IBC new to board

Elissa,

Thank you for coming here and offering your help to those going through ibc.  I'm 4years out from stage IV ibc with bone mets and doing well on Zometa and Femara.  This is such a great site for information and help.  We all learn from one another.

Hope all treatment goes well.

Terri

I only knoe for sure what my TX plan was but was very different than waiting so long.  I started A/C less than 3 weeks after DX.  2 weeks after last A/C I had surgery.  3 weeks later I started 12 weekly Taxol.  A week after last Taxol started 25 radsd.  Also started Femara (it was n't generic then)  a week after starting rad.s.

For me - there was 'nothing' one night but the next night I had enlarged node under arm.  My PA was on vacation so it took me a week to see her.  Saw her at 11, was getting a new mammo  (and sono) at 1.  Had biopsy done and path back next morning - IBC..  I was told point blank that as IBC there was no way that surgeon coul;d get 'it' then.  Did 4 DD A/C and he was able to do surgery.  I then did 12 weekly Taxol and 25 radds.  This Aug ill be 4 yrs since DX and as far as I knnow I'm still NED.

Nothing I've been through in the last 4 yrs has made any difference in what I do or how I live other than to be thankful for every sunrise.

Hi Elissa,

There is another thread  "Calling all IBC er's treament, prognosis,surgery"  Think that is the name, if not pretty close.  Receiving and giving support, what the boards are all about.  I am almost 2 yearsout, have my first follow up this week, feel well and getting back on track with everything.  Stay in touch

Be well

Nel

I'm waiting on a definitive IBC dx sometime tomorrow - needle biopsy of the lymph node was done late yesterday afternoon, following symptoms for about 2 months (which I never dreamt was an issue - always thinking of a "lump" instead, and waited for my annual visit - was also extremely busy with my two oldest daughters delivering my very first two grandbabies far away from home, one the end of April and the other the middle of May, and my third oldest graduating high school in May).  Had my gyn visit 8 days ago, the mammogram (abnormal) last Friday, June 28, got results the same day and the statement 'looks like inflammatory breast cancer' while I was in a car with my youngest daughter, child #4, while she took her driving test as she turns 16 two weeks from today!  Had to wait all weekend for an appointment with the surgeon yesterday, when I got the biopsy.  I have an MRI tomorrow morning, and then just waiting for the results and plan of treatment. (I think)  I've been fairly calm, but am noticing some panic/anxiety symptoms today.  I think it's knowing I'll have to tell my four children tomorrow, and I honestly don't know what to say or how to protect them from the impact.  Any advice?

Biopsy was positive for cancer.  Now waiting on the results of the MRI, and further "pathology" on the biopsy fluid. Still not sure if they're calling it IBC, or not.  Is that what the MRI/path will tell them? Likely to see the oncologist on Monday - the holiday is messing with everything, of course.  But my oldest daughter, SIL, and grandson are here to cheer me up.  Good medicine!  I'll be asking lots of questions.  Thank you for hearing me.