The Hermit Club

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  • slickchickie17
    slickchickie17 Member Posts: 125
    edited July 2013

    Laurie: I completely understand about people pushing you for your time & just "the act of having to respond" being a chore. Respond in your own time or not at all & be prepared to someday say "sorry that I haven't been in touch enough, had a rough patch". Trust that for most people, that will be enough & they will completely understand. Now, I am no expert on husbands but it seems yours is still trying to accept your initial dx. I suspect that every surgery, every treatment is likely very shocking for him. It seems he loves you very much, which is awesome! I am sorry your daughter is having such a tough pregnancy, I hope things improve for her soon!

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Laurie I am so sorry that all of this is going on  the same time....As far as the PEOPLE, you are going to need to take a stand and tell that when you are ready you will connect, it isn't your fault, they are looking for something maybe answers....as far as your husband Marc is right, nothing was consistent and it is preventive.....he is having a hard time and in denial and doesn't want to think of you going through this but the whole family goes though it even if not directly and they don't know what is going on, it is in the air...and no matter how many people are around you it feels like you are alone cause you/we are, it is/was happening to us not to our family members/support people/parents etc...they can be there but it is happening to us.....we are here if you want to vent or just to talk.....hang in there....do something nice for yourself, even if it is just a bubble bath....

    Wanted to let you all know that the chest xray showed plural effusion so they are making arrangements to drain it on monday hopefully..not sure how much was in there but had my left lung drained last september and this time it is my right lung.....it sucks...

    HAPPY SATURDAY!!!

    BBL

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Blondie- so sorry about the pleural effusion. I had a friend that had that once and know it is very painful. I hope things go well on Monday, and that you are feeling better soon. Thinking of you. 

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  • slickchickie17
    slickchickie17 Member Posts: 125
    edited July 2013

    Blondie, I'm sorry & I'll keep you in my thoughts. I know you must be in pain & I hope that you are feeling better SOON! Hang in there, chickie!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Good morning hermits. Wishing you a good day!

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  • lizlori
    lizlori Member Posts: 148
    edited July 2013

    Good Morning,

    Laurie, I am so glad you vented your feelings here, I can very much relate.  I went to a rummage sale once, and this woman started asking me questions, and I had never met her!  I was polite, but left shortly after.  I find that I don't really want to talk about the cancer.  I went to Lacrosse to see my son play in his band. I ended up feeling anxious about being around people. My daughter met me, whiched helped a lot. My ex husband was there, and we ended up talking, he was very nice to me.  I suddenly started tearing up, and had to do the blinking thing to get the tears to dry up before they came down my cheek.   Don't ask why this happened.  God one day I am fine, and the next day I get emotional....so weird, I DID NOT want to cry in front of my ex....so this week I will meet one of my former staff for lunch....it will be ok, she is sweet.  I think it is hard to deal with people who ask questions, I have said I just don't want to think or talk anymore about it,(when I feel I can muster up to courage)  it seems they haven't been offended by that.  Laurie....just be ok with where you are at, I have a feeling you will come around when you are ready.....

    Blondie, I will be thinking of you....wished you didn't have to go through this.....if I saw you I would give you a giant hug, but I can only send imaginary hugs ......Take Care Everyone

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  • markat
    markat Member Posts: 909
    edited July 2013

    Laurie and Lori (((HUGS))) I'm so sorry for all the ups and downs.



    Blondie sending you good thoughts about the drain. Did your ex ever fix your car?



    Jazzy wise words!



    Camille I love your pics and jokes. Hope your weekend has been nice!



    We bought one of those ridiculous inflatable water slides for the girls. It allows them to get outside and exercise and play with friends and lets me still hermit a little ;-)

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Hi everyone--Blondie I'm so sorry you have to go thru this--but it will help u breathey better right. I disn't know this was painful, I pray it is most comfortable for u this time and let us know as soon as u can. (((HUGS)))

    Markat those slides do keep the kids busy for a while anyway.

    I went to my oldest DD's for the weekend and went SWIMMING, something I haven't done that in years. My legs and arms wouldn't let me completly swim but I used a floater for my arms and just moved my legs loads--it felt so good for over 3 hrs. with my cousins and Joey and he was so happy and my DD kept on putting lotion on me like I was a kid, bit it worked--the only thing is it felt great but I guess I overdid it cuz out of the water I can bardely move, Stupid me I shouldn't have moved all that time, u'd think I'd know better. So back to hermit myself for a couple of days good thing cuz I walk worse now than before. But if I can go more it'll be really good excercize for my back. And my legs will get used to it too.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2013

    Hi hermits- been a busy but good weekend. Been out and about doing music and today, went a lavender festival here. Something I have not been to in years. The highlight of the day was the lavender lemonade.

    Cami- good for you that you got in and moved around in the water. So good for you and know you have back and other joint issues, but water is a great way to exercise with those problems. I hope you can get some rest and recover. When I first went back in the water, it was a major adjustment.

    Blessings to everyone here facing tough emotional days and medical care this week.

    Peace hermits.

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Blondie... hugs and hopes for less pain, and better breathing. 

    Camille...good for you for water time!  Sorry you're suffering on land, but glad you had a good time.

    markat...water slides are so fun.  DD2 worked at a summer camp once, and they put on dish soap for bubbles and swifter sliding!  Kids loved it.

    Jazzy...lavendar lemonade?  Sounds different--good?  I love the smell of lavendar, but don't know about taste...  (have been adding fresh peppermint to green tea...  dh won't touch it, but I like it.)

    Lori... you sound stronger.  Yes, tears still, but stronger.  Proud of you.

    Laurie... hope all goes well with future appt.  dh will come to grips with it all in his own time.  They mourn normalcy as well...

    slickchickie...how's the move?  It's always tumultuous, to me, to move...  Hope all goes smoothly for you and Capone, adjusting.

    Good Monday to each.  Strength to all, and may side effects be fewer...

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  • slickchickie17
    slickchickie17 Member Posts: 125
    edited July 2013

    Hi skittle, haven't moved yet. My parents are sending me to my sister's after surgery this week & I'm staying there until they get moved in to the new house. Wicked fun, living back at home with the 'rents...wicked fun.


    I'd like to mention that this entire cancer experience has been outstanding (clearly I'm being generous here) & I'd like everyone to know how grateful I feel everyday (obviously my sarcasm speaks for itself) As a matter of fact, I feel lucky (just shoot me now) & truly blessed (in a cursed kind of way). Smile, hermits-- there is nothing left to do but laugh!

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Slick I am laughing at u'r post--good choice of words--couldn't say it better. But u did leave out that many times the joy of this disease is that it doesn't just go away like a cold---so many fun things just keep on keeping on, so the joy of it never ceases.

    UGH my DD just came into my room and said I forgot u were here. hahaha I make such an impression on my kids---I told u I really hermit myself.

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  • slickchickie17
    slickchickie17 Member Posts: 125
    edited July 2013

    Oh Camillegal, I think the joys of cancer deserve their very own post. Don't you agree? I mean gosh, there are so many...Also, I would like to add that cancer has turned me into a sexy beast. I mean really-- I thought I was smokin' hot before BC...but now I know that bald with no eyelashes is where it's at. I used to think my self confidence was attractive...but now I see that self loathing is really hot. Can't wait for the hormone therapy, radiation & surgery. By then I will be queen of the Frankenbarbies!!! Queen, I say. LOL

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Slick I agree, but my titles is Queen, look for another title--I'm much mich older, so I've earned it having so much fun.

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  • slickchickie17
    slickchickie17 Member Posts: 125
    edited July 2013

    Hmmm, I was unaware that the Frankenbarbie's already had a queen. Of course, Camillegal, I bow down to you dear. I will be your snotty little princess:)

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    OK Slick I'm used to snots.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    Thank peeps.....last time, last year it was my left lung, this time it is my right lung.....don't know how much fluid is in there but have to get bloodwork tomorrow around 1130 and then draining....not happy they numb it, slice it and then put the tube it to drain it (sorry so graphic) ....will let you know how it turns out, have chemo on wednesday!!

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Please!

    Go to (Search) and search (Teka) and see if any posts show up with my Diagnosis at the bottom of the posts.   Last page should be 38!!  I am seeing some prior deleted posts from the threads when I use (Search).

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Teka--i've been searching on a few of those pages and all of u'r posts are deleted??? and nothing shows u'r DX===what happened? I thought u didn't want it on, cuz I don't remember seeing it.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Last page which shows on my (Search ) is 38 and some posts like the "Class of 2010" post which I deleted is there and showing diagnosios.   I am worried that other members can see my deleted posts on (Search).

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Teka I was seaching all over for other posts, I didn't see anything???

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Thank You, we should at least be protected from other members reading our prior deleted public posts.   I still don't understand why a few of my deleted public posts show up on my (Search) but show deleted on the threads.   I've deleted many many prior public posts.

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Teka... When I searched, your diagnosis info IS there, but when you pull up the post, the content and diagnosis are deleted.  Looks like info is not so private even with delete...  saved in archives??   Might want to pm moderators if you are concerned.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Privacy isn't protected on (Search).

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    I didn't see  all these things-I did search Teka tho. Teka go to the mods like Skittle sayd and make sure what u don't want on the board is not there.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2013

    what is going on with that.....scarey!!!

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  • camillegal
    camillegal Member Posts: 16,882
    edited July 2013

    Blondie I'm not sure just testing what Teka asked, but Skittle knew how to do it better????

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  • Skittle
    Skittle Member Posts: 400
    edited July 2013

    Camille... all I did was type in Teka for search.  It gave over 1,000 results.  I went to the last "page" and pulled up her entry.  It gave the first line of her response and her diagnosis/procedure line.  I pulled up the entry by clicking on it, and nothing is there, saying it was deleted by Teka.   Confusing to me, since I thought delete meant all of it, period.  Odd system.  (sorry, Teka)

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    What I've been seeing on (Search) is removed or deleted public posts with the start to the posts, and in my case diagnosis, which I want kept private.   I spent hours going through public posts on the threads removing diagnosis.   There was no way for me to remove diagnosis from deleted public posts.   But why would any part of removed or deleted public posts be on (Search)?

    What if a member was to public post the following _______________________________

    Husband is an A-hole, not really!Laughing

    Member deletes public post_________________________________________________

    Then only the start of the deleted public post "Husband is an A-hole," shows up on (Search).Embarassed

    I talked to a Moderator.

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited July 2013

    Yes Teka. I think so too. I go tomorrow for my CT Scan and preliminaries. :) Still working on the MO. I STILL have not been reassigned. The IV nerve tear situation has become pretty serious. Doc said I could lose the use of my arm. :(. I am battling for treatment. It is a full time job. He prescribed Lyrica, Methodone and a compound cream that costs $250.00.



    My daughter has been put on bed rest for the remainder of her pregnancy. 5 months. My son is doing well. Tourney in AZ in three days.



    How are all of you??? What is going on in your lives??



    Love you,

    XOXOXOXO

    Laurie



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