Vent: A few thoughts on mastectomy bras.

sere
sere Member Posts: 13

After trying on a few garments from Amoena and Jodee and I am SO frustrated. Was a man in charge of designing products or what? Why are the only color choices black/white/beige and why on Earth is there a seam in the middle of every cup and/or cheap lace? Did they even bother to see how these things look under clothes? And forget about getting anything to sit right under my former summer wardrobe. GRR. I'm going to have to learn how to sew pockets in, I think.

Yes, I feel a bit better now. Anyone else care to share? I can't be the only one with complaints!

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Comments

  • jenjenl
    jenjenl Member Posts: 948
    edited June 2013

    The bra's hurt me.  I tend to wear the tank tops with the built in pockets and then whatever shirt I am wearing on top of it.  If I don't do it this way the bra hurts me and I can only wear it about 5 hours.

  • sere
    sere Member Posts: 13
    edited June 2013

    I'm thinking tanktops with pockets might be my best solution, especially for summer. Are there any in particular that you like?

  • Natlie38
    Natlie38 Member Posts: 39
    edited June 2013

    Yes, things are pretty frustrating even for me. The wardrobe has to be different now!

    Me too can't wear a bra anymore. One, it rides up. Secondly I have Lymphedema on right back, so my puffy skin just bulges out from under the arm. 

    I am sticking to wearing camisoles with built in sports bra. Look for advice here. 

    http://mastectomysolutions.com/

    But these are my issues. 

    If you are looking for fancy bra's with pockets. I know Nordstrom does that for you. You buy any bra from them and they'll sew pockets for you for free. 

    Or if you are talented enough like me Wink lol.. you can sew in your own pockets!

  • lori123
    lori123 Member Posts: 1
    edited June 2013

    Yes, where do you get tank tops with pockets?  That sounds great for the summer.  I have some camisoles by amoena but they are expensive and not all that comfortable but better than a bra.  I started wearing swim forms by Naturalwear on a daily basis last week and they are more comfortable. I have post-mastectomy pain even after 2 year.  I'd love any advice.  

  • Natlie38
    Natlie38 Member Posts: 39
    edited June 2013

    lori123, I got tank top with built in sports bra from 'Fredmeyer'. They are 'Jockey' brand and have removable cups! Exactly what we ladies are hunting for. 

    So I removed the cups thingy and put my prosthesis in the pockets. Now the pockets are not meant for this so the opening is a little small, you might have a hard time inserting your prosthesis in them. But I still manage to squeeze them in!

    You may want to try these microbead forms I got from here

    http://mastectomysolutions.com/items-for-sale.php

    I insert these ones!

  • Lily55
    Lily55 Member Posts: 3,534
    edited June 2013

    They Are all old fadhioned in styling and not at all sexy or attractive...

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    Check out the sports bras at Marshall's, TJ Maxx or sporting good stores.  There are some great sports bras that have pockets with removable inserts.  They also have some great yoga tops that have pockets too.  The prices at TJ Maxx and Marshall's are a lot less than the official mastectomy items.  I also have a fiber fake boob that came with a mastectomy camisole I bought before my UMX.  That foob is lightweight and comfortable.

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited June 2013

    Lori123, insurance didn't pay for your Amoena camisoles? Mine did. (I'm assuming you have insurance. ... Could be wrong)

    I have 3 Amoena camisoles, royal blue, white and black. They fit great and have a cute rhinestone "a" on the back and spaghetti straps. Get lots of compliments.

    Sere, you aren't alone.

    I hate freaking mastectomy bras. They are usually comfy but sooo unfeminine. I wish someone made bras for women who wear partial prosthesis. I can wear a low cut bra because of where my surgery scars are and where the prosthesis needs to be but of course no one makes one, that I know of.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited June 2013

    Tarheel....Interesting, I was just told last week that insurance does not cover cami's...the amoena one to be specific. I have Blue Cross insurance, which is standard, and live in PA.

    I would love to find more comfortable tanks with pockets, Still You (or me??) LOL has a great one...but they are all expensive. I didn't want one with a sports bra inside of it, because the sports bras give me trouble too.

    And back to the original subject, much of the stuff I see in fitter's stores looks like the stuff left over from the 50's. As in 1950...the style and look. Too much, I don't wear them...and they hurt!

  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited June 2013

    Crystal - be sure to check with whoever you are buying them from - sometimes they can simply "code" them differently for insurance purposes. Blue Cross won't be the wiser as long as they get a code they like.

  • SheChirple
    SheChirple Member Posts: 954
    edited June 2013

    crystal:  check here http://www.pabreastcancer.org/get-involved/become-an-advocate/victories.html for information on what your insurance is required to cover.

    I encourage everyone to check their State laws on coverage.  I had to help a neighbor who's insurance told her they would not cover bilateral reconstruction where she had only one sided diagnosed cancer and post op pathology from elective bilateral (uni was covered) showed no cancer in the other breast. One strongly worded letter to her carrier and suddenly EVERYTHING she asks for is covered.  Including all her garments, which they previously had not mentioned, although in fairness she had not asked.

  • Natlie38
    Natlie38 Member Posts: 39
    edited June 2013

    Melrosemelrose, thanks for telling about yoga tops at Marshalls/TJ Maxx with pockets. Will check out there soon. Had been looking for some fitness clothes like that. 

  • crystalphm
    crystalphm Member Posts: 1,138
    edited July 2013

    Thanks so much for this information. It makes no sense that the fitter is not up to date, but this is the situation.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited July 2013

    Well, I just looked at the info and it really isn't clear. So I can see why people get mixed up.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2013

    I was at the specialty shop last week to pick up my silicon swim foob.  The shop had to contact my BS so he could change the coding on my script so the insurance would pay 100 % for it.  Didn't have to pay a thing and I know the insurance has already paid the shop for a regular foob and the swim foob.

    I also noticed they have a pretty good selection of mastectomy bras--- regular ones, seamless ones that can be worn with t-shirts with a little padding and some without any padding and some fancy lace ones in various colors.  It may just depend upon where you go to buy the mastectomy bras as to whether there is a big selection.  If the store didn't have the size one needs in stock, they said they would order it.  I'm fortunate I live in a large city so shopping for these kind of things is a little easier.

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited July 2013

    Crystalphm, don't let the confusion keep you from getting the comfortable camisoles you deserve to have. The other ladies have given good advice.

    It's the retailers' responsibility, not yours, to know what's covered. No difference between a sport bra, camisole, or "regular" bra -- when they are designed to hold a prosthesis. I have had all covered thru my insurance (Aetna and now United Healthcare). It's hard to be pushy when we are tired from fighting cancer, but this is a needed undergarment. Good luck getting what you need and deserve.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited July 2013

    There is a place in Wausau, WI called the Pink Mastectomy Boutique. They have sexy bras, lacey bras,sports bras, plain bras,lacey camisoles, soft camisoles, you name they got it (I think they even may have matching panties for some,too). I don't wear them, but I see them hanging.

    I hear a place called Norstrom's has some nice ones, too.

    I am sorry to hear of those that don't have places to go for frilly things.

    I am sure places on the internet sell them but then I wonder if insurance will accept them all? I don't know much about it.

    The bras are out there, it is sad that there isn't a Pink Mastectomy Boutique in more states and cities.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited July 2013

    Thank you Tarheel for the gentle push, I truly was ready to let it all go. Now I am going to follow through because I think I really deserve that amoena cami. I don't use any insurance for bras, so I deserve a few camis.

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited July 2013

    Good for you, crystalphm! BTW, the camis last longer if you can keep them out of dryer. Hang them up inside out and they dry pretty quickly. The Amoena's built in bra has good support; some exercise or casual tops with removable pads don't always hold me or my form securely.

  • 2Blessed
    2Blessed Member Posts: 5
    edited July 2013

    Hi Sere! 
    I wasn't well enough to go to the boob store for a good while, and then my Mother became terminally ill, so it was delayed 2 years.  In the mean time, I actually wore some of Mom's that she once used.  She decided to stop bothering & go boobless.  LOL! There were several different kinds.  Some I hated.  Some were ok, but not great.  It depends on what kind of bra you are looking for.  I finally went to the Boob Store last week! I found several that I loved.  I saw the ones I don't like too, but I knew about them & that saved time.  I decided that I should NOT get all one kind in case I wasn't happy with it later.  I got a camisole bra, which is really pretty & useful.  The lace comes up high enough that if wearing something with a V-neck it will dress it up & provide coverage.  I found one bra that was absolutely gorgeous & super comfortable.  I couldn't believe it.  Usually pretty ones are uncomfortable.  It was made very well with wider straps & more band underneath.  I did get a seamless t-shirt bra that is super comfortable, but I decided I should have a sport bra, which I ordered over the phone.  Maybe you didn't end up with a good fitter.  That can really make all the difference in the world.  After telling mine about how much touble I have because my prosthesis is so perky, then my real boob is not so perky & not shaped so perfectly.  She had what I call boob helpers & suggested I try it with my real boob.  It was just enough to cause both sides to look more alike & more real.  It made a tremendous difference.  I also got a swimsuit that is a 2 piece with good coverage.  I am very happy with it.  It is modest, but not prudish.  Maybe you should check another shop or look online.  Mine also let me get 2 camisoles & gave me a white tanktop with a pink ribbon on it that had boob pockets in it.  I felt the quality was really good.  I didn't buy any of the vivid colors, but they had some red, purple, pink, blue, etc.  All colors are not available in all bras though.  

    I know I'm not exactly complaining about them, but I'm hoping that this might be helpful to you.  If you would be interested in any of the ones I have, send me a message & I'll see what company produced it & what it's called.  It sounds like you are wanting seamless.  I only got 1 seamless one, the t-shirt bra, which I wouldn't wear if I didn't wear the boob helper on my real boob, because it has thin material, but it is super soft & comfortable.  They call it the naked bra because of how good it feels.  LOL! Hope this will encourage you & help you find some bras that work for you.  Hang in there.  Good bras do exist! God bless & best wishes! Laughing

  • 2Blessed
    2Blessed Member Posts: 5
    edited July 2013

    Hi Natalie! I saw that you sew pockets in some of your bras.  I am interested in doing that too.  Where do you get the pockets though??  I have no clue.  Please message me if you would so I won't miss the info.  Thanks & God bless! 2Blessed

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    2Blessed, to be sure you don't miss new posts in threads, like this one, that interest you, click the Add to My Favorite Topics link at the top of the thread. When there's a new post in the thread, you'll see a red number in My Favorite Topics in the blue menu. Click on that item in the menu to go right there.

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  • Natlie38
    Natlie38 Member Posts: 39
    edited July 2013

    2Blessed, you can buy pockets online or even the dealer I use to get my lymphedema compression sleeves and my breast prosthesis carry them. They just don't publicize them, you need to ask them. 

    One website is http://www.tlcdirect.org/Sew-In-Mastectomy-Bra-Pocket-American-Cancer-Society-TLC-Direct?did=41

    I however have never brought them. I make my own. I had just once purchased a bra from Nordstrom and they had sewn the pocket for me. And I realised its nothing fancy. They had just used a soft cotton jersey fabric and hand sewn the pocket. They did a very neat job though, neater than what I do! 

    So now I just copy that. I use my kids old undershirts that they have out grown, cut out the pocket and sew it in bra. Works for me! I am sure you can buy jersey cotton from one of the fabric stores. 

    All the best!

  • Katsietoo
    Katsietoo Member Posts: 1
    edited September 2014

    I've been having similar problems w/bras. I had my bilateral five years ago.  I did not realize that my chest would be visible in V-neck tops, etc., or when I bend over to pick up something. I've used my insurance benefits to try numerous types of mastectomy bras, but I honestly, I don't like any of them.  I'm very tall, and not small boned.  My chest size without the forms is 39, so I need a 40 and the cup size I like is a B.  It's impossible to find them.  Even the ones made for us, don't fit correctly.  I finally discovered a very cheap solution.  I was in Walmart, and found a plus size sports bra, with removable pads.  I bought one, to see if I could wear it, because the forms are a bit heavy.  Anyway, I removed the pads, and inserted my forms inside.  It worked wonderfully!  I went back and purchased five more.  They were very inexpensive, and comfortable.  I find that the mastectomy bras cut me right over where my scar is located.  I feel like a sausage in them.  The scar is tight, even though I use moisturizer daily, and acts like a rubber band, so an ill fitting bra exacerbates the tight feeling.  I am always pulling on the other bras, trying to move them.  The Walmart bras are soft, and the band is not tight.  They are similar to sports bras, but softer.  The only complaint is that after wearing one for a day, the forms sag.  I've been trying to find a sports bra like the Walmart bra with adjustable straps, but nobody makes them for plus size women.  Also, the bumpy chest (uneven) over the scar is still very visible.  I don't wear v-necks or anything revealing.  It can be a problem trying to find anything nice to wear, but maybe a clever seamstress will be address our problems -v- some corporate man.  I wanted to say that I purchased a mastectomy bathing suit this summer, and hate it.  I found that the Walmart bra, in other colors (i.e. black), under the suit, holds the forms in place a lot better than the suit.  Don't waste your money on mastectomy bathing suits.  If anybody knows of a plus size, comfortable sports bra w/adjustable straps that does not cost a fortune, please reply to my post.  Thanks!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Katsietoo, thank you for sharing your experience, and hopefully someone will know of another comfortable plus size sports bra (with adjustable straps). We appreciate your information, and welcome  you to our community. 

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    There have been a lot of threads on this subject and one thing we all agree on is that we don't want the "Fall Forward" which occurs when you are wearing a top and a bra that doesn't sit high enough on the chest. Bending over makes the weight of the form pull away from the chest, revealing the empty space and sometimes the scars too.

    The Genie type bras that are available from department stores work quite well for the smaller size in silicone forms or for lighter weighted foam forms which a lot of us are wearing now. The Genie camisoles are good too, for those who want the slight compression of a fitted garment. I still find that both these garments are cut a little low in the front, for our needs.

    My favorites are the Amoena Valletta camisole and T shirt. They have the bra built in to the tops and can hold light weight or full silicone forms. They are cut well on the chest and wash really well.I have them in every color and I am still wearing the first ones I purchased right back at the start when I first discovered them after my surgery.

    I hear a lot of people saying that they find the Mx bras aren't nice to look at, but I think that there are very few stores that actually keep the whole range of bras that are available. Take a look online at the different brands own websites. I mostly buy Amoena, because I find the quality is fabulous and they make some beautiful mx bras and camisoles. They also have a fabulous range of clothing, all with bras inside, there were dresses and tops and matching jackets and pants. They look great and are comfortable beyond what you may expect.

    When I first started to research what was available for us I discovered another manufacturer called Marika, they are yoga and athletic wear. They do some sports bras that have the pockets for the small modesty pads which can take a form in them and they are cut high on the chest  Geo Storm is the style I find works well. They are around $50.00 each normally, but at the moment they have a 35% off sale including the clearance area, where there are 2 colors at $20.00, less 35%. I wear them with an athletic jacket zipped up to mid chest. They are very comfortable and just look like you're wearing a top under your jacket. Lots of women here have tried these bras and have been happy with the result.

    When it comes to the swimwear, I have found that although I can make do with some regular swim suits, the Mx designed suits by Lands End or Amoena are far superior. I am in Australia, so we have a very hot summer and I live by the water, so I wear swimwear a lot. Amoena do great tankini tops, some with  adjustable straps which hold a form securely, sit flat on the chest without any fall forward and they can double as a top, with a sarong or casual pants.

    Although I have tried a number of swim forms, micro beads and silicone, my favorite is the Amoena clear swimform. It has ridges on the back so it doesn't make any slurping noise when you swim and the clear silicone doesn't show through your wet suit.

    There are many companies putting out camisole style tops with shelf or pocket bra tops in them, but unfortunately, most are just cut that bit too low in front to really work for us, especially if we are larger than a "B" cup in a form and fall forward is an issue.

    One of my favorite places to buy from is Metromedical online. They have really good prices on both forms and clothing and bras. I recently bought more Weighted foam forms, Valletta T shirts and Camisoles on sale there for about half the usual price. I think they are still on sale.

    I live in a small coastal town so I do most of my shopping on the internet and have discovered that I can buy most items for a fraction of the price in the US than I can get them here. I do always research things as much as I can and will have a fitting for a brand I am interested in, if it is available here. There is a huge amount of Mx specific lingerie out there that most never see, because the fitters seem to just keep the bare minimum of Mx bras etc in stock.

    Ebay is another really great source of items. A lot of stores sell there and you can often get discontinued styles for a fraction of the recommended retail price.

    Once you get a feel for what suits you and the necklines that will work for you, it gets so much easier. I threw out all my low neck tops after realizing I had exposed myself, with a fall forward in the supermarket soon after my surgery! lol     

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Katsietoo, I meant to say Welcome to you!

    There a re a few T shirt type bras in the Amoena range, have you been fitted by a trained fitter for a bra that doesn't irritate your scar? As I said in the above post, it is hard to find a place with a decent number of options to try. It is worth looking at the website of the manufacturers and then asking a fitter to get the style in, for you to try it. Once you hit on a bra that is comfortable, you can buy a few and just rotate them. I like the Amoena Mona, which a lot of ladies here, wear too. I just hand wash and then put in a salad spinner to remove the excess water, then hang on a hanger to dry. They stay like new.

  • 1994survivor
    1994survivor Member Posts: 2
    edited September 2014


    Hello "camp Lejeune" LadySmile---I was searching online for deals on Naturalwear bras, a few weeks ago I went to Positive Care which is located inside of Schwartz's Intimate Apparel. I found them in 1994 after going through a lumpectomy in 1994 at 37. The first "stuff" that I was fitted with was matronly and awful and it made me cry. So I asked people for help. I donated the poorly fitting silicone form and yucky bras. And positive care was able to give me a properly fitting donated form. So I cried some more and it was from relief. These people have been properly fitting me for years and I cry tears of relief every time. And then I forget about it and live my life. Without the form my right side looks a lot smaller than the left side. A month or so ago I had to wrangle a referral form to pay for the four bras and the silicone breast form that I was fitted with. The bras are nice looking. I also have an Amoena sports bra and it comes in beige and black. The black could be worn under dark tanks and if some of it was showing it would be alright. Best wishes to you "camp Lejeune" Lady. North of Chicago there is a nordstroms that will sew pockets into bras you purchase there. If I were you, I would try to find a seamstress to help you sew fabric into a bra you like. I must add this warning: weak support will not help you when wearing silicone breast forms. With a comfortable fit I feel just fine. Survivor of a treatable tumor.

  • amygil81
    amygil81 Member Posts: 165
    edited September 2014

    I walk with crutches, due to a childhood disability. I pretty much always wore sports bras even before I had BC and had to lose my left breast. I tried regular mastectomy bras with my foob, but they just were too uncomfortable with my crutch use, especially after I developed lymphedema and had to wear a sleeve and glove. So I went back to my sports bras, and they work pretty well for me. I have to sew a pocket into my empty left bra cup, but that doesn't take long. Hope this helps someone.

    Amy

  • kerensa75
    kerensa75 Member Posts: 83
    edited September 2014

    I havnt had a chance to read all the comments as my two year old is being two....BUT, 

    I went to Nordstrom and bought regular bras and they sewed pockets in where I needed them. So I was able to get some "cuter" things than what was offered on the shelves for me.

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