Summer 2013 Rads

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    That is a long drive SLV, but, personally, I'm finding my energy returning.  Not every day, but a couple of days a week.  I drive 40 minutes each way, but I'm getting used to it, and it does feel like my "job" everyday to go.  Thank goodness I'm leaving on vacation when this is done because I don't think i'd know what to do with myself other wise.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    Woke up coughing, which turned into heaving.  Took 2 compazine and so far so good.  

  • slv58
    slv58 Member Posts: 1,216
    edited July 2013

    GWTF, do you think you may have the flu? I feel so bad that your having this difficulty. Don't we go through enough? Maybe try ginger ale and dry crackers? Sending stomach soothing thoughts your way

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    No, it's not the flu.  I actually feel pretty good otherwise.  The RO said she felt like it was from the radiation.  And I have always easily thrown up (stress, usually in the morning, when I used to work).  If the compazine doesn't work well, I have another drug left over from chemo to try.  She said to figure out which one works better and let them know monday. 

    Before today it was just when I had to take my meds at night (I won't bore you with the list, but after having to take my potassium pill in 4 sections, it's 13 pills), and when i brush my teeth.  Today's was set off by a dry cough, probably from radiation (seems like many in there are coughing).

    I"ve actually got a good immune system, breezed through chemo with no illness issues (although I had my share of side effects, which I dealt with one by one), and even though I have had cancer twice, I feel like I'm a pretty healthy person.

    How are you doing today slv?

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    gosh Go With- you are dealing with so much! I sure hope the meds help.



    Slv/Shari- your drive is SO long, you poor thing. I understand wanting to be treated by those you trust though. Radiation is a really important thing to get right!!



    I hope you have some great music or books on CD for the drive, and can treat yourself to a hotel if you are really exhausted toward the end.



    My thoughts are with you both.



    Karyn are you okay? Hadnt seen you post since your first few days, just checking! :)



    Happy resting, healing weekend to all!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    GETF~~Before I started rads the RO told me that rads could cause a cough that would last no longer than 3 months. She said, its more inconvenience than anything.



    Paula

  • karynhelen
    karynhelen Member Posts: 44
    edited July 2013

    Hi Ladies,

    I've been holding you all in my warmest of healing thoughts and keeping you in my prayers. 

    Thanks for asking about me, Sciencegal! This is such a great place to come to for some cyber hugs!

    To those of you just starting, let's not forget that this is temporary.... We can get through this. 

    And to those of you finishing up, I am glad it's over, or almost over for you! Let the healing continue and may if be speedy and pain free!

    I always try to put things in perspective. I know many of you have had to endure Chemo and difficult surgeries, so I feel like I am lucky.

    There's a boy in the Bay Area who calls himself the Leukemia Slayer. He's quite inspirational and such a fighter. His outlook on life is amazing. I follow him on Facebook and he always brings a smile to my day. Sometimes tears too, as he has quite the challenge with his illness. But he helps me keep my situation in perspective. So when I start feeling sorry for myself (which isn't often), I think of The Slayer, and I quickly pull up my bootstraps and remember how lucky I am...For me, it's all about perspective.

    Big hugs to you all!!!!!! 

    Hope your weekend is relaxing and full of love!

    Karyn

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thanks Karyn for posting and letting us know you are ok. I will look for that boy, he sounds awesome.

    How is your skin holding up?



    When I first read your post I thought you had written "pull up my boobstraps" rather than "bootstraps"-you can see where MY mind is these days. All about the TaTas for the past eight months since diagnosis.



    "boobstraps" might be a good invention though, for when we cant wear bras.....



    It is indeed important to keep it all in perspective. I was just at the grocery store and ahead of me was a poor woman whose face had been horribly burned. My heart went out to her and I immediately thought my gosh, this radiation thing is temporary, NOTHING like what she is enduring. And she was putting the bags in her cart, smiling and laughing with her friend. Immensely brave.



    You are right, we can DO this.



    Happy saturday all- out to the pool for me- wearing a black tee shirt haha. I will re-emu oil after my post-pool shower, no worries...



  • LeeLeeLynn
    LeeLeeLynn Member Posts: 23
    edited July 2013

    Finished with #19 on July 3rd with a break until the 8th. I was hoping my skin would improve during this break but it hasn't. I had been using aloe only but the past week I've been using cortisone 1% and calendula ointment with no improvement in radiation dermatitis. The problem area is about the size of a post-it note. I've also been taking aleve for 3 days to help with the inflammation. The RO said to continue with the cortisone cream but I understand it dries and thins the skin. I'm so confused.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    OhLeeleelynn I am so sorry. As I have heard it on this board and from my RO, it is best to mix the hydrocortisone with your aquafor before applying. Can you do that?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    So sorry you're having problems, LeeLeeLynn.  Hope you heal quickly.  Like sciencegal says, mixing the hydrocortisone with aquafor seems to help a lot.  I finally developed one small itchy patch near the top of my breast--there are only a couple of tiny red bumps in that spot but I'm sure it would worsen if I scratched it at all.  I started to use the mixed aquafor and cortisone there and it has been really soothing.  I also have found that anything that rubs that spot--like a bra or the top of a shirt or camisole--even a piece of jewelry--irritates it and makes it feel a little itchy again, so have taken to going topless around the house whenever I can and that seems to help.  (I live alone so can get away with it.)  

    19/34

  • melody46
    melody46 Member Posts: 279
    edited July 2013

    Hi All,  I was told to stay out of pools while doing radiation but forgot to ask when I could go back in one after treatment ended.  Does anyone know when its safe to go swimming again? Thanks!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    I'd guess two weeks after because that's when the effects should be done and you start healing.  As long as there is no broken down skin.  Someone else might have better info.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited July 2013

    melody - I thought they told me not to go in swimming until my skin heals ... can't go out without sunblocker but can't use sunblocker until skin all heals.. but at this point, whatever makes you feel good should be fine Smile

  • Heart2930
    Heart2930 Member Posts: 139
    edited July 2013

    Melody-I was told no swimming or hot tubs until my skin is all healed. They even told me not to soak in the bathtub. I was also told no going out in the sun without sunblock for the next year, but no sunblock until my skin was totally healed.

  • AnnieLane
    AnnieLane Member Posts: 856
    edited July 2013

    I have my last treatment tomorrow and am so thankful I won't be having any boosts. The crease under my breast, the nipple, and lumpectomy incision are all pretty red and painful now, but my skin hasn't broken down.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    WOOHOOO Annie!!!!  Congrats on finishing!!!!!

  • Heart2930
    Heart2930 Member Posts: 139
    edited July 2013

    Congrats Annie! Woo Hoo!

  • TMM60
    TMM60 Member Posts: 190
    edited July 2013

    Hooray, Annie!

  • karynhelen
    karynhelen Member Posts: 44
    edited July 2013

    Congratulations, Annie!!! Happy healing and enjoy your freedom! Yeah!!!!!!



    Sciencegal, you're right, if we just look around us a bit, it helps put things in perspective.



    I do try to acknowledge the reality of what I'm experiencing, and it does suck, and it is scary, but I remember too, that I AM lucky if I look at the big picture....



    Today is day 8 out of 30... Emu oil is working great! The redness and soreness has stabilized...



    Everyone at the Kaiser rad facility I go to is amazing and the place is beautiful! It looks like a day spa... Asian motif... All they need is a little incense and some meditation music.... I feel like I should be getting a facial and a massage.... It takes almost an hour to get there if there's traffic so a massage would be great! (And a happy ending would be even better! ha ha!) By happy ending I mean no recurrence, Ladies! ;-)



    May today's treatment for all of us be thorough, effective and painless with NO skin problems!



    Big hugs to you all!

    Karyn

  • btdemo
    btdemo Member Posts: 52
    edited July 2013

    Way to go AnnieLane!!!!

  • melody46
    melody46 Member Posts: 279
    edited July 2013

    Congratulations Annie!

  • AnnieLane
    AnnieLane Member Posts: 856
    edited July 2013

    Thank you for your congratulations and well wishes Ladies! It's official - I had my last rad treatment today!! WooooHoooo! Let the healing begin! I feel like I have my life back! I got the bad news from my biopsy on Jan. 2 and it seems like the whole first half of this year has revolved around breast cancer treatment. But I'm thankful I've had access to all this treatment, and by God's grace, have been able to tolerate it all pretty well. These discussion boards have been such a wonderful source of good information and encouragement.  Now I'm settling into my 5 years on Arimidex, which I started 2 weeks ago...so far, so good.

    I wish you all healthy skin and minimal SEs from rads! Hang in there!

  • caitlin61
    caitlin61 Member Posts: 214
    edited July 2013

    Congrats AnnieLane - enjoy being radiation- free!



    Only 8 to go for me - being mapped/prepped for boosts tomorrow.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited July 2013

    Congrats Annie - enjoy the freedom

  • slv58
    slv58 Member Posts: 1,216
    edited July 2013

    Happy dance or Annie! Enjoy and treat yourself to something nice-you did it! I can't wait to be there.....

  • Lenn13ka
    Lenn13ka Member Posts: 313
    edited July 2013

    Congrats Annie

    Freedom and healing thoughts!

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited July 2013

    Yay for you, Annie. Best wishes to you as you heal and MOVE ON!

  • CLYDAY
    CLYDAY Member Posts: 81
    edited July 2013

    Hello ladies....I started my Boosts today...yay!  So glad I am almost done as my under arm is getting very red and raw =(  Was hoping someone could help me understand why I need the Boost if I had BMX?? They are just concentrating on the scar but what are they radiating?? I can see why to do it with a lumpectomy but don't understand my reason.  Any thoughts would be great!!

  • caitlin61
    caitlin61 Member Posts: 214
    edited July 2013

    Clyday, I questioned the same thing, since I had good clear margins after BMX. Was told that along the scar was the most likely site for local reoccurrence and if it did come back, it would appear as tiny pimple or blister like things. Hopefully somebody on here has better information, since I'd like to understand the rationale of boosts more fully too.



    Tonight, for the first time, I have a little skin irritation high on my chest. Going to try hydrocortisone mixed with Aquaphor. Come on skin, hang in there - only 3 more regular treatments!

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