How long is/was YOUR chemo for ILC?

jnprsn
jnprsn Member Posts: 151

Hi ILC warriors,

I am meeting with my Oncologist on the 17th. I am very anxious about chemo in general.
Would any of you (especially with stage 2 post bmx) be willing to share with me how many months you underwent chemo?
How many treatments?
I realize there are multiple variations of treatment, but I just want to get an idea in my head to ease my mind a bit.

Comments

  • fredntan
    fredntan Member Posts: 1,821
    edited July 2013

    i did almost six months. 4 of Ac that took two months. then 12 weekly taxols. I am higher stage than you. now that its over I am glad to have gotten so much chemo. yours probly wont be as long.

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited July 2013

    I had my chemo before surgery, but it was about 4 months from start to finish - 4 A/C, followed by 4 Taxol.  All were given every 2nd week, so 8 infusions = 16 weeks.

    I was also stage 2. 

    Chemo is do-able.  I

  • jenni__ca
    jenni__ca Member Posts: 461
    edited July 2013

    also a more advanced stage - 3A

    6 months - 4 adriamycin (every other week), 4 taxol (every other week) and 4 cytoxan (every other week) ..... basically A/C and T but taken sequentially rather than as a cocktail ...

    doable here too - no nausea, walked for 1-2 miles every night, but did take a medical leave as my job wasn't the kind that could work around all the medical appts, gained weight tho Cry

  • jnprsn
    jnprsn Member Posts: 151
    edited July 2013

    Thank you for your encouraging replies. Smile

    I want to be the one with little to no side effects and no fear of a port, but who doesn't?  One day at a time...

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    I had stage 3 and I did 4 FEC before BMX, then 4 taxotere after. I had 3 weeks off to recover from chemo before the surgery, then 3 weeks after surgery before chemo resumed. Beginning to end, it was about 6 months.

    It is not fun obviously, but it was not as bad as I had expected. I also took great pains to make myself as happy and comfortable as possible. Among other things, I built a pretty nice shoe collection ;) during those months.

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    JN, fear is normal. Just try to get a handle on it and don't allow it to overwhelm you. Ditto for SEs. There WILL be some, but they pass. Some quickly, others not so quickly. Whine as much as you like here. Make sure you make use of all resources available. 

    Finally, a lot of the time you will feel OK, fine even. Try to focus on those times and milk them for all they are worth.

  • jnprsn
    jnprsn Member Posts: 151
    edited July 2013

    Momine, Fab shoes are a necessity! :)

  • Racy
    Racy Member Posts: 2,651
    edited July 2013

    Hi, I did TAC and would highly recommend it. It is 'third generation' chemo and only six treatments, as the three drugs are given together. Hence, it is over much quicker than some of the other combinations.



    It is reputed to be very effective. Ask your onc about it, and you can read about it on line too.

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    JN, we also took trips, saw friends and generally made time for things we don't usually do. As a result, I actually think back on the whole period as a nice time in my life, odd as that may sound. So spoil yourself, it really works ;).

    The other thing that has now been solidly proved by several studies is that exercise helps against the fatigue and general malaise. Before surgery, but during chemo, I walked my dogs in the park early in the morning every day. It got me some fresh air, some pretty trees, a nice time with the doggies and a bit of exercise. After the surgery, I couldn't dog-walk for a while, but then I took a walk in the early evening (it was summer, so too hot and sunny in the middle of the day) all around the Acropolis (I live in Athens). Sometimes I had to go very slowly, but who cares really. The important thing is to get up, out and move.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2013

    JN

    I was stage 2-lumpectomy.  Had 4 chemo treatments of A/C over an 8 week period-so it was just under two months.  I worked, went about life in general (did not feel great all the time, but it was not horrible).  did not have a port--- so don't assume that you have to..the worst part about chemo is the anticipation.  the first one takes the longest, then after that they seem to get shorter..... 

    good luck-- please be sure to come back with questions and if we can be helpful, we certainly will!!!

  • Cyborg
    Cyborg Member Posts: 848
    edited July 2013

    Once a week for about four months with the chemo.

  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2013

    I had TC x 4, administered every 3 weeks -- from early August to mid October.  I did not want a port and did not get one.    

    A lot will depend on your age.  Sometimes oncologists RX more aggressive regimens for younger women.

    Also, remember, you can get a second and even a third opinion if you are not comfortable with what the first oncologist recommends.  I got 3 recommendations, and they were each a bit different.  Not all oncologists think alike.  Ask for stats to back up why a particular regimen is being suggested.  If you decide to get more than one opinion, ask if you can see their infusion room, so that you can compare their vibes and see which one seems the most comfortable.  Some oncs treat a wide range of patients; some treat only bc. 

    I was terrified of chemo, and something that helped me tremendously (with surgery, too) was guided imagery.  You can find the CHEMOTHERAPY CD I used here http://www.healthjourneys.com/default.asp or here http://www.healingfinds.com/

    Good luck!   Deanna

  • AMBNH
    AMBNH Member Posts: 119
    edited July 2013

    Hi JN. I am stage 2b and am having 8 chemo treatments spread out over 4 months, so every other week. There are 4 AC treatments and 4 Taxol treatments. So far so good with the 2 I've completed. No nausea. Hydration is KEY before, during and after treatments. Good luck, Honey, you got this. :)

  • jnprsn
    jnprsn Member Posts: 151
    edited July 2013

    Thanks so much for your responses! Ok. Here comes question #2. What was the main chemo side effect that you experienced and how did you deal with it?

  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2013

    well, the most obvious one was the hair loss.  I had my hair buzzed before I lost it, then bought two very expensive human hair wigs which I wore for about 7 months.  Am a senior executive and did not want to go public with my dx, so this was worth it for me as the hair looked almost identical to my own.  

    I think the other major se was nauseau.  I never got sick because the meds are really quite good, but after the first infusion, I was really nauseous and we had to do an adjustment.... well, since I only had 4 treatments, by the time we figured it out, and it is very individual, it was over and I was onto radiaion.  I do recall some problems with my toenails....but in general, I was able to manage most of these impacts.  

  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2013

    Hair loss, at first.  But I found a great Raquel Welch wig in a new, warm brown color that was much better than the blond shade I'd been.  I kept the new color when my own hair grew back.  And if you need chemo (not everyone does), you can also look into the Penguin Cold Caps that can help you keep your hair.

    Fatigue.  But I learned from someone here to give myself permission to accomplish 1 thing a day, and that helped a lot.  In other words, listen to your body, and don't try to be superwoman.

    That icky flu-like feeling I got on days #3 & 4.  After the first time, I just expected it and was sure to have a good book ready if I needed to hang out in bed for a couple of days.

    Other than that, all SEs were short-lived and no big deal.  The fatigue and muscle weakness was by far the worst SE for me.    Deanna

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    Main SEs for me were hair loss and intestinal issues (both diarrhea and the opposite at various times).

    I buzzed my hair off and bought a wig. In the end, I wore the wig exactly one time. It was uncomfortable and I thought it looked ridiculous, even though it was expensive and supposedly a good wig. I was told that I could only wear a special and ridiculously expensive "medical" wig. Later I found out that loads of people wear completely ordinary, cheap wigs with fine results. 

    For the intestinal issues I started taking 3-4 capsules of probiotics a day (with onc's blessing). It made a huge difference and also helped keep the thrush away. In addition, I tried to stick to a regular meal schedule and madesure to eat lots of veggies.

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