The Hermit Club

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  • Lily55
    Lily55 Member Posts: 3,534
    edited July 2013

    Girl

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Opps Girl I'm missing something.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    girl me too

    Well of course I broke the oxygen thingy...the connection from the hose to the connector (tank) in my middle of the night I stepped on and snapped it off....not happy with their customer service, no phone number to call cept on the bill of course, hope I get a survey, they are like 10 minutes from my home, have to wait for a driver to bring me a whole unit and the connect...so stupid you would think I am not the only person who has snapped it but of course it is me, lol am doing ok cause not moving around just sitting on my bed, waiting for the dr. to call me...

    and am going to make bracelets to take to chemo for patients (women I guess) to have....with sayings like hope; faith;strength;courage;believe and other words you could think of that you would want....my way of giving back?

    how is everyone?

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Oh Blondie u broke the oxygen thing--Never heard that before--Thank God u'r just relaxing  and how sweet to make bracelets for the women--so kind,

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Still no baby!

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    I say girl...

    Blondie, you have a big heart, thinking of others while in a battle....bless your heart sweet woman.

    Markat, your mother really did a good job of loving you, otherwise you wouldn't miss her so much. It's perfectly ok to feel what you feel.  I am not sure you ever get over losing a parent that you were close to.  My sister crys at times about our mother, but then she is ok, and is able to function just fine in life.  

    Got through the weekend, am tired today, had chemo. My counts are good though. Going to another Brewer game tonight. DH couldn't find anyone else to take. It will be ok, ya just sit anyway.  Im taking ear plugs though. The clapping hurt my ear, I have a perferated ear drum that doesn't want to heal. (Had a bad infectiion back in Feb, right around my cancer dx)

    Take care everyone...Lori

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Boy 8 lbs. 6 ozs.

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Smile

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi hermits- happy Tuesday. I see our friends over the pond had a baby boy! 

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Oh Jazzy that's so cute. It's happy news on TV for a change.

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    9b2e639d

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    love the picture Cami...

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Went to the lung specialist and he is confused as to why I can't breathe, so now on friday I have to do a swallow test with barium and an echocardiogram he wants to rule out a heart issue....chemo can cause problems with the heart, WTF, really.....got a new oxygen tank, hopefully I won't break this one, lol

    how is everyone?

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi Blondie- sorry to hear they have not figured out the breathing problem. I did not have chemo but know it can impact your heart (my sister gets EKGs regularly since she had hers last year). I hope that is not the case, but it sounds like they have not figured out the root cause yet. I hope the oxygen is helping. You are having a very tough time right now and hoping you are doing better soon.

    I am doing okay, been a bit tired this week but mostly because I have not been sleeping well or enough. Went to get a blood draw this morning and have a couple doctor check ups before I go on vacation in another 10 days. Hawaii here I come! 

    I agree it is nice to hear some positive news with the royal baby. I am curious to know the name, and have seen the list of possibilities. I saw a photo on line of them leaving the hospital today and that Kate looked really lovely despite all she just went through! Now it's time to settle into their new routines with their little one.

    Cami- I love your dancing chandler picture! Too cute!

    Teka- glad you are in Gettysburg. Went there as a child with my parents. Very special place.

    I hope everyone else is doing okay this week. Wishing you good days.

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Blondie remember I told u each Dr does what they do and no more and off u are to another Dr. which really sucks. It didn't bother me at all when I started cuz I knew I had cancer and I wasn't nerveous, but now I figured there would be less tests and Dr. instead they keep on adding more. So I just hope it's something stupid, cuz so many times it is. and all these Drs. have to be involved.

    Jazzy 10 more days--woopwoop---u'r going to love it. And the weather there is so constant and beautiful--pictures.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    You are so right Cammie

    and Jazzy thanks so much!!

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Such a quiet circle of hermits.  Hoping each can cope, heal, feel better...

    Happy for Britain's new George, and for yesterday's rain.

    Hugs to all.  May your struggles be fewer.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi hermits! 

    My sister finished her breast cancer treatment yesterday! I know many of you know this, but some of the newbies don't. We both had it at the same time, she was diagnosed with Stage 2 in July, myself with Stage 1 in Sept. She began last August with neoadjuvant chemo, had MX, reconstruction/lift, and herceptin infusions for a year. She says "I am now ready to get on with life." We meet in Kona, HI in another 9 days for some R&R after all that has been for us both this past year.

    It has been quiet here in hermitland, and hoping folks are doing okay with their treatment, recovery, and more maybe enjoying a few of the joys of summer as you are able. May you all have better days ahead.

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Three cheers for your sister's accomplishment/finishing!  And for your trip to Hawaii, sand, flowers, and just getting away!  Jazzy, have a great time!  Hope you both can just have a happy time, not thinking about bc, meds and procedures.  Enjoy!

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Jazzy what a perfect way to celebrate the end of this crappy time--with u'r sister in HI--wow I didn't realize u'r sister was going with u. I'm so happy for u both.

    Skittle it is quiet, but I'm still more of a hermit than a social butterfly.

    I will be busy this weekend so that means Mon. and Tues. I'll be wiped out. No news on my sirgeon yet to date my surgery or anything, so it will be a little while before I know anything. Here we go again.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    I need to re-read prior posts and refresh my frazzled brain.

    Enjoy the weekend!

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  • CCFW
    CCFW Member Posts: 661
    edited February 2014

    del

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    Good Morning Hermits,

    Its been a quiet week, with no major activity. (Husband is working this week)  He works seven days, and then is off seven days.  I went to my second therapy appt. Its nice to get some "pointers" on how to communicate.  Its the "I" statements verses "You" that work best. Seems that some people have tendency to get defensive during a conflict.

    Feels like fall today....I actually like it, although it could be sunny.  Today I am going to bake and cook. (I need to do that more)   CC....it is interesting knowing you are into canning.   If I could have it my way, I would spend my life having a big garden and selling the produce, and canning. I have been picking beets out of our very little garden, and it felt so good. Plus fresh beets are yummy.....

    Jazzy, can't remember when you were going to Hawaii, but have fun!!  Lori

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Hi girls--

    CC I'm sorry u felt bad this week but something must have turned u cuz u'r sounding good and hopeful and that's a good sign. Apricots yummy

    And Lori u love u'r beets, I've never had them any other way than pickled which I love too. U sound good too.And I'm in IL so we're having about the same weather and it great to me, windows are open and it's a little chilly--Like that, but going to my cousins tonight and have to bring jackets Yay for that.

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  • CCFW
    CCFW Member Posts: 661
    edited February 2014

    del

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    We were able to have a good mess of beet greens from the (v) garden.   Also, pigging out on sweet corn from the local orchard.   Delicious!Tongue Out

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi hermits- we had a wicked storm here last night that brought down trees, powerlines, flooded areas and more. Some winds clocked at 95 mph and they are calling it "Hurricane Green Chili" as they just harvested the first crop this week! Now one has to ask how you can have a hurricane in the middle of the desert? But there was lawn furniture and other things flying around my yard at one point and I thought it must be a tornado. No damage at my house, outside of some possible minor roof damage I will get checked out. One kind of scary storm that has not ever been seen in these parts before.

    Lori- glad the counseling is helping. I think one of the benefits of that during this whole process is to learn how to talk to people about what we are going through.

    CC- I understand running into old friends and it bringing up stuff. I still have people talk to me like I just had a bad case of the flu or something. I avoid talking to people about my health anymore, just talk to a very few close friends that get it, my sister and my doctors.  

    The canning sounds wonderful!

    Teka- sweet fresh corn! I think we must have some here now too, and you reminded me to look in the store tomorrow when I go!

    Cami-I read you were having a busy and full weekend. What type of surgery do you have to have, for your back?

    Hawaii trip is 8 days away. Been packing and getting ready to go in another week. We fly out and meet up in Kona on 8/5. I think I will take a surf lesson, on my bucket list!

    Off to the pool to exercise this poor old body of mine. Hoping everyone is having a peaceful and restful weekend.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Jazzy so excited for you, would ask for Hawaii sand (collect sand) but someone on another site so graciously got it and sent it....Yay for your sister.....

    Lori....glad you are going to counseling go for me also, and absolutely right the "YOU" statements make them defensive....

    Skittle...hey there how r u?

    HUGS to all of you...!!!

    We have been kinda quiet.....me not doing anything had the echo cardiogram yesterday no results, the other one was an acid reflux test, yep I have it but it isn't the reason I can't breath...they send a thing that they put on your finger to check the oxy level and have to keep it on overnight...who knows to check for what, thought it was for sleep apena...whatever....just dont want to become oxy dependent, just want them to find something out...chemo again on wednesday with drs. appt and then 2 more weeks...for my 3weeks on 1 off.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Teka is an Aunt!   Daughter & boyfriend adopted 2 littermate cats age 2, and already spoiling them with a snazzy cat tree.

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited July 2013

    Hi ladies,

    Sorry I have been off line for awhile, but nontheless, I think of all of you everyday.

    I am six weeks out from my second lumpectomy and will have my third radiation treatment tomorrow. ( I will recieve 30 total).  I was not prepared for the tattoos they give you to prep you for the radiation. That hurt so bad, that I cried.  As of yesterday, I was finally reassigned a new MO, although it is not really too important as the BC is not invasive like all of you.

     As you all know, I had a trauma with the IV that they did for the surgery and I am now dealing with a neurologist about that.  It is a pretty serious condition and I found out that I may need treatment for the rest of my life. I will know in the next two weeks if I will be unable to return to my career as a hairstylist due to the trauma to the nerve. THAT was certainly NOT in the plan, but it is what it is.

    You are all wonderful and beautiful. My heart is with all of you and I read all of your stories and pray for all of you.  Getting Cancer is such a deeply affecting thing. Non-cancer people cannot possible understand what we all go through and it is such a relief and blessing to have all of you to vent, cry, laugh with.

    I have a lot of catching up to do on your posts. I will do that soon, but I just wanted to write you a quick note.

    XOXOXOXOX

    Laurie

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