Breast Cancer at 31!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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RoxanneNJ31
RoxanneNJ31 Member Posts: 180
edited July 2020 in Young With Breast Cancer
Hi Im Roxanne and here is my story.

My ex boyfriend had found a lump at 29 years old (at the time no insurance)but I didnt' think anything of it since I was only 31 (dumb I know)so when I was 30 I decided that I should go to Planned Parenthood for a GYN check up. I mentioned in passing that I had this lump in my left breast but the doctor was not concerned because of my age, the softness of if and it moved, so she said it was probably a fibro edema and i should worry.

One year later, June 30, 2005 (31 now) to be exact , I went to my regular GYN (had insurance now, again in passing I said oh i have this lump in my left breast and its getting bigger and he said that he wanted me to get a mammo and a Fine Needle Aspiration Biopsy. Went to the hospital and my horror came true. BREAST CANCER.

I then was ordered to go for a PET and Bone Scan, Breast MRI, a Cat Scan and a Chest Exray stat.

All the results came in, ER+/PR- HER2- 4.7 cm grade 3 cancer. I couldn't believe it. I really guess I was nieve becuase I didn't think breast cancer happened to younger women (under 35) since you don't hear about any required testing under that age.

Well the Breast Center wanted me to be with the Chief of Breast Surgery. Once I met with her she referred me to my onc. Once the onc read my scans and chart she decided to do 4 rounds A/C and then 4 rounds taxol dose dense. She explained that i would go bald but the hair would grow back and there would be some side effects from the chemo. I was given an appointment to get a "port" put in which connected to my juglar vein in my neck.

Had my first chemo (still working less the day of chemo and day after) but my neck really hurt like i slept wrong. i couldnt' pick up my head but thought it was a side effect from the chemo. One week after my first chemo I went to the Doctor and she was like go see the the surgeon (who put my port in). More bad luck. I got a blood clot from the port and had to go to the hospital for 5 days. They took the port out and gave me something called a PICC line which ladies is the worst thing ever. It is external port on your arm and it is a pain. I hated it.

Needless to say, I went through all 8 rounds of chemo (still working), all my hair fell out (was Uncle fester for halloween, had to use the bald head while I could), now were up to surgery time. The surgeon and onc decided lumpectomy node removal and radiation. ok Went throught the surgury (easiest part believe me) went back to work four days after surgery and then got the bad news. Even though did chemo first, they still found 2 cancers nodes so back to chemo I go this time 6 rounds gemzar/carbo cocktail. Went through that now im on 18 of 33 radiation treatments.

I felt like I was in a whirlwind but I have to say I was never scared, you would think you would be but I wasnt' I just did what the doctors said to "cure" me. I never gave up and stayed with a positive attitude. I always tell the nurses that I am way to busy to die. While all this was going on, I went away, lived my life, worked two jobs and bought a condo. Everyone deals with things differently and there is no right or wrong way but the way I lived I felt I actually lived and I am still here to tell about it which is the greatest gift of all.

Good luck and god bless everyone because its scary and a struggle but we do get through it.

Comments

  • lynellb123
    lynellb123 Member Posts: 69
    edited July 2006

    Wow Roxanne, that's an amazing story. I'm in awe of your strength and courage. I like your attitude-stay strong!

  • badbabe56
    badbabe56 Member Posts: 46
    edited July 2006

    Roxanne I just read your story, I was diagnosed when I was 33 and I was 7 months pregnant, blocked milk duct ws thought to be the cause, well it wasnt and like you it grew, but due to my pregnancy at a rapid rate, I had my mast when my daughter was 7 weeks old, she is now 16 and I have had a clean bill of health since, I did chemo, implant and 10 years later tram flap, be thankful you have this wonderful site these days, i would of loved it, special prayers to you for you health and happiness

  • EileenB
    EileenB Member Posts: 1
    edited September 2006

    I can totally relate!!! I was 22 wks pregnant when I found my lump--and started chemo pregnant too!!! I've been working also---I'm a teacher--who has a choice??!! We need the $ and insurance!!! It's Sept and I've been doing this since April---it's like the Battan Death March---it takes so long!!!! Good Luck!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2006
    Wow Roxanne..what an amazing story!! You are one tough cookie that's for sure! I am just sick that someone so young has to go through this...it is just WRONG WRONG WRONG.

    Good luck with the rest of your rads...something tells me you'll be CELEBRATING at the end of all of this!

    Hugs
    Peggy
  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2006
  • AmandaHealey
    AmandaHealey Member Posts: 7
    edited October 2006
    Hi roxanne.........
    you are so brave.
    But I know how you feel.
    I'm 27yr. old and i have grade 3 w/ lymphavascular invasions ER-PR+HRE2+, and I have 4 wonderful boys there ages ar 4yr,2yr twinns, 7mo.
    I just started a/c 10/12/06 I'm still sick todays 10/14/06
    but getting to be managable.
    well all my payers are w/ you and good luck
    amanda
  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2006
    Roxanne: Yes you do indeed sound like a brave person. Too much to go through at such a young age.

    It bothers me, I keep hearing more and more about young women being diagnosed, yet the recommendations for mammograms starts at age 40!

    We need to change this. Men are screened for prostate cancer much more often than women are for breast cancer.

    I guess the lesson learned is that no matter what age you are, a lump is a lump, and no one can tell just by feeling it whether it is benign or cancer. We must be advocates for ourselves and how we are receiving health care advice.

    Nicki
  • mkl48
    mkl48 Member Posts: 350
    edited October 2006
    Nicki,

    Most Men do not start regular PSA screening until age 45- 50 unless there is a family history. Age 35 if father etc had before 50. It is a yearly exam just like Mammo. The truth is that women get breast cancer far younger than most men get prostate cancer.It is often a slower process. Men should know that the rate of PSA increase is just as or more important than a normal 4 or less. Beth
  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited August 2007
    UPDATE!!!!
    6 months after my last radiation treatment, I was having serious pain in my arm and after so many doctors, so many tests i was diagnosed with Stage IV breast cancer with bone mets (four to be exact). I started advastin/abraxane, zometa & zoladex. My doctor is optimistic as I am and after 4 treatments the pain in my arm stopped (thank goodness).

    I feel lucky to have such good doctors and good "sisters" around me and hope that my story can help others in that be persistent and always find out if the treatments are the best available.

    God bless all of us soliders as we are in the true war.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Roxanne,
    NO! Remember me? You wrote to me just moments after I was dx. and sent pictures of your chemo haircut. You really helped me through.

    As always, you humble me with your amazing outlook and demeanor.
    Love and prayers, Deb
  • corvette
    corvette Member Posts: 41
    edited September 2007
    Roxanne
    I think you can say "cancer at age 29!! DX at 31!"

    This shouldn't happen to any woman but when it's someone as young as you it is really heartbreaking.

    I wish you a complete remission until you are at least 100 years old!!!
  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited April 2008

    Hey everyone,

    Still in Treatment but they dropped the Abraxene and now I go once every three weeks for "maintenence". Advastin, zometa and once every three months for zoladex.  I am doing ok hanging in there.   Just very fatigued but overrall doing really well.....

  • RoxanneNJ31
    RoxanneNJ31 Member Posts: 180
    edited April 2008

    oops hit the wrong button. 

    Hey Deb, Of course I remember you how are you feeling.   and you are right bc at 29 and dx at 31 sounds very right.

    I hope all my bc sisters are doing as well as me and if anyone needs advice, to talk or anything, please feel free to hit me up on the PM.

    Take care and hugs to all my sisters.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited April 2008

    Glad to hear that you are doing well despite the mets.

    Sheila

  • controlmydestiny
    controlmydestiny Member Posts: 56
    edited July 2008

    Hi

    New to board, 36 yof, found lump 4/08 went to OBGYN thought fibrocycstic, sent to surgeon. Had mamogram and ultrasound that found to be solid and core biopsy to be cancer.  Told by surgeon infiltrating ductal carcinoma and did a lumpectomy 6/5/08, after f/u told more serious, had spider type spread and margins not clear rec a masectomy, I had that 6/15/08.  Ono ordered PET scan on tuesday told me that I had multiple lesion, 2 large ones that he 90% believe mets to the liver.  Still in shock, I went from possible stage one to possible stage for in two months.. Ono has ordered a ct guided biopsy of the liver a mri of the brain for next week.  I live in small town (Mobile, Alabama), thinking about going to MD Anderson in Houston? need advise.

  • farila_1966
    farila_1966 Member Posts: 224
    edited September 2008

    I was dx at the age of 29 and so was my sister.. It is scary to know that sometimes dr do not take the lump seriously when you young.. You are strong person and I send good wishes to you.

  • Jonespartyof5
    Jonespartyof5 Member Posts: 1
    edited October 2016

    I just found this site and this article. Not sure if people still message on here but I just found out yesterday 10/28/16 that have I have breast cancer on my left breast. I'm 31 with a 21 months adorable baby boy. Just looking for more info and feedback as I travel this journey completely feeling lost and scared.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2016

    Dear Jonespartyof5,

    Welcome to the community. We are sorry for your diagnosis but so glad that you reached out to our members. We suggest that you Post your topic in the Just Diagnosed Forum because this particular thread has not had recent activity. Let us know if you need help. You will receive much support here from people who understand you lost and scared feelings. We are here for you as well. The Mods

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited November 2016

    Jones, so sorry you had to join us here. There is a forum here called Young with Breast Cancer and there is a lot of us under 40 that have walked this path.

    This site is great for support and info. If you will go through chemo, I would suggest you join the threads as there are other women doing the same chemo regime or doing radiation.

    I was 33 when diagnosed and I had a miscarriage 4 months before my diagnosis (totally blame cancer for that). I know that it is difficult but you are a lot stronger and gain strength from your little one.

    Once you have a plan of action you will feel a bit more in control.

    This too shall pass!!!

    Hugs!!

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