Too Many Mammograms
I believe that my LCIS was caused by 30+ years of mammograms/radiation? Does anyone else feel that too many mammos caused their LCIS, DCIS or BC?
I am debating with myself on whether to go for an upcomming left breast only mammo that I have scheduled in August. I'm just don't want to go through this any more. I guess I just needed to vent a little, sorry.
Comments
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Funny you mention this. I thought the same thing, also I had alot of Xrays from the Dentist and thought it was from this too. No history of BC in my family. I did take hormone replacement when I was going through menopause but not for a long time. I did take Estrodiol and progrestrone treatement but not for a long time. They say this will cause BC. I also was on the birth control pill for many years. So who knows. But I did think about Xrays from mamograms and dental xrays. Who knows? Where I get my mamogram they told me they are getting 3 D imagining this fall. I already read that 3 D imagining has a higher rate of radiation then digital. Now I am nervous.
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Absolutely! Unfortunately the medical profession will disagree because it is profit driven. And, sadly, we will never know if it would have devolped to a full blown cancer AT ALL!
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This is a very,very,very difficult question. There are many reasons why, including:
1) We don't know why most women get breast cancer.
2) Mammograms do not give an equal dose of radiation to every woman. Every machine is different, and the more tissue you need to get through, the greater the dose.
3) Any amount of radiation will pose some additional risk of cancer. We are all exposed to some dose of radiation (from natural sources).
I think its easy to say its all profit driven.
This article is by someone from the University of Pittsburg, from the 1990s, so its less likely that he was funded by a profit-driven company.http://www.phyast.pitt.edu/~blc/book/chapter5.html In it, it says that the average person gets about 85 mrem/year from natural sources (such as cosmic rays, our environment, the potassium in our bodies.)
"All of the above-listed sources bombard all organs of our body, but the most important source of our exposure to radiation is radon gas in our homes, which only irradiates our lungs, causing lung cancer. It gives us a cancer risk equal to that of exposing all of our body organs to 200 mrem per year. In some states, like Colorado and Iowa, the average level is 3 times this average, about 600 mrem per year. Several other areas, like an extensive one covering Altoona, Harrisburg, Lancaster, York, Allentown, Bethlehem, and Easton, Pennsylvania, and the regions around Columbus Ohio, Nashville Tennessee, and Spokane, Washington, have equally high radon levels. Radiation exposures in the highly publicized incidents are thus considerably lower than those received by people in these areas every day...Within any area, there is a wide variation in radon levels from house to house. About 5% of us, 12 million Americans, get more than 1,000 mrem per year, and perhaps 2 million Americans get over 2,000 mrem per year from radon. In a few houses, exposures have been found to be as high as 500,000 mrem per year."
They allow about 40 mrem/medical Xray.
This CDC source says a mammogram is roughly 70 mrem.http://www.bt.cdc.gov/radiation/measurement.asp
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I have been doing an independant study for the last 20 years. I have asked thousands of BC patients who had a lump "how they discovered their lump." Their response is almost always "they discovered it themselves...." Then I ask if they were receiving mammograms and they usually respond with something like "yes, and i had just had a mammogram three months prior and it didn't catch it!".....
Odd isn't it? And they say they felt a lump the size of a grape and the mammogram three months prior did not catch it???
Then there are a few people who actually say a mammogram discovered their BC... But upon further inquiry they too report that while the mammogram did final analyze and "diagnosis" the BC they had actually had felt a lump as well which took them to the doctor. They ultimately confuse the issue of how they discovered their problem.
So bottom line is there has never been a formal study of the "discovery" of a lump and its relationship to getting mammograms. And we know studies cost money and the medical profession doesnt spend money in this way. Its easier for them to keep paying off their mammogram amachines and profiting from this.
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Extra doses of radiation definitely are not good. However, this does not explain the upsurge of younger women coming down with breast cancer these days. These women have not had years of mammograms, or possibly only a few like myself. Food for thought. Environmental???
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I have a bad habit of leaving bottled water in my car and drinking it when I am riding around. I read that this is dangerous to let the plastic heat up an it changes its chemical compound makeup. So if its dangerous to eat or drink out of plastic that is heated up then how about all the microwave meals Ive ate? Im also not so sure that we have more younger people with bc or do we just hav more test to find it earlier? I was grilling some chicken the other day and pulled a thigh out and just stared at it... I have been on several farms an never seen a chicken that would have a thigh this big. Hormone fed meat and milk are also linked to bc. Magnetic fields in the enviroment such as near power lines have also been linked to cancers. I have worked in radiology for the last 15 years. I have definitely received more radiation than I should have. I wore a film badge at my neck to monitor the amount received. The badges are worn at your neck because the most sensitive areas to radiation would be your eyes and thyroid. We also shield ovaries if possible to protect the eggs. A fetus is also super sensitive to radiation. But I have wondered did my breast cancer come from my work? Did I drink too many bottles of hot water? Too many bbq chickens? Or could it be genes?
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Wow, I was so happy to read so many responses, and to know others may feel the same way. Rose 12, you are right about the 3-D mammo, I just will not have that done, just what we need, more radiation.
I never took any hormones for menopause, birth control pills, etc. I do not have a history of BC in my family. Had my children young before age 27, etc. I have had fibrocystic breasts since I was in my 20's, and just recently read that this could also put someone at risk, I was never told that. I was told it would go away after menopause, well that never happened either.
No matter what, I just feel more mammos at this time are not something I want to do, especially with the number of films that must be taken and the squishing involved. These things just can't be good.
I also think the environment plays a part too, especially our GMO foods, worst possible foods we can eat. We eat terrible foods in the US. Maybe someday they will have an answer for us, but we have to be proactive in our care and monitoring.
Melanie, I carry my water bottle now in a small fabric lunch cooler with an ice pack inside. I hate hot water...I'm in Florida too, so the water gets hot really fast in the car. I don't leave the cooler in the car, I take it everywhere with me.
rosy
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???? Just think how hot the bottles must get when being trucked from manufacturer to the stores and/or distribution centers. I think one must decide if plastic bottles are the best way to buy your water.
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I know I didn't get mine from mammograms because I had never had one.
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Melissa, how did they find your LCIS? You must have had a biopsy done to be diagnosed with LCIS.
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I meant before the one they found it on. I had calcifications on my first mammogram.
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I was dx with IDC, but had only had one mamm in my life, 5 years prior. I found the lump myself, in an area that they couldn't get into the mammogram machine (inner-upper quad, near the center of my chest). Hx of two or three (I can't remember now) lung x-rays about 20 years ago. No family hx of any kind of cancer - I'm the first. I'm still baffled...
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Radiation is damaging. Mammograms are ionizing radiation, and not the same as sunlight, etc. So when doctors convince us that radiation is ok and use the analogy of going to the beach, it should be an insult to our intelligence. It is not apples to apples.
Furthermore, when we speak of getting "a mammogram"...that is deceptive because it is really four mammograms!! Two images on each breast. (Then add on the extras when the technician comes back and states that one is not clear enough...let's just do it again...!!) So, bottom line, there will be no No 3-D's for me.
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Ldcald, you are exactly right about it possibly being dangerous. Thats why a doctor has to evaluate the benifits vs the risk. Mamo images dont have near the radiation dose as say a catscan has. However we wouldnt xray someone every day and you have to have an order from the doctor. The newer equipment gives off less dose and also creates a dose report of that exam which is kept in patient file. There are agencies that come in and verify that dose is kept to minimum and that equipment is working correctly. Its also not easy to get a mamo if you are young unless there are symptons present to justify need.
If you have a lump or hx of breast cancer than the benefit of early detection outweighs the risk.
Anyway I just wanted you to know that the dose for a mamo isnt as high as it was 10_15 years ago. Now heres a laugh for you. Mamo didnt catch my tumor. lol
Healing hugs to you all. -
melmcbee omg. You felt your lump yourself? How did they explain that the mammo missed it?
(Yes I understand that mammos have less radiation than 10 years ago. That is good.)
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I have ilc which grows different then idc. Its like lattice work instead of a round lump. The ultrasound showed something so they could biopsy it and the mri showed it at over 5cm. It turned out to be 3 tumors with the biggest at 2.9 cm. Here is another funny coincidence. I had saline implants placed like fifteen years earlier and the radiologist told me that implant probably saved my life because it blocked it from attaching to my chest wall. Ironic. However the tumor had probably been growing for ten years. Ilc is known to not get picked up on scans but because it only makes up 10% of breast cancer there arent many studies done on how to better detect it. By the time you feel it, its usually big.
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I've had as many as 10 extra views taken on several diagnostic mammos. I think that is so extreme.
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Wel melcbee,
You look great so I hope all is well with you! And who wouldv'e guessed, implants saved your life? Makes sense though! lol!
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I don't worry as much about the mammos as all the abdominal & pelvic CTs I had a few years ago. Really griped me that one of my chest ones was bad quality & they had to immediately repeat it. You get lots of juice with cts.
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You are right ct is definitely a higher dose than mamo.
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I agree. All the extra views add up. But it is VERY common. we are all in the same boat if we have been getting regular mammograms. ugh.
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I just think we are getting so bombarded with radiation, it just can't be good.
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Had my 2nd 6 month (left breast only mammo). I was told it was stable, whatever that means. Due back in February for mammos of both breasts. I am still very concerned about all the radiation from these diagnostic mammos. I can't help feeling so much damage is being done. Tech told me to speak to my doctor about it.
I will get a copy of my report on the 19th and will see the doctor on the 28th.
I don't understand why we have to have all these tests done every 6 months instead of yearly. I would like to go back to yearly.
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Hi Rosy. Im glad your mammo went well. You should just tell the doctor that you are not comfortable doing a mammo more than once a year and see if they will alternate with mri. Just tell him no you are not doinv it but once a year.
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Rosy, you can go back to yearly anytime you want if you are willing to accept the additional risk, whatever it may be. Nobody can make you do six months if you choose not to.
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Hey Rosy I copied this for you. I Hope it helps.
http://www.imaginis.com/mammography/benefits-and-risks-of-mammography
To put mammography dose into perspective, a woman who receives radiation therapy as a treatment for breast cancer will receive several thousands rads. If a woman had annual screening mammography for fifty years (two x-ray views per breast), beginning at age 40 years and continuing until age 90, she will have received a total of 10 rads to 20 rads per breast over the course of 50 years. -
I won't do the MRI again. I have COPD and lying on my stomach and being crushed for this test made it very difficult to breath. I had one after my surgery, and almost pushed the panic button to stop it.
I was hoping to go back to once yearly testing, but I guess that's not to be. Thank you everyone.
Melissa, what's the additional risk? I know that I have read somewhere that some doctors advise only yearly testing after an LCIS diagnosis.
It seems that LCIS is still such a "gray" area.
Rosy
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I have no idea on percentages. The idea of twice a year screening is to catch it early if you're high risk.
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Rosy----it's pretty common now to alternate MRIs with mammos every 6 months for an LCIS diagnosis. (when I was first diagnosed 10 years ago, it was just a yearly mammo and then clinical breast exams every 6 months). I pushed for MRI as I was not comfortable going 12 months between imaging with a high risk condition. My oncologist initially did not want me to have MRI as he felt it "would open another can of worms"; we went back and forth about it for a few years, then I told him I would rather risk an unecessary biopsy than miss an invasive bc. Fortunately, I haven't needed any further biopsies in all these years. The way they explained it to me and from what I've read, the mammos are better overall finding the non-invasive bc's (DCIS and LCIS) and the MRIs are better overall finding the invasive bc's. so I figure, what one misses, hopefully the other will pick up.
anne
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I've been under careful watch for years due to huge family history. My tiny bc was in a suspicious area of my yearly mammo. My BS said we would not have felt it for about 8 years.
That may not be the usual story, but it is my story and I'm grateful to have caught it early.
I'll never know what caused it. All I can do is keep learning how best to care for myself. One of the reasons I opted for BMX was to avoid further radiation.
Trusting God to help me accomplish my purpose before my time is up...whenever that will be.
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