Perjeta/Herceptin/Taxotere

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  • kingcour
    kingcour Member Posts: 93
    edited June 2013

    Praying for you too, aic! The waiting is the worst part!

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  • fujiimama
    fujiimama Member Posts: 800
    edited June 2013

    Kingcour and aic: Praying for fantastic news for you two. I agree waiting is the worst.

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  • Trish03
    Trish03 Member Posts: 292
    edited June 2013

    I guess I'm officially a member of the P/H/T group now. I had my first treatment yesterday for mets to liver, almost 10 years after my first dx of Stage III ILC. I'm really happy to finally get started with my treatments and to start kicking the cancer to the curb. My last bc was not HER2+, so this is new territory for me...lots to learn.

    I've really enjoyed reading the posts on this thread...think I'm up to page 7 now. I really appreciate how openly you all share your experiences. I know that there will be ups and downs, but your optimism and fighting spirit are so inspiritional for a new Stage IVer like me. 

    Hugs and prayers for everyone,

    Trish

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Trisha good luck on this tx. Feel free to ask quest or pm. I have had 7 tx so far, it is not easy

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  • Trish03
    Trish03 Member Posts: 292
    edited June 2013

    Thanks, bhd1, for your response. This is day 3, and so far, I'm feeling fine. I'm just waiting to see what happens during this first cycle. Seven treatments...that's great! Do you still get taxotere? I've read that some people stop after 6 of those?

    Hugs, Trish

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Yes I am still on taxotere. Barb

    P

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  • CarlaK
    CarlaK Member Posts: 158
    edited June 2013

    Trish, I hope you coast through! I've had 5 rounds of this...at least for me, the worst of it comes about Day 3 or 4 (if infusion day is Day 1) and lasts the rest of the week. I'm going to drop the taxotere after 6 rounds; so far nobody has mentioned keeping it.  Barb, you're a trooper, not sure how I'd respond if my onc wanted me to stay on it! I'm really hoping Perjeta/Herceptin alone is easier.

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  • aic
    aic Member Posts: 417
    edited June 2013

    CarlaK, I stopped tax after 6. Been on p/h only since end of January. Been a walk in the park compared to all three. Hoping the same for you!

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013
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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Aic. Did u get your scan results?

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  • CarlaK
    CarlaK Member Posts: 158
    edited June 2013

    aic-so glad to hear that, because I definitely can't work on the 3 together, and I'd like to get back to work this fall

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  • fujiimama
    fujiimama Member Posts: 800
    edited June 2013

    Trish sorry you had to join us,but glad you found us. I think I had the shortest rounds with only 2 with all three. I have been p/h only since October. Still holding NED. I will be on P/h as long as my body can handle it.

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  • aic
    aic Member Posts: 417
    edited June 2013

    Barb, I am still ned! Thank you for asking :)

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    That is great news aic

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  • lilylady
    lilylady Member Posts: 1,079
    edited June 2013

    I am the original PHT girl-I started this thread almost  year ago now. I have had Tax with every tx but 1-scan showed some progression so we added the Tax back in. Due to how it is kicking my butt so bad now I am on a 70% dose-and still have went for fluids twice in the past week-and that is 2 weeks after tx. I am very grateful to have lasted a year on 1 regimen but will not be sad to see this fail so I can move on. Tx never used to bother me but I think I have so much of the Tax built up in my sytem that it gives me lots more bad days than I am used to. So tired of being tired...

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Lily thx for starting this thread. Have u had any scans since they reduced tax to 70 Per cent?



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  • JillThut
    JillThut Member Posts: 1,470
    edited June 2013

    Was wondering where you are with this now, Lilylady. I remember that you failed on just perjeta a while back. That's where I am now. Just had a wonderful qol with two rounds of perjeta/herceptin with no tax but yesterday's scans showed progression in the liver so next treatment we will add the tax back in at a lower dose. :(. Meanwhile I am currently in flight enroute to Vegas with my cousin and plan to live it up for the next week! :)

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Jill I am sorry to hear that you have to go back on tax. I hope it kicks the cancer back fast and you can stop the tax soon. Have fun in vegas

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  • kingcour
    kingcour Member Posts: 93
    edited June 2013

    I got my scan results. My liver and bones remain clear. The slight rise in my markers were probably due to my breast tumor. It had gotten 1 mm larger and had slightly increased FDG uptake. My onc scheduled me with a surgeon Tuesday. I finally get to get rid of the mother ship! Answered prayers! I am so happy! I hope once this is gone, I can get an NED!!!



    AIC- great news!!!!! Praise God for good reports!

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    kingcour i am happy that you are getting rid of the mothership. finally. good for you

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  • fujiimama
    fujiimama Member Posts: 800
    edited June 2013

    Lilylady= Sorry the tax has had to stay:( That is a long run.

    Aic = yay! I am so happy for you.

    Kingcour= I am glad you're going to be getting that beast out. I'm praying for NED for you.

    Jill= Enjoy Vegas

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  • CarlaK
    CarlaK Member Posts: 158
    edited June 2013

    Kingcour-Hooray! Hope to follow in your footsteps w/ surgery sometime in August.

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  • CarlaK
    CarlaK Member Posts: 158
    edited June 2013

    Jill and Lilylady- I'm impressed that you have hung in there w/ Tax for so long. Wow! I'd be a real mess...keep on keeping on, ladies!

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited June 2013

    Rehula...I've been on navelbine/herceptin/perjeta since January.  I just had my first ct scan at 5 months & my liver lesions are down 805 :)  It sounds like you had super fast results....shrinkage after only 4 treatments!  I had thought I had only 2 lesions but I guess there were quite a few in there.  My onc was terrifically happy as well....I wanted to be NED like our Fujii, but I can be patient :)  Thinking of all & wishing stupid ses would just go away for everyone...as well as bc!  My aunt, who had bc about 10 years ago just got diagnosed with bone mets...ugh, plus my dental hygenist got diagnosed and my SIL's best friend's mom...I HATE IT!  But I Love you guys!  Hope the 4th is a sparkler for you!

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  • bhd1
    bhd1 Member Posts: 3,874
    edited June 2013

    Ronnie Kay I am glad your scans showed improvement! That is good. What kind iof ses do u have?

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2013

    My post was supposed to say 80% :)   With chemo weekly I was getting more fatigued. When I was having one week off due to low white count, I had great stamina (neulasta helped!). My onc said since tests are good, she's changing my txt to 2 weeks on/1 off for chemo, and I'll get some energy back.  Still will have h/p on regular schedule. I push through it, trying to do at least 2-3 miles of walking most days & then playing w/grandkids (that's my favorite thing to do!), but I do nap :)  Other ses are dry eyes...I'm a little confused as to whether allergies are part of it, but I have to use eye drops as I find myself constantly squinting and it makes me feel crummy.  Dry skin is just me being a baby!!!  I have a white lump on the inside of my lower gum, which is listed as a perjeta se.  My onc doesn't think it's a problem since it's not sore or irritated (like a cankor sore), but it bugs me and I think I'm getting another. I thought I'd just see my dentist about it, but onc said she'll send me to a specialist to have it checked out. 

    Navelbine is such an easier chemo to tolerate so I feel like a whimp when gals are going through taxotere.  I had that in 09, not fun!!!  My onc wouldn't use it since I had it before, but it did the job...at least for a while, for me.  I'm hoping navelbine is the answer, just wanted so much to be NED.  And I don't have the horrible D that many have...probably due to Navelbine constipating....I think they cancel each other out.  So, BHD1, sorry for the narrative...but sometimes it feels good to just "vent" a little.  I'm happy to be able to enjoy each day....even when a little of the dark side sneaks in :)   XOXO  

    Happy 4th celebrations to all.........I hope you're staying cool....cause we are wilting in Seattle!!!!

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  • bhd1
    bhd1 Member Posts: 3,874
    edited July 2013

    Ronnie Kay do your eyes tear or water from being dry?

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2013

    Bhd1...my eyes don't tear or water (my nose does!).  They don't necessarily feel dry, just irritated.  I'm using Systane lubricant drops and if I use them often during the day, they feel better.  Do yours tear?  I also said my white lump was on my gum, and it's actually on the inside of my lower lip....yikes, I need to start editing my posts better!

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  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited July 2013

    Well, I guess I am moving to the TDM1 group. I had massive progression. My liver previously had 1 small lesion; now at least 10 more. I have a return of the pleural effusion in my right lung, only now it is moderate in size and causing a blockage. All in all, pretty crappy. "sigh"

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  • bhd1
    bhd1 Member Posts: 3,874
    edited July 2013

    Lori ni am so so sorry. I hope tdm11 kicks it all back for you . Good luck to you . I care

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