August 2013 Chemo Sisters

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  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Lovewins, the claritin is for neulasta shot, not chemo, so don't take it.  The freezer question, you should ask your nurse.  The nook games, you won't need cause when they put in pre-meds, you'll fall asleep cause of allergy med that makes you sleepy.  Nausea, take on the clock, preferably prior to next meal, don't wait til you get sick, ask your nurse if you're not sure about the timing.  I set alarms for every 6hrs or whatever is recommended for the medication you get.  Take it like clockwork so you don't have nausea issues, cause once it starts, it's hard to stop it. 

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Mankatostat, no they didn't, thanks for letting me know.  I wore a hat then threw it off as soon as I got in the car cause tempts were in the 90s and 100s today.  Sooooooooooo hot!

  • batcatlady19
    batcatlady19 Member Posts: 138
    edited September 2013

    Lisa - I love what you wrote about cancer reasons. There are both a million reasons we could have gotten it & no reason at all. You can drive yourself crazy figuring out why (or trying to prevent it or a recurrence). It comes down to just living life as you see fit.



    Lovewins - The allergy meds in the pre-chemo cocktail don't automatically put everyone to sleep -- only if Benadryl normally makes you very sleepy, then it may here too. I had that plus I took an Ativan (for anxiety about the needle not really anti-nausea) & it's supposed to cause drowsiness, but I was fully awake until the last 40 min. of the infusion. Very glad I had my iPad, earbuds, wifi, & tons of video/audio distraction :) I was also glad to have brought a little pillow for lumbar support in the chair, tho a lot of ppl at my center preferred travel neck pillows.

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Candi, tell your onc about the pain, don't ignore it.

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Paula, so sorry to hear about your loss, hang in there baby!

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    Yesterday as I drove to my plastic surgeon I took off my wig and opened the moonroof + windows.  The breeze felt soooo good beating against my mostly-bald head! I was feeling Laughing!

    I took 10mg of Melatonin last night @ 9p.  At 1a I'm still looking at the ceiling and took another one.  Not getting good sleep at all; however, when I'm up I feel OK . . . go figure.

    Slight sore throat, I'll gargle + spray some Chloraseptic.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    She heard of Jesus + His Power to Heal, Restore + Make Whole. She needed what He had . . . her very life depended on it. She had to have it + was willing to do whatever was necessary to grab hold of her healing . . .

    The woman with the issue of blood said unto herself, if I can but touch the Hem of His Garment, I shall be made whole. She made her way through the crowd determined to take her healing. She should not have been outside, she should not have be around people . . . after all she was sick! Nevertheless, she spent all she had on doctors, medicine, potions + concoctions.

    Her last restort was Jesus + she was not going to miss her Divine appointment. In pain, but IN Faith. Bleeding, but got to get there. Weak, she was going. She was dirty, but still on her way. Emotionally drained, but unstoppable. Horrible side effects, she was pushing forward. She could be stoned, not stopping her. She couldn't stand, so she crawled. Exposed, but still moving. Defiled, but not defeated . . . still going. She could be sentenced to death but needed life . . . stayed focused. NOTHING was going to stop her!

    The decision was made! She made her way to her healing. She touched the Hem of His Garment and extracted + FREELY TOOK what she needed. Jesus felt the very healing power + virtue depart from Him.  IMMEDIATELY her issue of blood dried up + she was made healthy, whole + was restored.

    He wanted to know who had the Faith to made a demand of Him. Who had the audacity to approach Him? Who had the courage to touch Him? Who was it that would not be denied? Knowing that she received her healing, she had to confess that she was the audacious one who placed the demand, who had the courage + it was she that would not be denied.

    He said Daughter, thy FAITH has made you whole.

    Do you need to be made whole today? Are you physical dis-eased in your body? Are you emotionally broken? Are you at the end of your rope? Do you have the Faith to be made whole? Take your healing + restoration today!

    If this is you + you have the faith to TAKE what you need from God, add a comment + share.  

    (today, I AM inspired + feel like a writer)

    Today I decree + declare healing + total restoration in my mind + body!
  • lovewins
    lovewins Member Posts: 881
    edited September 2013

    Hi ladies I read you posts and thank you for the advice...my mind is full and not able to concentrate well so forgive me for not speaking to you all individually.  Almost ready to go to first treatment...hope I put enough numbing cream.  I will be so glad to get this over with today...but I think I need to somehow harness some positive energy about chemo because it is suppose to help save my life.  Today's prayer...Lord help me to embrace chemo and do the best I can.  God bless you ladies, may you feel God's comfort today as you go through difficult times...and even when you are at peace.

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    Togetherness, we are going to have to share phone numbers because my Florida/Ohio friend is begging me to go with her this spring. I have treatment through January and possibly into Feb, so hopefully, in March, I can sink my toes in the sands of Florida agaiin. I absolutely love the beach. We go to Sanibel and literally sit there in the sand all day sifting sand. I guess we're like Mary Ann, down by the seaside sifting sand. Maybe we could see one another. That would be so cool. Oh you poor baby. Dry heaves? I think I'm dieing when I have that. I had a bout of some sort of flu last year and heaved for 24 hours about every 30 minutes. My ribs were so sore the next day I thought I'd been run over by a truck. I'm going to pray extra hard that you will find something that works for you. I can't imagine.

    I finally got called to sub. Today is my day 10 and I turned down 1/2 day with first graders because I've heard that a virus is going around the school already. I will have special ed students on Thursday and Friday. Finally, I feel well enough and can start to make a little "co-pay money". We're having to shell out way too much each time I go in. God is good. He will sustain us. He always has.

    I've been prying since 6:30 this moring. Made coffee and prayed for you guys. I'm not sure if I am supposed to have coffee, but it is the one thing I'm having a hard time doing without. I only have 2 cups a day, so that's just my vice, I guess. I'm eating 100% healthier than I used to, so maybe it will counteract the coffee and caffein.

    God bless you, God bless our families, God bless the USA, God bless the world today. Never in my life have I seen things quite so bad. What the world needs not is Love, sweet love, and that only comes from God Almighty, Jesus Christ.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited September 2013

    I slept last night!  Woohoo!!!  Unfortunately mother nature woke me up at 5:30... my stupid period can't figure out if it wants to start or not.  Supposed to be Monday, had awful cramps this morning but still nothing.  I'm hoping chemo just scares it off!  LOL  

    I'm off to see my med onc... getting my results from the PET scan last week.  I think I should be nervous but I'm not.  

    Have a great day everyone!

  • LisaSp
    LisaSp Member Posts: 253
    edited September 2013

    Going to see the plastic surgeon today for a consult on reconstruction. Hope he doesn't scare me! Wish me luck ladies!

  • wing48
    wing48 Member Posts: 42
    edited September 2013

    How odd for me. My hair on my head after 2 weeks is still there. Just a touch of shedding. The, er, carpet? Gone. Wow. That's WEIRD!

    Feeling pretty good right now. Next session isn't till next Wed and I've been getting some stuff done around the house.

    Hope all of you fly through your treatments this week.

  • itsmyjob
    itsmyjob Member Posts: 18
    edited September 2013

    So I realize its now Sept but I had my second round of chemo yesterday and figured I should hang out with you all.  First post ever so be gentle with me. wanted to say hi, not sure what I should share at this point.

    Hoping that I can predict which days will be my worst with this round, i have a somewhat adjustable schedule at work so it would help if i knew when I'm going to be out for the count.

    So I look forward to getting to know you all!

  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited September 2013

    Good morning Ladies,

    Lovewins, Good luck today with your treatment today I hope all goes well and that you can stay relaxed and just envision the chemo popping those cancer cells as it goes in and then drink and pee like crazy. To get it out. Like Naan said take your anti-nausea med's exactly as directed, it is like pain you don't want it to get away from you, it is easier to stay on top of it.

    Soteria, I am sorry about the loss of your dear friend, that is always so hard. And I just want to say Cancer Sucks !!!!!!!!!!

    Lighthouse, you and I are 1 Tx apart, your 1st Tx was the same day as my second one, I go for my 3rd on 9/12, do you have your 2nd then? I am praying for good results on your PET scan results and I agree I do not think sleep or anything in my life has been the same since my dx😝

    Cutikoo, I hope you have done ok with your 2nd Tx and I am praying for minimal SE'S, peace of mind and rest for your spirit.

    Cany07, Nice to see you back, did you get the Neulasta shot? That really make s me achy all over my body, the Claritin did help but I still felt like I had the flu for 6 days. Good luck on your 2nd Tx on Friday, I hope all goes well.

    Mankatoatat, I think 3:00 AM is the magic hour for waking up, I cannot tell you how many times I look at the clock and it is 3 AM. Too had a low WBC after 1st Tx and tomorrow I do labs to check and see how counts are and I agree having our head shaved is liberating, in a since😉

    LisaSp, I am sorry that the passing of your Mom and your Dx was so close together, that makes it so much harder. My Mom and Dad passed away 9 years ago and I have was crying yesterday wishing I had my Mom right now through all of this, it just sucks not having them!!!!!!!!!

    FMGD, I wish I had a sunroof in my truck cuz I would let the sun shine on in, but it is Fall, my favorite season so I will now get outside and soak up the beautiful fall sunshine🌞 Until next week then Tx #3and then whammo again.

    Sharonanne, enjoy that coffee girl, eat healthy and be careful around those little ones as your immune system is compromised right now. I could not see my Gavin the other day because he has a cold and that just broke Grrmas heart❤ but if my WBC is ok tomorrow I will get to see him, I think I am having Gavin withdrawals. 😛



    Hoping everyone has a blessed and beautiful day.



    Shary🍁

  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited September 2013

    Itsmyjob, Welcome I am glad you found us😄I have had 2 rounds so far and I have found that day's 3-5 seem to be my worst but as you will find out and read everyone is so different. Glad to have you here🌹

    LisaSp, good luck today and hoping PS does not scare you.

    Wing48, My hair started coming out in clumps on about day 14 but after my 2nd Tx in hunks so I had the Hubbs shave it for me on day 16, it still feels weird but freeing at the same time and I also feel like it is one more step closer to the end of all of this madness😝



    Shary🍁

  • Shalimar630
    Shalimar630 Member Posts: 100
    edited September 2013


    Welcome itsmyjob. Share, vent, ask away...

    I have my second tx next Tues, so right now I'm feeling pretty decent. I haven't lost any hair yet, day 15, so I'm waiting, waiting, waiting. Head feels kinda numb so I'm expecting it anytime. Haven't lost it (ahem) anywhere else yet though either. Thought that was first...

    Is anyone considering getting a medical bracelet for their restricted extremity?

    LisaSp and lighthouselady hope its all good news for you.

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    Lisa, I hope the plastic surgeon gives you good news. I'm a little jealous, if you can believe that. I have always had such big boobs that I was hoping for a mastectomy so I could get size B.

    Itsmyjob, Hello and welcome. If you will find out anything about breast cancer side effects, it will be on this thread. Everyone has different side effects at different times, so I'm sure you'll be right there with someone on the thread. We pray a lot and we'll start praying for you. Get ready for a miracle.

    Shary, I can empathize with you haveing Gavin withdrawal. I'm having Chelby withdrawal. She came to the door to bring me a card, and left in a hurry. I'm being very careful. I turned down a first grade subbing job today because this it the 10th day. I have an aide tomorrow and Friday in the class where I'll sub. Need the money really badly to help pay these medical bills. Medicare has been cut already and it makes me want to scream. We've always had great insurance all of our lives, and now this.

    I am confused about the time we're most prone to pick up an infection. After chemo, we get the neulasta shot the next day, and in a week, we go back for CBC tests. My WBC was way high and that was day 8. The RN said I would be open to infection the whole time during chemo, but that days 7-10 were the worst. My MO had said I shouldn't sub the first week, but that weeks 2 and 3 would be ok, but that second week takes in days 8-10. What am I missing? My class reunion is on day 5 of my third infusion and I want to go so badly. Couldn't I be put on an antibiotic during that time? Help.

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    One of my dear aunts died this morning. She is part of the reason I am a Christian today. She will be missed. She had alzheimer's and had three heart attacks within 2 days, and died. She would not have wanted to be taken care of, although my uncle took care of her for the past years of her illness. She was not bed-ridden, though, but he was just about to throw in the towel. I'll miss her dearly.

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    For my granddaughter, that was beautiful!

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Lighthouse good luck win PET result, don't worry!

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Lisa, good luck!

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    It's my job, welcome, u can share whatever u like and ask whatever u like, there's no set standard or list of things u must reveal to us. U do as u please!

  • naan1004
    naan1004 Member Posts: 520
    edited September 2013

    Sharon ask your onc or nurse about infection high days. I'm so sorry for your loss, she sounds like a great aunt!

  • Togetherness
    Togetherness Member Posts: 202
    edited September 2013

    Sharon we definitely will have to share numbers. I would luv to meet you. You sound like one tough cookie. So sorry for your loss. Death is hard no matter at what age or what causes it.



    Lisa I will be curious to see what your plastic surgeon has to say. I am like Sharon I was a DD and I am only 5' tall..... Can you say Dolly Parton??? I have had a dbl masectomy and will be glad to get my new Barbie doll size foobs. I really don't care at this point as long as I am free of cancer. He can take these TE out and leave me flat chested.. I just need to get through two more rounds of chemo. I can't even think about what surgery will be like. However I did breeze through the masectomy, but this chemo is like a tornado it is destroying everything of me. I am really ready to ask do I really need two more treatments. I have taken all the precautions and will have surgery on my one ovary that I have left. It will be removed in the spring.



    Shary I like your comment to end this madness. When will it end after chemo, after surgery for me, when I return to my life duities, my job, when will there be " normalcy" because this is nothing but normal for all of us.



    Also one more thing I do not have a port but noticed today that I have a huge rash on my arm where I have been having blood draws and the chemo. Does that mean my veins could be collapsing? I dont see a vein one. I really don't want a port with the side effects that it can cause. I am over side effects.



    I have reached out to do some yoga classes. I walk everyday. I just want to feel better mentally and physically. Does any one have recommendations for books to read?

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    FMG, I missed that until I saw Naan's comment. That truly was inspired. Thank you for writing it for us.

  • raynaj
    raynaj Member Posts: 236
    edited September 2013

    Togetherness:



    The rash you have is probably a small bit of chemo burn it happens when they pull the needle out it spills a small amount of the chemo drug under your skin and can be very corrosive to skin. This has happened to me twice already. If it starts to blister get an ointment to put on it or even sooner.

    Love, Rayna

  • raynaj
    raynaj Member Posts: 236
    edited September 2013

    Well i was nervous today as if it was my very first but it was my third. They decided to change me to A/C (the red devil) and i was on T/C but was having too many allergic reactions where my throat was closing up. So its a whole new drug and haven't a clue as to how i will react to this one. I've heard a lot of you have nausea and vomiting and i never had that on the other one so i hope that doesn't happen. They do have me on good meds though. So praying everything goes well. Think I have a nap feeling a little tired but only slept 4 hours last night, darn steroids.

    Love, Rayna

  • Togetherness
    Togetherness Member Posts: 202
    edited September 2013

    Thanks rayna.... I will put an ointment on it before it starts to blister. Now that you mentioned it it does look more like a burn than a rash but under the skin.

  • candi07
    candi07 Member Posts: 188
    edited September 2013

    Sharon, so sorry for your loss. My thought and prayers are with you and your family.



    Regarding my pain, it's really weird that I'm having pain 3 weeks after my first treatment and neulasta shot. I will mention it to my MO.



    Praying everyone is having a blessed and SE free day,

  • lighthouselady
    lighthouselady Member Posts: 752
    edited September 2013

    PET scan was clear!!!  :-)    So nothing other than what we already knew of in my breast & lymph node(s).  Woohoo!  Also, the MO examined me and said my tumor "felt softer" - after only one treatment!  Die cancer, DIE!  Smile   I'm still having low blood pressure & weakness, but other than that no sickness & feel pretty ok.  My WBC count was low, but not dangerously so, so unless I have a setback, I'll be good to go for #2 next Thursday.  One thing I'm not happy about is after my four AC treatments, I have to have Taxol (already knew that) but he originally told me dose dense Taxol x4.  Now he's saying weekly x12.  Ugh.  Just the thought of twelve more treatments vs only FOUR after AC, AND with me doing the cold caps???  That's a huge deal to me.  So I'm going to have to try to talk him around between now and then.  Maybe if my cold caps are working, my hair will speak for me.  LOL  He's never had anyone use them before, so I'm kind of an anomaly.  Everyone asked me in the doctor's office today how my treatment went with them, and the lady in the lab said it was "so exciting" that I was trying it.  Hopefully I'll have good results! 

    Prayers for everyone having treatment today and/or SEs.... Rayna - I think if you stay on top of your nausea meds, you should be ok on the AC.  Once they found the medicine that worked for me, I was ok after the second day and have had no nausea since.  It just took us a day to decide that phenergan isn't strong enough and zofran makes me vomit.  LOL  Also, be prepared to see red when you pee!!  LOL   It goes in red, and comes out red, at least for the first 24-36 hours!

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