August 2013 Chemo Sisters

Gashgold, I just read that you're getting a port today. I was told I don't need one, big fat veins. I hope it goes well. It may be too late for you to see this. When I had a shoulder block for rotator cuff surgery, I kept telling the anesthesiologist that I had been freaking out about having it. They put a needle perpendicular to your body above your collarbone. Horrors. I've had three such surgeries (no I don't have three arms, I hurt one twice), and I only felt it once. I'll never go back to that place again. The others, I pretty much don't remember because I kept saying, "I'm still here. I can feel that." They want to shut you up. Hope you do well. It's more than likely over by now.

Goodmorning Ladies, we are growing by leaps and bounds and it is difficult to keep up with everyone but I do read through all the post's and my thoughts and prayers are with each and everyone of you, we are all experiencing different SE'S fighting this moster but we are together in our walk. I am 5 day's post Chemo today, I did take a Zofran when I woke up and as far as I can tell the headache is almost gone but still achey. I have an appt with PCP Thursday and back to MO on Friday, I need to come up with a plan for keeping my Shingles under control through my chemo so it look like maybe increasing the anti-virals may be an option. I really do not have much get up and go today so I will just take it easy and keep up with all my ladies on BC.org, it keeps me going😄Welcome to anyone new I am glad you found us here, it is a great support group and to those having treatment today or starting this week good luck and may God Bless You.🙏



Shary🌞

Hello,



I declare that I have the best support system ever both near and far. I hope everyone is doing the best they can and taking time hug themselves for what a great job they are doing with what they have bern dealt.



HVV sorry you are feeling alone. Please no you are in my prayers. Be strong and stay positive for better days ahead.



Rayna - hope you are feeingl better and you get some great information to help your son during this diffucult time.



Shary I hope you can get your shingles under control. None of us need additional things to deal with.



Carol hope things are getting better for you. Having those extra things to deal with is not what you need, but you sound very strong and can deal with what has been sent your way!



Welcome to all those who are new hear and I wish you the best. This is a great group!!



I am going today to have my head shaved and wanted to know for those who have already lost their hair does the tingling feeling eventually go away once your head is shaved. Has anyone ever put anything on there head like lotions, oils. Not sure but I hate this bug crawling feeling.



Everyone know you are beautiful inside and out!!

HVV: Hi sorry you are feeling so alone, I have become very familiar with that feeling as well. It's amazing how we can be in a room full of loved ones and feel lonely. It is a lonely disease. I wish we were all closer and could actually get together to give each other hugs and encouragement but I guess we have to settle for this site. Somehow knowing we aren't alone in this journey, or the pain or the sadness or the side effects makes it a little more bearable.



Dear Lord, please comfort HVV and all the other lovely women on this site who are or at sometime have felt alone and scared. Let them feel your presence and know that this too shall pass. Keep your Guardian Angels around us and walking beside us or carrying us through this journey that is so unknown. Give them all a sense of peace and fulfillment and know that they are loved so much by you and their families, the ones who we are doing this for. In Jesus name we pray, Amen.

First treatment is tomorrow. I'm already tired since I had more work done on my tissue expander.

I hope this goes quickly. I'm foused on that and drinking lots of water.

Oh, and I got my 12+ inch hair all cut off last night. I figure it'll be easier dealing with the hair loss when it is shorter.

HVV: I have a "recurrence" 16 years after first at age 40, Stage I (tubular and IDC), treated with lumpectomy and radiation. This time, Stage IIIa ILC, triple-positive. MO convinced I am BRCA+, but don't have results back yet.



Pray for you all constantly - and I really mean that!!! Having a hard time sleeping, so actually end up praying all through the night as well as throughout the day. Have been praying lots for Ashley and her very new husband. Hope to see an update from her soon.



I see that several of you have blogs, and actually contemplated starting one today. Precipitating factor: After four rough days of N/V and headache following first infusion of AC (and two more days of just plain recovery), decided to have lunch with a friend. After getting ready, went to get my fiberfill inserts before heading out the door. I could only find one white one... then remembered that my 2-year-old grandson when visiting a week ago had used them as "footballs"! Ended up taking the fiberfill out, dividing it in two, and stuffing my cammie. Still don't have any idea where the other is.

I decided against icing fingers and toes, partly because of worry about chemo not reaching everywhere, partly because I just would rather not. I am still icing my mouth because I think mouth sores would be the worst. I suck on Popsicles (sugarless) during Taxotere admin.



Agh more hair coming out and my head is itching. Dreading a shower. Oh well.



All the best for you, Tonya and wing on your first tx.



Here's a silly joke for everyone: What did the Zen master say to the hot dog vendor? Make me one with everything.

FMG:



I include first day of tx so this is day 16. If you look at the bottom of the post, you'll see all my dx and tx info.



Monday will be my 2nd infusion.

Hello all, there are way too many posts to respond to all of you! We saw the MO today, my first chemo will be 9/6. She would have wanted it to be in August by my daughter is getting married and we are leaving town next week. So if you don't mind, I will still stay with this group.

I also will not be icing, I want to be sure the chemo gets to all the places it needs to go. I am also triple negative, discovered completely by accident (THANK GOD!) and the MO is concerned because by the time i get my first treatment it will be nearly 12 weeks since the original surgery. LONG story. But here I am, and (somewhat) glad to be because if not I would not be getting to know all of you amazing ladies!

I wish everyone well!

Martha

Martha, I read just this week that we shouldn't wait longer than 12 weeks between surgery and chemo but anytime within that 12 weeks makes no difference in outcome. I don't know whether to believe everything I read. I, too, had my son's wedding in my back yard, which postponed my surgery about 4 weeks. A mammogram found the tumor around June 11 and the wedding was July 12. I worried a lot because of the aggressiveness of triple negative, bu the SO didn't seem to think it would matter. It was a beautiful wedding. Glad I did it. Enjoy yourself and make some great memories. God bless you on this journy. SAB

Togethernes: You are one tough cookie! What day was your tx?



I feel depressed about my hair at the moment unfortunately.

Thanks SAB. I have a wig but I'll try to find our local ACS for hats.

hi ladies, Well I went and seen the dr today and my offical start date is august 29th....Finally, I have a date.... My incision is still open, but they said we are going forward anyway. I am a little nervous about having an open wound and starting chemo, but they think I will be fine......I hope everyone is feeling good and have minimal SE.....