Ohio Chemo Sisters

ChickaD, have you tried taking Clariton for the bone pain? I didnt my 1st nuelasta and never had so much pulsing pain. You can take the generic loratidine. I got mine at the dollar store. I think the first chemo is the roughest. Your body says "what the hell just happened here?".  

Help! I have just found out that my onc is no longer an in-network provider w/my insurance company so I am in the market for a new dr. This is a call out to all of the central Ohio sisters for onc recommendations.

I know that I definitely have coverage at OSU/Stephanie Spielman and the Bing Cancer Center at Riverside. Thank you!

ChickaD - Day 3 was my worst, too.  Day 1 I felt pretty good because of the steroids.  Days 2-3-4 were my worst , and day 10 was really my turnaround day when I started feeling decent.  I had TAC x 6, every 3 weeks.  The day after my first Neulasta shot I felt like I got run over by a truck, but it was the worst one.  The Claritin seemed to help a little ... I figured "can't hurt, might help."  I think the Percocet helped too, LOL! 

Leslie - how goes the Arimidex for you?

Thought I'd let everyone know I just finished chemo on June 29th!  Feels so good to be DONE!!  Now on to tamoxifen & watching the hair grow.  Angie, I'm a very close neighbor.  I live in Orrville:)

hi everyone ...would like to know if anyone has heard anything about soy protein isolate i read where it is high in estrogen and i am er+pr+ her2-  i take arimidex now and am concerned about too much estrogen

Munny - I was told to stay away from soy products. I am 100%ER+/PR+ so it makes sense I want to saty from things that produce estrogen. I also stay away from alcohol - it has the same effect as soy (except red wine).

Yes, I worry about the cancer coming back. I don't worry continually, but every time I have a cough or pain, I do a self assessment and wonder if it is something I should worry about. Maybe that goes away with time? Maybe I'm not far enough out to have the worry behind me.

Best wishes to you.

Diane

Good morning, ladies.  I am long-term resident of these boards -- an Ohio native living in Virginia for the last 34 years. 

I am seeking Buckeye help for my 41-year-old niece who was just dx with cancer on Friday.  She lives in Dayton and lost her mother (my sister) last year to IDC and ILC.  We were never happy with my sister's medical team, so I am seeking recommendations from Dayton-area sisters who are happy with their surgeons and oncologists and other providers.  The doctor she has now is so bad that the office called her on Friday afternoon to tell her that her biopsy was positive but then said that was all the info they had - the nurse was out in training so there wasn't anyone to talk to.  They let her swing for the whole weekend! This morning the nurse said that the report was very complicated and technical and even she didn't understand some of it so she wouldn't read it to her over the phone -- she had to make an appointment to see the doctor IN A FEW DAYS!   

SO -- help!  Does anyone have any recommendations I can pass along to my niece? 

Thanks!

L

I would tell her to get a copy of her pathology report, her mammos for the last five years and make an appointment at the Stephanie Spielman Breast Center at Ohio State.

To schedule an appointment, please call the James Line New Patient Referral Center at 614-293-5066 or toll-free 1-800-293-5066.

1145 Olentangy River Road
Columbus, OH 43212

I would go there first and make sure she has the right diagnosis and the right treatment plan. They may be able to refer her to someone local in Dayton but she is close enough to excellent care - I would be heading to OSU.

I have been treated at OSU this year. Highly recommend my surgeon Dr. Agnese and also know many people who have seen Dr. Farrar, head of the department, highly regarded.

Hello Ladies!

I live in Mentor and meet with my BS tomorrow for my follow up after lumpectomy and SNB to get my pathology report and schedule my recission. I am being treated at University Hospitals. Chemo is in my near future.

My mantra - Live like there is no midnight!

Dr. Persons is my surgeon too.  I love her.  Yes she did not get clear margins on the back side towards the chest wall. Initially she thought I had 1/3 nodes involved but luckily that was not the case after futher look.  This was such a bummer - the day she called me and gave me the news I was going to my OBGYN to schedule my hysterectomy.  So that will come later and he will remove my ovaries too. 

I will post tomorrow once I know more.  

Travlmom,  I did not get a second opinion. I went to UH because of the long standing excellent rating of the Seidman Cancer Center ( formally the Ireland Cancer Center).  I was very pleased with the doctors,nurses and support staff. I hated going down to the Main Campus and was thrilled to be able to have chemo,herceptin and radiation at the Beachwood Seidman Cancer Center.. Only 10 minutes from my home which meant a lot to me . I can not begin to imagine how hard it would have been if I had to go to the Main Campus,especially for the  33 radiation treatments.  I will be 75 yrs old in October and live alone so treatment close to home was important to me..

I was very lucky-- minimal side effects from the chemo,no side effects from rads and minor hereptin side effects  brittle fingernails and slow growing thin hair.. I don't think that I could have done better anywhere else.  

Good luck -- the decision making process is  difficult..      Hugs  Eileen

Is there anyone going to Mercy Hospital in Canton for treatment? And has a doctor from Mercy that they really like? I'm looking at Mercy but don't know any of those doctors. I am looking for the (Mercy) doctor that comes highly recommended by a patient. My insurance does not cover Aultman or the doctors I wanted there - I'm waiting to see what the Yes, You Can program offers me at Aultman.

I love Barberton and love my onc, Dr. Hazra. But she did not want to be part of Summa Physicians she had to give up her office space at Barberton. She moved to UHC Wadsworth on the corner of 18/92 (?). I really didn't want to make the drive out there. I went to see the 'new' doc at Barberton once, nice guy, but really wanted Dr. Hazra. So I made the trip to see her.

Yes - I am doing well. Still getting good reports. Have other aches and pains but they are not associated to breast cancer.

Thanks for asking.