What is Lymphadema/ Symptoms?

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msphil
msphil Member Posts: 1,536
edited June 2014 in Lymphedema

Hi all what is it and tell me the symptoms, msphil(idc,stage,2,3 nodes,L mast, chemo and rads and 5 yrs on Tamoxifen) I,m a 19 yr Survivor this yr(Praise God),

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  • Marple
    Marple Member Posts: 19,143
    edited June 2013

    msphil, here is a good place to start your search to find information about lymphedema. http://www.stepup-speakout.org/What_%20is%20_Lymphedema.htm

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    http://www.stepup-speakout.org/What_%20is%20_Lymphedema.htm

    msphil congrats on your being a 19yr Surviver. Praise God Indeed! Please have a loook on this site which will give you much info on LE.

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  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited June 2013

    I have mild lymphedema that seems to come and go. I remember at first I felt like the area was swollen. Occasionally, Brian could see the difference between limbs. I get some pain with it (but I also have severe pain from nerve damage from the surgeries) so the pain is probably amplified from the nerve damage.

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  • jushavinfun
    jushavinfun Member Posts: 113
    edited July 2013

    Can u have this before being diagnosed or treated?

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  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2013

    Good morning, justhavinfun, and welcome!

    Sorry for the worries that have brought you here, but glad you found us. There are lots of reasons for the kind of swelling you've described elsewhere on the boards here, not all of them lymphedema. I did go read your earlier posts, and I just wanted to encourage you to be your own advocate and get that second opinion (or a follow-up on the first one) right away. You should not have to wait for the help you need to figure this out--medical care is not a do-it-yourself problem, and a swollen breast and armpit calls for a quick and thorough assessment.

    That said, it is sad but true that it's often up to us to be our own best advocate. Call both places, and keep calling until they find a way to fit you in. While you're working on that, if your breast or armpit reddens it could indicate infection that would require immediate attention, so don't hesitate to head for critical care or the ER if that happens.

    Please keep us posted. Gentle hugs,
    Binney

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  • jushavinfun
    jushavinfun Member Posts: 113
    edited July 2013

    Thank you Binney i am going to talk to my hubby tonight about calling a major medical breast center that is about 4 hr away but they do everything to you in one day...I have no redness on breast or armpit thank god but i will keep your adivce if it does...Thanks again and i will you updated

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  • Kicks
    Kicks Member Posts: 4,131
    edited July 2013

    justhavinfun - "they do everything to you in one day".  What are you talking about?

    Have you had any breast surgery done?

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  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2013

    Kicks, if it's anything like the MDAnderson center here, they schedule all exams and testing (mammos, US, CT, biopsies, whatever) on the same day, then give you the results right away. It's a really merciful thing to do so you don't have to hang out there, losing sleep and walking around in a fog while you wait to find out.

    Justhavinfun, what news?!! Thinking of you, hoping you have answers, and that they're all an easy fix.Smile

    Gentle hugs,
    Binney

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  • jushavinfun
    jushavinfun Member Posts: 113
    edited July 2013

    No i have not Kicks but Binney explained it 100%...

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