Bone Scan and Terrified

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Hi Everyone,

I am scheduled for a bone scan on Thursday due to an elevated alkaline phosphatase level(180) and I am terrified. I am a stage 1 survivor of almost 3 years and never had scans. My oncologist said we are doing the scan for peace of mind, but I am terrified they will find something. I am also terrified of all the false positives I am reading about. Can anyone give me some much needed advice or input?

Comments

  • bak94
    bak94 Member Posts: 1,846
    edited July 2013

    Hi,

    Scans can induce a lot of stress, but once it is over you will be glad. I am sure there are lots of reasons for a high alkaline phos. level. I don't know much about false positives, someone will be by to help with that. I hate scans, I get soooo nervous every time I have a scan. Ask your doc if you can get the results on the same day, that way you don't have to go home and wait for the phone to ring.

  • bevin
    bevin Member Posts: 1,902
    edited July 2013

    HI there, I have high alk phos levels as well, had many bone scans , CAT scans etc. No bone mets.  Here is a list of other things that can cause high alk Phos that should be examined as well.

    http://www.livestrong.com/article/238159-causes-of-a-high-level-of-alkaline-phosphatase-in-blood/

    The article talks about hormone issues, gall blader, infections, many other things, praying it's one of these and not cancer.

    Bevin

  • lola12
    lola12 Member Posts: 127
    edited July 2013

    Thank you Bevin and bak94. I go tomorrow and even though my doctor said she would be shocked if we find anything, She also said there are hundreds of studys that say isolated elevated alk phos has no meaning on cancer status. She is sending me for peace of mind and ha, i am terrified.

    I had breast MRI and mammo recently and they are fine. I just have alot of arthritis and fear false positives. 

  • pajim
    pajim Member Posts: 2,785
    edited July 2013

    Lola, Hi ALTs could be due to a lot of things.  Mine go up and down all the time.  When I was having chemo a few years ago they spiked causing lots of tests, nothing found.  Eventually they just decided I had Gilbert's Disease.

    Scans can be anxiety-provoking, but in this case it sounds like your doctor doesn't want you to borrow trouble.  I second that approach.

    In any case it will all be done very soon and you should have good news.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited July 2013

    Hello Lola12

    I had a false positive bone scan!

    In brief, the bone scan found a tiny bit of radioactive uptake in T4 (thoracic bone number 4) on the same side as my breast cancer.

    A CT scan was clear.

    The onc decided to rescan six months later. Spent six months in a state of terror.

    Result? Negative.

    The tiny bit of uptake was natural bone repair!

    Hoping for the same for you.

    Alice

  • lola12
    lola12 Member Posts: 127
    edited July 2013

    Hi Alice,

    I ended up fracturing my rib. That was the hot spot. 

    Thank you for the well wishes, they worked. 

    Its amazing how we can go to terrified to ok in a matter of one day.

    Lola

  • bevin
    bevin Member Posts: 1,902
    edited July 2013

    Lola, not that anyone weants a fracture, but better than than a bone met. :) so so happy for you!

  • curveball
    curveball Member Posts: 3,040
    edited August 2013

    Yes, for anyone reading this thread in the future, always tell the techs if you have injured yourself. I had a bone scan earlier this year after being dx stage IV by liver biopsy. A short time before the scan was done, I was pruning a rosebush in my mom's back yard and accidentally smacked my wrist really hard on a branch, raising quite a big bump. I mentioned this to the techs and they said it was a good thing I told them. I assume from this that the injury could have shown up on the scan, but because they knew about the injury it was known not to be mets. Other than anything they may have seen from that wrist bump, my bone scan was clear. I'm glad to hear yours was too!

  • Alicethecat
    Alicethecat Member Posts: 535
    edited August 2013

    Hurrah Loloa12

    Welcome to the False Positive Bone Scan Club!

    I am so pleased for you!!!!

    Alice


  • Halfabanana
    Halfabanana Member Posts: 36
    edited August 2013

    Hi ladies. This is my first time posting. My GI has been concerned about my AlkPhos escalating, and ordered an abdominal CT last month which came back clear. But the number keeps rising, so he requested that my MO order a bone scan. I had it done last Thursday, and thought I might hear results this week. When I called the MO's office, I was told that the results won't be in for three weeks. I have my 6-month MO check up in a month, so I was told I will get the results then. Does it usually take this long for bone scan results?

  • bevin
    bevin Member Posts: 1,902
    edited August 2013

    Wow, I am sorry you are waiting so long. I have had a few bone scans and the results are always available in 2-3 days. Could you call the place you had the scan done and get the copy of the radiologist reports? I often do that. Good luck and keep us posted.

  • Halfabanana
    Halfabanana Member Posts: 36
    edited August 2013

    Thanks for your response.  I liked your idea, so I called and left a message at the hospital where I had the scan done.  I haven't really gotten to know the front desk personnel at my MO's office, so I don't know if I was talking to someone who really just doesn't know how the process works. I would prefer not to challenge her determination unless I have information that would indicate that the report has already been sent to my MO.  Hoping to hear from the hospital tomorrow!

    Thanks again.  

  • bevin
    bevin Member Posts: 1,902
    edited August 2013

     praying you receive good news!

  • Rowan47
    Rowan47 Member Posts: 151
    edited August 2013

    Hi ladies, I am being booked in for my first bone scan next week. I have had hard lump on right clavicle (cancer side), near sternum for about 6 months. Had xray and got results today. Apparently there are "abnormal"spots on my right shoulder, clavicle and lower spine. My BS is hoping that it is just arthritis and general wear and tear. I am 49 and have never had bone problems before. If scan is inconclusive, she wants me to have MRI. Also have pain in base of skull, so she wants me to see nurologist for another type of scan??

    Anyho, just wanted to pop in and join the group! Hope everyone going okay.

  • bevin
    bevin Member Posts: 1,902
    edited August 2013

    Dear Rowan, Good luck with the scans. I'm glad your doctors are being vigilent and checking all avenues. Praying for good results.

    p.s. - love your name.

  • schneids59
    schneids59 Member Posts: 3
    edited March 2014

    Hi, Friends,

    I am looking for some support as I am a 3 year survivor of stage 1 IDC ER/PR+ HER2N-.  My last two alk phos levels have been 145 and 152.  I now have to have a bone scan.  I even went thru chemo just to make sure I killed everything.  Can I really be worried now about bone mets?  Has anyone been diagnosed with bone mets just from an elevated alk phos level??  Any advice or encouragement would be appreciated.

    Thanks so much,

    Kris

  • Halfabanana
    Halfabanana Member Posts: 36
    edited March 2014

    Hi Kris,

    I am Stage 1, about a year and a half out from diagnosis and MX. No chemo for me, as my Oncotype was 18. About 9 months ago, I was sent by my Gastro for a bone scan because my ALP had been climbing, as high as the 170s. The scan showed only arthritis. I have bloodwork for my Gastro again next week, and I'm hoping it is stable or lower. If not, although I had a clear liver CT before the bone scan, he may choose to do a liver biopsy. According to him, elevated ALP can point to possible mets to liver and/or bone. It can also be caused by some medications, or other, less critical liver issues. Hope it is anything but mets for you, too!

  • shoppygirl
    shoppygirl Member Posts: 694
    edited March 2014

    Kris

    I am so sorry that you have this worry, it never seems to end with us. I know that an elevated alk phos level can be also related to a fatty liver, which is very common. I have a slight fatty liver but clean scans. There are so many things this could be besides mets. Also chemo can sometimes cause strange bloodwork for a long time after. 

    Good luck

  • schneids59
    schneids59 Member Posts: 3
    edited March 2014

    Halfabanana and shoppygirl,

    Thank you so much for replying back!  I really appreciate itHappy!!

    I am really trying to think positively that it is not bone mets.  I have a really hard time trying to wrap my head around that it even could be.  I will hopefully get my bone scan next week and get my answer and can move on again without this looming over my thoughts!!

    Thank you again for posting:-)

    A Sister in Pink,

    Kris

  • ducky113
    ducky113 Member Posts: 18
    edited July 2014

    Hi Kris,

    I was just wondering how you made out with the bone scan.

    Hope all is well.

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