Cancer in post mastectomy, reconstructed breast?

Options
124»

Comments

  • bhammer
    bhammer Member Posts: 16
    edited July 2012

    Next stop, visit to the surgeon next week on Thursday. This could be a sebaceous cyst or a recurrence. I am thankful to move forward and will see what he wants to do. I just realized it has been 7 yrs since dx and I've been off Tamox for 2 years. Hoping this is a cyst.  Donna

  • SKD
    SKD Member Posts: 140
    edited August 2012

    Hi ladies,

    I went for my 6 month post BC checkup today with my onc. and he felt something under my right reconstructed breast. I hope it's not anything and I am going for an ultrasound (hopefully real soon!). I hope it's not anything.. It's good to see there is support on here if it is though. Fingers crossed its nothing!

  • bhammer
    bhammer Member Posts: 16
    edited August 2012

    Hi KSD,

    My lump turned out to be a cyst. It was attached to the skin and was pea sized. From what I learned through this, a recurrence will be in the skin flap or scar area. Will be praying that yours is NOT anything of concern. Keep me posted so I can pray for you :o)

    Donna 

  • pjvalenti02
    pjvalenti02 Member Posts: 7
    edited June 2013

    I also have gone through a double mastectomy and reconstruction.  I was diagnosed in May 2010 and as of today almost 3 years later hopefully i'm fine.  I am always checking my right breast where the cancer was and the left side.  In the last 6 months or so I have been feeling little pea size lumps that keep coming back.  My PS has checked and checked and also done an MRI to make sure there are no leaks.  My oncologist has also done CT scans and x rays and even a bone scan.  Everyone agrees that this is scar tissue or fat tissue.  I am always being told if the lump goes away then it is not cancer.  They did find a very small spot on my rib during the bone scan and are keeping an eye on it.  This has not changed either.  Several doctors have double checked to make sure. It seems that every time I work out and wear a bra these lumps and tight feelings keep coming back.  It's been a week since I first noticed the lump again (always in the same place) and it seems to not be there as much as last week.  Also a week or so ago I went swimming for first time in years and used muscles that I haven't used since forever.  In July my 3 month follow up is with my onc. and she will check everything.  I'm trying to be positive but also very aware of what could happen.  I know i'm probably just venting on this post but it feels better to know i'm not alone. If anyone is going through the same thing as me, with lumps that come and go in a silicone breast I would love to hear about it. 

  • carolpr56
    carolpr56 Member Posts: 241
    edited July 2013

    PJ, sorry you have to wait til July! I had what we thought might be a "fat necrosis" in the original biopsy area of my uni bmx - fortunately got it biopsied quickly as it turned out to be IDC (I had DCIS 4 years ago). Anyway, the implant is silicone, like yours.



    What I've read re: fat necroses is that they can come and go like you are describing. I hope this will be the case with YOU!



    What I am wondering now is whether I should do a prophy mx on the other breast. I still have another surgery scheduled to get a clean posterior margin and some axillary nodes out - before I meet with my MO. Like before, so many possibilities, so many choices!



    I am determined to throw everything possible at it this time, tho!



    Carol

  • slowloris
    slowloris Member Posts: 128
    edited July 2013

    Hi, glad I found this topic, I actually just asked this question on another page. i too have a locally advanced recurrence of same breast after bmx. First lump was excised, positive, since then 3 more lumps have come up. This happened so fast (6 wks post rads) that i still have my te's in place. What seems to be the normal tx as far as surgery goes. I'm currently on xeloda chemo, jut finishing my 2nd round. So you think they will let it be for now and not worry about replacing them with permanents, or take them out altogether.

  • src3acs
    src3acs Member Posts: 40
    edited July 2013

    I had a skin saving bilat MX and DIEP in Oct 2012.  I have finished all of my reconstruction which included fat grafting in May 2013.  I still do self exams (that is how I found the original lump).  Last night I found a very small very hard almost round lump right under my skin....near my rib at the top of the fat graft.  Just wondering if anyone had a recurrence with similar symptoms to mine.  It definitely does not feel like the fat in my breasts.  Again, very small and very hard.....like a bb.  Thanks!

  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited July 2013

    Src3acs - sometimes fat grafting can produce bb size lumps like you describe. Since this is near your fat grafting site, I wonder if this is what it is. However, if it were me, I would still get it checked out.

  • sherry67
    sherry67 Member Posts: 556
    edited July 2013

    Src3acs,

    I had a small lump on the non cancer side where they did fat grafting ...saw my Onco for my appt and she sent me the same day to my PS and it ended of being fat which has gone away..

  • src3acs
    src3acs Member Posts: 40
    edited July 2013

    Thank you for the responses.  I did go to the BS today and she did an ultra sound.  Found two spots and said she's confident it's fat necrosis.  She said there was no blood supply to the sites which is good.  Blood supply would indicate an active tumor. I already had an appt. schedule for early September so she said she will look at them again and just make sure there are no changes.  Was worried because it's in the same area as the orginal BC.  Well wishes and healing thoughts to everyone Smile

    Sharon

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Good news Sharon- I am so glad it was just that.

    Hugs

  • netty46
    netty46 Member Posts: 296
    edited July 2013

    My surgeon led me on for 5 yrs telling me necrosis. Turned out to be cancer.  Recurrence in breast where I had Diep Flap.  Dont belive what they say ask for punch Biopsy.

  • src3acs
    src3acs Member Posts: 40
    edited July 2013

    Sciencegal....thank you!!  Netty46.....sorry to hear that you had a recurrence.  It is a fear of mine and probably many others.  Trust me I won't ignore it.  My nurse navigator (an oncology nurse) was with me and watched the ultra sound.  She said as soon as she saw that there was no blood flow to the area.......she knew that it was not an active (cancerous) tumor.  Same thing my BS said.  I will go back on Oct 10th and my BS will ultra sound again.  She already told me if there are any changes before then to call her or if I am still uncomfortable after my appt. she will schedule a needle biopsy. Smile

  • slowloris
    slowloris Member Posts: 128
    edited August 2013

    src3,   I don't want to alarm you, but definitely push for that biopsy. My recurrence showed up as a peasized lump that literally grew to that size in 12 hrs. Plastic surgeon that it was a cyst, went to bs, US showed no vascular involvement. But knowing how aggressive tnbc can be, she said since she couldn't be sure, she would just remove it.  Needless to say, malignant with an 80% reproduction rate.

    The spot were it was has remained clear, however only 2 days after biopsy, 2-3 other lumps appeared. Back on chemo.

    I feel it is better to know for sure since a biopsy is not too invasive, and if it does come back positive (hoping not) then you can get started on treatment sooner.

    Wishing you the best, keep us posted on your journey.

  • src3acs
    src3acs Member Posts: 40
    edited August 2013

    Hi slowloris...so sorry to hear about your recurrence.  I have an appt with my Oncologist on Wednesday so I am going to talk to her about it some more.  I had fat grafting done and have been told that it can cause small hard areas of fat to form.  I won't ignore anything that seems different and again will talk to my Onc next week.  I hope you are doing well and will keep you in my thoughts and prayers!

    Sharon

  • Flautalee
    Flautalee Member Posts: 118
    edited January 2014

    Hello-I haven't been  on the boards here for a long time. I edited this post because I thought that I was responding to a private message. I am not back to myself since the treatment and surgeries that I went through 2011-2013, but I am in remission.

    I have been through BRAC and more adv genetic testing 3 times because of my second primary and close family who've had aggressive breast cancer.  All neg, which is good, I guess, except that my daughter and her cousins cannot be tested to learn if they might have the same gene as I have.  My MO told me that he is certain that there is a genetic component but that scientists just haven't found the gene yet.  

  • Basia
    Basia Member Posts: 790
    edited April 2014

    Hi, I haven't been on these boards in a long long time, thought everything was good….boy did I have a rude awakening this week.  Had BMX and chemo (TCH) in 2010. Thought all was good.  Felt something odd on the side of my breast, where the original cancer was found.  There has been scar tissue there from day 1 with the implants, didn't think much of it until last month.  I was at the gym and out of nowhere I felt a sharp pain in the scar tissue.  Went to PS he said I pulled scar tissue.  2 weeks ago had followup with ONC, he said scar tissue. I don't know what made me so concerned, but I went to BS and she said looks like scar tissue, but she needle biopsied it to give me peace of mind.  Well, the biopsy came back yesterday, tested positive for cancer.  don't know much else at this point, have MRI tomorrow and Onc ordered PT/CT for Thurs because I am worried about this cough I have had for a month now (GP says asthma cough).  So confused. I really thought this was behind me.  BTW ER/PR- HER2+. I know surgery and radiation is in my immediate future, but what else should I expect?

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2014

    Basia  I am so sorry it wasn't scar tissue. :(. I recently had a recurrence of ER/pr- her2 + that was considered local. I had a lumpectomy just started chemo and then will have radiation once I am finished chemo. Sorry you are joining this club.  

  • Basia
    Basia Member Posts: 790
    edited April 2014

    Thanks Jamie, why chemo before radiation? I assumed radiation first, but I know nothing about radiation.  What is the latest and greatest chemo out there for us?

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    Basia I am not sure why chemo first. I think because they want to kill any stray cells that may or may not have gotten loose. 

    I received Taxotere. Carboplatin and herceptin and this time I am receiving adromycin, cytoxin, then taxol perjeta and herceptin. 

  • Basia
    Basia Member Posts: 790
    edited May 2014

    Jamie, that's some cocktail there, how are you tolerating it? how many rounds? 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    AC is 4 rounds taxol is weekly perjeta is 6 treatments and herceptin is 18 treatments. So it's gonna be a while.  

  • Basia
    Basia Member Posts: 790
    edited May 2014

    jamie, so how long is this regime to last? sorry for asking so many questions about it, but trying to prepare myself for what could be in my future and trying to figure out how on earth I am going to be able to handle all that with 2 little ones…the fun never ends 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    Basia I don't mind you asking at all. :). So I am looking at some kind of treatment until June/ July of next year because of the herceptin every three weeks.   I have an 8 year old and 11 year old and last time they were 3 and 6. 

  • Basia
    Basia Member Posts: 790
    edited May 2014

    Thanks Jamie.  it sounds longer than that when looking at the number of weeks.  It's not fun, but it is doable given the situation. 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    that's exactly how I am looking at it. Half way down AC so we are moving along. 

  • Basia
    Basia Member Posts: 790
    edited May 2014

    jaimie, how are you feeling after your last AC? 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    Basia I am hanging in there. AC has been easier on me than TCH. I have 6 more days until round 3 and 19 more until round 4 but whose counting. Lol. 

    I did find out yesterday that I will be having 33 rounds of radiation this time. :(

  • Basia
    Basia Member Posts: 790
    edited May 2014

    Hi Jamie,

    Got the pathology back yesterday.  The two spots were cancer, and they found something "on" a lymph node. The BS wasn't aware that there was a node attached to the scar tissue.  The oncologist is very confused with "on" vs "in", he needs to talk to the pathologist about this, it will determine what chemo is going to be used.  I have an appt tomorrow afternoon. I told the PA I want to be aggressive.  

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2014

    what's the deal with the pathologist being so confusing. Grrrrr. I hope you got some answers and you are getting a plan together. 

Categories