August 2013 Chemo Sisters

Good evening ladies, day 6 was pretty uneventful until the realization that constipation had caught up with me, but really everything we take causes that😕well took 2 dulce lax and my sis brought me some benifiber. Well let's just say several hours of cramps and the never elusive chemo digestive issues I have survived. My head is getting itchy and I keep pulling at my hair wondering when I will pull out a clump, but I have a sneaking suspicion it won't be long.

Sleep sweet all my sisters and for those having or had treatment this week may minimal SE'S touch you and peace touch your hearts, minds and bodies.🙏

JellyK, have a great time in Vegas.

Tomorrow I do labs and I have an appt with PCP and Friday first f/u with MO.



Shary😴

Bella: Great idea about the movies my pick would be "LIAR, LIAR" with Jim Carey

Boy has everyone been busy on here the last 24 hours, still haven't caught up reading.



LISA : Your wig sounds really nice, I'm thinking of buying a Hot Pink one like Samantha had on Sex and the City.



GASHGOLD: We could always go to Vegas every second year. The group that is going said newbies are welcome, It sounds like so much fun, they are quite the group.



TOGETHERNESS: That was very nice of your hairdresser to cut your way like that and it would have made it fun too. Hope you're doing well with the short hair.



CAROL; Love the haircut. Heh you are a virgo as well, my B-Day is the 30th and HVV is the 27th. Thanks for the laughs between you and Batcatlady, I've had quite an enjoyable read.



BATCATLADY: You are frickin' hilarious. but i agree about being angry, I am as well as I have opted out of two fishing trips with my family because I don't think it is that safe to be that far from a hospital. And good thing that I did because on the second night of the first trip I spiked a fever and ended up in the hospital for 4 days. So damn right I'm pissed, I don't think I will plan anything for the next 6 months as I have to have surgery when chemo is over.



JELLYK: Have fun in Vegas, I'm not sure if you read about the group that goes to Vegas every year but they will all be there at the Aria on the weekend of the 26th I think. I thought we should make an annual trip for all of us for next year when we are all healed and healthy. Sorry to hear about you soon to be ex.



GILDEDCAGE: That is awesome that you have so many wigs for a while ago. I think I will buy a couple that are funky and have fun with it.



I was noticing some groups named themselves,, I was thinking we should have called ourselves the AUGUST AWESOME ANGELS!!!!!!!!!!!!



Well better go to bed, has taken me 2 hours reading and writing down notes on what to write everyone.

Love, Rayna

BellaMomma: Your picture is really pretty.!!!!!

Sharonanne - the time difference throws me sometimes. My day is ending as yours is starting. Right now it's 9.48 pm thursday in NEw Zealand and 2.48 am in California and 5.48 in NYork Thursday morning. So for example 9/11 didn't happen on 9/11 in Nz . I happened to wake up early that morning and listened to it happening live in the early hours of 9/12.



By the way, some NZers are mortally offended at being called Australians. We are the land of kiwis rather than kangaroos. I think the North American equivalent is like calling a Canadian, an American, is that right?

But no worries coz I'm not one of them : ). Some of my ancestors were born in America before the Revolution so I'm a little bit American perhaps?

Gashgold, It was 6 a.m. when you said it was 9p.m. in Australia, where you live. When I tell the others good morning, I'll tell you good night. That's pretty cool, actually. Well, good night. It's 9:50 there, so get yourself to bed girl so you'll feel wonderful tomorrow as all of us go to bed. It is Thursday here. Are we at least in the same day or just parts of it?

Well Carol, When I first read about your fungus, I was picturing it on your neck, not your tu tu. I don't know about blowing a hairdryer that far south of the border would do, but heck, could it feel any worse. When I have an infection like that from antibiotics, I always wish I had a corncob to use as a scratching post. Picturing that should give you a laugh.

Guess I just never noticed the word "merkin" come up in the FBI thrillers I normally read. . (It did make me laugh to think about how it would be written in though...!)



Shary: I started the same regimen (AC) the day before you. Hope you're feeling better today. I was on top of that other issue when I started the chemo since I was miserable with it following BMX. Just look at all the things we're learning in this fight for our lives! . Good thing we have each other to laugh (and cry) with along the way.



LOVE the updated pics of all your new "doos"! Mine's hitting the (patio) floor tomorrow night. Making as much fun as possible! . (Just wish they would have offered an "ear reconstruction" as part of this "package"!)

You ladies all look so beautiful in your new pictures, we really are a fabulous looking group😛I still have my have but I know it's day's are numbered. Ok at the risk of sounding dumb and I missed the original post what is a"Merkin"?

I wish everyone a great day and minimal SE'S.



Shary🌞

QUESTION:



I don't know how many of you will see this but I'm wondering:



How many of you still have surgery to do when chemo is over?



I will be having a B/M with immediate Recon probably beginning of November, I'm going to meet with my surgeon this morning.



Love, Rayna

I wanted to give a notice of recognition to all of you who are going through this for the second time. I didn't realize there where so many of you. I feel kind of bad whining and giving advice when some of you have dealt with all of this nastiness once already only to have it come back again. God bless all of you are I pray that this will be the last time you all have to deal with this, that you will be healed and go on to live til a ripe old age and see all of your children, grand children and great grand children grow up.

Love, Rayna

GavinsGrandma: It sure does. I'm having a bad self esteen day, not feeling so great about myself with my bald head. If I heard someone complain about having a bad hair day today I might just go postal on them. lol

Good morning everyone! Nice to wake up and get caught up. I'm not too achy from the neulasta, but headachey. If it gets too bad I can take my norco I took my Claritin.



Sharonanne, forgive me but it's driving me nuts! Gashgold does NOT "live in Australia". New Zealand is two totally separate islands located rather far from the island continent of Australia. Not like our state of Rhode Island, for example. Many Americans know NZ best for the shooting location of The Lord of the Rings series - it's incredibly beautiful with a wide range of geography. As for the Canadian/American comparison, that may not be strong enough to describe the feeling - more like how an older southerner might feel if someone called them a "Yankee" just because they didn't have an accent.



Sorry, SAB, thanks for letting me rant a bit about that, and the little geography lesson. I keep trying NOT to picture you with the corncob and your tu tu. MY mother called the area my po po growing up, but with my own kids I've stuck with the clinical names. Saves a lot of confusion (like when a coworker kept referring to her car as a Vulva ; ) Anyway, my NP yesterday said when my immune system went down everywhere there might be the normal flora just went "yippee!" And multiplied like crazy!



Now, why would I have yeast on my neck?? All I can think is that maybe all the drugs have me drooling like a moron in my sleep, and I haven't been sticking to the pillowcase when I get up, so I dunno! And why just on my port, too?



VEGAS - I have my 40th hs reunion up in the DC area next summer, so that might be my only trip. I promised my daughter that it would be a girls only trip, so can't renege on that! Maybe we can meet up with LISASP and some of the other East coast girls.



FMGDTR, where are you in New Jersey? My DIL is from, South Creek(?) - and shops regularly at the 2 places the powerball winners were sold. One of the winners, the group of county workers, has several of her and her folks acquaintances. It would be SO fun if you were from the same area!



Ok, funny movie - now this is a dirty one, ladies! But one of the funniest things I ever saw. it's Booty Call, and worth it for some of you younger types who might not be up on the late 90s movies (cuz you were like, in grade school ; ) I like movies like Valley Girl and Encino Man, all of which I get to revisit now that I have a teenager (who's a total Breakfast Club and Pretty in Pink gal - and loves seeing "Alan from 2 1/2 Men as Duckie")



FMGDTR, my declaration for the day is "I am ALWAYS in the hands of God." Only He is going to carry me thru all this, and give me the grace to handle it with humor and acceptance. I'm triple negative. I just shot stuff made using E Coli willingly into my body yesterday to help fight the poison I dripped into a machine implanted into my body 10'days ago. My grandmother died of the radiation for her breast cancer in1960. My what advances we have made ; )



Love you all!

Rayna - I will be doing surgery after chemo, but with baby it probably won't be until Feb or Mar. Depending on what they find after chemo, I have a choice between lumpectomy or masectomy....by then most of you would have undergone surgery so I can find out why you chose what you did and weigh that into my decision!

Rayna:



Recon surgery planned post chemo and prerad. Going in to see the plastic surgeon Sept. 4. After the 2nd lumpectomy my left boob has a dent! Oh well.



Carol the idea of getting to meet you next year is great! We should keep this concept going!