The Hermit Club

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  • Lily55
    Lily55 Member Posts: 3,534
    edited July 2013

    Rooting for you Slickchick

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    sorry I haven't been on but checking in now..

    Slickie hope all goes well

    Laurie glad you are going with DH and son....I know it is a full time job when you have this you are alway calling and checking and honestly for me I have to double check and ask lots of questions of the professionals cause honestly I don't trust them...they do make mistakes....they did something going through the vein and I have a permanent lump near it....

    Teka you take care!!!

    All other Cammie, Lily, etal  HUGS!!!

    I am here, welll went to get the lung drained the surgeon said not enough to drain, still can't breathe, waiting for oxygen as I speak and getting a angiogram to make sure I don't have a blood clot tomorrow at 1130!!! Thanks for caring and thinking of me!!! Had my 3rd week of chemo and yep got steroids so am speeding wish I could breathe where I could clean up...my week off is next week...oh and slept all night think the extra fluids is the trick..

    BBL

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    Hi Hermits,

    Just checking in....went to my first couselling appt. Seem to go well, learned some things, and will be going back next week. Sooo tired  today, had chemo Monday, maybe delayed effect?   Good news, my hair is coming in!  Its strange how this works, I lose my eyebrows, but the hair on my head is coming in. I use to dye my hair, so didn't know how gray I was, and no mistaken I have lots of white hair. So I will go from long brown hair to short white hair....thats ok, Im just glad that maybe just maybe I might be able to go without a hat/scrarf?

    Went to Paul Mccartney concert, he was awesome. Sounded great for an old guy, was funny as well. 

    I don't go on here a few days, and it seems I miss out on things, however I do notice how I still get well wishes from you all.....Laurie, I am so sorry about this nerve damage.What in the world happened with that I.V?  Good for you for having a good additude, I will have a pissy one for you, cuz it's not like you have enough going on for crying out loud. Blondie....always always you r in my thoughts...and they are warm! Later Gators....

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Lori I'm glad u check in to let us know how it's going---Paul Mccartney OMG that had to be great--I'm glad u got to go.

    It's very hot here so I'm hermiting more than usual.

    Thinking all good thoughts for all of u.

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  • CCFW
    CCFW Member Posts: 661
    edited February 2014

    deleted

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    We're here 24/7!Kiss

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    W all try to forget it but whatever---But I've picked a few threads that don't let me think about it to much so it's fine. And I still hermit anyway so here I am.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    lori so sorry that you are having a rough time but I thank you for your thoughts.your hair coming in is a good thing.....yep mine is friday usually, that would be tomorrow, not looking forward to it.

    Paul McCartney really he is touring, how cool is that.

    I don't think about it 24/7 or at least I try not too.....

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi hermits- I would LOVE to see Paul McCartney. One of my friends who lives in Seattle is going to see him soon! What a wonderful thing to get to see!

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  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited July 2013

    Well typical California weather now it's heating up and I am sitting here in shorts and t-shirt - anyway it is nice to be getting back to me!  oday the port came out and I got to keep it! Perhaps a Christmas ornament????

    Wis we all lived close so we could "hermit" together!

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Marilyn hahaha use it as an ornament I'm sure u don't want to see that again. I didn't know they gave it back to u. Why is that funny to me.? Mine is still there and it's still being used so I keep it. I'm glad this makexs u feel better and if we did live next to each other that woud be fine with me.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    slickchickie17,

    I hope you're resting comfortably while on the mend.

    Capone is keeping a lookout until you return home.

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Oh I just lost a whole post WTF do I do? Well I hope everyone is doing OK today--it's supposed to cool down tomorrow so so it'll be easier to go out. (((HUGS)))

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Camille... sorry you lost your post.  That is so frustrating! 

    Hope all are ok and in comfort spots.  Hugs and healing thoughts to you all.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Ok update, went for CT scan yesterday and no blood clot in the lung but plurual effusion in both lungs but they are saying not the reason I can't breathe....have oxygren in my room which is ware I spend all of my time. The Onc is is now sending me to the lung specialist, he will call him on monday and set up an appt....until then use the oxygen...even to sleep, it usually doesn't both me unless I am excerting myself.

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    oh, blondie, hope you can be comfortable and breathe more easily after your appt!  Will be thinking of you on your dr day!

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    blondiex46,

    Don't hesitate to call an ambulance if breathing gets to the point that you feel the need for immediate care.

    Lung specialist can make a hospital bedside visit.

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Blondie I'm so sorry--but pay big attention to Teka, don't think Oh I'll wait cuz the Dr. didn't seem to worry--well he;s not a lung specialist --I'm not saying to worry but I'm sure when he sees u he can figure out what to do. Each Dr does their own thing and that;s it. nothing more. So use u'r own judgment.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Wink

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    Happy Sunday Everyone,

    Just checking in to say hello...its been another rough past two days with the DH. Fighting/not speaking/ and lots of crying.  We finally talked, and everything is cool for the time being. Part of the problem is I see certain personality traits of his that are less desirable.  In the first year of our union, he was this happy easy going but high energy man who was easy to be around with. We never argued, life was easy. Now I see him as being irritable inpatient and on edge.   And thats how my ex husband was....Im different too, I am much more quiet and withdrawn and oh yes I have cancer.

    Idk...I guess all I can do is keep talking to the couseller...he did say he would go. Today we are going to the Italian fest and the Brewer game. Tomorrow another Brewer game, except I have chemo in the morning and it tires me out, so am going to see if he can find someone else to take....

    Blondie, am thinking about you, and hope u r having moments of peace...do you have good family support? Camille, I lost a long post not too long ago...don't know how that happens, but its frustrating....Have a good day everyone.....

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Loru I hope counselling helps. Sometimes the cancer we have makes partners more miserable than u think, they just can't explain it or know what to do about it. I hope he doesn't make u feel like u have to keep up with what he wsnts to do and u feel like u should  Cuz when u get chemo it can knock u out and u need rest. Sometimes it's extra hard for a husband to have an ill wife, they can't adjust so easiky and just plain don't like it. It's their denial. Could that be part of all this? I hope u'r doing OK with /Chemo, it's so not easy.

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  • markat
    markat Member Posts: 909
    edited July 2013

    Hi all, trying to catch up! I went swimming a couple times this week and my arm really flared up :( I've had pain before in my lymph area, but nothing like this. It can sneak up on you even a year later? I googled some lymphadema draining techniques and it did help. Oh breast cancer, the gift that keeps giving :(



    Slick I hope you are resting and recovering well. Sending you positive thoughts and hugs.



    Lori, I hope you are doing well. Counseling is a great thing! Hugs!



    Laurie, hope you are doing okay! Be careful with that Methadone. It is a sneaky drug that takes awhile to build up in your system and even longer to leave :( The physical withdrawal from that stuff is like the devil. I had physical withdrawals from the lowest dosage of opiate pain meds just because my body was so used to it. I wasn't mentally addicted at all. Yucky, not fun at all! Especially with kids. More gifts that keep giving :( Nerve pain is atrocious, so I know you need something. Just giving you a heads up. Hugs!



    Blondie I agree with Teka, be careful my friend! I'm sending you hugs and healing thoughts! Love!



    Skittle, Camille, Teka, Jazzy, Lily, and all others, hugs and happy Sunday! I'm a little down still. My youngest had some milestone moments this week and I wanted to call mom and tell her all about it. Then I realized I couldn't and started sobbing infront of all of my friends at the pool. Embarrassing :)

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Markat don't ever be embarrased about showing u'r emotions. It's funny but my mom has been gone 13 yrs and I still think Oh I have to tell her...then I realized I can't have her and my sister says the same thing cuz we both talked to her everyday if not seeing her. So I don't know how long anything takes for us who loose our parents at any age too.

    And from what I understand LE can start at any time??? and it isn't pleasand--I got min around rads time and have had it since. I do certain excercizes and wear those silky stretchy things , sometimes I don't tho they are not comfortable to me--but nothing is hahaha

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Lori I am so sorry that you have to deal with this and deal with chemo...hope counseling works.

    Thanks Mark you are right will do.....

    Happy Sunday, big brother is on that makes me smile, hope all is well with you!!

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Blondie enjoy u'r show.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Hi,

    Husband and I are on a mini-vacation in Gettysburg.  

    I am already missing the recliner.

    I think a Royal baby girl.Surprised

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Teka have a good well deserved time.Smile

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Kate is in labor!

    Do you think a Royal boy or girl?

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Girl.

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  • markat
    markat Member Posts: 909
    edited July 2013

    Teka hope you are having a great time!



    I think girl also!

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