August 2013 Chemo Sisters

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  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Rayna, I just noticed your post about the friend problem. Don't you feel guildy another second. The negative vibes will harm your body. You are totally right in what you are doing. Tell your husband how you feel and why you're doing what you're doing and have him tell the woman's husband. If that doesn't work, then who needs friends like that in the first place? You are trying to conquor a life-threatening illness. They should baby you in my opinion. Put a quarantine sign on all of your doors or something. Wear it around your neck. Shout it out to everyone you see that you need their help. Pray for those people and God will "dump heaps of burning coals on their heads" for you. Kill them with kindness, but do what you have to do to protect yourself. I have read that nurses and doctors should never go out in public in their scrubs for two reasons. The can carry disease to the public and in turn, carry disease back to their patients. My granddaughte is a CNA and lives with us. I make her take off those scrubs the minute she enters the door. She's only 17 and doesn't think sometimes. Does any 17-year-old think? Good luck Rayna. You deserve the best. I like you a lot and so do the others. I can tell. Hang in ther girl. Do what you have to do.

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Does anyone know whether it is harmful to a pet if he/she licks us during the time after chemo that our body fluids are contaminated. My son's little miniature long-haired chihuahua loves me and licks me to death. She appears at my door all of the time to visit. My son lets her out (our backyards connect) and she makes a bee-line to my back door. I love her so much and she helps me feel better by snuggling up by me in bed. She weighs 5 pounds. I carry her in my sling.

  • carolpr56
    carolpr56 Member Posts: 241
    edited August 2013

    Well, SAB, I was told in its our blood, urine, stool and vaginal fluids. No one mentioned saliva or sweat, but with a 5 lb dog you might want to be extra cautious! I felt pretty good until Day 4, when the toxins were out - but that was when I took to my bed and sure would have liked a little companion! Praying for you for tomorrow - the waiting is the hardest part!



    Rayna, I see you've taken down your post with your problem in it. Would you like us to delete our posts of advice? I will be glad to do so, and hope that I didn't come across as critical or directive - that was not my intent, but to advise and support. I am sure that is what all of us are intending! God bless you today.



    FMGDTR - you've go some amazing stuff in your product line! What are the WhF underlines you have to use in the choosing? I am intrigued by the charcoal/ bamboo soap for my 20 something son, as he runs and really all of Austin is a big work-out place.

    Looking forward to helping you choose!



    Martha/Rhody! That was probably the funniest therapy dog those residents had ever seen! At my NH, there's one little dog - a whippet - who always wears her little boots. It's so cute!

    LISASP - thanks for the info on aspartame. There's always conflicting research, isn't there?! Those of us who ate so much of it should not whip ourselves over spilled milk, but go on to try to eat more healthfully. Have you read the research re: NOT supplementing with antioxidants during chemo, that it can work against the effects of the chemo?! I asked my doc, and she said eating dietary antioxidants would be fine, but to not overdo nor take supplementation.

    It's a crazy life, isn't it? Still beats the alternative, for now!
  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    My doctor said "body fluids". That's why I wondered about sweat. Maybe he didn't want to say vaginal fluid! Embarassed I hope I remember to ask tomorrow, but I'll be so nervous. I hope I can have her. She comforts me so much. I keep calling her a him. My son gets so mad. I had 4 boys and one husband and every pet I allowed in our house had to be a male. Everything is male to me!

    I just looked up antioxidant supplements and chemotherapy. There is so much controversy that they really don't know if it is harmful. Some say it helps the tumor cells survive as well as good cells. My MO told me last Monday not to take ANY of my vitamins during chemo for the first week. I thought it was because of nausea. Maybe that is the reason he told me that. I won't take them. I have already removed them from my dispenser.

    I don't know what I would have done without finding this site. It has been so helpful in preparing me for tomorrow. Thanks for all of the private messages. I appreciate that little extra touch. I feel like I'm about as prepared as I can get for this first chemo.

    Rayna, I'll delete mine, as well, if that is what you need. God bless you. I feel so bad for you with this hard decision. If nothing else works, scream at them. It shocks the socks off of people, but gets their attention.

  • LisaSp
    LisaSp Member Posts: 253
    edited August 2013

    Carol: There is conflicting info but remember that the Internet just loves MISinformation. I have worked for decades as a science journalist in health research and one thing I'd say is trust authoritative sources: the National Cancer Institute, the American Cancer Society, the American Society of Clinical Oncologists, the American Medical Association.



    I love all the talk about everyone's pets! I have two little companions that don't leave my side when I have to rest from SEs, my pug Chi Chi and cat Kyra. They really know when I need them and are right there.

  • KateW
    KateW Member Posts: 47
    edited August 2013

    Quick post as the littles are in need of breakfast!



    Sherry, as you know, I will be strongly praying for you today, especially tomorrow and well... Forever! :) You are completely prepared for what you can do and the medical team is prepared your their part! God is prepared for everything!



    Carol, oh my goodness- I cannot tell you how much your quote "If we act like "everything's all right", we run the risk of being believed" has hit home BIG TIME! I have read it and re-read and written it down! I am not kidding when I tell you how much I needed it. A complete blessing that might just be one of my new mottos! Thank you



    I have much to say about the whole artificial sweetener thing but no time now. Splenda is made with chlorine... Stevia is wonderful but they make one of the Stevias with an additive... Maybe the baking one? I will look it up. They also make Stevia as a flavored liquid for coffees, plain yogurts etc. that in my opinion go from great (vanilla, chocolate ) to not so great ( lemon, toffee)



    Hope everyone has a great day!

  • raynaj
    raynaj Member Posts: 236
    edited August 2013

    Thank You all for your kind words and no one said anything I took offensively, I just took it down because I shouldn't have ranted on here, I was upset and this is where I came. I have no idea if we will boat today or not and I'll am s little sad is all.

    Thank You again for your words they were very nice and you don't have to take your responses down.

    Love, Rayna

  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited August 2013

    Wishing everyone a blessed and peaceful Sunday and keeping Sharonanne in my thoughts and prayers for her 1st treatment tomorrow🙏

    I saw MO Friday and he has moved my treatments from every 3 weeks to every 2 weeks so I go for round 2 of Dancing With The Devil on Thursday, feeling really good my WBC were low and he started me on antibiotics Friday and that really helped.



    Big hug's to all the chemo sisters,

    Shary🌞

  • Martie1228
    Martie1228 Member Posts: 73
    edited August 2013

    Regarding dogs: I did read to wash your hands after touching them, but then we're all washing and hand sanitizing like crazy these days anyway. ;) I'd be more diligent with other people's dogs. After all, I know where mine has been (by my side) and when he had his last bath. :) I have the biggest sweetie in the world (Ben - part Anatolian Shepherd and Golden Retriever). He's quite tall and weighs about 115-ish. Helps as we get older because we don't have to bend over to pet him. ;). When diagnosed, we realized that he had become extremely protective of me many months before and never wanted to leave my side (wore himself out going from room to room as I skittered about doing things around the house!). The health benefits of our pets, especially emotionally, at this time would far outweigh the minimal risks.

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Kate & Gavins-gran, you're sweethearts. I will be thinking of you praying for me...that is, if I can THINK tomorrow. I feel blessed that y'all said you'd pray for me. Prayer is the key to a full recovery. I'm glad the antibiotics are working for you GGM and Kate, thank you for reminding me that God is prepared for everything. InnocentInnocent

    Everything I've been reading this morning says body fluids are as Carol said avove, not saliva. Vomit is contaminated, so I don't see how saliva isn't. I'm going to be very careful cleaning the sinks after brushing my teeth five times a day and cleaning the toilet seat, etc. The literature I read seems to say that if you have small children who might dip a toy or two in the toilet or you have a pet that may drink from it, then that is where you have to keep the lid down. They all recommended closing the lid and flushing twice. I still won't let little Bailey lick me the first week anyway. After that, I will just wear long sleeves and gloves if I have to because I NEED her. Smile

    I found a site that tells what each cancer-fighting food does. For liver function-dark greens, lemons, dandelion coffee and zucchini; for Immunity-mineral broth (I have the recipe and I use it already), lemons, carrots, oranges, brussel sprouts (10-100 x more antiox. than broccoli and the other cruciferous vegetables), pomegraniate, cherries, and most of all CHICKEN SOUP- It is said to IMPROVE WHITE BLOOD COUNT. I am making homemade chicken soup as I type. I already have the chicken cooked. , apples; Digestive system/Small intestines- cabbage (also stimulated kidneys), apricots, peaches, mangos, prunes; For Kidney function: filtered water, 100% juices like apple, chedrry, blueberry, pomegranate, To inhibit tumor growth-green and white tea. not black; Some of the best antioxidants-dark chocolate 70% coco, prunes, red grapes, pomegranate juice, blueberry juice, cherry juice, walnuts, almonds, apple juice. I'm hanging the list on my refrigerator so I won't forget and I'll know if my MO tells me that my kidney function is low or something to that effect. Hope this helps someone else.
    This list is not all-inclusive, just some of the best choices. God bless you all for praying for me and for giving me such support.

    Lisa, I believe you're right. Trust the authoritative sources, and I would add, mostly, your own doctors. Thanks for reminding us. Tongue Out

    I think we all have this thing called BC licked. Onward HO. (I watched way too many Little House on the Prairie movies, sorry)

    This is all or us with our changing emotions at various times. Notice the bald heads. Which one are you today?

     KissCoolCryFoot in MouthFrownInnocentLaughingMoney MouthSealedSmileSurprisedTongue OutUndecidedWinkYell

    D3-helps prevent recurrence of BC

    Flaxseed oil- decreases absorption of fat

    Low-fat diet-In a trial (Dr. Chlebowski-U. of Calif,San Francisco-significantly reduces the risk of recurrence

  • Martie1228
    Martie1228 Member Posts: 73
    edited August 2013

    Regarding Carol's statement: SO TRUE!!!!! With my first bout of BC 16 years ago, my husband traveled a lot in the military and my kids were 9, 10, 14, and 15 (the 9-year-old is severely retarded and we had just adopted her the year before). I guess I wanted to protect everybody. Other than my daughter (who was 15 at the time), nobody really remembers it much - especially my husband. He was shocked when we talked recently about it that I went for radiation daily for several months because I would get everybody ready and out the door, then head over for my tx, then do all the running around with kids, etc... that needed to be done. (Thankfully , I didn't need chemo that time around.) About 6 months after tx, I realized how TIRED I had been! It's SO much better when you allow others to help you (for us AND them) during this time! Just look at the support we have between us, ACS! Just sayin'! ;)

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Martie, I was ready to post a message to you and hit the wrong key and away it went. I am so busy today, but I wanted to tell you how much I admire you for having done all of that running with your children while doing chemo. I can't imagine. I have to give Jackson, our miniature schnauzer, a bath so he'll be smelling his best when I get home from chemo tomorrow. I have to finish the chicken soup I'm making today so I won't have to smell chicken cooking, I have to shower and fix my hair (yeah, I still have it), clean up little piles of clutter, dust the rest of the furniture, paint my toenails so when they fall off, they won't look so disgusting on the floor, check my chemobag,r  get my granddaughter to tidy her room, fix dinner, oh ghee, shall I go on? I am using up time by being on here, but my addiction to it is strong. Thanks for all of the support. I feel great heading into my 1st chemo tomorrow thanks to all of you and my chemo diet I've been on. I hope that helps SE's. We'll see, won't we? God bless you all.

  • Shalimar630
    Shalimar630 Member Posts: 100
    edited August 2013

    Martie, I find that amazing you were able to do all that!  You were there completely for your family while going through your own personal trial. Kudos to you.   I know I find it hard to ask others for help, but I am really trying, we need to take care of ourselves right now!

    I am five days post first infusion. Had bone pain yesterday, a bit today, not as bad. Taking it easy, laying down when I need to. Crappy taste in mouth, but it doesn't affect all food. Dang, but I didn't like the taste of the Mint cookies (my favorite) that someone brought over. I haven't had any nausea yet, is that still to come?? Did I luck out? Guess time will tell....

    Sharon, hope everything goes smoothly for you! I was pretty nervous right before it started, but things went fine. People were very friendly. My daughter was with me and she ended up being the help, getting people treats out of the snack drawer. Will keep you in my thoughts!

    Positive vibes to all...

  • raynaj
    raynaj Member Posts: 236
    edited August 2013

    Sharon: I just read something a week ago that warned woman to make sure their men wear condoms to prevent chemo burn, It also said to flush the toilet twice and wipe down the seat after weve used it so the next person doesn't get chemo burn. I bought baby wipes to use after using the tiolet because my first chemo I got very sore and itchy down there.

    If its coming out of us I would imagine it would come out in our sweat so I would be careful with your little dog. That was a good question.

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    There is a cookbook by Jessica Seinfeld (yes, Seinfeld's wife) called Deceptively Delicious. It has recipes in which she always puts pureed vegetables in each recipe. She hides them in cakes, casseroles, etc., so her children will eat more vegetables. I made the spice loaf today (either bread or cake, don't know which to call it). It has pureed broccoli and carrots, no kidding. My 17-yr-old granddaughter just came in and took about 1/2 of one loaf to the firehouse paramedic meeting for tonight. She will only eat peas, corn, and potatoes, and broccoli dipped in Ranch dressing. I guiess that's sounds like a lot, but she doesn't eat them often enough. She loves the junk foods way too much. Fooled her, ha ha. The cake/bread tastes like cinnamon, ginger, and allspice. I forgot to add wheat germ, but it has 1/2 whole wheat flour and 1/2 plain unbleached flour(not a good choice for us is it?). I made brownies this summer with pureed spinach and my 12-year-old grandson almost ate the whole pan himself. I had to take it away to share it with the others. I think this book is as good for cancer patients (you can always substitute better choices than some she uses, but mostly, she's health conscious), than One Bite at a Time and Cancer-Fighting Kitchen. I have both, and these recipes usually call for something I've never heard of. What I really like about the last two is that the author, Rebecca Katz, had cancer and she has page after page of useful ideas and recipes for each stage--nausea, low white blood count, etc. It's worth the money just for that, but both books are so similar, I would have only ordered the Cancer Fighting Kitchen. I got them from Barnes and Noble. The magic mineral broth that I got from it is in both books. I've been using that for a whle now, and I attribute some of my excellent baseline counts to that broth alone. It is supposed to be full of minerals that we need for our immune system. I used it as the base for lentil soup and vegetable soup, which I froze. All my husband has to do is "FIND IT" in the freezer and thaw it out. He can't find his toothbrush if it isn't on the sink. I don't put his shoes in the closet. He'll think I sold them at a yard sale. I told you I'm a blabber typer. I'll let someone else talk now.

    Rayna, Thanks for the tips. I always keep a container of disinfectant wipes by the John to wipe it off between cleanings with bleach, so I guess that will do. I also filled a liquid soap container with water to for a squirt bath. My husband, if he finds his shoes, is supposed to go out in the pool bathroom to get the bidet off of that toilet and bring it in here. That would be ideal. You can order an attachable bidet online starting at $35. They have a little knob and you can take a squirt bath so easily. I miss it. We put in a new toilet this summer and he's just procrastinating, that's all. This morning, he said he'd do it tonight. I think you're right. Just in case, little girly Bailey will have to stay home for a while. I wonder how long I should keep her away. She's going to be at my back door and I'm going to cry if I can't let her in. My husband will have to walk her back home. Maybe my son can try not to let her run over here so much.

    Another question: My ONC (I love that man) said not to sub for the first week of chemo but I could the second and third weeks. I saw where, I think it was Rayna, post that days 7-10 are the period when we're most succeptible to infection. I sub at a high school and elementary school. Don't know what to do. Could really use the money, but it will do no good if I get a deadly bacterial infection, now will it?

    Oh thank you, Shalimar. I appreciate your kind words. My husband of 51 years is going to every appointment with me. I love him. He's a jewel. He reads, so he'll be fine. You a 6 re on day 5, so you'll be 6 days ahead of me. I can see how you're reacting and we'll compare notes. It's good that you haven't been nauseous. I dread that. I'd rather have labor pains than that. My ONC said I couldn't take my beloved Excedrin because of aspirin in it. It is the very best pain reliever for a headache or body pain when I have the flu (which I haven't had for so long I can't even remember when it was.) I take Zycam at the very first inkling of a cold and that stuff works wonders. It minimizes a cold from two weeks to about 5 days, no kidding, and it never gets severe. I'm hogging the boards today. Sorry ya' guys, I'm nervous. I almost. I have the soup made, but this computer keeps calling my name. I haven't even given Jackson a bath yet. Bye. I need to get my act together. I want to get at least 8 hours of sleep tonigh. You guys are the best. I'm thankful for every one of you.

  • carolpr56
    carolpr56 Member Posts: 241
    edited August 2013

    Lol! It's all good, Sharonanne! We've all had those first-infusion jitters! You're making me hungry, though!



    GGM (Shary) - you have to go each two weeks now? Wow, you'll know that 3 hours each way by heart! Doe that mean you'll finish sooner, or that you've got mor tx's scheduled?



    Shalimar, I didn't have any nausea so far, day 13! Killer headaches, though! And no bone pain until after the neulasta/neupogen kicker this past week. Now all of a sudden my back or hip will just ACHE something fierce, so that i groan out loud in surprise.



    Gotta get a grip on that as I'm hopefully back to work tomorrow! Hope every ones day has been blessed, and especially YOU, Rayna, if all the others went out on the boat without you : (

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Rayna, If my husband thought he could make good use of a condom at almost 72, he would RUN to the nearest drugstore. I just hope he doesn't get that 4-hour-you-know-what! I'm leaving town if he does. Not to worry. We smooch, cuddle, and hold hands. We were sweethearts in school since I was 15 and he was 18. We've been married 51 years, so we've technically (sp?) been together for 54 years. Enough is enough, I'd say, but thanks anyway. Hate to reveal all my secrets, but I eventually do.

  • carolpr56
    carolpr56 Member Posts: 241
    edited August 2013

    Sharonanne, dear, don't worry if you don't get all your sleep. One of the first things they give everyone ( so I HOPE you, too) is IV Ativan, which will make you nice and drowsy and you can just nap thru most of it. They'll wake you up as they start each new drug, to watch for reaction, then you can go off again.



    I worked Days 2,3 and 4 with the dr's ok. Was careful to clean after myself to protect my coworkers, but the steroids gave me pep. Dys 5 and 6 were flush, but I would have gone in on Day 7!but my purse got stolen. I did work Day 8 and part of day 9, but then I had to go get my counts checked and have been out since then.



    I don't get paid when I don't work, either, so I am praying for a 5 day work week this week! The next week is infusion 2, so that will be my day off and God willing I can work until Sat like the last time. Who knows? After this allergic reaction, the dr. May very well change my regimen : ( I dunno yet.



    So here's my advice. Ask the doc if you can work if you feel like it, until the low count days. If you're like me, you'll be better off working than home futzing around!



    (Loved the story about your husband!)

  • LisaSp
    LisaSp Member Posts: 253
    edited August 2013

    Sharonanne: You are so peppy it's great! Its my second infusion tomorrow so I'm nervous too, but hopefully it will go as smoothly as the first.  All I have to say is that the first day especially was uneventful for me. Good luck and godspeed to both of us. I've got things to get ready here too! I just came back from the amusement park and that went very smoothly, no issues. I got a bit winded from a bit too much sun at one point, but went inside and cooled off for a while and had some apples and water then felt lots better. For me, it's heartening to try to keep to my usual activities as best as possible and take rest breaks as needed.  I also have Cancer-Fighting Kitchen and it is really, really good. I made the cashew kale (using swiss chard) last week and it was fantastic.

    Carol: Good luck going back to work. I didn't have any nausea either (just some heartburn from the steroids and a bit of constipation) and now its time for my second infusion. Your work schedule right after chemo was amazing!

    Everyone, take care and have a restful evening.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited August 2013

    I explained to my 5 year old granddaughter that my hair was going to fall out because of medicine the doctor gave.  She said OK.  She is my photographer + videographer.  After combing my hair today I braided up; each part is about 1 inch wide . . . large enough for a mac truck to drive through.  LOL.

    My granddaughter after taking a picture of my hair said, "MaMa, your hair looks really funny."  Later I asked her how my head looks and she said, "your head is perfect + beautiful."  Out of the mouths of babes.

    I just returned from Target returning a blender.  I left with my hat on.  On the way back I said what the heck; I took off the hat (showing my inch-wide parts) opened all the windows + the moon-roof and drove home in freedom; how liberating!!!  Not to mention the natural Vitamin D hitting my head directly!

    We are all walking into (as my friend says) a new norm!  And it's OK!

    May God continue to Bless you on this, the Lord's Day!

  • steelerfan
    steelerfan Member Posts: 8
    edited August 2013

    Hi all! I have to chime in about splenda, sucralose. This product was originally created as a pesticide in the UK. Today it's chemical make up resembles its origin, a pesticide and contains chlorine molecules! I've researched this for hours when I first heard of it. With all the very young women, 20's and 30's that I took chemo with I realized that I have been putting things in and on my body that needed changing. NO artificial or bleached anything. No parabens or any chemicals that mimics hormones.



    Our bodies are a blessing! We fight to rid our body of cancer. Let's not take steps backward and put things in and on our body that is of no benefit!



    Thank you and take care!

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Just skip all of my garbeldey goop. I am full of it today. I told my husband that I didn't get hyper from the sterhoids. He said, "You didn't???!!! The how come you bathed the dog, made chicken soup, made bread, green tea to freeze, ginger tea to freeze (good for nausea), vacuumed the one carpet in the house, mopped the kitchen floor, froze the rest of the apples, made spinach puee, and it's only 6:10. I took the pills at 8 and 12. I guess he's right. I am hyper. I just don't feel it. You all do because of the books I keep writing. Just scroll on by. I won't be offended. Well, I have to get a shower, wash my hair, file my fingernails, get out something to wear, clean one tolet, and hopefully, that's it. We'll leave at 9:30 a.m. EST tomorrow. We'll go to Kroger and get more juices and things I'll need this week. We're 25 minutes away from the Kroger I like best. We have a local IGA, but the prices are outrageous. G

    I have the dog bathed and groomed. I groom him. It saves lots of money. Used to be a beautician in the 60's. I have cut my husband's hair, I made chicken soup, spice cake/bread, ginger tea to freeze, green tea to freeze, put lemon in all of my water bottles for tomorrow since I read that lemon supposedly slows cancer growth (I'll have to see if that's too much vitamin c or antioxidants before drinking it.) I have bland snacks packed.
    The snacks there will probably be chips and junkfood. Can't really believe they don't have carrots.

    I have the dog bathed and groomed. I groom him. It saves lots of money. Used to be a beautician in the 60's. I have cut my husband's hair, I made chicken soup, spice cake/bread, ginger tea to freeze, green tea to freeze, put lemon in all of my water bottles for tomorrow since I read that lemon supposedly slows cancer growth (I'll have to see if that's too much vitamin c or antioxidants before drinking it.) I have bland snacks packed.
    The snacks there will probably be chips and junkfood. Can't really believe they don't have carrots.

    Carol, then maybe I can stay up all night and get ready even more!!! Actually, I will take two Benedryl at 10 p.m. and try to sleep 8 hours. I feel best when I do that. I'll pray that both of us get work to pay our copays. I'm on Humana Medicare and we have copays. I have to pay $333 tomorrow. I paid $850 before my surgery. We've shelled out about $2,000 so far. My school insurance would have paid better, but I retired at 62. We have a 1969 caillac for sale and a buyer has been nibbling for a month now. We also have property to sell that we bought as part of our retirement, so we'll be ok. We will put our house on the market to move into a smaller place as soon as possible. This house has three full staircases. I cannot care for that much house anymore. 

    Lisa, don't forget. We're going to think about one another and say a prayer for good results. I don't have a port so I hope they find a vein on one try. I'm so used to it by now, I don't care what they do. It gets numb after about 4 times, so what the heck. It hurts the nurse more than it does me, but I don't tell them. I'll look up that recipe. Sounds great. I made kale chips, but not from that book. They made it easy to eat lots of kale. Not too bad.

    FMG, you're right...a new norm. Your granddaughter sounds so sweet. I can tell she loves you very much because she didn't want to tell you looked wierd so she chose a kinder word. Fix hers that way and you'll be twins.

    Shalimar, have you tried Claratin yet? Some say it works for the bone pain, but don't go by what I say. I won't have that shot until Tuesday. We'll see, now, won't we?

    Good night, all. God bless you and hopefully tomorrow will be a great day, for you, as well as for me. Let's make it a good one. I hope I'm not singing a different tune on Tuesday morning.

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited August 2013

    All these posts are great! Sorry I haven't responded to more of them, I worked this weekend to comp for time off later in the week.

    Sharonanne, love your comments about your hubby! And all your other tips. I got some good laughs, which are very much needed right now!

    Curious to find out if anyone gets the answer about dogs licking you during chemo. My dog loves me (hubby always says there is no doubt that she is my dog), but she has never been a big licker. Sometimes I wish she would be! The comments about condoms and chemo burn for the guys....is that only in the first few days following a treatment or does it last longer than that (can't believe I'm asking that question...I've never beenn one to talk much to others about my sex life....I had my tubes tied after my youngest one was born, so wearing a condom would be a big shock for him!).

    Steelerfan, are you from the 'burgh or just like the Steelers? I live deep in the heart of Steeler country. They aren't looking too in the pre-season.....but we will be watching them play in Charlotte on Thursday when we go down for my daughter's wedding.

    Martha

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    I just pictured my husband with that you-know-what and I spit red gatorade all over my clean table that I just polished. I should be ashamed. I wouldn't dare tell him I did that.

  • jnprsn
    jnprsn Member Posts: 151
    edited August 2013

    Regarding Stevia, the liquid is not bitter and can be found in health food stores. I buy mine from Trader Joe's.

  • carolpr56
    carolpr56 Member Posts: 241
    edited August 2013

    Sharonanne, you crack me up! Neither of you would be happy with Viagra - you could pound nails with that thing! You poor hub is gonna think you 've gone round the bend...you re gonna be fun on Ativan ; )



    The chemo burn is only the first 48-72 hours, I hear. My hubby had NO desire to find out!





  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited August 2013

    Sharon,

    I, too, think your steroids have you going.  You're speaking/talking/typing a mile a minute (or maybe it's me + and I'm just reading fast!) . . . you also pasted a paragraph twice.  After all you've done/doing today, I think you'll get a great night's sleep. 

    Yes, my granddaughter is very sweet; she just took leftovers out of the fridge and brought me a plate of cold baked chicken and macaroni + cheese.  How considerate she is.

    Let's redefine the standards of beauty.  We are all beautifully + wonderously made; THE designer's original.

    Sharonanne + LisaSp, much success to you both tomorrow on your infusions . . . mine is Friday.  I'll have to get the book Cancer-Fighting Kitchen.

    Carolpr56, Wholefoods' application is about 18 pages long. I have to list specific products, ingredients, etc.  I'll have to read the contract carefully; but I'm going to go for it.  There are two stores in my area.

    I know many of you are living large already; however, let's start thinking bigger, dreaming bigger + and doing bigger things!

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited August 2013

    What are you using to help relieve an itchy or irritated scalp?

    Virgin Coconut Cream Oil may help with scalp issues:  http://www.livestrong.com/article/71864-coconut-oil-hair-growth/

    Virgin Coconut Cream Oil is very greasy . . . a very little goes a long way!

  • SewStrong
    SewStrong Member Posts: 399
    edited August 2013

    Rhody, If I think of it tomorrow, I'll ask the nurses. I haven't seen it anywhere. It seems that your spit and sweat are ok, but I don't see how it could be. I'm afraid to take a chance with Bailey. Jackson doesn't lick. I was told not to get a mosquito bite while WBC is low, so I wonder about fleas. Jackson is treated, but still, after a walk by the river, he sometimes comes home scratching something. I turn him over and sometimes find a live flea. I am surprised. I think it takes a flea biting him before it dies or something. They can still get on him. I'll have him sleep in another room. He sleeps on the floor by the bed. He'll protest, I'm sure. Maybe my son will take him for a time. good luck to you, Rhody. You don't have to respond to my posts today. I wrote a couple of volumes. I took my sterhoids and got more work done than I got done all summer.

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