Summer 2013 Rads

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Yes, Lin.  It's not horrible.  I'm able to do things more now than I was a few weeks ago, but I feel it badly when in that dam position on the table.  The PT is awesome.  Couldn't get in with her this week unless I wanted a 6:15 am appointment (no thank you).  See her next week though.

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Yipee! I'm done! I got my certificate of completion and rang the bell they have. Now time to start healing and on to the next phase. I will be starting Tamoxifen on Saturday.



    Gently hugs to everyone

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Wooohoooo heart. Congrats!

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Yay Heart!!! Congratulations!!!!!!!!  {{{{hugs}}}}

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Gowiththeflow... 6:15 appt... are they crazy??? 

    Congrats on 1/2 point Robin!!

  • MzDiva
    MzDiva Member Posts: 9
    edited June 2013

    Hello Everyone,

    My mom will be finished with her chemo on July 12. Now we are exploring the thoughts of radiation. I have tried to stay informed as much as possible to help my mom through this. She is very anxious to get everything over with as everyone can imagine. We just don't know what effects radiation will have in store for us. We hope it will be better than the SE's of chemo.

    MzDiva

  • Donna2012
    Donna2012 Member Posts: 201
    edited June 2013

    I will finish rads in mid-July & then start tamoxifen the next day. Does anyone start tamoxifen while doing rads? Why do they wait?

  • Lin43
    Lin43 Member Posts: 108
    edited June 2013

    WooHoo Heart!!!

    Let the healing begin!!



    I just finished a Domeboro soak and it felt good.



    Time for dinner. My nutritionist says to increase my protein while healing. Is chocolate protein? ;-) It is when it covers almonds!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    SmileHeart -congrats on ringing the bell

  • TMM60
    TMM60 Member Posts: 190
    edited June 2013

    Way to go, Heart. You really had a hard time- here's to fast healing!

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Lin, chocolate is whatever you want it to be lol :)

    Donna, I'm not sure about that.. my team wanted me on Tamoxifen within 3 weeks of chemo, I waited until after surgery and before rads.

    MzDiva, everybody reacts differently, but from this group and the Spring Rads group, the majority have found rads to be much easier than chemo if that is any help!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Ideism, yea, they are crazy. My fist appointment was that early, but I wanted it before starting radiation.  I'm not willing to drag myself out of bed that early again.  I got an 8:45 am for tuesday.  :D

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    A medium shade of pink tonight.  I have a few spots that are sore, mostly where I have a "fat roll" or lump from surgery.  Hoping that the weekend break will make it heal a bit before it gets hit 4 more times next week (yea for Independence Day - a day free from the hospital!)

  • caitlin61
    caitlin61 Member Posts: 214
    edited June 2013

    Congratulations Heart - hope you will feel like celebrating soon!



    My MO said he didn't want to start me on Tamoxifen until I had finished radiation - I thought he said because it might potentially interfere with effectiveness of radiation - but I've seen several people on these boards who started Tamoxifen before they finished rads.

  • Robin3
    Robin3 Member Posts: 145
    edited June 2013

    Yay Heart to being done. I don't think my place has a bell. I would ring it loud! :-)

    My doctor wants me to start Tamoxifen 2-3 weeks after finishing radiation. he said one thing at a time. This way we can keep track of side effects and stuff. I'm leaving in a few to go get my treatment. One day at a time! We can do this!

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Thanks everyone!



    My MO wanted me to start tamoxifen right after rads. He also said one thing at a time is enough. So I will start tamoxifen tomorrow. Need this one day break.



    Happy Friday!

  • encyclias
    encyclias Member Posts: 302
    edited June 2013

    We don't have a bell, either.  Only one is in the chemo room.  Started rads on June 10th.  So far, I just get a medium pink immediately after, which fades away overnight.  No pain yet.  Got my Aloe plants ready for use when the time comes.  In addition, my RO says if I want, I can use any mild moisturing lotion that doesn't have perfume in it.  I am certainly looking forward to the weekend.

    Congrats to those who have completed their rads.

    Carol

  • Lin43
    Lin43 Member Posts: 108
    edited June 2013

    Chocolate is whatever I want it to be--I like that! I declare dark chocolate covered almonds to be a  health food! Laughing

    I remember the pink fading away overnight early on. Hoping that it will keep doing that for you, Carol. Happy weekend! 

    Those fat rolls and lumps do get hit hard. My dog ear under my arm that they left for reconstruction was unhappy the second half of rads but is hurting less today. And as painful as I still am, I do see signs of healing in the areas that haven't been radiated for 8 days. Like Heart, I have that cruddy dead skin smell going, though. Yuck!! Ok...this too shall pass. 

    I had a bad reaction to one of the meds they gave me for healing so I am back to emu oil as it is the only thing my skin likes right now. Aloe burns, aquaphor burns, calendula burns, miaderm burns, silvadene burns, arghhh!! But the good news is that I see signs of healing 8 days out from my last full radiation so I will stick with the Domeboro soaks and emu oil. Skin reaction is such an individual thing. 

    Happy Weekend to all! I think the radiation departments around Phoenix must have left their doors open, though, because highs are predicted to be 120 this weekend. Why do I live here? Not because of the nutty wild west politics Tongue Out, but cuz I love the desert and the mountains and the sunsets and the beautiful hikes ... just not in the summer! Time to fill the bird bath--poor babies will be mighty hot and thirsty this weekend! 

    Gentle hugs,

    Linda

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Like Linda some of my red skin is fading to pink, now 7 days out from the full breast radiation. So the emu oil doesn't burn? You are right, everything else does especially the aquafor. For some reason the aloevesta is a little better. I have started putting some neosporin in the crease area instead of the aquafor since I lost some more skin overnight and the aquafor is just brutal. The neosporin seems to burn less. Hoping to see some improvement prior to the 7-10 days after the end of rads that my RO predicted.



    Sorry you have to deal with the smell too. :-( as long as the Mepilex stays in place it seems to contain the smell, but I am afraid to go out since if the Mepilex moves the smell is awful. My nurse said she couldn't smell it unless she got really close, but in my mind I am convinced if I can smell it everyone can so I think I will get some rest at home this weekend.



    Wishing everyone a peaceful and healing weekend! Gentle hugs from NH.



  • slv58
    slv58 Member Posts: 1,216
    edited June 2013

    Hi Ladies, I've been waiting for my turn to join. I start rads next Friday and had my simulation/tattoos today. I'm trying to gather as much information from everyone, so thank you for sharing your knowledge and experience, it helps us all. A lot of women have said that emu oil is very good. I was going to buy some but thought I would run it by my RO since I was seeing him today. He said no, because it is oil based and to be honest, was quite disappointed. He recommended lubriderm or glaxol. He said if I run into problems, he will prescribe then. I may still still get the emu oil to try.

  • Donna2012
    Donna2012 Member Posts: 201
    edited June 2013

    #20 today & it is the first time I have noticed some skin breakdown. An area about the size of a penny close to my underarm. The nurse noticed it today & asked if I had any pain. I told her none whatsoever, since that area is numb from surgery! Also for the first time today I feel more tired. My radiation office is closed next thurs & fri, so they are seeing patients this Sunday. So I have off tomorrow, 4 days on and then 4 days off. The break will be nice!

  • Lin43
    Lin43 Member Posts: 108
    edited June 2013

    slv58--My RO said emu oil is very good as long as it is not on my skin for rads. Since my radiation was at 8:20am, I would shower before going and use Dove soap to make sure any remaining oil from the night before was off. Maybe if you tell your RO you will be sure it is off, he will ok it. I had bolus every day to bring the radiation to the surface of my skin (they wanted to fry me) and I am convinced that I would have needed a rads vacation if not for the emu oil. Most women do fine without it, though, so don't worry. I have heard good things about glaxol. Welcome aboard. It will go fast!

    Donna--A perk from your recent mastectomy, huh? Numbness. So glad you cannot feel it! I was very surprised and really rather scared by how much I hurt from my skin breakdown. Here's hoping that four days off will help you get through the last few treatments better. Smile

    Heart--So you cannot use the creams/salves either. We are so very tender right now, aren't we? And my nurse said the same thing about the smell. Hmmm... I first noticed it one morning when I woke up and noticed this yucky smell, and I thought it was one of my dogs having got into something gross...or something dead! Lo and behold, it was me. I cannot stand yucky smells!!! I think olfactory is my best sense, so arghhh!!! Maybe it will be gone soon and in the meantime, bring on the Mepilex. 

    Happy weekend to all!

    Linda

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Hope all of you with breakdowns heal quickly.  (((HUGS))) and thank you all who are ahead of me and giving me a glimpse as to what I may expect.  

  • encyclias
    encyclias Member Posts: 302
    edited June 2013

    Thank you for your good wishes, Linda, and a happy weekend.  Just don't know if I have the ability to bear the skin damage and pain that so many having rads have had to bear.  I'm a wimp.  I'm a double-wimp.

    To everyone, have a great weekend.  Never thought two days off could mean so much.

    Carol

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    2 days of no radiation and I feel so free! lol.  It's peeling like crazy and yes there is a smell.  My RO told me the best thing for healing was to leave it alone and let air at it.  She gave me something to spray on it a few mins before showering that will help dislodge some of the dead skin but told me that putting lotion and stuff on may dislodge the skin before it is ready to come off, which I did in a couple of spots and it was raw and painful.

    They gave me some medicated gauze like strips and I've just been using those under a form fitting camisole.

    Carol, you'll be fine, I bet you never thought you could get through everything you've been through so far and you did it.

    Hope everybody has a nice releaxing, healing weekend.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Hi all, thanks for the posts. Heart- SO glad you are done-woohoo! I hope your skin can repair itself well now that you are not getting hit.



    I have had two of 25 zaps now. Does anyone else get a weird gold colored chainmail thing draped over the breast? It is supposed to bring the radiation more to the surface skin. Seems bizarre but so do so many things with treatments.

    Just curious.
  • encyclias
    encyclias Member Posts: 302
    edited June 2013

    Thank you, ldesim.  I hope you are right.  On to my weekend.  Today is our orchid auction!

  • slv58
    slv58 Member Posts: 1,216
    edited June 2013

    Can I ask anyone using emu oil which brand you recommend? I'm going to get some and just make sure I wash it off well prior to rads.

  • LakeGirl2
    LakeGirl2 Member Posts: 68
    edited June 2013

    Sciencegal - I started this week too. 3 down and 28 to go. My center does not use what you described, nothing over radiated area. So far, so good. The rad techs even decorated our waiting area yesterday and brought in goodies, music on an ipod - celebrating a Kenny Chesney concert here this weekend. The daily visit is going to be a drag but it's so much better thsn chemo at this point!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Sciencegal, I have a bolus (actually there are two of them) on for my treatments.  It's a rubbery glob of something and cold when they put it on.  The only other thing I can think of that they use is that plastic that melts for people getting rads high up on neck/head.   They put it on warm and pull it down to form to your head so they don't have to mark you in visible areas.

    I got a nice lesson in that when I asked Bob the tech the other day.  

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