May 2013 surgeries

FYI... I have met with my MO several times, but both these conversations took place over the phone. Weird that he would do that, but I was really glad the first time. The second time, not so much...



Melissa, is it hot in Calgary? That might be making the problem worse, if it is. Not that the info helps much, but there you go. Stay hydrated!

Amen, Honey. Im so sore and tired from work today. But it was fun. I wont have any trouble sleeping tonight. Hugs

I have the fan blowing on me on high all night.  Hot flashes suck!  I was up at 4:00 am to take more pain meds.  You know it's getting bad when I'm waking up to take them.  Three more!!!

I think I"m going to ask for silverdine cream tomorrow.  That arm crease is killing me and the lotion that worked in the middle of my chest isn't going to cut it because it's sticky.  Can't very well NOT use my arm.

So a week of antibiotics because one of the stiches in my port placement is infected.  Ughhh.  Not fun taking the stitch out either.  That was very painful.  Ativan would not have had time to kick in... which I threatened to take.  LOL  

More storms tonight.  We just had a doozy about 8 pm.  Kids were up until after 10.  Lets hope they stay away tonight.  I need the sleep.  So with that short update.. 

Love n Lite, g'night! 

ps. I updated my caringbridge journal and posted it on FB.  I should add it to my siggy LOL

Add me to the "not sleeping well" list.  I'm now waking up in the middle of the night to take pain meds.  Haven't done that since right after surgery.

Hope both of you slept better last night.

Morning guys! Well, as they had to drain half the blood out of my body for this clinical trial..they accessed my port for the first time today. I was scared and felt urge to cry..but didn't.  Thank goodness, as it didn't really hurt ..except going in and out..she put some spray on that burned worse ..the whole thing was just freaky as hell.  I feel like since I have been through so many surgeries,etc..that I should be done with all.  I've gave them 3 months..too bad they didn't get their chemo/radiation,etc in..sick to death of freaky weird feelings or down right pain. Anyway...feeling that way and reality are too different things. I'm in a very crabby mood today. Wasn't until the whole port thing..no coffee thing. I feel like standing in the middle of my house and shouting every curse word Ive ever heard of!  lol.  So, now I am waiting on trial lady to call..she is coming from Greenville when she gets done with her patient so she can do the actual test. I guess Im going into work late as she hasn't called yet. Our company is great with time off for something like this..however, they have crappy rule where you can't use vacation/personal time the first 30 days when you get back from benefits. So days I'm off this month..no pay at all. I told my sup that this is stupidest rule Ive ever heard of..I don't get the why of it...she said she knew..and didn't know why either.

Melissa-Did they leave those stitches in past 2 weeks? I know my surgeon said they have to come out before or by 2 wks. or risk infection. I'd be raising hell if they did. Those antibiotics help a lot and I know you will feel better in no time!

I'm sleeping ok..help from PM something or another and my muscle relaxer. However, I wake up soooo sore..for some reason, in my sleep I turn over to mx side ..which prob wouldn't matter for a while..but sleep on it whole night. Ive started having the bear claw feeling when I get up out of bed..just not as bad..not NEAR as bad as after MX..but still. I've also been clinching my arms up, like you said Janet..and arms hurt. So much for muscle relaxers..lol.

Ha ha!  Ativan, and two vicodin and I was still awake 4 hours later from pain.

Frustration sets in yet again! Went to the BS today because I thought my drain was infected over the weekend. Had started on a two-week course of antibiotic on Sunday. She does not want the drain to come out yet (it's been 2 weeks yesterday for this second one!). Wants to wait until the drainage goes below 20cc per day for a few days (it has slowed substantially the past two days...maybe my body was producing extra because of the inflammation at the site?). But then drained the seroma on the other side....and got 550cc! She said that since it's the second time that one had to be drained that I might have to have a drain put back in on that side too....I'm hoping that it has slowed down since that fluid accumulated over 2 1/2 weeks. I hate the drain and I hate the seroma! But I am more comfortable now. And, it occurred to me, that if I never developed a seroma then I never would have "met" you great ladies! I found this thread by doing a search for seromas

Michele2013-I do have ativans here (was prescribed week before MX)..Im like you a half one puts me out. It has to be really bad day for me to take them..they really don't relieve anxiety unless you count in the uncon effect. Didn't know about the nausea part of it though.

Rhody=Janets a hoot isn't she..that was MY song! LOL..Have they not done the surgery on your for the seroma? You should tell them to do that, if they haven't. My surgeon says draining with needle is endless..just fills up again..says to do right you have to go in ..clean it all out , flush it..and redo incision using real stitches..I've had no trouble since mine..and mine was HORRIBLE. The only reason I had to stay in hospital was due to infection. Jeez..I hope this is over for you soon!

Rhody, I hope you have a wonderful anniversary!  And a drain-free one!

I got my cancer diagnosis for xmas.  Spent my birthday on th sofa recovering from chemo, mother's day I think was just before my surgery, don't remember faather's day at all.  /sigh/  Next year will be better.

Wow ladies I am sorry that you are having a rough time. Ck they make a cream to put on your port a half hour prior and I also put it on 5 minutes prior. Its some kind of lidocaine. Ask for a prescription. It was much better than that spray. That spray burned.

Gowith, I remember the name of those gel patches. Vigilon. They were kept in the fridge and were heaven to put in my armpit and collar bone area and under breast which was where I was burned the worse.

I think everybody should drink a dose cup of nyquil with there meds and I bet it will help you sleep.

Hope evryone sleeps better and has a great day tomorrow. Healing hugs

Good Morning!

Well, I slept last night..but was up and down a bit as stomach upset. Now, Im going in to work a 12 hour shift to make up for 4 hours tomorrow..when I start my chemo. Wish me good luck with this..lol..I think I was being overly optimistic!

Im just gonna cry and wine tonight due to my hair starting its journey away.  It's not coming out in clumps ... YET.. but still if I brush it.. I lose it.. if I run my fingers through it.. I can grab some.  The only reason I noticed my hair was my pubic hair was coming out too.  yes sorry TMI I know.. but hair's hair right?  

Ck, how are you doing?

Honeybunny Im sending peaceful prayers to you.

Gowith have you left yet? Are you getting any better?

Thought I would tell Yall something funny. Today is my 15th anniversary and neither me or my husband realized it till later today when my daughter told us. lol

Healing hugs