IDC Stage 1 Grade 3

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FreeWilly
FreeWilly Member Posts: 3
IDC Stage 1 Grade 3

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  • FreeWilly
    FreeWilly Member Posts: 3
    edited May 2008

    Hello!

    My mom(65yrs) was recently diagnosed with IDC Stage 1 ,grade 3. She had a lumpectory followed by sentinel node biopsy and nodes were negative. The tumor size is 2cm.

    She has been asked to follow up with a Chemotherapy and Radiation-

    She underwent first round of chemo last month following which she had terrible  side effects-so abd they had to stop the treatment  and wait for recovery before proceeding.

    I am wondering if there are any of you out here who had similar diagnosis but opted/chose not to take chemo? Her oncologist has recommended chemo and radiation- I am just wondering if there are alternatives.

    Also, stopping chemo midway- did anyone have that experience? Did you have to restart from cycle 1 all over again?

    Thanks and take care!

  • ravdeb
    ravdeb Member Posts: 3,116
    edited May 2008

    I was IDC stage one grade three, too.

    I was diagnosed at age 50.

    I started out on AC and after the third treatment got very sick and they stopped it. I took a month's break and they put me on 12 weekly Taxol and it was a breeze compared to the AC.

    I was triple negative. If she is triple negative, it's advised that she take the chemo, even with a break in between because chemo is the only weapon. Then follow this with radiation (which was very easy).

    If she has hormone receptors, she can take hormone treatments and should discuss this possibilty with her onc.

    I also had node negative. I'm guessing your mom is triple negative? This would mean that she has negative receptors for estrogen, progesterone and her2.

  • FreeWilly
    FreeWilly Member Posts: 3
    edited May 2008

    Thanks! Let me check with her about receptors-I am trying to get her reports across....

    Hope you are doing good after everything..

  • TerryNY
    TerryNY Member Posts: 603
    edited June 2008

    Freewilly, I had to stop my chemo treatments for one month and restarted again right where I left off, no extra cycle. 

    If your mom is ER +, ask to have the oncotype test done.  It will determine how much of a benefit chemo will be for her and she can base her decision to continue, or not, with that information. 

    Good luck.

  • HOLLYROD
    HOLLYROD Member Posts: 5
    edited June 2008

    I was diagnosed last jan with stage 1 grade 3 or d which is poorly defined  cancer cells..that means agressive the dr told me i needed both chemo and radiation.. i finished chemo was on ct and took the anti nasuea before i felt anything.. never got sick.. just bone aches.. seen 2 diff oncologist and they both agreed since grade 3 needed both treatments .. also i had no lymp node involvement..but i read my path report.. it stated only 10% of tumor was still in intial site.. my tumor size was almost 2 cm hr+ and now on tamoxfen and trying to complete radiation  

  • spmeir
    spmeir Member Posts: 1
    edited July 2008

    I had a mammogram DEC 21 2007 and it showed nothing in June 2006 I felt a lump or rather something that I had never felt there before so I called right away 'family history lost mom less then two years ago from breast advanced to the bone and aunt breast to lungs...Moms was missed until it had already advanced her tumor hide behind her sternum...aunt she waited to long because she had to medical coverage and was to humble to ask for help...she passed 20 years ago' So any how when I felt what I felt, I felt I had to get in right away and it was a good thing I did, it is cancer! I had a lumpectomy and sentinal  July 9 and just did my followup with the breast surgeon who set me up with the oncologist saying I am a good candidate for chemo...I was first told that it would be removing the tumor and surrounding tissues and Radiation and now the talk of chemo  makes my head swim some! I was told as well that I am a good candidate for the hormonal therapy drug...wondering why all this if the cancer tumor was removed and the surrounding tissue was clear and nodes are neg, my cancer is estorgen and proestorne pos hre-u2 neg...I am 46 years young...can anyone help me with why they would want to go further is everthing looks to me as a good clean removal...I do understand the Radiation but the rest is why I am swimming, well my head is....as for me I will go forth with what ever it takes to make sure this beast is out of my body completely!!!

    Thank you in advance for any and all replys!

  • ritajean
    ritajean Member Posts: 4,223
    edited July 2008

    I also had a stage 1, grade 3 tumor.  I had an excisional biopsy and then had to go back to surgery to get clean margins.  I did 4 CMF chemo treatments, broke for 33 radiation treatments, and came back to finish the remainaing 2 CMF treatments.

    It was suggested that I do the chemo because of the grade 3 rating.  Grade 3 means that the cells do not look like regular cells and these bad cells are dividing at a fast rate.  It takes a more aggressive treatment to kill them off and since cells are microscopic, there is always the possibility that they can find their way to other parts of the body or into other areas of the affected breast.  I took the chemo because I did not want to second-guess my decision if the beast reappeared down the road.  This way I know that I have done all that I could do to keep it away.

    Since you are stage 1, you might want to ask your onc about CMF chemo.  Six treatments of CMF chemo are equivalent to 4 AC treatments.   CMF is easier on the heart and is quite doable.  Your hair does thin but you don't lose it all. 

    I am a year out from treatments and go to see my onc in the next couple of weeks.  Hopefully all will be O.K., but like some of you, I am nervous about this check-up.  I think that's only normal....or shall we say, it's the NEW normal for us. 

    spmeir...you are so young.  HUGS, dear!  I think the onc is probably factoring your age into this equation, too.  You have many years ahead of you yet and he/she is probably offering you the standard treatment regime for a person your age.  Maybe you can equate it to extra insurance????  I wish you the best with your journey.  Please keep us updated and let us know what you decide.  The decision is truly yours and I'm sure you'll make the best treatment decision for you.

    Rita

  • halpino
    halpino Member Posts: 22
    edited July 2008

    Hi,

    I'm new to this site.  39 years old with IDC Stage 2, Grade 3, hormone receptor positive, Her 2 status not back yet.  I found a lump during my monthly self-exam and had never had a mammogram before as I'm not yet 40yrs old and in Canada that's when mammograms start.  I initially asked for masectomy but on the advice of surgeons I had a lumpectomy on June 21/08 which found multi-focal tumours (2cm and 0.4cm) as well as multiple lymph node involvement.  I had a palpable node pre-op so was not a candidate for sentinel node and had an excision instead.  They took 22 nodes and 4 were malignant.  My arm is still sore but the stretching helps a bit.  I am meeting with the rad onc and med onc next week to discuss treatment as my surgeon says I need both rad and chemo and then may need additional surgery once done.  They implanted a port-a-cath during my surgery.  I'm waiting on an ultrasound too as my CAT scan showed "low density spots" on some of my organs and have just finished antibiotics for an infected seroma (fluid collection) that occurred post-op.  My energy is still not back to normal. 

    I have four kids under the age of 10yrs and am terrified.  My mom had breast CA last year and my husband's sister died two years ago of breast CA at 43yrs so my children have been well exposed already.  I have good days and bad as I guess we all do...but today has been kind of a down day.  The sun is shining, the kids are happy and running around, yet I just feel down.  For the most part I've felt well and not overly stressed so I know this will pass.  Just wondering how everyone else has dealt with the "down" moments and the uncertainy of it all?  I feel like I can't afford to have many sad times as it may upset my kids.  My husband is an amazing support.  We own our own business and are in the midst of contruction for a new location so life is so busy without adding cancer to the mix.  My head too is swimming with rapid thoughts all the time. 

    Thanks ahead of time for any input! Smile

  • hope70
    hope70 Member Posts: 47
    edited July 2013

    Hi. I am 43 y.o. Diagnosed with IDC stage1 grade 3 er+, pr+, her+. Scheduled surgery on 8/27/13. I don't know if it is lumpectomy or MX. Genetic testing and FISH test has to come back before the decision is made. Had an MRI yesterday. Do not have the report yet. Looking for anyone with the same numbers for advice on type of surgery and treatments.

  • Kjphilo
    Kjphilo Member Posts: 1
    edited August 2013

    Hi, I was diagnosed July 18 with stage 1b, grade 3, ER/pr +, her2 +. I had a lumpectomy on Tue. with sentinel lymph node biopsy, waiting for my pathology results from that now. I'm 42 years old. My surgeon never mentioned the idea of mastectomy. He felt very confident that I would have the same long term results with lumpectomy. I hope he is right. Now I'm waiting to come up with the treatment plan. Feel free to contact me through by private message if you would like to keep in touch. Good Luck!

    Edited by Mods to remove member's private email address.

  • travlmom
    travlmom Member Posts: 90
    edited August 2013

    HELLO -

    I am also 42 and was diagnosed July 24 with IDC grade 2.  My lumpectomy was on August 8. I met with my BS today for a post op appointment and have a scheduled recission for the week of Labor Day.  I am really hoping to get in next week though.  My pathology report upped me to Stage 1 Grade 3, er/pr+ and her2/nue+. She had told me a minimum of 3 months chemo followed by radiation but I have not met with oncology yet.  Praying for steady hands Hope70. 

    Everything moved so fast up to surgery and now has slowed down giving me more time to think.  Did either of you seek a 2nd opinion or looking into getting a 2nd opinion?  I am wondering if I should see if the other major hospital would have the same treatment plan. 

    Erin

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