Charleston Bound, part 2

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  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited August 2013

    Kat



    Enjoy your visit to Charleston! The rain has been insane but still hoping for blue skies ahead. I would love to meet you if times work out. Take care!

  • bethcw
    bethcw Member Posts: 98
    edited August 2013

    I tip to ladies planning for air travel, Southwest does not charge change fees if you have to change your plans.  You just have to pay the difference in airfare and you have to use your ticket within one year.  A lot of the NOLA ladies use Southwest for their travel because of that flexibility.

  • ketch
    ketch Member Posts: 157
    edited August 2013

    Panda, sorry about your reschedule. I was hoping to meet you in 2 weeks!

    Pink, I will report back on the nipple tats. I am going to get her to do eyebrows too. I looked at her pics and they look good. Since chemo, I have eyebrows but not much. I've even been thinking of doing those before my Dec surgery.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    Thank everyone...it was just a bad week all round,both our cars need major work and some other bad news,but worst of all was my little dog died.I had been dreading leaving her,we had a very special bond.So I thought at least I could go for the surgery and not have us missing each other.Then to find surgery would have to be rescheduled,I just went to pieces.I did get a more postive email from US Air this morning,should know in a week or so...so I am trying to calm down and just be more accepting...I checked Southwest and the closest airport is about 3 hours one way and the flights were more than double in price..now I am worried about the return flights..but it seems maybe the insurance would cover them as the flight home is not for medical treatment? Or does it mean they cannot be rescheduled if it is for medical reasons?I wonder what exactly they accept to reschedule? I will look into all that.It really seems like a form of discrimination. ketch,I was really hoping to meet you...but thanks SO much for the thought about the eybrows..I have one that is very sparse and I hate it..there is a woman near me who does permanent makeup and offers a 50% discount to cancer patients.Not sure if you have to be in active treatment but I am going to call and find out.Has anyone had their eyelashes tinted? I never needed mascara,but mine came back very light and I hate mascara,though it sure makes them look better..Oh and what is the Charleston weather like in early October? I have been planning for heat,but maybe it is cooler by then?

  • montrial
    montrial Member Posts: 48
    edited August 2013

    Panda:  So sorry to hear about all you are having to deal with, especially the loss of your beloved dog.  They say, "Bad luck comes in threes", so your's should be behind you now.  I will pray for nothing but smooth sailing for you in the months ahead.  I am a pet lover and know how devastating it is to lose one.  The following always gave me comfort when dealing with such a loss:

    The Rainbow Bridge:

    There is a bridge connecting heaven and earth.  It is called the Rainbow Bridge because of its many colors.  Just this side of the Rainbow Bridge there is a land of meaows, hills, and valleys with lush green grass.

    When a beloved pet dies, the pet goes to this place.  There is always food and water and spring weather.  The old and frail animals are young again.  Those who are maimed are made whole again.  They play all day with each other.

    There is only one thing missing.  They are not with their special person who loved them on earth.  So, each day they run and play until the day comes when one suddenly stops playing and looks up!  The nose twitches!  The ears are up!  The eyes are staring!  And this one suddenly runs from the group!

    You have been seen, and when you and your special friend meet, you take him or her in your arms and embrace.  Your face is kissed again and again and again, and you look once more into the face of your trusting pet.

    Then you cross the Rainbow Bridge together, never again to be separated.

    My thoughts and prays will be with you during this most difficult time.  I hope everything else falls into place for you.  Always wishing you the best -- Montrial

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Panda - so sorry for your loss. It was good that you were there with her. Charleston weather in October is quite warm. Mid 60s to 80s. With some 90s. A light jacket will be perfect. We don't really have seasons like you do so that crisp fall weather just doesn't really happen here. The ocean helps moderate our temps quite a bit. Whatever you had planned will probably be just fine.

  • lbrewer
    lbrewer Member Posts: 766
    edited August 2013

    I'm thinking about doing eyebrows too!  There is a lady on the board name Judy who owns FaceCrafter in Sarasota Fl.  She is a BC survivor herself and does the nipple tats for Moffitt Cancer Center.  She doesn't charge BC patients.  She does all the other  cosmetic stuff as well'  She is always willing to advise even if you're not in the area.

    http://facecrafter.com/

    She posts in the breast reconstruction forum mostly and is facecrafter.  Her office is by my daughters house so I met with her once while I was visiting and we chat frequently. She was going to do my tat but then I had a reoccurrence so its on old.

  • lbrewer
    lbrewer Member Posts: 766
    edited August 2013

    The eyelash tinting is questionable.  I looked into it and the FDA has real issues with it.  After chemo and Arimidex mine are virtually nonexistent. And to amke it worse, I have severe dry eye and have to put drop which are essentially vasoline in my eyes.  So even waterproof mascara runs all over my face.  I tried Latisse.  It worked but is expensive and I ended up with an eye infection.  So its falsies for me on special occasions.  Extensions were cool too but upkeep is expensive.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    Montrial and Marty,thanks so much.I wish you could have known her,she was a very opinionated,very strong little one,exactly like my mother in a dog's body.She kept me going through some hard times.She only weighed five pounds,but thought she weighed 100!We had 13 wonderful years and she died in my arms.I am grateful that her end was fast and painless.Marty,are you saying  I can't buy any more clothes???!!!!!    lbrewer,thanks for the info on the eyelash tinting,I figured it might be risky.I have never in my life worn make up and at 60,I am having a hard time with it.Maybe I just haven't tried the right mascara,but how would anyone who is make up challenged choose one?

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Panda - new clothes after you get new body. Mascara - just buy at the drugstore or target. Cover girl, maybelline. Whatever suits your fancy. Don't get overwhelmed its only mascara. My main staple as I have white blond lashes. It always goes to hospital with me (and everywhere else).

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2013

    made it home...only 6.5 hrs

    Can't wait for drain to be gone...errrr

    my bed is callling me

    Maggie

  • lbrewer
    lbrewer Member Posts: 766
    edited August 2013

    welcome home, Mags.  You made good time in all this rain!

  • lbrewer
    lbrewer Member Posts: 766
    edited August 2013

    Panda, I wrote this last night but forgot to hit submit!  Anyway...go to any upscale dept store in the mall and go to the cosmetic counter.  They will do complete makeups.  Lots of brides do it for their wedding!  Buy one  (or two) things you really like and get the rest at the drugstore.  I like DIOR the best but thats just me!  If you go when there's a special, its even better!  I think after what we go thr, we deserve a pick mem up.  I had my eyelids done after my first DIEP!  I hate BC month, but here the upscale makeup manufCTURES host a beauty weekend in Macys that my daughters and I go to.  We all get redone!  And lots of free stuff!

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2013

    and say goodbye to the drain!!!  I knew she would let me pull it YEAH...drain #16 was shortest ever for me

    Maggie

  • Cherrie
    Cherrie Member Posts: 1,423
    edited August 2013

    Oh Maggie that is awesome! How are you feeling? Rest and hydrate.

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2013

    I feel terrific...she really did a minimal revision for my benefit.   Think we both needed to know that I can have breast surgery without complications.   Oddly enough this was the first surgery (besides port) that I woke nauseated...quickly fixed through steroids of course...which have the wonderful se of no poo poos :(   At least now on day 4 it has started to move.

    makes me think...I was very stressed about this surgery ahead of time and was extremely stressed before the port surgery...is there a connection to pre surgery stress and post op nausea??

    lbrewer...not much rain except through Jacksonville and 30 mins from home so my hubby booked it.

    Maggie

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Maggie - so happy for you. I was nauseated the first time in Charleston, but not the second time. Dr. M went light on me because of my DH's surgery the next day. December may be a bit more challenging for both of us.

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    Mags,glad all is well..and I think stress plays a huge part in how our body reacts to things.Sounds like you are very happy!!Marty,I have to buy a couple more tops,I live up here in chilly NY and have very few summer clothes.Plus I have not really bought any clothes since I was diagnosed.I am trying to buy things that I can wear before and after.  lbrwer,yes, I will try going to the department store,great idea.I have tried some mascara,but it feels so sticky on my lashes and there are so many kinds,overwhelming for me! I would love to have something done for my under eye wrinkles,good for you on the eyelids.....I agree we deserve to look and feel our best.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited August 2013

    Panda - try ULTA if they have one near you. If you don't like it you can bring the mascara back for a refund. Prices are comparable and if you register you can get a coupon each month. Try and try until you find one you like!! They also have estheticians to help if you need it.



    I've spent about 14 weeks in Charleston in the last year and a half and to me it's even pretty in the rain! Lots of shopping so you can pick up what you don't bring with you.



    Marty how are you feeling? And your DH?



    Mags so happy NO COMPLICATIONS FOR YOU!!!!'



    Montrial - very poignant message!



    Beth - good to hear from you!



    Hope we l can plan a gathering in Charleston to meet and greet in 2014!!! Love putting faces to the names - and unfortunately we have so much in common!!!!!!!



    Hugs all

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited August 2013

    Lbrewer - would live to hear more if you get the permanent makeup done! Or anyone else who does!!



    Hugs



    Pink, hoping you are well??



    I too pray for you "sisters"

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    So our car is still at mechanics...I cannot change the gastro appointment for tomorrow,they gave me one of their ASAP appts and others are filled.So my husband is renting a car for me to drive.I asked him if he thought all these road blocks were a "sign" that maybe I should just not have the surgery.He said "It is a sign all right.A sign that I know you have the perserverance to get through all this and not give up.I have seen it before and I am seeing it again." Just got word that US Air is going to waive the $200 rescheduling fee.What a relief.Maybe things are going to turn around and go right for a bit!

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited August 2013

    Panda- give your DH for all of us, what a wonderful thing to say to you!



    We all get the "should I's" and you have had the opportunity to have MANY!!!



    Hugs

  • Davy
    Davy Member Posts: 114
    edited August 2013

    Hi Ladies,



    I haven't had time to completely catch up here with the exception of a PM here and there. But now I need your input (Sorry for the double posting, I have to cover all bases :)).



    I'm scheduled for stage 3 on August 30th and I'm running out of people to ask to accompany me to Charleston. It seems that I'm just being "vain" now with all these procedures - but I won't go down that road now. I will say though that I pray those who are judging don't ever have to walk in my shoes. Ah, I digress.



    Chris at Dr. K's office gave me the name of a few nursing/caregiving companies and nursing homes (e.g. Sandpiper), but I do not plan to stay overnight after discharge. Anyone have a recommendation for a company/facility that would not require an overnight stay? One place offered to drive me to a hotel and the caregiver would help me get settled, but even if they drop me in the lobby and I "get settled" there I still have to get back to my car to go home. Taking a taxi back seems like overkill. I do not plan to take any painkillers (haven't needed them upon discharge after stages 1 or 2), so no worries there. Thoughts and suggestions are desperately needed. Thanks!



    Cheers,

    Davy

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    Davy,not sure what you are asking...are you going to drive yourself to Charleston and want to wait a few hours after discharge before starting back? Or they will not discharge you on your own? Couldn't the caregiver settle you in the hospital lobby? Caitie,my husband really is great..when he said that..I was speechless.But people have told me how proud he has been of me from the very start of this..so I am pushing forward.Saw the gastro today,a nurse practioner actually and she was super.They wanted to schedule the endoscopy for 9/27..I said no,it has to be before that....I guess my tone took the scheduler by surprise because all of a sudden she could get me in on the 12th..still cutting it closer than I would like...

  • Davy
    Davy Member Posts: 114
    edited August 2013

    Pandazankar,



    Yes, that's it exactly. Sorry, I was rushing (as always) when I posted and I'm afraid I didn't clearly state my dilemma. I am scheduled for surgery on Friday and expect to be discharged on Sat. Hospital policy will not allow me to walk out alone, therein lies the problem.



    Sorry to read about your delayed surgery. I had stomach issues for years myself and went to countless gastro's and took all kinds of meds. It turned out to be all diet related (and I didn't eat bad before) in that I had food sensitivities that I didn't know I had. Have you tried an allergist or dietician?

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    So all you need is to have someone there to be discharged to,wish I was going to be there as planned....try calling the discharge department.When I thought I was going to be staying by myself after surgery,they assured me they would help me find after care.So they may have some ideas.Another thought,there may be someone involved with a breast cancer support group  in Charleston who could help you out.Maybe get discharged and take them to lunch!Then head home.How long a drive is it for you? I understand about not having anyone to help,I am lucky that my friends and limited family are supportive,but they are  unable to be there physically for one reason or another.My stomach problems are totally due to stress,I have had this issue since I was a child but the chemo really made it worse.Just hoping it will be all clear by the 12th!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Davy - there are a variety of liability issues involved especially with driving.  I totally understand your desire to return home immediately, but the anesthesia left in your body is tricky.  It may not be safe for you or other drivers for you to make the 6 hour drive on your own.  Would you consider staying 1 night after discharge.  

    I have to say that my Stage 2b wasn't as intense as it should have been because Dr. M knew my DH was having surgery the next day.  I tend to recover quickly with a minimum of pain pills.  I was discharged the next morning and a GF took me to the hospital where my DH would have surgery.  She took me home that night.  I drove 2 days following and can honestly say it was really tiring and that perhaps my judgement and reactions weren't what they should have been, especially when the car lost power on one of the bridges.  My point here is that perhaps you would have a safer drive home if you waited one extra night in a hotel.  

    The liability would not be only on you, but the hotel and Dr. K.  Did you tell the office you were planning to hit the road immediately after discharge?

  • Davy
    Davy Member Posts: 114
    edited August 2013

    Thanks, Marty. I totally understand the liability issues around driving following discharge. I will make alternate arrangements as needed. There are so many considerations to traveling for surgery and life is keeping me on my toes right now, so I have to make the best batch of lemonade I can :)



    Thankfully I have worked it out and now have several local people who are willing assist. Let go and let God as the saying goes!

  • GointoCarolina
    GointoCarolina Member Posts: 753
    edited August 2013

    Just found out I cannot have my October 2 date..the doctors will be away.Soonest would be October 18.One concern is we have a wood stove,I am sure I will not be able to lift wood and throw it in the stove two weeks out.Plus that time of year my donkeys and goats need to be fed hay in the middle of the day.I wanted(needed) to be back to almost normal by the beginning of November.My husband cancelled and rescheduled a week of vacation so he could be with me in October...I am sure they will not be pleased if he does it again.I am really ready to just give up,too many setbacks......I am tired..hate to prove my husband wrong,but....

  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2013

    sorry Panda....it is hard when they change our plans up on us.  We get so stuck on the dates.  Noticed you are from Oxford NY...my hubs was born there.  Family live in Norwich for a while and all over the upstate area!

    Maggie

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