Please need advice about nueropathy

zohra
zohra Member Posts: 197
edited June 2014 in Pain

Hello ,

My mother done with chemo. She had surgery and waiting for healing. Then  she is going for radiation . She has numness in her feet and hand. I did some research . I came to know Glutamine and B 6 is good for her. I asked her oncologist she said it fine if she use them .  She said numness is because of chemo .But , I dont know how she can use? I bought for her Glutmine and b6 Tablets. Any information will be help full.

Thanks

Zohra

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    Here are a few links that may have helpful information for your mother:

    http://www.breastcancer.org/treatment/side_effects/neuropathy

    http://www.breastcancer.org/research-news/20120606

    Also, this is a much discussed topic on the discussion boards, so you may want to try and use the Search feature to the left and type in "neuropathy" and see where it is being discussed. 

    Best of luck! 
    The Mods

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  • Raisa
    Raisa Member Posts: 14
    edited August 2013

    Neuropathy could be devastating and permanent side effect of chemotherapy. I finished my chemo in October of 2012 and still battling pains and numbness in my feet and hands, and started having muscle spasms as well. I also lost almost all my toe nails, they first turned black and eventually fall off, and also got badly infected. Recommend talking to oncologist and asking to be referred to a neurologist. because of numbness in my feet I had some bad falls few times and been injured.

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  • jpsnyc
    jpsnyc Member Posts: 3
    edited August 2013

    Hello.

    I developed neuropathy followng my AC/T tretments, which ended nine months ago.  The neuropathy is still with me, but I do feel a change in the works.  I have needles and pins in my toes, and I cannot wear "regular" shoes.  Here are somethings that help me:

    Medication:  don't be afraid to see a neuroogist to get some medication for the neuropathy.  My oncologist referred me to a neurologist who put me on gabapentin.  I was able to tolerate 600 mg/day, and I even tried Cymbolta for a while.  But now I want to come off the meds to see if the neropathy is subsiding.   take 1000/mg B 12/day (as per the neurologist and recommendtion as well from my onoclogist). 

    I tired the L-Glutamine, Alpha Liboic Acid.  I also tried acupnucture.  Did not work for me.

    Shoes:  UGGs (or any sheepskin-lined shoe) help immensely.  I can walk and stand.  The downside is that they don't offer much support, but at least the pins and needles are cushioned.

    Sketchers Memory Foam shoes.  These allow me to wear a "regular" shoe and walk! 

    Socks with individual toes.  These are saving me!  I can wear them and walk and walk and walk!!!!  Before discovering these, recommended by my physical theorapist, I had a hard time walking or getting any exercise.  Not cheap, but so worth the price.  Available on Amazon.  Look at Injinji lightweight.

    Trade Joe's Body Cream:  I massage this on my toes and feet when they are "active", and it calms them right down.  I hav eno idea why, but this is a must have.

    Hope this helps!



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  • kyliet
    kyliet Member Posts: 687
    edited August 2013

    Thanks jpsnyc for the tips. I finished chemo over 12 months ago and the neuropathy is really getting to me. I was already on Lamatrogine which neurologist said would be reducing my pain. 

    I feel like my lower legs and hands are burning and stinging all the time, I will check the socks out.

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