Any Northern Virginia ladies on this discussion board?

Options
1…3536384041…59

Comments

  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    Not too late at all...I am hoping to finalize the head count Wednesday....lol

    · Share on FacebookShare on Twitter
  • edie61
    edie61 Member Posts: 9
    edited September 2013

    well ladies of Northern VA almost did not go get my Mammagram this year have had them done every year and for 2 years every 6 months..But got the letter it was time so went and had it done well next day was back having more done well to make this short was told I have IDC AND SCARED TO DEATH WILL GO SEE tHE bREAST cARE dr ON THE 12TH ..BEEN TRYING TO UNDERSTAND THE FIRST REPORT...DR IS IN reston....

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    Edie61--so sorry to hear this. Hope the time passes quickly between now and the 12th.

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    Edie61,



    I am so sorry. While I remember how scary the initial stage was, please know you are not alone. If you feel up to it, we would love to meet you at our monthly lunch this Saturday. Regardless, we are here for you so please PM me or reach out with any questions...hugs



    ««« Lunch Saturday at noon at Coastal Flats in Fairfax»»»»

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    Do any of you know of someone in Northern Virginia that you can recommend for manual lymphatic drainage?

    · Share on FacebookShare on Twitter
  • imatthew
    imatthew Member Posts: 206
    edited September 2013

    mary, my wife was very impressed with the lymphodemia center at Fairfax Hospital, she went there for an initial evaluation after her mastectomy but fortunately hasn't required any follow-on treatment.

    · Share on FacebookShare on Twitter
  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited September 2013

    Edie61...I am just 2 months into this and I know how scary and confusing it can all be. Try not to read too much...I had myself so worked up and stressed and it didn't serve me well. The ladies on these boards are lifelines...and try to be positive. There are such incredible drs in our area. I've had my surgery and will see my oncologist tomorrow. Not one step has been as horrible as I had it made out to be in my mind before hand (and I've had complications and can still say that) so just know it will be ok.

    · Share on FacebookShare on Twitter
  • Car67
    Car67 Member Posts: 3
    edited September 2013

    Hi ladies I would love to join you for lunch on Saturday.

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    Would love to meet you Car67.... Looking forward to seeing everyone Saturday.

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    I think you have me on the list, but if not, I'm coming!

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    imatthew--can you tell me if the lymphedema services at Fairfax Hospital are part of physical therapy? I'm trying to figure out where to call. Thanks.

    · Share on FacebookShare on Twitter
  • edie61
    edie61 Member Posts: 9
    edited September 2013

    Thanks i hope it passes real fast too..The hardest  time is at night like right now just can't go to sleep...

    · Share on FacebookShare on Twitter
  • edie61
    edie61 Member Posts: 9
    edited September 2013

    Yes  looking all the different things up thats on the report gets me more updet then anything..so far all who i have been in contact with  have been very nice ..I know I have a long road ahead of me and will do just fine..i will beat this just like my mom has for the last 12 years...

    · Share on FacebookShare on Twitter
  • LuvSnow
    LuvSnow Member Posts: 229
    edited March 2014

    Odie16 - I am tentative for Saturday; finally clear to drive after my laparotomy. Soccer season starts, so I have to discuss w/DH. Is lunch at 12?





    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    We are all set for lunch Saturday at NOON at Coastal Flats in Fairfax Corner.

    · Share on FacebookShare on Twitter
  • McKatherine
    McKatherine Member Posts: 300
    edited September 2013

    Mary - I saw Audrey Philatre at INOVA Alexandria - she's great!  I think you'd have to have a referral from your surgeon, though.  Did you use an INOVA Breast Care Center surgeon?  If so, you can call your nurse navigator and they'll set everything up for you.  :)    If not, I think you'd need to call your surgeon's office and ask them to get a referral to Lymphedema PT/OT (some LE therapists are PTs and some are OTs).   Hope this helps! :)

    · Share on FacebookShare on Twitter
  • fredntan
    fredntan Member Posts: 1,821
    edited September 2013

    Just saw Dr Roberts my new MO love him. Gave me much better exam. He took his time with me. Never rushed

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    I called my surgeon who is not in Inova Breast Care specialists so guess what? She wants me to go somewhere else. Some group called the Jackson Clinic. We'll see.

    · Share on FacebookShare on Twitter
  • dessert1st
    dessert1st Member Posts: 190
    edited September 2013

    Mary, you will have to let us know how the Jackson clinic is. Just looked it up and it looks good. I go to Fairfax Hospital rehab clinic. Theresa and Terry are Great!

    · Share on FacebookShare on Twitter
  • McKatherine
    McKatherine Member Posts: 300
    edited September 2013

    It was so great to meet so many of you in person today. I am trying to remember everyone's names / faces and keep everything straight. I'm happy to make a list of everyone who was there today that I can either email or PM to people if you guys think that would be helpful.

    If you're interested, just PM me with your name so I can make sure I get it all right when I compile it, then I can do a group email or group PM - whichever you guys prefer.

    :)

    · Share on FacebookShare on Twitter
  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited September 2013

    I had such a fabulous time at lunch! Thank you so much for planning it! It was my first social outing since my surgeries so it was so nice to talk to folks other than my family! I appreciate all of the advice and information and while I've not started chemo quite yet I want to help anyone in anyway I can.

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    Thoroughly enjoyed the luncheon today and seeing so many of us. We missed you Judy but hope to see you next time.



    Great idea Katherine. Thanks for volunteering to put the list together.



    Already planning the next one and will be sure to arrange for one table to accommodate all of us.. Will post details on the next luncheon by the end of next week.

    · Share on FacebookShare on Twitter
  • Car67
    Car67 Member Posts: 3
    edited September 2013

    I truly enjoyed meeting all of you at the lunch yesterday. You are all an amazing group of women. I am looking forward to the next lunch and our walk/run we will be doing. : )

    Katherine I will send you my information thanks for putting that together.



    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited September 2013

    I enjoyed meeting all of you! Tell me more about the walk/run...I was at a different table. Katherine...I'll send you my info. Best wishes to all for a good week.

    Mary Ellen

    · Share on FacebookShare on Twitter
  • dessert1st
    dessert1st Member Posts: 190
    edited September 2013

    Hi all, So sorry I missed Saturday! Hosting a bridal shower (for future Daughterinlaw) is a lot of work when you don't have a house cleaner etc to do the other stuff while you make the food and set Up!! My daughter commented that she never realized this was so much work. Hahaha



    A work friend just got the news she had Idc and I told her about our group and that I would canvas you all to see who your BS and PS were so I can pass names along to her. I am sure she will join one of our lunches at some point.



    Once she wraps her head around all of this was, I will show her where to find this thread and the BCO site in general.



    Thank you in advance for your input. This is a great group and Thanks Odie for getting the lunches started and the thread moving

    Judy

    · Share on FacebookShare on Twitter
  • PamelaK
    PamelaK Member Posts: 11
    edited September 2013

    Hi everyone!

    I'm not in Northern Virginia but Bethesda MD - can I still be part of this little group?  :)

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    Welcome PamelaK.



    You are more than welcome to join us anytime. We have been getting together for lunch the first Saturday of each month and have a great time.



    Looking forward to the next luncheon Saturday October 5th at Guapo's in Fair Lakes.

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited September 2013

    «««««« Reminder, our next luncheon is Saturday October 5th at Guapo' s in Fair Lakes. Please let me know by next Thursday if you can make it so I have a head count for the reservation.



    Hope to see everyone there!!!

    · Share on FacebookShare on Twitter
  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited September 2013

    I'll be there!!!  Last outing before my chemo starts...

    · Share on FacebookShare on Twitter
  • Car67
    Car67 Member Posts: 3
    edited September 2013

    I will be there. I am looking forward to it!

    · Share on FacebookShare on Twitter

Categories