The Hermit Club

Yea Lori! WooHoo!

DD is a teacher, school started yesterday here. I know she's pooped. I worked in our district for over 23 years, food service and bus driver. The first week is hard on everybody. Glad to be retired, don't miss it.

OK teka than Lori got to watch her billing--we get so much billing it's sometimes hard to keep up with.

del

I never knew this stuff--I was originally asked to be in a trial at first, but then they said I wasn't eligible so I really never asked anything about it so I didn't know. Wow u have to be careful about everything. Too much stress.

My understanding is that if you agree to a trial of any sort, there is NO cost to you or your insurance or any other form of financial obligation.  You are basically doing them a favor by agreeing to be a part.  No cost to you.  period.

Yes, I teach.  First day was Monday.  Today, I was told at lunch to pack up all my books, binders, everything, remove every item from my bookcases, clear out... They are putting in new carpeting.  (I have informed them of a mold issue for months and months.  And second day of school, they act.)  My room has thousands of books, so I am exhausted... much less having to teach with no supplies in a "foreign" room until given the green light to return.  soooo tired.  The custodial staff stayed late with me, and my things are now all over the building... stored in lost and found, the computer lab, every nook they could use.  I hope I get my file cabinets back!  sigh.  Off to collapse, then get ready for day 3 of students.  Tomorrow will be a challenge.

Oh, sweet Teka.  I didn't mean free of woe or free of ouch.  I just hope no one is paying to take part in something like clinical trials.  I know I'm a guinea pig and have to pay for surgeries and such, but the "cutting edge" (no pun intended) technologies have to have "pioneers" as my bs says...  I hope no one took offense at free.  No disrespect meant toward anyone brave enough to accept those options.   Hugs...

Skittle,

Maybe a free lunch (Avastin), but one whopper of a tip (health insurance paid for infusion room).

If I had been self pay, big bucks!

I read that she posted somewhere...

Hermitting.....was supposed to go out but not much gas....so will stay in and don't have to go out til Friday...apparently the DD's are supposedly taking me out for dinner, I think something is going on, like they are having a 60th bd party for me, this is my week off....anyway...

how is everybody?

markat & LaurieParr, haven't been on-line in over 2 weeks.

I hope enjoying the end of Summer!

Hi hermits- I realized yesterday after a week of being back to work on my consulting contract that I feel like I never went on vacation! One of my yoga teachers did say this week she thought I had a hawaiin glow though.....

Went to see the gyn this week and most everything okay. Next is the mammo on 9/3 which I am getting nervous about. Fingers crossed. 

Some interesting things here about a clinical vaccine. I thought to myself when I read it "wouldn't it be wonderful if women could get a vaccine to prevent this problem?" Like so many other terrible diseases through history? And I think some good advice here to be careful about the $$$ around this though, along with our general medical care. We all have stories of things we were told that would be paid for that were not. 

Lori- you sound better this week and hope you are enjoying your hermit time at home.

Skittle-what a drag about the rugs, they should have done that over the summer as Cami says.

Blondie- you are having a milestone birthday! I hope you have a really great dinner/celebration out!

Teka- what is in your garden late summer?

Cami- glad you like the funny pics I find for you all!

I know Laurie is going through radiation therapy right now and no doubt pretty exhausted from that so we hope you are dong okay Laurie. Try to get lots of rest. I hope your daughter is doing okay, tough pregnancy for her.

To all the rest, hope you are doing okay with whatever you are doing this week!

 Just a little something to have with u;r coffee

Cami- now why didn't I see THAT wash up on the beach in Hawaii? LOL! 

Bayoubabe- sorry to hear of your difficult journey. First of all, I am glad you were able to take off a good amount of time to get through your treatment and recovery. But it sounds like you are still healing from some recent procedures and not back to where you were, and now dealing with the "new normal."

Maybe the work you do is too stressful to consider anymore. We are different after all we go through physically, emotionally, etc. It is clear you have bills to pay from treatment (have you looked into setting up payment plans to ease the financial pressures?) One thought is, can you find some different kind of work that is part time? I was able to go back to my work (consulting self employment) but had to work PT for three months to ease into it. It may not be that working is out of the question, but the job you have been doing is? 

I am sorry your community sees your time off as something pleasant, and that you should be all better. We all have commented here on this thread about family, spouses, friends, co workers, etc. who are not very empathetic about our situation. Some folks here have shared their process with many, others of us with just a handful of folks. Yet we have all felt dinged, stunned, or otherwise dismissed at times by others who cannot deal with the word "cancer." Unfortunately, we can't make people get it, but we can open ourselves to being around kind and understanding people who truely care about us, won't judge us, or push us, or make us be something for them to be okay with where we have been. I suggest you look around to see who those people are and spend your time with them.

Please remain here to share with us as it is a lovely group of women who are kind and respectful of one another and try to help. We are glad you found us!

Teka- good perspective. It takes a long time to recover from everything.