17 years clean recent dx of second cancer

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fran14
fran14 Member Posts: 13

What a shocker!!!!!! I was dx with 2nd breast CA today. I find it hard to believe that I had 17 years of clean mamagrophy with the recent one being done last december. No changes were seen.

I guess this was an act of God that I recently was admitted to ER with stomach pain. They did a catscan of abdomen and saw something wierd at the very top of picture. They did another mamagram which showed nothing then an ultrasound which showed the mass. Is this common????? I just had biopsy yesterday and was told today that it is cancer. I am heartsick. They only know that it is small in size. My options are limited since I had a lumpectomy 17 years ago with 22 removal of nodes on right breast. The second cancer is also right breast. I am 78 yrs old and canot have radiation or chemotherapy. I am having a mastectomy on right breast.

If it was up to me I would have both removed but doc says surgery would be too long a procedure. I would love to hear from others with similar story

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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    Fran, welcome to Breastcancer.org. We're sorry that you've had such shocking news, but glad you found this wonderful community to support you.

    You might also want to post in the forum Surgery - Before, During and After to connect with women who have had bi-lateral mastectomies, and get their experiences.

    Best wishes,

    • The Mods

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2013

    Fran I am so sorry. Wow that is such a long time to be clean. I guess we can never be totally rid of this beast. My mother had BC in the late 80s and back then they told her 7 years was the time she could begin to relax about having BC. Apparently that isnt the case. I cant compare notes with you because I have IDC and am only 2 1/2 years from my DX. Neither wonder we all have the fear factor going on because of situations like yours. So you cant have RADS or chemo because of your age? What do the drs propose to do for you post-MX? Keep us posted. Praying for you...diane

  • Chickadee
    Chickadee Member Posts: 4,467
    edited July 2013

    You don't mention if this doctor is an oncologist. It's worth a second opinion at an accredited cancer center if you have one near you. It almost sounds as if someone is writing you off due to your age and that isn't right.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    If you have had radiation on that side, I believe it is true that you can't have it again, which is why they would recommend the masectomy. Unless you are in poor health or are totally against it, a chemo recommendation on a small tumor should be made AFTER they do surgery & you have a full pathology report. If you are estrogen positive, you could also take an anti-hormonal to reduce the risk of another recurrence. Have you talked to an oncologis yet or just the surgeon? (Surgeons can be pretty clueless as to treatment options after surgery).

  • Letlet
    Letlet Member Posts: 1,053
    edited July 2013

    Why would the doctor discourage you with doing a bilateral mastectomy by saying it would be "too long"?? Well, I would find a surgeon who won't fall asleep on a too long surgery! I would have listened to him if he had an actual professional opinion or had some stats or even medical advice to give but for him to discourage you from the surgery because its "too long" is unacceptable and unprofessional.

  • slv58
    slv58 Member Posts: 1,216
    edited July 2013

    Maybe it's too long to be under anesthesia? I know that is very hard on the body, but maybe two separate mx with time to heal between? I would agree with getting a second opinion, I know it can seem awkward, but you must be your own advocate and dr.s are use to this.

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited July 2013

    Fran - I am so sorry you are going through your second breast cancer.  I had a recurrence in the same breast 19 years after my first.  Like you, I had had a lumpectomy and rads the first time so was limited to a mastectomy the second time (you cannot radiate the same breast twice).  I chose a bilateral with reconstruction and a year after finishing chemotherapy I feel terrific.  

    It is a shock to get a second diagnosis, for sure, but you are not alone.  I wish you the very best

    Joan

  • fran14
    fran14 Member Posts: 13
    edited July 2013

    I cannot have radiation due to radiation after lumpectomy 17 yrs ago. At that time they also removed 22 nodes from right arm.  Chemo, I will probably be taking a pill form which I took tamoxifen for several years after last dx. I am meeting with two breast surgeons this Tuesday. As I will feel more comfortable having advice from two.

    At this point I know I will have right mastectomy and I am not sure what kind of mastectomy, I am sure they will inform. All of my Doctors cardiologist included advised having the single mastectomy as I have had some serious problems with anesthesia in the past.

    I will write when I find out more info as I do have a lot of questions

    thank you for support

    Fran

  • fran14
    fran14 Member Posts: 13
    edited July 2013

    thanks for reply I have talked to onocologist. He will have report on tuesday he did say that it is 1 cm but that it is very rare where it occured in the mammary fold below the breast which is why it was not picked up in mamagram. He will know more after report but said that it did have a blood supply, stge 1 and is most probably estrogen positive.

    I have some time to think about options for the other breast.

    Keep you posted.

  • fran14
    fran14 Member Posts: 13
    edited July 2013

    Thanks for your suport. At this time I will have single mastectomy with no reconstruction as there seems to be many fantastic prostetics that are available. I will also probably be put on a dry chemo what kind I am not sure.

    And I will have my mamagram on remaing brast along with ultrasound. I was told that I caught it early and the size is approx 1 cm.

    I see my surgeons this tuesday and my onocologist is in close touch with me as he is a close friend of family and a very highly rated doc who knows all my past medical history along with him being my onocologist 17 years ago.

    I will let you know what happens after apts on tuesday

    Thanks Fran

  • Lily55
    Lily55 Member Posts: 3,534
    edited July 2013

    Dry chemo? Whats that, a pill?

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    I think Fran is talking about an anti-hormonal.

  • fran14
    fran14 Member Posts: 13
    edited July 2013

    Hi Ruth

    There is so much that I don't know yet, but I certainly will know more after tuesday.

    All I was told was It is invasive cancer, found in very unusual place which mammogram did not pick up. it is in the fold under breast. Did you ever hear of breast CA not being seen on Mammogram?

  • cider8
    cider8 Member Posts: 832
    edited July 2013

    Unfortunately, not finding BC on a mammogram is all too common. It is just one screening tool.

  • HLB
    HLB Member Posts: 1,760
    edited July 2013

    I found my own cancer about 3 months after mammo. I looked at the report after dx and it said breasts are extremely dense and a lesion could be obscured. Pissed me off that an ultrasound or SOMETHING was not recommended. Just sent me on my merry way. If you don't hear from us everything is fine. Yeah right. Anyway, yes, its very common for a mammo to miss cancer. I don't trust them one bit and consider it worthless radiation for no reason. But that's just me. Hope your surgery goes well. I think after its done you will have a better idea if you want to pursue surgery for the other side. I decided on bilateral because otherwise I would have had to be monitored with MRI. Plus I am very small and never wore a bra. I didn't want to be lopsided and have to deal with straighten things out with bras or prosthetics. I hated wearing bras and now with hot flashes it really would have been miserable.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited July 2013

    Yep, add me to the club of those who had a clean mammo, then 6 months later was dx with multi-focal tumors and lymph node involvement.  A few years ago there was a thread on those who were dx with b/c within a year of a clean mammo - it was amazingly common, and many were diagnosed within 6 months after being given the "all clear".  So you are not alone with the mammo missing the tumor. Glad it was found early - it sounds like you have an excellent prognosis. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    I'm in the '6 months after a clean mammo club' too. But I have several friends whose BC was caught very early because of a mammogram, so it works for some & not for others.

  • fran14
    fran14 Member Posts: 13
    edited August 2013

    Hi everyone. Well i had a single simple right breast mastectomy about three weeks ago. Everything is healing ok  When does pain go away??? I saw onocologist today and he wants me on letrozole for a long time as this was a second primarybreast cancer with estrogen and progeesterine positive.    Does anybody know how the side effects from this deug are.  I am a 79 yo woman and I am scared of the side effects  please respond     thank you Fran

  • bluepearl
    bluepearl Member Posts: 961
    edited August 2013

    fran14: you may have no side effects but the most common ones are flushing (hot flashes) and some joint pain....my friends have been on it for some time and no problems, even the above two didn't show up. I had b.c. twice so am on tamoxifen for 3 years and then letrozole for 7. Letrozole can cause some bone thinning so up your Vit D to at least 1000 I.U. per day (my oncologist's recommendations). The pain takes a bit to go away and it will.  Try not to worry too much. You, at 79, are already a fabulous survivor!!!!

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2013

    Hi Fran: Glad your surgery went well!  I am 77 and two years ago I had a second primary in the other breast after 28 years!  Was very surprised as I had mammograms every single year and the mammograms missed both cancers.  I found both the lumps myself. The surgeon told me mammograms have a 15 percent error rate.

    I was on a hormonal (Aromasin) for a few months, but the SEs were very bad so I chose to quit. But a lot of women do just fine on the hormonals. Try it and see. You will probably do fine.

  • fran14
    fran14 Member Posts: 13
    edited August 2013

    thanks so much for your information. Years back I was on tamaxofin and the se were very horrible. I think I will opt out for the femara. I am having an estrogen test next week to see what my levels are.

    Take care I will keep in touch

  • fran14
    fran14 Member Posts: 13
    edited August 2013

    Thank you for your support and encouragement. I will get back to you after next week

    Fran

  • koshka1
    koshka1 Member Posts: 678
    edited August 2013

    Fran, hugs to you fran. It sounds and they did say they found it small. Let's hope and pray that the mastectomy is all that is needed.

    Keep us posted and be strong.

    Kosh

  • hjpz
    hjpz Member Posts: 348
    edited September 2013

    I found both of my breast cancers on my own (first one at age 29 and just found the second one at age 41).   My breast cancer marker 1 month ago was also in "normal range"!  Screening isn't working for me I guess!  Sorry about your 2nd cancer - I am in the same boat.   :(

  • bevin
    bevin Member Posts: 1,902
    edited September 2013

    HI Fran, Sorry to read of your recurrence, it does seem like you're getting on and doing well post surgery. I hope the pain subsides soon.  I think it's smart your Onco is checking your estrogen level.  Hopeful at 78 the estrogen level is very low and the anti estrogen may not provide much benefit for the SE's.  It will be interesting to hear what they  find and ultimately recommend. HUgs

    Bevin

  • Jelson
    Jelson Member Posts: 1,535
    edited September 2013

    Fran, it sounds like you are in very good hands - docs who are familiar with your entire medical history. you are so lucky that the tumor showed up on the original scan of your abdomen and the er? docs followed through so diligently. and happy birthday, at the beginning of the thread you were 78 and now you are 79! Rock on!

    Julie E

  • NG555
    NG555 Member Posts: 3
    edited November 2013


    Fran,


    As of yesterday, it appears that I might be in the same boat as you. I had my first at age 29 (no family history nor risk factors), took an extended dose of chemo and an extended dose of radiation. I found that lump myself and was still nursing my youngest child. It was extremely aggressive.


    Yesterday I visited a third doctor in about a weeks' time period. All say they don't know, but that it appears to be cancer again....same breast. It shows up like a breast cancer, but (like the first one) is not typical. I'm now 47. I go in for a lumpectomy on the 21st and have already been told that if its positive, I get to have a radical mastectomy because I already had the radiation to that breast.


    The only positive I could think of was "gee, I knew my fat would come in handy down the road..." (for reconstruction), but inside .....I'm shaken. I don't want the kids to know everything yet and my parents do not know yet. Why have others worry when the pathology isn't back yet??? Only my husband knows. Unlike the movies where you have that supportive spouse that says the 'right' things, he doesn't handle it well and I'm left to handle it all alone....again. BUT, I do know this....I did this before!!! I got through it before!!!! I can do this again!!!!! There is a reason why I found this immediately the first time and a reason why I found this new "thing" the second time.....and that reason is so that I can beat it!!!!!


    The great news is that there is so much more they know and can do compared to when I (we) had our first round in this fight!!!!!


    Surround yourself with knowledge people who can give you the information you need and remember this....you are NOT the only one going through this....again. And, by your post, know this...you've helped others (me) by not feeling alone.


    -NG

  • bachan
    bachan Member Posts: 1
    edited January 2014

    Hello Fran, First time on blog. So surprised to see your entry and stats very similar to mine.

    I am 78 yo, 17 yrs out from original breast  ca. L. side. had lumpectomy, 15  nodes removed,, radiation therapy,5 yrs tamoxifen. have been clean until a few weeks ago when i  noticed a small lump in pref. treated breast. had stat mammogram, ultrasound, followed by fine needle biopsy within a couple of days.  The biopsy results were not good for tissue because of a lot of blood. repeated a week later, results inconclusive, had u/s guided biopsy which came back with dx of infiltrating ductal carcinoma. ( same as original ca 17yrsa ago), estrogen receptor=positive(100% strong), pr=negative, here2=negative, ki-67=15%

    Will have mastectomy in near future, no other options there. Will see reconstructive surg tomorrow just for feedback as i am hearing that it might not be an option because of my age. was considering implant.

    haven't seen med oncologist yet. i guess he can't predict tx until path report is in/

    Any thoughts, advice, whatever, Ive been on fast track appts for the last month. and need to decide this week. thanks for any input.

  • marcinca3
    marcinca3 Member Posts: 2
    edited January 2014

    Just seeing this board....I too was 30 when first dx, no history, nursing my 3rd child..total shocker....Stage 1.   15 yrs later, I sneezed, broke 4 ribs and THAT ended up finding a 2nd cancer exactly where the first had been and at Stage 3 b now.    Both my tumors were missed by mamms, ultrasounds and MRIs.   Only showed thru biopsies (altho first biopsy was "normal") and thru palpitations.   I did have RADiation twice, 6 weeks each, bec the second time the breast cancer was found it was also found to have spread microscopically thru the skin.  I had a DIEP flap mastectomy, chemo and then the 2nd rad.  (Drs say they NEVER do Rad 2 x for breast cancer, and NEVER when you get a mastectomy...but I did...and my drs were all specialists at UCLA saying I needed to )

    Celebrate each day.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited January 2014

    Fran, what did the surgeon say and what did you decide about the reconstruction?

    My friend, age 75, had cancer in both breasts so had a double mastectomy. She decided against reconstruction and is ok with her decision.

    But before that, the doctor had no problem with doing it because of her age.

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