CMF Question

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited June 2013

    Dianarose: How are you doing?  Sending hugs. Mandy

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  • ritajean
    ritajean Member Posts: 4,223
    edited July 2013

    Hugs to you, Dianarose.  Sending good vibes and prayers your way.  Your spirit and determination will get you through this. 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2013

    I am doing as ok as I can get right now. Mentallly toasted though. Having hip and knee pain now so I am nervous about that. I have a bone and ct scan scheduled for the 15th but that is when I am opening my bakery so I am going to have to change them. MO said even if they find more mets he doesn't think he would change his plan of treatment. I told my boss yesterday that Saturday is my last day. It felt good !!!!

    How is everyone else doing?

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  • cherish
    cherish Member Posts: 59
    edited July 2013

    Dianarose, good to know u knot out 7 of 8!! Ya!

    I'm going to do my 4th treatment, half way to go.... But at least I'm doing fine so far. It only brother me for couple of days after treatment. Basically i'm just tired n sleepy. Glad to know everyone is fine! Hugs to all <3<3<3</p>

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  • softness1
    softness1 Member Posts: 217
    edited July 2013

    I'm so aggravated. Today was supposed to be my last treatment but my WBC was dangerously low...uurrggghhh!!!! I'm going back on the 25th. I have a family reunion next weekend.. ba humbug.

    Hope everyone is doing well!!!!

    Ann

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  • Robin3
    Robin3 Member Posts: 145
    edited July 2013

    Oh Ann.  I'm so sorry. Hopefully will only be 2 days of a delay. That's what happened to me. That SUCKS! I didn't realize today was the day? How is that possible. OH!!! You were only doing 2 weeks not three. I forgot. I'm sorry. I'm a bad friend. Keep me posted!

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  • softness1
    softness1 Member Posts: 217
    edited July 2013

    Hi Robin,

    No that's the problem. I usually go every 3 weeks and I pushed it up a week because next week is my family reunion. So I'm not going next week and I''m going back the 25th.. I'm aggravated because I was doing my happy dance and everything.. Cool

    I've been unbelieveably tired. The nurse said my numbers were dangerously low. I had the Neulesta shot and everything last treatment. So I guess in 2 weeks I should be done... She told me, my count was so low that I should  go home, but I have a limited amount of sick/vacation time.  I still have to finish up reconstruction so I'm going to need days. I do have my bone/ct scan next monday... Dreading...

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  • jsrose14
    jsrose14 Member Posts: 117
    edited July 2013

    Hi. Just checking in. I have two more treatments left - I go every other week so the end is close!



    I have started experiencing really bad heartburn/ indigestion. I am on Prilosec, Zantac and do acupuncture. Any one have any success treating it? It's not fun!!



    Still have most of my hair which is good. Hoping the last two all stays the same!



    Thanks!



    Jsrose

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  • cherish
    cherish Member Posts: 59
    edited July 2013

    Jsrose, I also have started the experience of heartburn n heavy breathing after the 4 th treatment which was last Friday. I'm doing every 3 weeks so I'm half way to go, my hairs was falling bad after a week of 1st treatment then getting less falling. However, it start getting bad after this time. I still have hairs but it really get a lot of thinner.

    As you said, hope it will stays the same.......

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  • softness1
    softness1 Member Posts: 217
    edited July 2013

    I have 1 delayed treatment left. This is def cumulative. My legs and hands are on pins & needles. I'm soooo tired. I had to call in today. I can barely raise my head up, bowel issues. Uurggh

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited July 2013

    Jrose: I did have a prescription for heartburn that really helped. I had to take it every day, not just when I had heartburn symptoms.  I took it all through chemo, and, unfortunately, do not remember the name (I can try to look it up in my old records if you are interested).

    cherish:  I lost what seemed like alot of hair after my 4th tx too.  I thought I would end up with no hair at all, but the hair shedding slowed down, and I never needed a wig.

    softness: the results are definitely cumulative--I had the bowel problem after my 7th tx and it was not fun. It lasted until about a week after I was finished with CMF.  My onc had to prescribe lomotil for it.   I also had the pins and needles, and general malaise.  After my 8th tx, I was so tired that could hardly walk around the block. But the good news is that a month later, I was walking all over Paris without most of the symptoms.  Things do get better!

    Wishing all of you a good day and to hang in there--you will soon be finished and the symptoms do go away!!!

    Hugs,

    Mandy

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  • jsrose14
    jsrose14 Member Posts: 117
    edited July 2013

    Mandy.



    Thanks for all of the good info for everyone. I would love to know what meds you took for heartburn. I am already taking Prilosec and Zantac but its not really helping.



    I am hoping to finish out without too many more symptoms. I am tired but thankfully nothing else too bad besides the heartburn.



    My hair consistently seems to shed a lot on the third fourth and fifth day after treatment. I always get nervous but then it seems to stop.



    Hoping the last two treatments are the same!



    Jsrose

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited July 2013

    Jrose, I sent you an email about the heartburn.

    Wishing everyone a good day!!

    Hugs

    Mandy

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  • ritajean
    ritajean Member Posts: 4,223
    edited July 2013

    Just stopping in to tell everyone HI!  It's been awhile since I've posted.  I've had "dad" problems and my summer pace is fast!  By the time I get ready to find the computer at night, I'm so tired that I opt for a book instead. 

    It sounds like most of you gals are plugging along through the treatments.  How I remember some of your issues even after nearly 6 years!  However, there is hope and a good life after the treatments so you just hang in there and keep marking them off your calendars.  Hugs to all of you.  I'll be back later in the week when I have a chance to go back and read all the posts that I have missed.

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  • softness1
    softness1 Member Posts: 217
    edited July 2013

    Today I finally finished chemo!!!!!!Cool  OMG it has been forever but I'm sooo happy.  In 3 weeks I start Tamoxifen.. what a journey this is

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  • Robin3
    Robin3 Member Posts: 145
    edited July 2013

    Yay softness! You did it!!!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2013

    WAY TO GO SOFTNESS !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! YOU DID IT !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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  • curveball
    curveball Member Posts: 3,040
    edited July 2013

    congratulations softness1 on finishing your chemo! Once I stopped taking the chemo meds everything tasted peculiar for a while. I found it helped a bit to brush my tongue gently at the same time as brushing my teeth. You may not have this side effect, since you had a different "recipe" of CMF than I did, but if things do taste weird, don't worry. After a while, flavors returned to normal.

    I have good news too! I had a PET and a CT scan in May, and although the PET showed "no abnormal uptake" of glucose, the CT showed that my mets had gotten a little bigger. My oncologist changed my AI from anastrozole to aromasin, and added octreotide, a med used to treat neuroendocrine tumors (which I have mixed in with the cancerous breast cells). Yesterday, I got the results of my first followup CT since the change of meds, and everything is stable since last time. The mets may even shrink as I continue with this treatment.

    Three cheers for aromasin!! Three cheers for octreotide!! Hip, hip, huzzah!! Hip, hip, huzzah!! Hip, hip, huzzah!

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  • Traii
    Traii Member Posts: 1,138
    edited July 2013

    Congrats softness best feeling :)



    curveball. Great news girl :)



    Well i am 3 weeks post BMX. Feel great!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2013

    Curveball- shrink those mets to nothing !!!!! I had a CT and bone scan and got the results the other day. They couldn't find any of the little bastards. lets hope they never come back.

    Traii- I am happy you are feeling so good !!

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited July 2013

    Softness:  Yay on finishing chemo!!!   Great going!  It is a wonderful feeling to be finally done. 

    Curveball and Dianarose: Glad you both are doing well getting rid of those mets.

    Traii: so glad you are doing great!

    Have a nice weekend all!

    Hugs,

    Mandy

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  • Traii
    Traii Member Posts: 1,138
    edited July 2013

    Dianarose great to hear those little bastards were not to be found.

    :)

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  • curveball
    curveball Member Posts: 3,040
    edited July 2013

    Dianarose is NED!! wooohoooo!!! May those nasty mets never raise their ugly little heads again!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited July 2013

    OFF WITH THEIR HEADS !!!!

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  • softness1
    softness1 Member Posts: 217
    edited July 2013

    Yay!!🎊🎉🎊🎉🎈🎈 congrats Curveball & Dianarose!!! And thanks guys. What a ride we're all on but it's been a good week in here so far🎁🍸✨✨✨✨

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  • ritajean
    ritajean Member Posts: 4,223
    edited July 2013

    Wow!  Such good news!  So happy for all of you!  What a group of awesome ladies who are kicking cancer's butt as you fight the good fight!  Keep up the good work!

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  • cherish
    cherish Member Posts: 59
    edited July 2013

    So happy for all girls. :)<3 🎉🎉🎉🎊🎊😂😂😂😂❤❤❤</p>

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  • curveball
    curveball Member Posts: 3,040
    edited July 2013

    @cherish, I have seen "<3" in lots of messages here at bco, but yours is the first time I've seen "<3>". I never have figured out this symbol means. Please let me in on the secret!

    Sometimes I'm clueless about these things. Years ago, I used to work for a city government on a land surveying crew. One day, I was out at a job site, and a guy drove up, rolled down his window and yelled "you GO, girl!!" I had to ask the librarian to find out if "you go" was good, like "Go team!!" or bad like "Go away!!"

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2013

    Hello Ladies,



    I came over from the Triple Negative thread, and have been reading through all your posts the last couple weeks in order to get info on what to expect from CMF. (Started 2 days ago). Thank you all for the info you've shared.



    I wanted to pipe in with a tip to be careful what drugs you take for heartburn and acid reflux, and to make sure your MO checks for possible interactions.



    There is a new warning on some of the drugs in the proton-pump inhibitor class used for acid reflux. The interfere with the half-life of Methotrexate. (how fast the drug is broken down) . My MO wasn't aware of the interaction and the only reason I happened to find it was because I was checking my drug for side effects. (I know for sure that the warning is on Prevacid and Nexium. I didn't check all the other proton-pump inhibitors). Due to it's effect on Methotrexate, my MO decided I shouldn't take the drug around the days of my infusion.



    Since this is a new finding, many MO's may not be aware of it. (Was shit luck that I tripped over it just before starting treatment).



    Thank you Ladies for all the info I've gotten from this thread.



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  • kathyrnn
    kathyrnn Member Posts: 393
    edited August 2013

    Ladies, I have a question please.



    I was offered 2 options for my CMF treatment. Option 1: Methotrexate & 5 FU on days 1 & 8 and 2 weeks of oral Cytoxan. Option 2: CMF IV every 3 weeks X 6 doses.



    Are some of you receiving the every 3 week option X 8 treatments?

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