Desperate for info. of profylat. masecomy breastsurgeon!

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glorianna
glorianna Member Posts: 92
edited June 2014 in High Risk for Breast Cancer

Hi, I had a large ovarian tumor, and now very dense breasts. Mammo, ultrasound, and MRI say first

all is O.K and a 2nd opinion found areas of hyperplasia, and a mass behind my nipple. Area is left breast too.

Its impossible to see a "hamartoma 2cm?" om my ultrasound, found on MRI. I have dysplasia in moles.

Where  can I asap find a good breast surgeon? I have red, burning nipple.   Thanks in advance!

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited June 2013

    well were do you live?  I live in NJ and would recommend mine (MacManus) but if you are looking for one, try the biggest/best hospital with a cancer center that is near you.

    the internet is great and you should be able to do some searching based on hospitals

    or contact the American Cancer Society to see if they will recommend someone

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  • glorianna
    glorianna Member Posts: 92
    edited June 2013

    Hi,

    Truly grateful for reply. I am a 46 yr old European lady, who went to a USA cancer centre adn they found no

    reason for masectomy in 3 of 4 dense breasts.

    Hugs and best wishes, Ann

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  • Beesie
    Beesie Member Posts: 12,240
    edited June 2013

    glorianna, do you mean that your breasts have a density level 3 out of the 4 levels?  That would make your breasts heterogeneously dense, and that's actually normal for a woman in her 40s.  Many premenopausal women have dense breasts. That would be why the cancer centre felt that there was no reason why you should have a mastectomy. The risk associated with dense breasts relates more to women who have extreme breast density (category 4 density), particularly if their breasts remain that dense after menopause. 

    You also mention that you have hyperplasia.  Is this "atypical hyperplasia" or just hyperplasia (sometimes called "usual hyperplasia")?  Atypical hyperplasia would increase your breast cancer risk - although probably not enough to put you into a "high risk" category - but usual hyperplasia barely increases risk at all and is not considered to be any cause for concern.

    I understand why you are so concerned, but before you jump to the conclusion that the best solution is to remove both your breasts, you should find out what your risk level really is.  And you should investigate what's involved with a mastectomy - it's not as easy or simple as you might think.  I say that from experience, having had a mastectomy for breast cancer.

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  • Letlet
    Letlet Member Posts: 1,053
    edited June 2013

    Do you have a strong family history for BC? Have you had BRCA testing? 

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  • glorianna
    glorianna Member Posts: 92
    edited July 2013

    Hi,

    Reason for masectomy.: European MRI, U.S, and mammo said all is OK. I redid this, and have a undiagnosed hamartoma

    hiyperding by nipple 1.7cm - how can this be missed? Even, 8mm hyperplasia lesion, and undiagnosed area in left breast

    I had total hysterectomy due to ovarian tumor 6cm with CA125.

    Mom died in braintumor. Where can I find a undestandingsurgeon.  Hugs,

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  • glorianna
    glorianna Member Posts: 92
    edited July 2013

    Hi,

    I seem to be getting tired, repeating myself. sorry.  I found info. on surgeons on other forums.

    Thanks and hugs.

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