Port or IV for chemotherapy?

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hope70
hope70 Member Posts: 47

Please advise me. I am about to start chemo AC plus Cytoxan every 2 weeks x4 treatments, then Taxol plus Herceptin every week x 12 weeks, then Herceptin for 9 month every 3 weeks. I am 43 y.o. Had mastectomy 2 weeks ago ( right side). My oncologist did not suggest to place a port. Onco-nurse said I am going to be fine with IV infusions. I am worried about my veins . Will they be ok for such numerous treatments. Please share your opinions.Thanks.

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    I would personally choose to have a port for two reasons - first, you will be having infusions for a year and you can only use one side for a needle stick/IV/blood pressure check due to your mastectomy and SNB.  Second, Adriamycin can damage the skin if your infusion were to leak - it is a very caustic drug.  It is too bad that you did not have a port placed during your mastectomy surgery.  It is hard to say whether your veins will hold up to that many sticks during your year of infusions - in addition to your IVs, you will also need a number of blood draws.  I would also advise that if you are having a port placed, put on your bra and designate where you want the port located- having a bra on will help put it in somewhere that causes the least interference with bra/clothing, and can also be well hidden if you are concerned about it showing.

  • leggo
    leggo Member Posts: 3,293
    edited September 2013

    Over the course of seventeen years, I've been through several different chemos, including Herceptin and Pamidronate monthly for years and have always declined a port. Only in the last couple of years have my veins given me trouble...trouble that I suppose could have been avoided with a port, but for me it was a personal thing. It would have made me feel even more like a cancer patient. Even now, looking back, I would have made the same decision, but like I said, for me it was a personal decision, rather than medical.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2013

    I second what Special K said. If you get a Power Port, you can also use it for blood draws and imaging injections. That being said, some do fine without them and don't mind being "stuck". Me? I love my port!

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited September 2013

    I have to agree with everything specialK said. At my second A/C treatment I had the reaction and they had to remove the IV then had a hard time putting it back. I looked at my nurse and asked for the script for placement. It was an easy procedure and the only time it bothered me was when I wore a specific bathing suit. So I got a new one! It really helped on the days when they wanted more blood than a finger stick could give and the two times I had to stay in the hospital. I recently had mine removed and that was even easier than having it placed! Did it right in the office. You'll be going through a lot the next year so make it as easy as you can. Oh and here is a bit of advice I wish I had: have it placed the day of treatment if you can. They'll leave it accessed so all that has to be done is hookup the IV. I had it done a few days before and it was still healing and the pain was awful! Also get a numbing cream. I would put it on on my way to treatment and didn't feel a thing when they accessed it.



    Good luck!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    Forgot about the numbing cream - it is lidocaine cream, by prescription, called Emla.  I put it on an hour before leaving the house and put a piece of plastic wrap over it.  I also asked for the numbing spray as they accessed - never felt a thing.

  • aaoaao
    aaoaao Member Posts: 593
    edited September 2013

    Personally I love my port.  I have a severe adversion to IVs. I do okay with blood draws and injections but getting that IV tube into my veins hurts and freaks me out.  My port is so easy to get the chemo through.  I don't even use the numbing cream because the poke from the small needle is slight and quick.  My port is on my right side just under my collar bone.  It doesn't bother me at all.

    Also some chemos are more dangerous going through an arm IV, which is why I got my port in the first place.  I was told ANY leakage of the chemo I was on could cause permanent damage to my arm.  I didn't want to take that risk. 

    If you want more port information there is a thread call...port placement.  It details the implant procedure.

    I agree it is a personal decision.  Some do okay without it but I would never have gotten through chemo without it.

  • aaoaao
    aaoaao Member Posts: 593
    edited September 2013

    The link for the Port Placement thread is:

    http://community.breastcancer.org/forum/69/topic/721889?page=19#idx_555

    It gives a detailed description of the placement of a port and the experiences of people who have gotten them.

  • hope70
    hope70 Member Posts: 47
    edited September 2013

    Thank You, ladies!  I lean toward the port placement. I am puzzled why my onco-nurse immediately rejected my suggestion to place a port. Why would she be so against it?  I will call the office tomorrow to bring up my concern again. My first chemo is scheduled on the 12TH PF Sept, so I do have a little bit more time to make a decision and to push it if the Doc/Nurse will resist. Still do not understand why they declined it right away. If there is a problem down the line , the port may be placed in , but during the chemo the chance of infection is increasing, so why not to be proactive and do it before....

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    Also wanted to add that I finished chemo in June of 2011, Herceptin in January of 2012, but I still have my port.  It is very small (I have a Ped port) and subclavian, like aaoaao it is just below the collarbone but on the left, and was implanted during my BMX so I have no incision or scar.  To remove it would cause one so I have just left it there - plus, I am a bit superstitious - since I left it I don't really need it, if I remove it I will need it - crazy logic, but there it is.  I have it flushed every six weeks at my onc office and still have blood work done with it.  I have bi-lateral lymphedema, right side is worse, so this is for the best.  It is not noticeable, is in plain sight all the time due to its location, but it is no bother and I have no discomfort from it at all.

  • hope70
    hope70 Member Posts: 47
    edited September 2013

    Thank You SpecialK. I want to hear reasoning  from my MD/RN on their decision that I don't need the port. It does make sense to ease the pain, make the procedure simpler for the patient and for the  chemo administering nurse. Seems like port does not have more risk of infection then the IV. Why would they oppose it... 

  • encyclias
    encyclias Member Posts: 302
    edited September 2013

    I agree, SpecialK, that perhaps removing my port may be bad luck.  I've kind of gotten attached to it since it was installed last Oct.  Have had a myriad of uses for it!  I don't use numbing cream; it's just a little pin stick, I've had a lot more pain from a wrist blood draw.

    If I  touch a 12" ruler to the bottom of my earlobe and go straight down vertically 8", that's where my port is located.  I am barely medium height; I would guess someone much taller would rate an extra inch or so than the 8.

  • crazyride43
    crazyride43 Member Posts: 154
    edited September 2013

    I had one infusion of A/C in my hand, and then got a port.  So happy I did!  The vein in my hand that was used for just that one infusion was in rough shape for more than 6 months - a big knot and tender.  My chemo nurse sprayed numbing spray on my port before each stick (no pain at all), and I also had blood draws.  I had chemo before surgery, so my surgeon just removed my port during my lumpectomy.  Easy!  

    I do have a different opinion about port placement.  I also read that you should make sure the port isn't under your bra strap, so I was very careful to show my surgeon where I wanted it.  Now that it's gone and I have a scar, I actually wish it had been placed more under my bra strap.  I'm fine in most shirts, however scoop necks and anything with narrow shoulder straps clearly show the scar.  I feel like I could have "cushioned" my port site under my bra strap while in treatment, so I could avoid the visible scar later.  But that's just me!  And it's a small thing that doesn't bother me much at all.

    If I ever need chemo again (I'm hoping for never), I wouldn't hesitate to have another port placed.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2013

    I did a port because chemo can be hard on your veins. You never will want to get any sort of IVs, blood draws, blood pressure monitors...nothing on your affected side.... ever again because of the risk of lymphodema. So that just leaves you with one 'good' arm for anything medical.  I didn't want to take the chance of messing up the veins on that side with chemo drugs.

  • MizMarie
    MizMarie Member Posts: 332
    edited September 2013

    Hands down, a port is the way to go.  My MO sent me right away to have a port put in - never put it to me as if there was an option to do otherwise, but I am so glad to have had it.  I had pretty significant blood count issues, and had to have several transfusions, plus 2 hospital stays, so I got a lot of mileage from my port.  That said, I had it taken out a month after my final Herceptin tx.  I am not superstitious, and it never occurred to me to keep the port "just in case".  I don't plan on needing one ever again, but if that happens, I'll just get another one.

  • sherry67
    sherry67 Member Posts: 556
    edited September 2013

    Hope70,

    My Mo sent me for a port due to all the Tx...which I defenitley needed due to the issues I had with tx and my counts being low...I needed many transfusions. Plus I've fluids during my tx portion....I had my port out Feb 15,2013 almost 2 years after tx was finished...As you can see from my signature line I had a lot of tx..

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited September 2013

    I think any onc or his assistant is completely ignorant about the port issue, especially for a patient who is HER2+.   Where have they been studying.  Sorry, i just have to vent.  This flippant, ignorant attitude could cause you a lot of pain, vis a vis lymphadema, blown veins, etc.  I'm glad that Special K could address the issues of having a port.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2013

    The exact location for the port is one often debated. I have thin, narrow shoulders and there is a definite small hollow where my shoulder meets my upper chest. That's where my port is and yes, my bra strap covers it but doesn't rub on it. I have the very small Bard power port petite. Three tiny bumps that don't project much. No one has ever asked me about it but, then again, unless I'm in a swimsuit or shoulder baring sundress, it's not visible. I truly can't imagine tx without it.

    Caryn

  • Boleo
    Boleo Member Posts: 5
    edited September 2013

    I'm in the middle of taxol after my AC treatment, and I have a port on my left side. I'm not sure it's worth it as I find it very ugly and cumbersome, but I don't know what treatments would be like without it. I do recommend that if you get a port on your left side that you get a sheep-skin seatbelt cover for your car. Driving was painful to me everyday (due to seatbelt pressing against my port) until my sister found me this fantastic product. 

  • aaoaao
    aaoaao Member Posts: 593
    edited September 2013

    I kept my port for several years after finishing chemo for my first dx.  I was going to have reconstructive surgery and I also was going to have surgery for a severe hiatal hernia.  I figure it would come in use for those procedures and then I could have it removed during the reconstructive procedure.  However, life has a funny way of surprising us.  I was dx with Stage IV bc with bone mets just this May.  I will be doing some form of chemo/hormonal treatments and numerous scans/test for the rest of my life.  I so glad I still have my port cause it saves me from having IVs all the time.  I have a over-whelming fear of IVs.  I literally get dizzy and puke whenever they're put in.  I know it's a panic attack but I can't help it. I think it's from all the IVs I had as a child due to unrelated health issues.  I'm not superstitious, I don't think keeping or getting rid of my port had any effect on my cancer recurrance.  I do respect some may feel differently, I'm not here to judge since my IV fear is probably irrational.  I think getting a port or not is a personal decision but I LOVE mine.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2013

    Placement area does play a big part in how happy you are with a port. I know my avatar pic is small but if you look at my dress (I am not the bride:) you can see that the sleeves covered very little, but they did cover my port.

    Caryn

  • MiracleMileM
    MiracleMileM Member Posts: 103
    edited September 2013

    I love the port because it makes the infusions so easy.  I was stage IV from diagnosis and I am still receiving Herceptin infusions almost 6 years after diagnosis.   No pain at all since I ragdoll before the stick and barely feel it.  I strongly recommend a port.  I just wonder how long it will last before a replacement.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited September 2013

    Miraclemile, ports are supposed to be good for over 10,000 sticks.

    My port is actually just below skin level. Only the little scar shows. No snagging problem. I have seen people use clip-on flowers or fake jewels over their t shirt strap to cover the port. I calculated that with my little "scenic detours" on my cancer journey, I was poked in the port about 75 times. But I would have been poked over 3 times that amount if they had to stick me for each tx, transfusion,iv antibiotic, magnesium, potassium, etc. So I recommend the port. Much love

  • hope70
    hope70 Member Posts: 47
    edited September 2013

    Thank you ladies! I am getting my port "installed" tomorrow. Thanks again for all the opinions!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited September 2013
  • aaoaao
    aaoaao Member Posts: 593
    edited September 2013

    Moon, it felt like I had 10,000 sticks last Wednesday with all the tests I had done.

    If anyone would like more info about port placement and advice from people who got them there is a thread.

    http://community.breastcancer.org/forum/69/topic/721889?page=19#idx_556

  • ThePowerOfPink
    ThePowerOfPink Member Posts: 22
    edited October 2013

    I agree with Leggo 100%. 5 years for me and your 17 years and still not regretting it helps.  I just wanted to add for future Sisters researching.  I do hope all goes well with your port Hope70. I have met many people with and without ports. It is just a personal choice. Either way is good if that is what you want. xoxo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2013

    I just bumped up the port placement thread.

  • mercedes24
    mercedes24 Member Posts: 14
    edited December 2013

    I had a very bad experience with the port , it was always clogged, never worked during my treatment , and so much pain in my chest , I think my body was rejecting , I was poked twice every time  ones in the port(was not working) and ones in the hand for the IV  for me was a pain in the butt .And on top of that when they took  it out left me with  a big  scar ( like someone stab me ) it suppose to be  the easiest thing  and it cause me  more pain than all the treatment .

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