Chemo May 2013

Thanks ladies!  Guess the pain is part of the course   Lisa - the b6 b12 and allpha lipoic (is this a vitamin type pill?)  Where do you get them?

Thanks again Lisa - truly appreciate it!

Hi Mcgis,

My SE's have been all over the place too. No real pattern, different evey treatment. Over all though...manageable. Guess we have to just hang on to the roller coater until it's over!

Annie

Made the baby shower today. Was very shaky when I got there. Had some water, and then some sangria (I should not have done that!).

Was able to take my 4 mo. Old niece off her mothers hands so she could help throw the shower for her friend. What a joy to hold the little one. She doesn't like to be "still" and won't sleep unless held...so I spoiled that child and rocked her to sleep...I finally had to sit too, I was pooped! Lol. Thankfully she stayed asleep on me. What a great day.



I am exhausted .

Pat

I do believe the SEs are leaving me faster this time! Not nearly as sore today when I woke up & the numb/tingly feet & legs are almost back to normal. Im only a bit achy from ribcage, hips, legs....It's still early, but my mouth isn't as gross as last time....

I hope I'm not speaking too soon (knock on wood) but maybe this one will give me more good days than bad!

This round I made a conscious effort to do almost nothing on my bad days but lay around and rest.... No laundry.... No big meals.... Off my feet more than on them & I really think it made a difference. In the past, I've been trying to fight through it all and try to do as many normal activities as I could, but suffered too.

The hubby has been really good this time too not letting my do things... He's been saying "NO Lorrie... Let me do it!" a lot more...



And I felt bad yesterday when my girls and fam came over for brunch... Right after we ate, I excused myself to bed... (a first EVER!)... but they all understood.



Pat, I'm glad you had a good time at the shower... Nothing like a baby sleeping on you to make you sleepy.. Haha



I hear ya about the coffee, Lisa.... I drink it anyway, but can't wait till I have a little creamer with my coffee instead of a little coffee with my creamer!





Hope everyone else is doing well... & have a great week!

Happy thoughts!

Lorrie

Pat... Take the nap! Your mom doesn't know?? Oh my, I'd like to be a fly on that wall... Are you sure your twin sis didn't spill the beans to her yet? Haha sounds like the break from hubby and kids will be short lived with mom coming in.... I hope you're able to enjoy the visit tho.....



Just got off the phone with one of my clients and he's wanting to use me more and eventually bring me in with him to his meetings with his clients... I started panicking... I said "wait till I have hair!!!!" he just laughed... It will be a while before it happens, but he says.. "hey, we can play the sympathy card! You're already such a likable person and always good to have at the meetings... Let's just use this to our advantage"... He was kidding.... (I think) haha



The truth is I feel like an ugly dude with no hair, almost no eyebrow on the right and half of one on the left... Only a few lashes left... I am starting to feel like fixing myself up before hubby comes home so he doesn't forget that I was once pretty...... I know we all try to be a good sport about it, but it's always on my mind how I look... Let alone how I feel. It's not just the physical SEs that suck.... Emotional SEs can be just as debilitating, I have discovered.....

Lorrie,

You crack me up!

I avoid the mirrors if possible. Yesterday I "put on my face" and felt way better for it, but then again I was going to a party, so I "had" to. Also had picked up a nice long dress that had "flow"...(hide the belly fat I've added), put on some fancy sandals and I felt really good.

AND...I didn't wear a bra! It was showing from the back of the dress, no matter how I tried to move that bra around it wasn't "hiding"...SO...I thought, "these breasts have been sliced and diced AND reconstructed and lifted,I think I can get away without a bra". AND IT WORKED,!

You are right, we should show our husbands we are still women...I'm just not motivated on a regular basis. I'm waiting for him to start calling me "Fred". Lol



Twin sis couldn't spill the beans about chemo....she doesn't know either. She only knew I had cancer before she decided to give me the heave ho. Younger sis knows, and has not violated the "don't talk to mom about it pact". Mom knows I had a surgery...that's all. Younger sis will mention now and again I am "sick" but dear mom doesn't ask, almost like the military "don't ask, don't tell". Anyhow, when I pick her up she might be able to put two and two together...sis and I will be spending a week with with mom at a beach house (me hiding from the sun!) and my mom can see I am "normal" (well, if you could call me normal!) and it won't bug her. She has mental illness she meditates for, along with a mind that makes up stories about people and their situations...I call it "old people's mind", or "I need to get a life mind". Who knows maybe it is "nobody tells me anything mind"!



Gully,

I think the boy mannequin wears more make up than I usually do!



Pat

IPC: Do you mean Mr. and Mrs. Potato Head? That works too LOL!!

oh yea! I remember that one! If your hair looks like that it looks better than mine! Mine resembles a 100 year old man! Not cool at all! I wonder if it will ever come back to look some kind of normal. It looks like from the other boards it could take several months! God give me strength! Anyone besides me feel like a drag queen? Fake hair, makeup, big ear rings....HehEHE

Have an appointment with the plastic surgeon tomorrow to talk exchange...does anyone know how long after chemo is done they make you wait? These solid Barbie doll foobs have to go!

Gully I gave up on fake hair! I hear taking biotin after chemo is good for hair growth. Will try it when I am done. Btw the 1/4" hair is just hair that never fell out! I was not lucky enough to lose leg hair which is so not fair!



I wont have exchange til after radiation! Am hoping before January so I wont have to pay deductible again. My foob acts up everytime I have chemo - spasms ouch! PS and MO look at me like I am nuts.

Patty



Woolly willy that's me!



Guess its good we can laugh!



Lisa

IPC: Yes, well they dont have them do they. I have weird little spasms all over the place! I know its from the chemo,  never had them before! I like how they ask what se you are having and you tell them, and then they say something like cant be from the chemo! Well doc if it looks like a duck and quacks like a duck, then with all of your education you should figure out that its a duck! ( I should know I teach HS Bio HEHEHE) I dont think they want to hear about anything but the usual SE their treatment manual says you may have., otherwise nothing, or it will go away on its own. 

Another thing about stubble: Anybody else stick to their pillow like velcro? Mine actually makes that crunching sound....Oh IPC.....hair loss has been weird. I lost it everywhere expect my arms, and my lashes and eyebrows are still hanging in there, although, a little wonky One more thing, anyone have the little white downy hairs on your face? WTF is up with that?

Maybe it was telling him about the picc apt where I got scolded... Or when he'd see me on the kitchen stool and ask what I was doing... I'd tell him I was unloading the dishwasher, but taking a break.... Or when I got caught sitting on the stairs crying because my feet were numb but I had to chang the sheets on the bed....

Then he told me that he heard me moaning in my sleep on my painful nights..... And he started helping. I don't care what it was... It has made this treatment better!