Diagnosis of Atypical Ductal Hyperplasia at 29 years old

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Bobbi0231
Bobbi0231 Member Posts: 2
edited June 2014 in High Risk for Breast Cancer

Hi, my name is Bobbi and will turn 30 in 3 months. I had a lump my doctor found 5 years ago and recommended a mammogram. Everything came back fine, I just had fibrocystic breast. I noticed the lump had gotten bigger and harder about 2 months ago so my doctor sent me for an ultrasound, and mammogram. They came back suspicious. So I had a Vacuum assisted biopsy done at the county hospital. The results came back as ADH. The doctors there just called and gave me the results over the phone. He said I am now considered high risk and i should see my GYN in 6 months for another mammogram. My husband and I thought it was best for me to get a second opinion from a well known Breast Care Clinic at UAB hospital in Birmingham AL. The doctors there wanted all new tests and a Core Biopsy done. They found several other issues. On top of Atypical Ductal Hyperplasia, they found Radial Scaring/Complex Sclerosing Lesions, Florid Ductal Hyperplasia, and Papilloma of the breast. I met with the doctor a few days ago and we all decided it would be best treated with a Lumpectomy. I am scheduled for August 2nd. I am so confused and worried about my diagnosis. Everything I have read has said that my diagnosis is usually with women in ther 40's and 50's. I have a few family members who have had breast cancer, but no one in my immediate family. My grandparents on my mothers side adopted me when I was 6, so I only know the family medical history from that side. Haven't seen or spoken to my biological father or anyone from that side in 20 years and have no way of getting in contact with them to find out their medical history. After the lumpectomy, can the ADH come back? Will I still be considered high risk anymore? How often is someone my age diagnosed with all of these things together? Am I better off getting a masectomy? Do all of these combined put me in an even higher risk category?

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    Hi Bobbi0231, and welcome to Breastcancer.org! You'll find our community a very supportive place full of knowledge and advice.

    You're sure to hear from other members with their own experiences. In the meantime, you may want to read more about ADH on the main Breastcancer.org site.

    Hope this helps!

    Best wishes.

    ---The Mods

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  • momoschki
    momoschki Member Posts: 682
    edited July 2013

    Bobbi,

    I also got an ADH dx, although I was 53 at the time (I am 56 now.). It's good that you got a second opinion, because the pathology in these cases is often not clear cut.



    In my case, after I had a lumpectomy, I met with an oncologist, whom I have been seeing every six months. I would suggest that you do the same-- you can discuss your risk factors and what preventive measures are available and would make sense for you. And sadly, yes, even after the abnormal tissue is removed, you are still considered high risk. This is why you will want to be monitored more closely-- most likely every 6 months with alternating mammos, ultrasounds, and MRI's. Have you had an MRI done? This can be valuable before the lumpectomy, just to detect if there is anything else going on in either breast.



    Mastectomies are generally not done for ADH -- this is considered overkill. It is an indicator that you are at higher risk for developing BC (in my case, I was told a 20-25% chance), but the majority if women with ADH will not develop BC.



    Yes, the ADH can come back. When I asked my doctor what the chances of this were, she said she couldn't answer me because apparently no statistics are kept on this. Frustrating not to have this information...



    I hope this info helps a little. Feel free to PM me if you have more questions.

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  • Momcat1962
    Momcat1962 Member Posts: 665
    edited August 2013

    Bobbi,



    I will be 51 in a couple of months and was JUST diagnosed with ADH. My surgeon said diagnostic mammo on the bad breast in 6 months and see her. She said to call her anytime...whether I find a lump, have pain, discharge again, or intuition tells me something isn't quite right. A member here diagnosed with ADH said I should consult an oncologist, too.

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