Tamoxifen and muscle pain in neck, shoulders and back

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AnnMarie246
AnnMarie246 Member Posts: 8
edited June 2014 in Hormonal Therapy - Before, During, and After

Been on Tamoxifen for 2wks and am having amazing amount of pain in my neck,shoulders and back.

Is this normal?



I am so worried.

Dr would like MRI of my spine but my breast expanders are not MRI compatible.

Confused and waiting for Onacoligist to call me back.

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  • coraleliz
    coraleliz Member Posts: 1,523
    edited August 2013

    AnnMarie-I had mild neck pain prior to BC. When diagnosed, my BS asked me about any pains I migtht be having. She sent me for an Xray & it showed "mild"arthritis. After being on Tamox for 4-5months my neck pain got much worse, extending into my shoulder. I had it re-Xrayed & this time it showed "moderate" arthritis. So my arthritis went from mild to moderate in less than a year. I suspect it's the tamoxifen. It seems like I'm getting lot's of aches & pains.

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  • Jubby
    Jubby Member Posts: 85
    edited August 2013

    This me to a T at the moment.  I have been on Tamoxifen since 8 July and my back and neck are so sore.  My left shoulder blade feels so tight and I keep having shoulder muscle spasms.  I have had a bad back for years, but this muscle pain feels awful and more constant.  My physio saw me today and says it's muscle pain related to the sympathetic nervous system.  Apparently the sympathetic nervous system is very sensitive to hormonal changes and stress.  Gee, great.  I also have a bit of a chest cold at the moment so I'm paranoid I have lung or bone mets.   Seeing my onc on Monday so hopefully she will give me some peace of mind.  Argh!!!!!  Bloody breast cancer - no pain is worry free.  

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  • AnnMarie246
    AnnMarie246 Member Posts: 8
    edited August 2013

    Hey Jubby



    Was just checking in to see how your Dr appt. went today?

    Hope you are feeling better!



    Sending you lots of Prayer

    Ann Marie

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  • pre
    pre Member Posts: 2
    edited May 2014

    Hello Jubby,

    What did your onco say about your neck pain? I started tamoxifen in Dec last year and have neck and shoulders stiffness and pain after 2-3 weeks. My onco keeps saying it is not a side effect of tamoxifen but it is because of menopause. But this is what I read from internet:

    http://www.ehealthme.com/ds/tamoxifen+citrate/pain...

    Hope to hear from you about your progress. 

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