lbrewer
    lbrewer Member Posts: 766
    edited September 2013

    Constant reminders of live everyday to the fullest....yesterday we were in DC and drove by the Navy Yard.  I told my husband we should go as I've never been.  Didn't as we would miss our plane.  Today 6 people were shot and killed there.

    Thank God for every day of your life.

  • cascader
    cascader Member Posts: 599
    edited September 2013

    Thanks for the reminder. Glad you are safe.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Wow, Pink, praying one of them comes through soon for you! And hoping you are with your friend and comfortable.



    Lbrewer - I found out after the event that took place at the shipyards - so sad! And, so happy you didn't go!



    I've been out of pocket for a while as my dad passed away a week ago yesterday. We had the funeral this Tuesday and now back at home after being with him for the last 6 days of his life and then staying in FL for the services. So sad, brain mets from melanoma! But he lived a good life up until a year ago when things started to go a little screwy. He had 5 melanomas starting in 1985 -



    Yes, life is short, and to be lived every day with gusto!



    Hugs

  • cascader
    cascader Member Posts: 599
    edited September 2013

    Catie I am sorry to hear of your father's passing. Damn cancer. Always hard to lose a parent. Hugs to you.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited September 2013

    Catie - so sorry about your Dad.  Good you were able to be with him.

    Just drove by the Navy Yard.  Tight security, but business as usual.

  • cascader
    cascader Member Posts: 599
    edited September 2013

    Rant: This morning i learned that my health insurance will not be renewed and expires Oct 1. Not enough people to call us a "group". In Washington state I cannot get individual insurance because of cancer diagnosis. This will change on Jan 1 when Obamacare kicks in. So as a self employed person I am left scrambling looking for coverage. I am scared to be without until January because I have over $30,000 of medical bills still from chemo and my failed implant recon. I had crappy insurance back then. I am soooo thankful I am finished with my flap recon .

    So, if any wash state people out there have any suggestions......

    Rant over.Perhaps I should have posted this elsewhere but thanks for listening.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited September 2013

    Catie,



    I am so sorry that your dad has passed away. You have been in my thoughts and prayers.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited September 2013

    Cascader,



    I'm with you on lapse on insurance.



    If I can even continue paying my COBRA, it still expires December 15. Some of companies I have interviewed with have a ridiculous 90 day waiting period and then I would be dealing with lack of certificate of continuous coverage and get screwed for pre-existing condition. I am applying for Medicaid just in case but not certain will get it. Dr Kline's office does work with Medicaid, but I have to claim residency in SC. What a mess. I pray to get a good job soon with immediate insurance and that you find a group insurance plan.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Cascader- at one point I played duplicate bridge, the dues was maybe $35.00 a year, ACBL OR ABCL - anyway, they offered at that time a group insurance - haven't looked into it, but suggestion is to join a large group that is inexpensive to join that offers group medical just until you can transfer after the beginning of the year??? Just a thought albeit not well thought out?



    Our rates have almost doubled where DH works - and this is now affordable ???? And helps everyone?

  • ketch
    ketch Member Posts: 157
    edited September 2013

    Catie, sorry about your father. Cancer sucks....but we all know that personally.

    Insurance is a bitch....can't live with it or without it. Only good thing I can tell about ObamaCare is that pre-existing conditions will not preclude you from coverage. I second the option for finding a group type insurance. There used to be a self employed organization that offered health insurance. I cannot remember the name, but you might be able to find it by googling. I bought some temp insurnace once to stay in continuous coverage.

    Pink, have you thought of applying for disability? I know it takes a while to get it and 2 years before Medicare kicks in, but you may qualify with your past health problems related to your botched surgeries.

    I had stage 2a two weeks ago. I breezed through it. I felt worse on the Armidex than I did with the surgery. The nipples look good and I am pleased with the "looks" of everything even though it's still scabby and stitched up looking. Stage 2b is in December and I am hoping it goes as well, but figure the fat grafting and lipo will hurt! I am hoping that all will be done with that surgery. So far, so good.

    We stayed at Sandpiper. I would have prefered on the beach as I felt good enough to enjoy it, but we went where it was cheaper. The location cannot be beat & we learned shortcuts on the frontage road and could go pretty much anywhere with no problem with everything being within a 3 mile radius...except the beach! We had to rent a recliner for me for the week and I found the furniture in the cottage to be of poor quality. I was going to stya on the couch but it was probably the worst couch I'd ever sat on. We told them about it and they said they would replace it.

    The set up there was good, but was very basic bordering on sparce. We got a 2 br. It had a small kitchen that was sufficient for our needs. Each br had a full bath which worked well with my mother and husband. They have a community laundry in each section of cottages. It was free, but horribly slow. My mother loved it there as most residents were her age or older, so she spent her laundry time meeting people. ( We kidded her about finding a rich old man, but no luck!) Everyone was friendly. We ate one night in the dining room and the food was ok...I'd term it comparable to a buffet. Since I felt so good, we went out most days for a late lunch (got those lunch specials before the rate hike for dinner!) at Shem Creek and the other eating establishments. We ate breakfast in the cottage and had snacks there. All in all, it served and met our needs. We are staying there in December as well.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Thanks, Ketch, yes we do know cancer sucks!!!



    Just a thought - I was listening to Dr. radio on Sirius on the way home from church and heard a woman talking on the oncology show about a letter writing campaign to write a letter of encouragment to newly diagnosed breast cancer patients. Who better than us?



    We've been there and can certainly lend encouragement (as shown by your so many encouraging words to me!) to those recently diagnosed!!!!



    The website is www.girlslovemail.com - if you are interested, go and see what it's about and check it out for yourself. They are trying to get a goal of a mile of letters in a year. I personally checked off once a week, but you can do it only once, once a week, month, or just thinking about it in case you want to do more.



    After just losing my dad 2 weeks ago from brain mets, I am thinking this might be something for me to do in his honor (of course there are guide lines and not mentioning someone passing b/c of BC!!!!!). The letters need to be handwritten but not necessarily terrifically long or specific. The guidelines tell it all.



    Just a thought!



    Love you guys - thanks for the support!

  • Cherrie
    Cherrie Member Posts: 1,423
    edited September 2013

    Catie I am so sorry about the loss of your father. Both of my parents are gone and I miss them.



    I will definitely check out that website and write a letter. Thanks for giving us that link. It's healing for all of us too.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited September 2013

    Cherrie, I lost my mom 15 years ago, and now my dad! I know I'm too old to be an orphan, but sure feels like it anyway. I've been trying to think of something positive to do in his memory - and this is something that he would have said " Count me in" - so just thought maybe it might be something to pass on to my breast-friends!



    And, believe it or not I unearthed a bunch of note cards to use - but it doesn't seem to matter if you look on the website - anything that fits their standard envelope will do. I signed up for once a week, but think I'll send a month or two at the same time to save on postage. Just slip all 4 or 8 notes in a larger envelope and send them to the CA address where they will put them in individual envelopes using their mailing info (HIPPA prevents us from having direct link to the patient).



    They said they were only interested in letter writers, not funds or money as they are well endowed for that part, but need the letter writers to make their committment and goal to get out a mile of letters this year! They are almost there at just under 5,000 - so maybe we can put them over their goal??



    Just a thought!

  • Cherrie
    Cherrie Member Posts: 1,423
    edited September 2013

    What a great idea. You should post this on NOLA and DIEP 2013 thread. There would be a lot of interest, I think. 😄

  • lbrewer
    lbrewer Member Posts: 766
    edited September 2013

    Pass it along....

    FDA approves first presurgical breast cancer drug

  • 5andcounting
    5andcounting Member Posts: 232
    edited October 2013


    Very disappointing news today. My stage 2 with Dr. Kline set for October 25 was cancelled today. My Hgb is 8.0 and platelets low from last chemo. I didn't realize how much I was looking forward to getting it behind me. Now will be Nov/Dec if I can get my Hgb up. Any tips?

  • lbrewer
    lbrewer Member Posts: 766
    edited October 2013


    So sorry you have to delay. Low iron makes you feel crappy too! i use a slow release iron--SlowFe.


    Has anyone heard from Pink about the Brava stuff?

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited October 2013


    CRS,


    I'm so sorry about your delay, too. Have you rescheduled? Dr Kline prescribed iron pills for me after my March surgery. Also ate iron rich beef, spinach, etc. Grits have lots of iron, too! Hope your numbers return to normal and you are feeling good soon.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited October 2013


    Lbrewer,


    Dr K staff mailed the BRAVA device yesterday so should be receiving soon. Wish I could say I'm excited about opening that box, but . . .


    :)

  • rdgc
    rdgc Member Posts: 93
    edited October 2013


    Hi. Is it true that New Orleans is the mecca for excellent reconstructive breast surgeons? Thanks.

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