Sister diagnosed, BRCA1 +

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Tfosher
Tfosher Member Posts: 14
edited June 2014 in High Risk for Breast Cancer

Hi all, 

I'm so glad I found this group, although I'm sad to be here. My sister, 32,  was diagnosed with TNBC Stage 2 last month. She was confirmed + for BRCA1 gene 2 days ago. I'm so incredibly sad for her family as I know she wanted more children (timing and $ did not allow any egg harvesting or other means). She is having a hard time with the double mastectomy too. 

I am plnning to see the Dr. soon and request testing. I'm 30, and we've recently moved to a new town. I am worried about it and even if I don't have the BRCA gene, I feel we wont have more children because I would feel awful for my sister. 

I've had some strange symptoms, extreme fatigue and nausea, slight cramping... etc in the past month. I saw a Dr. last week who ran some blood work and found my WBC to be low. She attributed it to stress and virus wearing me down. I am now scared about Ovarian Cancer as some of my symptoms seem similar. 

Sorry for the post jumping around - Glad to be here and talk with you all!

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  • maureen73
    maureen73 Member Posts: 11
    edited July 2013

    I am so very sorry that you and your family are going through this as we are dealing with the same thing too. I go for genetic counseling (not testing as I just want information at this point) on Monday and I am so scared. I am even more scared to get my sister's results and it looks like since the Dr. never called like was promised we will be anxious all weekend. I am going to pray that you are fine other than significant stress which is understandable......

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  • Tfosher
    Tfosher Member Posts: 14
    edited August 2013

    Hi Maureen,

    Just wanted to check in with you and see if you have found anything out - I got my gene test back and it was negative. I am so thankful to have this information but still just incredibly sad my sis is dealing with this all. 

    Prayers to you <3

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