STFU (Shut the F*** UP)

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  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    WTH....I post less than 24 hours ago and there's THREE PAGES. There was quite the gabfest this morning at 4 am my time.

    .....and Cammi, you can spell now !!??!!

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Wait when did I learn to spell, this is news to me.

    Chevypointingoutallmymistakes would have said something. But all she's talking about is her cumasecuama and how it got so purple and then she threw in some ears of corn and made cornchowder.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013

    Wait!  Cammi can spell?    Okay, and I just had my 30th birthday!    Ha, ha!  And then YOU Cammi.... You even surprised yourself!  Smile

    Actually you did NOT make any mistakes....  Since I can READ everything you say now, PLEASE don't change!    And yes.... That clam chowder was  de-lish!  I would have given you some if you were here!  My God, you are sooooo funny!    My WHAT?  That MUST be Italian!    Okay, do you know what Italian fore-play is?  So pretend you are a guy, snap your fingers, and point!     I'm going to get kicked off of here....

    Hi Shells!  Thinking of you! xoxoxoxo

  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    Ok, serious question here, it might be a little long, so bear with me. I value all your opinions and your not going to hurt my feelings. Since Im a stage 4er, I have a continual script for hydrocodone. I have never really needed it until the last few months. Im up to3 a day. I dont want to take any more than that even though my limit is 4 a day. They are not lasting hour wise as long as they used to so Im thinking Im slowly building up a resistance to them. They dont make me high, but they do make me feel Good. not in a bad way, but Im worried about really getting hooked on them. I dont know if that should worry me or not, since not being morbid or anything, but I know this disease is going to eventually kill me. Do I need to worry about that too? This is a hypothetical question for all of you I know, but I need some help here. Do I quit taking them now even though they help? What do you guys think you would do in my situation?

  • ChickaD
    ChickaD Member Posts: 1,025
    edited August 2013

    Oh Miss Mary...I want you to be comfortable...I'll let our hoolie medical staff chime in with better info♥

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Ms. marywh

    I would take the pain meds for as long as they are needed and not worry at all about building up a resistance to them.  As ChickaD wrote, you need to be comfortable.  That is about all we can be grateful for and expect when dealing with this stupid disease!   Kiss All the best to you and everyone here today and everyday in the future.

    Flowers

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited August 2013

    checking in me and Otto the Oxygen tank.....

    Chickie r u better?

  • ChickaD
    ChickaD Member Posts: 1,025
    edited August 2013

    Hi Miss Bombshell...I think I feel better..how are you?

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2013

    Mary, I'm no medic, but if you need them, use them. If the pills stop helping, they can up the mg, or there are other meds you could use.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited August 2013

    Phyllie I agree about the ankle monitor, and BTW how long is that sucker on you?

    Sassie how ya feeeling?

    Mary what does the porch furniture look like?

    GMA I want to work at Joanne's love it there.

    Chevy, grass, what kind of grass!!

    Feeling ok, sick of being attached to Otto, but looking forward to the ice cream.....are you almost done chemo, forgive me I keep forgetting....

  • juliaanna
    juliaanna Member Posts: 1,043
    edited August 2013

    Sweetmissmary,

    The big concern is making sure you are comfortable and able to function.  If you need to take more, take more. Definitely don't stop if the medication is working.  Who decided 4 a day is your limit?  I know someone who takes 9 a day (2 pills every 4 hours-8am, 12noon, 4pm, 8pm and 1 at bedtime) and does fine.  Talk with your doctor.  Maybe you need to take 2 at a time instead of one.  I know there is a concern about liver damage with too much Tylenol/acetaminophen so the recommendation is no more than 3200-4000 mg/24 hours. There are many options for pain medication when the hydrocodone is no longer effective.  

    That's my two cents.  I'm sure others will be checking in, too.

    Take care. 

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2013

    Mary, I'm trying to get comfortable with taking what I need.. And I'm not in your condition. My doc gave me a limit with my med but he said the goal is to stay ahead of the pain not to tough it out.  That being said.... Take what you need and if you need to get off them later, then the doc will help you.  Gentle HUGS to you!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited August 2013

    Just remembered there is vicuprofen if Tylenol is a concern.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Littltmarywha - ditto what julseyana said - particularly with the Evil Ixempra.  Seems that the pain is cumulative for me,  If your pain is from EvIx, maybe the talk with your doc should include that aspect particularly if you will be on it for a long time..  I will now  STFU except to say I hope it is better SOON.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Maryneedsmeds---I am the biggest pusher of pain meds than anybody and if u knew me before BC I didn't take aspirin, if I had a headache I'd put ice on it or just wait til it left. There is no reason to be uncomfortable for any kind of pain. And I wouldn't worry about being an addict in any way, that usually happens with people who were in pain and kept taking meds when they are not in pain--U have pain, u have the arsenal use it and if needed tell u'r Dr. u'r still in pain. I just started a stronger pain med, u guys noticed cuz after I take it I can spell and I talk alot then I quiet down.

    OK Chevy u and I are both going to get thrown off hahahaha

  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    Sweetmary,                                                                                                                                                     Regular use of opioids does change your tolerance level over time.  Because tolerance can occur, your  physician will need to adjust your dosage, or add or change to  other medications. 

    Don't worry about "addiction." Addiction applies to those who use opioids recreationally, not for medically indicated pain management.

    Bottom line: the most important thing is your quality of life.  When you have pain, take the medication that is prescribed, and keep your doc up to date on how it is working.  

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013

    Morning gals.... !  Mary, It just makes sense what these women have said.....  I mean even Cammi!  Wink   I was thinking that "yes" I'll bet your body DOES build up a tolerance to a prescribed dosage, and then you need more!   Like those cute little commercials with the kids in school, and the one little girl says "More, you need More!"  Or "want"..... whatever.

    I wouldn't worry about being addicted or anything.... you are in pain, and you DO need to stay ahead of it.... and not wait until it takes you over.

    And Juliaanna said something important also... Maybe your Doc needs to adjust your pills... and the amount?  Just don't really let it start hurting before you take the pills.

    We're WITH you kiddo....  just do what makes you comfortable. xoxoxo

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Gumby bursting your bubble as my bubble was burst. They used low calorie sugar in the UofM study. BUt the encouraging thing is the window is still open as a study design was  suggested for further reducing the sugar content OR use SUGAR FREE Cranberry Juice in a repeat study

    That was another reason I liked that "Morsels of Evidence" web site. They did an analysis of the U of M study that used the whole scientific method to evaluate  the study.  Pros and cons, it was done very well i.e they made it easy to read and understand.

    A previous study which is the one earlier sometime plus or minus 2000 supported cranberry juice as being useful. Quote from Australian study ''There was prior low level evidence suggesting efficacy of cranberry in the prevention of UTIs. This study(U of M emphasis mine) provides moderate-high level evidence (NHMRC Level II) that cranberry is ineffective in young sexually active women who were otherwise well"

    SOOOOOOO, hopefully a third study will correct the design flaws of the U of M and previous study and do another one.

    One thing identified in the Australian analysis was both the LCCJ -low calorie crannberry juice and the placebo used for the control had ascorbic acid--vitamin C. So, That may have influenced study results. The suggestion was either make sure Vita C was eliminated or do a study on Vita C.

    In the mean time your suggestion of using sugar free is as good as anything right now as long as the approach with telling someone that it works is, "there are questions raised and it hasn't been proven, but it won't hurt you".

    EDIT: Your comment that yeast loves sugar is so true.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Chevy, what a story AND you may have had to talk to your ambulance about it. Not sure how the ambulance would have respondeded, but I bet the EMT's would have had a good laugh hahahahah. Your quote "Can you IMAGINE telling an ambulance what was WRONG with me? Rotfalol XOXO

    Ducky  I know you know Genetian Violet is an older drug, but the youngins here don't. It's like Epsom salts. It previously was used for soooooooo much. It was in every home. Now the people younger than me (60+) haven't a clue about it. In a future time these older treatments that had definite value will be drawn back into use as our wonder drugs of today fail b/c they've become resistant. I had a wee bit of a clue that you may have thought I was discounting what you were saying. So, I apolilgize if that's what you thought. I was in the just state the facts mode. Some of these older treatments have already begun to re-emerge as treament modalities. Some have never left, just aren't widely known, or given the respect they deserve.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Sas I still use things that were used when I was a kid and it works fine--Of course I see a Dr. all the time for other things but those little things that I'm certainly not going to call a Dr. for I use old remedies and they do the job.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Chevy --what is Italian foreplay?  your quote "Okay, do you know what Italian fore-play is?  So pretend you are a guy, snap your fingers, and point!" Please further define, I don't get it?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2013

    Just popping in to say sas....you know what you are talking about.  I had Gential Violet as a younster and it worked really well.  Looked awful but hey.  At any rate.....when we lost our Insurance....right before my cancer was found....I was a little desperate.  That is when I signed onto the V.A. for all my txs which have been fantastic and are the reason I'm alive and NED today. 

    The part of the narrative that applies so well though is that the V.A. is ( I think  ) seldom swayed for the most part by the 'newer' drugs.  Most of mine were switched and indeed, they seem to do a better job than the 'newer' ones that were replaced. 

    I am quite happy with the results of it all and when I now watch commercials for some of these new things on t.v. just wow.  The list of side effects are incredible and I often wonder.....unless you really, really had to.....who would even dream of putting some of those things in your mouth.  I for one would be thrilled to get away a bit from all the "new" stuff and get back to some of the things that worked so well.....like Asorbine Junior....not sure of the spelling of that, but we always had a bottle of it -- along with old fashioned Mercurichrome ( sp!! ).  Some things just don't need changing.....and I don't buy anti-bacterial soaps either.  A through hand-washing is good enough.  I do buy wipes though for my counters where food is fixed but not too much else.

    Jackie/Lilli

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2013

    SAS.....Italians are so hot-blooded that is all they need to do.

    Lilli

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Cami -I'm not discounting older treatments. I've said for several decades that I think orthodox medicine that started throwing out old treatments for the last century and a half has done us all a disservice. Humans survived throughout millennia, by using methods to correct problems. Also, humans died when the method used didn't work b/c it killed them. But we would have never survived as a species without the use of some of these old remedies. Nostradamus was  a doctor as well as a seer. He healed folks that had the plague by cleaning up their environment-(got rid of rats and washed things up), AND used Rosehips--high in Vitamin C. Medical history may debate that these two things had that much impact. But he had a reputation for fixing things till his wife and son died of plague.

    Anyways..... us 60 & 70 y/o's remember more of the old remedies than the younger generation. The younger generation was brought up during the time NEW drugs and methods were touted as the best. The kind of benchmark moment of change was the introduction of antibiotics in the late 1930's. That's an oversimplification b/c books have been written on this. The biggest change was from the 1960's on. BUT our generations(1920's thru 1950's) remember the old ways. That's why the government gave in and developed NCCAM-National Center for Complimentary and Alternative Medicine" that I wrote about when we talked about candling. IN the late 80's we were in our PRIME LOL. WE demanded that the old ways not be discounted. Our generations forced the government to act. NCCAM was established in 1992. It's possibly just a sham now , but it does exist.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    U got it Jackie Italians just point and before u know it it's over--that's there foreplay.

    Remember my biopsy story, I was going with all the needles all over the place, then the Dr, said this is going to hurt a little He put the needle right thru my nipple and I said That's the worse foreplay I've ever had.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    Older drugs sometimes do better....they still say the cancer cure is going to come from the rain forest, or the jungle.......and I qualify as knowing old drugs.....lol.....

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Lilli, Your point re:the VA is well taken. The VA reduces costs by going with the older drugs and treatment. I think it's a smart move. These older treatments and drugs have stood the TEST of TIME.

    I've always suggested that older drugs be considered over newer drugs unless the newer drug absolutely is the only consideration.

    Two reasons:1 NEW DRUGS used in the general population can have problems that weren't evident in the clinical trials. These problems show up in the first 1-3 years( sometimes longer). How often have you heard of a new drug being pulled from the market b/c of this. While the Aromatase Inhibitors haven't been pulled from the market, the serious extensive s.e's seen in the aftermarket use weren't seen in the clinical trials. When people have to have joint replacements b/c of using a drug, that's serious. Again, this could go on very long, but you get the drift.

    2. Cost of older drugs can be a pittance compared to newer drugs. My Levoxyl which was cheap has just been discontinued. Synthroid was substituted, the cost made me gringe. Told the doc find something cheaper. He did. Examples of this can be seen in all drug classes. Insurance companies have keyed in on this in the last decade as medical costs skyrocket. Most/many insurances companies approved drug lists require either older drugs or generics. Generics are actually older drugs. A proprietary drug has patent rights for x amount of time. Once a patent is expired then a drug can be produced by other companies. The cost of a drug comes way down after the first 6 months when production is open to many companies.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Ducky, your right in the sense that perhaps the cancer cure hasn't been found yet.  Drug sorces forever have been from--animals, plants, minerals, and synthetic. The protect the Rainforest crowd have used this in there battle for decades. It's absolutely true. An unknown though, is do we have something already that is useful and we don't know it.

    Forgot who mentioned mercurochrome. Loved the stuff, never knew why it was discontinued. This link gives an explanation.

    http://www.straightdope.com/columns/read/2518/what-happened-to-mercurochrome

  • gardengumby
    gardengumby Member Posts: 7,305
    edited August 2013

    sas - low cal cranberry juice isn't the same as straight unsweetened cranberry juice by a long shot.  Straight cranberry juice is really strong (and sour).  I don't know for sure that it truly helps as I haven't been part of a study - but I also haven't had a UTI in a really long time....  :)

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