Starting Chemo July 2013

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  • SweetheartinTX
    SweetheartinTX Member Posts: 58
    edited July 2013

    Rambo50 - How are you doing? I hope to see an update from you soon!! I am sore but it's not unbearable.

  • Rambo50
    Rambo50 Member Posts: 140
    edited July 2013

    Hi SweetheartinTX, and everyone else :)

    Made it through port placement surgery fine. Glad you did as well! Yes, I'm sore too - now on both sides (lol). It wasn't too bad, but I took one half a pain pill so I could rest, once again on my wedge pillow! Glad they did it this week so I'll have a little time to heal.

    Thanks for checking <3</p>

  • SweetheartinTX
    SweetheartinTX Member Posts: 58
    edited July 2013

    Awesome! Glad to hear. Yes, i took a pain pill as well. I actually will be due for another here shortly. lol



    We will need all the rest we can get ;)



    Cheers to all us July Firecrackers!! 🍻 (maybe some water bottles instead of beer mugs, lol)

  • Rambo50
    Rambo50 Member Posts: 140
    edited July 2013

    Just noticed you start chemo tomorrow, SweetheartinTX !!! Here's to getting started kicking some BC butt :) you'll do great!

  • SweetheartinTX
    SweetheartinTX Member Posts: 58
    edited July 2013

    Thanks! Yes i am so ready to get this on a roll so that i can look back 8 months or so from now and be able to take that LONG good feeling breathe of, it's over!! :)



    Of course i know that i will continue to have anxiety of reoccurance but i feel like at this point that i am doing EVERYTHING in my power to keep that from happening.



    It's gonna be a long bumpy rough journey but i with all of y'all's (yep I am a true Texan, hehehe) help, i know i will get through it, just that much easier!!

  • Hannariggs
    Hannariggs Member Posts: 137
    edited July 2013

    its you and me tomorrow sweetheartin!  I am excited to get started but apprehensive at the same time.  Praying we both have an easy infusion with minimal side effects.  Good luck sister...

  • soriya123
    soriya123 Member Posts: 662
    edited July 2013

    Hannarig n sweetheart, I hope chemo will go easy on both you. Will be thinking of you. :-)

  • SweetheartinTX
    SweetheartinTX Member Posts: 58
    edited July 2013

    Thank you Hanna and Soriya123! Good luck to you as well!

  • wyllikers
    wyllikers Member Posts: 17
    edited July 2013

    Hello, Firecrackers!

    I had my port placed today and I am pretty sore tonight.  I think I'm having a reaction to the Steri Strips because there is a red ring around both incision sites.  Hopefully, the strips can be removed in a couple of days.

    I am participating in a clinical trial for chemo.  Tomorrow I will find out if I will be on AC-T or TC and should begin treatment on Thursday.  20 weeks vs. 18 weeks, mustard gas derivative vs tree bark derivative.  If I didn't take part in the study, the default chemo would be AC-T, so my only chance to have TC was participation.  Wish me luck!

    Good vibes and wishes for no SEs for everyone!

  • GraceB1
    GraceB1 Member Posts: 213
    edited July 2013

    I'm a member of this group too. I found out on Monday that I will have chemo (AC/T) before surgery and then rads. I had a pet/cat scan today and it changed my diagnosis from IIb to IIIa. A little larger and 3 nodes that they weren't expecting. Fri July 12 I get my port in the morning (really small veins, it usually takes three or four tries to get a vein) and chemo starts at 2:00.  Need to figure the wig thing out soon. Don't think I want strangers staring at me at the grocery store. I have a hair apt. in the morning and will ask what options there are locally. I know I will get through this but still have crying episodes a couple of times a day - mostly feeling sorry for myself. I hate the thought of being unwell and unable to do what I want to do when I want to do it. I am a fighter and will come out the other side OK. Fighting cancer just wasn't on my bucket list and now it's my number one priority. Enough pity and on to the battle! I'm glad I found this group and a place to give and get support.

  • honeybunny96
    honeybunny96 Member Posts: 120
    edited July 2013

    my port was placed today and I must say.. OUCH! I guess I have a low pain tollerance.  The pulling, the tugging.. the needles.. the stitches.  It was just too much for me. It turned into an emotional day.  Thank goodness for the wonderful nurses to help me get through the procedure.  I'm glad I got it.. don't get me wrong.  I just HATE needles.  *sigh* just one more hurdle to cross on the road to kicking butt! 

  • Michelle69
    Michelle69 Member Posts: 1
    edited July 2013

    Hello ladies,

    New to this in terms of posting but on it since diagnosis back in may 2013. I start my chemo A/c treatment this Thursday and it finally hit me that this is real and is happening to ME and no I am not going to wake up from a bad dream. I am so scared behind belief so i can use any help/advice i can get from you all. I know together we will get through this, maybe it doesnt seem too doable at this time but i know the more we know the more prepared we are to fight this beast.  Waiting to hear from you ....

    Diagnosed 5/2013 DIC 11positive lymph nodes out of 17, tumor 2cm, stage III breast cancer, Her2+ ER PR+ lumpectomy 6/2013

  • soriya123
    soriya123 Member Posts: 662
    edited July 2013

    Grace, I'm sorry that you have to join us this month too. Wow...stage 2b is bad enough n now stage 3a. Hang in there you will thru this. We all will get thru this together. Yes I know what you mean the thought being unwell n can't do the thing you used to do. I am not looking fwd for that at all. Talking about wigs, I had a hard time looking for one. I went to 3 stores so far couldn't find the one I like :-(. I have a good nice length hair, I want to look for somewhat the same look n length. :-(. I'm I being too picky?

  • soriya123
    soriya123 Member Posts: 662
    edited July 2013

    Ladies, do they numb you first before they put that port in? Please tell me Yes.

  • Rambo50
    Rambo50 Member Posts: 140
    edited July 2013

    Soriya - yes, I was under pretty deep for port placement surgery, not general like for my mx, but I didn't feel ANYTHING :)

    It's about 14 hours later and I'm sore, but slept ok thanks to a pain pill. I get to take the top dressing off tomorrow, but steri strips will stay in place.



    Sweetheart - Hate, hate you're having port issues :( Praying it will improve today! Can I ask why you're going the clinical trial route? Just curious.



    Grace - I, too, hate you've had to join us, but I'm sure you'll find some comfort in our group's shared journey! Welcome {hugs}.



    ~Lynn

  • option
    option Member Posts: 19
    edited July 2013

    Hannariggs and sweetheart, best of luck with the infusion today.

    I had my Neulasta yesterday. Took claritin in the morning, and it seemed to be working. Heard that SE tend to come a couple of days after the chemo, so i'm waiting for the shoe to drop. Plan on shaving my hair this weekend or next. It's getting hot, so no hair isn't going to be too bad.

  • aaoaao
    aaoaao Member Posts: 593
    edited July 2013

    I was completely knocked out for my port placement.  So no pain, lots of gain..no chemo IVs.  Sorry honeybunny9 that you had problems.  It doesn't mean you have a low pain tolerance, some things are just diferent and more difficult for one person than for another.  I hope you heal quickly and things go easier for you.

  • Rambo50
    Rambo50 Member Posts: 140
    edited July 2013

    HoneyBunny - I concur with the emotional nature of the port!!!  I was JUST getting a good range of motion back on my right side from mx, now THIS on the left - sigh - just another hurdle!  A good friend last night helped me put it in perspective, as one more step in the trek to beat this cancer's butt ;-)

    Michelle - "Welcome" is probably not what you want to hear right now, but this site and these ladies have been extremely helpful to me since I joined.  I'll be praying for you with your first chemo tomorrow - I start A/C next Wednesday.  Check out this set of posts regarding what to expect, side effects, suggestions, etc.: 

    http://community.breastcancer.org/forum/69/topic/785189?page=1#idx_1

    {hugs}

  • aaoaao
    aaoaao Member Posts: 593
    edited July 2013

    Since a lot of people here just got or are getting ports and have questions, please visit the Port placement thread.  They seem to have a lot of great info.

    http://community.breastcancer.org/forum/69/topic/721889

  • Nocompromises2013
    Nocompromises2013 Member Posts: 292
    edited July 2013

    Hi Michelle69

    I too start chemo tmrw

    Took my dexamethasone tonight. So far no ill effects. We went out for a meal to celebrate my last day of normal taste buds !!

    Willykers ..I am on TC x4. seems to be a standard protocol in AUS due to adriamycin SEs with heart etc

    Have stocked up on Emla patches to numb hand prior to cannula Hope my vein holds up. Port was never a choice given to me

    How did you go today Hannariggs and sweetheart??

    NC x

  • BabyRuth
    BabyRuth Member Posts: 264
    edited July 2013

    Welcome to all the new people in our Firecracker month!  Sorry that you had to be here.  It is important that we all support each other as we all start our chemo adventure.   I have an appointment with my PS today to take the bandages off my new nipples!  I can't wait to see them...from what I can see they look great!  It is simply amazing what the PS can do! 

    I am a week and one day away from starting my chemo.  I have a lot to get done before then.  I am supposed to go tomorrow to meet with the lady who helped me with my wig last go around.   She has a boutique here and works with cancer patients.   I have decided to go short and sassy!  I am just going to have to work on getting that sassy attitude to match!

    For those who just had their ports placed.  You will be sore for a few days but after that I do not really notice mine.

  • wyllikers
    wyllikers Member Posts: 17
    edited July 2013

    This is such a scary time for all of us.  Chemo affects each person differently, in varying degrees.  We don't know if we'll be one of the lucky ones who has very few to no side effects or if we'll have almost every one on the list.  All we can do is be prepared for all of them.  We feel helpless; we feel like we have no control over our lives or our health.  But the truth is, we DO have control!  Each of us has taken the most important step into healing our bodies - we have chosen to battle cancer head-on! 

    Did you know that there are a lot of people who just bury their heads in the sand and refuse treatment because they can't accept the diagnosis?  The feeling is understandable; this is terrifying.  Choosing to ignore the truth doesn't make it any less true, though.  YOU didn't do that...YOU chose to fight.  Just remember that one thing.  If you are feeling scared, lost, helpless...that is normal.  Just remember that you are strong and the proof of that is when you are sitting in the chemo chair or on the rads table or taking your Tamoxifen or AI pill every morning.  THAT is how YOU are fighting and being an active participant in your fight for health.

    We are all sisters.  We will support each other with love, kindness, and understanding.  I'm so grateful for BCO and all the ladies here who have made me feel not so alone.  Bless us all!

    Wyllikers

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited July 2013

    Thank you, Mellie and Option on the BRCA info.  I will go ahead and do it since it seems you never know. 

    Welcome to the newbies!

    Ladies I saw some mention of tea tree oil and I just want you to know this may be estrogenic and I would be hesitant to use if you are an ER+ cancer.  I think the almond oil is safe.  I am using coconut oil and nail polish on my nails but no idea yet if it helps. 

    Grace, I would get started on the wig as soon as you can.  I had to go to three places and once I started chemo, I was in no position to deal with it.  In fact I recommend going to a wig shop that has hairstylists on staff or a hairstylist that can order wigs.  They are way better at telling you how to make your wig look normal than a retail shop with clerks, and can trim if necessary to fit your face. 

    I take Claritan anyway because I have allergies.  I wasn't pain free after the Neulasta, but of course I have no idea how bad it would have been without the Claritan.  One interesting fact about the Cytoxan, it stuffs you up.  I had the worst sinus pain even with my Claritan so I had to get some nasonex and hopefully that will decrease my pain round 2. 

    I have round 2 tomorrow.  I have to go lay in supplies since tomorrow I'll be back in chemo coma.   

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    Hi all!

    Sorry we're late to the game with this info, but we wanted to provide some helpful links, starting with the main Breastcancer.org site's section on Chemotherapy, including info on what to expect, types of chemo meds, and side effect management.

    There are some really helpful key threads here in the Chemo forum too!

    Great tips and practical advice on the following discussion board threads:

    Also, Last Month's Chemo thread might be informative!

    Hope you find this helpful!

    --Your Mods

  • honeybunny96
    honeybunny96 Member Posts: 120
    edited July 2013

    Wyllikers..thanks for the pep talk.. just what I needed today as it's a really down day.  *sigh* 2 more days until chemo starts.  Can I run and hide now?

  • GraceB1
    GraceB1 Member Posts: 213
    edited July 2013

    My hairdresser was very helpfull today. The nearest wig shop is almost an hour away but she says they are good at fitting and then she can style it. And no Soriya123, I don't think you're being too picky. We just want what we want.  I spent a bunch at the grocery store today trying to stock up for the next week. Never bought so many health care items at one time before. 

    I woke up Tues morning with hives all over my body - too much stress I guess. I've never had them before. I was thinking that the antihistamines in Claritin might help calm them down as long as it's alright to take them right before chemo? Sounds like I can. I'm dreading Fri. but also wish it were here already. This waiting is for the birds.  Pulling up my big girl panties and getting ready to battle. Time to pack my bag of goodies to take with me.

  • LanaM
    LanaM Member Posts: 142
    edited July 2013

    Just had my port put in today. I'm sore, but I'll get through it - resting & icing it. The worst part was all of the IV's and blood draws the last two days! They always ave problems with my veins - I'm bruised all over! Had to do CT scan after port surgery and they ended up putting IV in my right hand which we were trying to avoid due to mastectomy & node removal. Even more thankful for port after these last two days! Hope everyone is doing well! Chemo starts on the 19th for me. Looking forward to our local Relay For Life this Friday!

  • Brook21679
    Brook21679 Member Posts: 3
    edited July 2013

    LanaM and Sweetheartin TX - Looks like 5/24/13 was not a good day for any of us! I was at Cracker Barrel when I got the call. We were celebrating Kindergarten graduation. It's petty and senseless but I will never eat at Cracker Barrel again. lol I just picture myself pacing outside the building hearing "It's cancer" and have sworn the place off!



    My port isn't really bothering me but where my lymph nodes were taken, it still is numb but also weirdly hurty. How are other people feeling where there nodes were removed? My surgery was June 20th and by the end of the day at work, I'm in pain.

  • Rambo50
    Rambo50 Member Posts: 140
    edited July 2013

    TwoHobbies - thanks for the check on Tea Tree oil! I neglected to ask about it at my chemo ed session today, but will certainly check before using - my Taxol series is second, so I have some time.

    My onco nurse said Claratin was fine for me, but that the evidence of effectiveness is anecdotal rather than tested.  I'm taking it anyway!!!  She also mentioned the same about ice during Adriamycin - I'll bring my ice nonetheless Smile

    Brook21679 - my underarm area and the lower side of my entire arm are still somewhat numb after lymph node removal (mx 6-18-13).  It's gotten some better, but not completely.  Unfortunately, I've been forced to use that arm much more today due to my port bothering me like crazy!!!  I get to take the bandages off tomorrow afternoon and hope it looks okay - I can feel the thing under my skin and in my neck area Yell

    LanaM - my surgeon did't tell me to ice the port - wonder if that might help?

    Has anyone heard of "Magic Mouth"???  It was mentioned today as something to help mouth sores, a mixture of some sort (I'll have to look back through my packet of info) - anyway, it's for after-the-fact and I'd rather try to prevent them all together!  Nurse said everyone's SO different, and she avoids trying to be too specific about what to expect because you never know - sigh.

    Hannariggs and Sweetheart - thinking of you brave girls!!!


  • Hannariggs
    Hannariggs Member Posts: 137
    edited July 2013

    Hi All, 

      Just got back from my first infusion, and it went very well.  Long day, but still did a little shopping and took my dogs for a short walk.  I drank over a gallon of water yesterday and today.  Hopefully that will help.  In fact the nurses told me I may be urinating red for a few days.  My first one was red and now its clear.  I am sure the water is helping.  My onco also prescribed me a cream that I rub on my wrists in the case of nausea instead of a suppository.  Along with other pills.  I also ate ice chips during the ac infusion. That helped as well.  As strange as it sounds it was like a weight was lifted off my shoulders to actually start my treatment.  I was making myself sick with worry, stress and anxiety on what MIGHT happen.  Now i will know and deal with it when it happens.   I went to the treatment center happy and jovial because there is an end but we have to start at the beginning to get there. I am excited to get to number 2.  I will continue to pray for minimal side effects for all of us.  Try not to worry sisters....

    Wylikkers-LOVED your post.  It is so true and inspirational.  

    Has anyone heard from sweetheartin?

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