IDC ER+ PR- HER2+ paradox

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positivenegative
positivenegative Member Posts: 106
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hi y'all. Anyone with similar diagnosis? My oncologist said it is not very common. Any info or feedback appreciated.

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  • lovewins
    lovewins Member Posts: 881
    edited August 2013

    Hello Pos/neg,

    i went to see my bc today and asked about PR- because like you i have not seen very many ER+ PR- HER+, she said the ER- was not important. ????  I am sorry I am new here and don't know anything more about this...I just thought I would share with you that you are not alone with this.  Let me know if you learn anything.  My chemo starts in a month.

    Wishing you all the best...M


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  • Smurfette81
    Smurfette81 Member Posts: 3
    edited August 2013

    I too was diagnosed in Sept 2012 with IDC ER+ PR- HER2+   Had surgery, followed by chemo then radiation.  Chemo and radiation are done.  Still getting Herceptin through December.  Hope you are doing well.

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  • profbee
    profbee Member Posts: 858
    edited August 2013

    Hello!  Those are my stats!  ER+, PR-, Her2+.  I was dx'd in March 2011.  I did chemo (2 separate rounds b/c I did a clinical trial), had a bmx, did a year of Herceptin, and I'm on Tamoxifen.  So far, so good!  I'm still dancing with NED (No Evidence of Disease)!  After my first round of chemo, at the time of my surgery, there was no sign of my cancer.  It's still hard to fully believe, but it's getting easier all the time to believe that this is behind me.  I hope the same for you!!!

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  • Adavisart
    Adavisart Member Posts: 30
    edited August 2013

    Those are my stats too and my onc too said the PR- was not important. I finished TCH on June 11 and am currently getting herceptin every three weeks through February. Have some neuropathy and body aches but I am not sure if that is caused by the herceptin or left over from the TCH.

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  • posnegher2
    posnegher2 Member Posts: 19
    edited August 2013

    Hello fellow er+ pr- her2+

    I was also recently diagnosed with Invasive ductal carcinoma er +++ 93%  pr - 0% her2+. My onc said they prefer to see er+ and pr+ because + means less agressive but still better than er- pr -. At least we can be treated with estrogen blockers. From what I have read and discussed with onc - I am thankful to past research that now provides Herceptin as a treatment. 

    I start chemo next week and I am pretty nervous about how it will affect me and would appreciate any feed back or guidance on the dos and dont's and how the chemo affected you.

    Feeling more hopeful to have read these posts and to find this access to other women with the same diagnosis. It was encouraging to hear from women that have finished or are towards end of their treatment like Smurfette81 and ProfBee  - Thank you for sharing!

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  • posnegher2
    posnegher2 Member Posts: 19
    edited September 2013

    Hello everyone,

    I am going to try to work as much a I can through chemo. So I was wondering how it affected you? What were your worse days.....?

    lovewins - it looks like we are starting treatment around the same time - sorry we are here but glad to meet you and please know you are not alone. We will get through this together. 

    adavisart and smurfette81 -  You two will be our best resources since it appears that you are both in the home stretch of treatment. I wish you both the best and hope for nothing but clear skies ahead.

    ProfBee is our mascot - Congratulations on the NED! You are inspiring and give the rest of us hope to keep strong and know that we can do this. Thank you for the good wishes!

    Good luck to all!

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  • positivenegative
    positivenegative Member Posts: 106
    edited September 2013

    +-2: I'm starting next week as well..ativan was ex for anxiety prior to infusions by my oncologist. Is herceptin on your tx horizon for the +-+ path? Looks like we are sept 2013 chemotherapy sisters too. Good luck :)

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  • posnegher2
    posnegher2 Member Posts: 19
    edited September 2013

    Positivenegative: well it looks like we are in this together. It is nice to meet someone with the same diagnosis.

    - wish under better circumstances - My chemo postponed I now start first tx on Monday. 

    Good luck with your treatments as well - and let me know how you are doing!

    Good night Smile

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  • posnegher2
    posnegher2 Member Posts: 19
    edited September 2013

    positivenegative:

    Yes 6 cycs TCH - herceptin 1 yr - followed by rads and ER blocker 5 yrs. How about you?

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  • chenrydc
    chenrydc Member Posts: 1
    edited September 2013

    So... this might be nice for you guys to hear. I'm 38 years old and 7 1/2 YEARS cancer free. I was ER+, PR-, Her2+ when I was dx in March 2006. My treatment back then was 4AC, 12 Taxol, Tamox, Herceptin (12 months), oopherectomy (ovaries & tubes removed bc I'm BRCA2) and finally aromasin. (Arimadex gave me migraines) 9 cm of cancer in my left breast (2 cm invasive), 3 nodes positive with the first being Extranodal extension. (growing out of my node into the tissue)

    What does it feel like to be 7.5 years out? Well... it feels amazing, blessed but there are definitive cognitive issues I struggle with. Memory issues are severe, anxiety, fatigue. Overall I'm awesome (I really am pretty awesome) but you know... cancer is the gift that keeps on giving.

    I used to love it when people would post after being cancer free for several years, it's encouraging to those who are in the foxhole of treatment.

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  • positivenegative
    positivenegative Member Posts: 106
    edited September 2013

    Thank you for the hope dc :-)

    Are you still on any meds at 7+ yrs?

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  • positivenegative
    positivenegative Member Posts: 106
    edited September 2013

    How's tx going? Last week I got diagnosed stage 4 with mets. Hope all is well with you.

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  • denise4603
    denise4603 Member Posts: 132
    edited October 2013

    I have the same diagnosis IDC ER+ PR- HER2+  My doctor says if the estrogen receptors are positive, we don't worry about the progesterone.

    Sorry to hear of your mets positivenegative, how is the taxol/herceptin affecting you? That's coming up for me soon.

    Denise

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