DIEP 2013
Comments
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My ps told me to expect six drains when I wake up.....sheesh. I had one drain on my first go round with bc and hated that darn thing....felt like a leash. Now I'll have six. He says they think they'll be able to remove two before I leave the hosptial which will leave with with one in each breast and one on each side of my new ab scar. That sound about right to you gals?
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Thanks Marty - I appreciate the advise. I'm settling down for the night.
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RobinY-- I had a total of 4 drains, one on each breast and one on each hip. Three were taken out on my one week post op and the last hip drain was removed at two weeks post op.
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Wow! BUSY Flappers! I've lost all my trains of thought and who has what going on....going to have start taking notes as I read!
I am 4 weeks out and still have large, open area where I had a blister that is not healing and 5 other tiny spots in various areas of delayed healing. My PS wants me to keep it all dry, change the gauze twice a day.
I am a unidiep....huge swelling....still swollen 4 weeks later but getting better slowly. I was told not to worry about swelling for at least 8 weeks.
Robin....I only had three drains (again...I am unidiep). 1 breast and one on each hip. Lost one hip drain at day 10. Breast drain (had a hematoma in the breast) @ about day 15 and last hip drain @ day 19. Coming home with 4 sounds within the normal range.
Canada girls- so sorry to hear about all your flooding! It all sounds devastating. Prayers for you!
And prayers for all who are having surgery this week. Thinking of you.
We (friends and neighbors) had a garage sale the last two days for my friend who broke both of her arms a month ago and can't work (she is a hair stylist)...we made $1200 for her!!! Unbelievable! So fun. All of the items were donated and there is still enough stuff for another garage sale next week. People are good.
Have a good week! -
Bailey, you live in a great neighborhood. What an awesome thing to do for your friend. I hope she is back to work soon. Don't worry about your blisters. From what I have been reading they are nothing to worry about.
Okay girls, did everybody who got a diep have the hot room, or hot blankets for a couple of days? I don't hear it mentioned in here much, but I just read a blog of a woman who was in the hot room for 4 days!!!!!! I hate being hot.
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I had hot room (78°) with "bear hugger" blanket (blows warm air) for 48 hours. Was drugged up enough I mostly didn't care for first 36 hours...was I increasingly aware during last 12.... was grateful for my chillow ( as seen on tv) and cool cloth on my forehead.
BUT.....from what I have read here....it varies wildly from surgeon to surgeon....ask your PS their protocol. -
Bailey, keep an eye on those blisters. I know first hand how bad they can get. I think I mentioned earlier that what has really worked for me is wet to dry gauze with saline. It's been two months and mine is almost all healed up.
Goldie, the hot room depends on your ps. I get really bad hot flashes and was not looking for it. When asked my ps he said he doesn't required to keep the room warm and I could have whatever temperature I wanted in the room. I think I kept it on 62 the whole time. My nurses would tell me how cold it was in there, but I loved it😄. My new boobs did just fine with the coldness and all of the tissue survived.
I guess ask your ps before surgery so that you can prepare yourself. -
The camisole found a home!
SheChirple - I've had to buy outfits for both Stage 1 recovery and Stage 2. I went to thrift stores and bought outfits a couple sizes larger for Stage 1, and for Stage 2 -dresses went down to the floor and roomy to hide the girdle. I am going to have a big bonfire and throw all my cancer clothes in it. You are waaay early in the recovery process, I didn't go back to work until I was eight weeks post-op. I used to have to also fight the feelings that this will never end, that I will always feel crappy, and why is everyone doing so much better than I am? As MartyJ kept telling me, give it time. I heard from the doctor that start to finish it takes nine months, I am thinking that it will probably take a year to get a new baseline normal, but then IT"s OVER!
Hugs to all, back to wresting with my new girdle.
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Heavenschild - just be sure to give yourself plenty of drying time between the shower and girdle. I loved the 10 days we spent in California. Soo much easier than the hot, humid east coast.
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I just had stage 2 last Monday and my room was kept cold according to my aunt and my daughter which preferred to wait in the family room instead of my room cause of it being so cold while I was in surgery. After my surgery I had 5 blankets on me so I wasn't cold. The nurse came in and gave my daughter a warmed blanket after I was settled in.
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cuetang and sfin.....thinking of you today. Looking forward to hearing from you....easy healing!!!!
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Cuetang and sfin good luck today. Hoping everything goes as planned and wake up pain free
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Bailey....your neighborhood sounds very special..hope your friend is healing well.
Kuka...hope the knee is still improving...are you starting your workouts this week with your trainer??
Marty...how is your Pilates going??? I certainly haven't been as active as I should be this past week...too much time glued to the tv and internet watching the flood updates.
Janet..hope you get the swelling under control, doesn't sound like much fun, at all.
heavenschild...hope you won the fight with the girdle!!
Time to get back into the fitness routine....catch you later ladies! Have good days.
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Blessing to everybody in surgery today. I know it will all be fine.
Since I have gotten back into bed, and stopped sleeping in the recliner I am sleeping better. I know I will be back there soon, but for now bed is better.
I found a interesting article about what causes blisters on flaps last night, and now I lost it somewhere in cyberspace. It said somethig about a certain kind of tape that is used after surgery needs to be removed no later than 72 hours after surgery. It was an article out of Canada. I am going to try to find it again.
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Cuetang and sfin, sweet dreams. When you wake up it will all be over, and the healing can begin.
Re tape that causes blisters: I started having an allergic reaction to paper tape last year that was used once after a blood draw during chemo. With every surgery it got worse, and with DIEP I had angry red skin on my arm and hand where the IV was secured, and everywhere else something was taped to me. Also had two irritated, mysterious rectangular patches on both sides of my spine when I was released from hospital. Must have sustained those in the OR - collateral damage - lol. Hydrocortizone cream really helped quickly for all of this. Fortunately I had no averse reaction to the steristrips that secured the incisions - what a blessing.
This is week 6 after DIEP for me. Next Monday I will be back in the gym. Have to get the show on the road again.
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Bailey, Kuka, I had the same issue, the blister on the flap (are yours on the flap??). I had it from April until September. First I applied silvadine then the wet to dry gauze a couple of times a day. I was scared to death that the flap was going to fail. And I sent more pictures to my PS than a years supply of Playboy of that floob (or do we call them gloobs on this forum?). But every time something looked nasty on it, I'd send him a pic.
I found out that (this may only be mine and not your experience, and for the new ladies not all or many get the blisters/eschars either!) was a process in healing. And, mine went from looking like a blister to looking like black tar to looking red like blood when the eschar (scab) was removed to yellow, then red again and finally pink. Now, all healed over. Lots of vitamin C and protein taken during this time. BTW the flap where the blister was was the radiated side, skin very thin there according to the PS.
Not sure if this is your experience, but it does get better and amazing to see how our bodied make new skin over where the blister was! -
Nihahi, my knee hasn't been bothering me at all. And I start my work out today. I'm excited a d scared too. Never had a trainer before, so I'm hoping he doesn't kill me on the first day!
Catie, I treated my blisters the same way you did. Mine looked really bad at first, with a lot of dead tissue in it. It was the size of a 50 cent coin. Now is smaller than a penny and not deep at all! I never had rads or chemo, so that wouldn't be the cause for me. Mine developed right under the tape that was holding the dopplers in place, so I think it was an allergic reaction. -
Here is a paragraph from the article I read that mentions the blisters, and the tape.
Dressings
Your incisions are closed with absorbable sutures, so no stitches need to be removed. There are small strips of paper adhesive over your suture line called steri-strips. These should remain in place until they fall off by themselves or in about two weeks, whichever comes first.
The dressings placed over your incisions in the operating room are water-proof, they are called tegaderm. Take these dressings off 3 days after surgery if the surgical team has not already done this. If you do not remove these dressings there is a chance you could get blisters on the skin around the edge of the tegaderm. If you see any blisters, remove the tegaderm immediately. This is not an allergy.
If the white dressing, called telfa, under the clear tegaderm does happen to get wet or soiled with blood, do not leave a wet dressing on your skin. Take the tegaderm and telfa off of your skin leaving the steri-strips in place. It is OK for the steri-strips to get wet in the shower. Don’t allow the water jet from the shower to directly hit them, just let the water roll over your shoulders gently. Blot them dry when you are done. Do not soak in a tub or get in a pool or hot tub until advised by your plastic surgeon
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Good info, Goldie4040.
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that's great info on the dressings and thank you for it. I noticed with the steristrips that my skin gets itchy right where they were in March so I'll mention that and the above info to my ps tomorrow at my pre-op. ooh geez a week away.
prayers and good healing thoughts go to Cuetang and sfin as they go through their surgeries today!
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My preop is a week away, too! Yikes.
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I know that they used the glue on my incisions and threre is one spot that looks yellowish/brown. The PS saw this and told me to put the silverdene cresm on it once the glue came off. Problem is, I cant tell if theglue is still there or not. I can tell on the other side, just not this one.
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Ah the many splendored experiences of flapper girls! My blister is on the underside of the flap....right above(actually now a part of) the incision line.....and in the "crease" where noob meets my chest wall. Not a good spot for sure! Hard to air it out with my vast swelling. It is red and open and clear oozy. Definitely deeper than "skin level"....maybe 1/8th of an inch. It's about 3 inches long and 1/2 inch wide. It is on my radiated side, but the blister is actually on the flap portion. PS removed all steri strips from that portion of noob within 24 hours of surgery. No tape or tegaderm there ever. They did bacitracin in hospital...made it worse. Told me to try Neosporin at home....made it worse. I then had itchy red rash all around it so they told me to put just Vaseline and gauze on it. Rash went away when I quit using medicated ointment. Then last week they said just dry gauze. So....I am not particularly concerned at this point. 3 inches not healing out of a total of 46 inches of incisions is not bad if you ask me! It's not the first time I have dealt with slow healing since bc dx. This too shall pass...or PS will excise and sew it up again....been down that road before too.
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Jeannie57 my pre-op is tomorrow afternoon, its the surgery that is a week away. :thinks calming thoughts: tomorrow morning at 8 I have an EKG and then a stress test (treadmill run) and then another EKG, then in the afternoon ps pre-op, Wed afternoon bloodwork and all that with my PCP and then I really just wait.
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Had no tape that I know of, the doplar/temp gauge was not on this area, and it was the incision line above the radiated breast - so they all sound different places and causes, however treatment seems to be similiar, except Bailey with just dry gauze. Bailey, the dry gauze, does it take off the 'scab' type thing on top of the blister site when you change it? Or is it dry and just covering for oozing!
It took me a while to believe that the wet to dry would do anything, but I had documented each step of the way (over-documented it actually) and the progression is really a biology lesson on healing! Mine started out like a quarter, then a nickel, then a penny, and then a dime. I took photos with those coins to have reference points when I sent it to the PS so he could see what was going on. They also gave me some seaweed kind of stuff from Repara to put on it and expidite it. But sounds like you guys have it under control! It will go away, like Bailey said - and just be a 'bump' in the road and your memory!
Hugs to all -
5 days post diep today. I am still enormously swollen but I did notice that my boob seems somewhat softer today so I guess some of the swelling is down. The breast drain is still not putting out anything other than a few drops. The abdomen drains are still filling fast and furious. My blister looks about the same as it has. I am walking a bit faster today but maybe even MORE haunched over than before. Ugh! I have appointments coming up tomorrow and the next day and I am gonna look like a freak walking in bent over so much.
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No worries, Damiana....if your appointments are of the PS variety, believe me, they've seen it all!
Best wishes to Cuetang and Sfin.......happy dreams and speedy recoveries! Cuetang, will want your take on Stage 2 as mine will have to be delayed -again-as my DD #4 (24 years old) has stage IV Endometriosis , and is having her 4th(FOURTH) endo surgery next month, about the time my PS was planning on stage 2......so......into August/September I go.....
I never had blisters, but I did have a 7 and 1/2 inch dehiscence......I was packing that beauty 2xdaily with wet saline-soaked curly gauze for 3 and 1/2 weeks, until the infection was GONE......then my PS re-sutured it.....it looks better than the rest of my abdomenal scar....kind of gives me hope that Stage 2 really IS where the magic happens....
Katy(SBElizabeth ).....I was thinking of you today, as I was on the phone with several different late-night TV products companies......what was it you said about staying away from the phone (or computer) while in a drug-induced haze? Took me two hours to clear up the messes I created (all by myself) back in January/February while high on OxyContin......once these sharks have you, they don't want to let you go! LOL......
Nihahi......is the weather drying out up there yet? I can't believe how much rain you have had! Where are my TimTams? Did they survive the flooding?
Jeannie and Robin...hang in there! Soon you'll be amongst the veterans......at this point, my suggestion is to not dwell on the upcoming surgery if at all possible....(yeah, right!) ....just block it out......and remember that Ativan is your friend, and that surgical tape is NOT! XO
Bailey....I hope your blister gets better real soon......healing from this surgery is tough enough without the added distractions that some of us face!
Marty-how long were you down with your Stage 2 plication? Days? A week? Needing to make plans as my 96 year old mother with Alzheimer's lives with me and I am her caregiver.....I know we're all different, but I could at least have a ballpark to work with!
Happy the rest of Monday to all.....
Namaste and God bless-Jackie -
Jackie - you are a saint. We cared for my stepmother who had Alzheimers for 10 years, but not in our home. Couldn't bring her to the house since my mother was already here. That would have been a real mess.
With the plication, I think you should be prepared to be somewhat incapacitated for about 2 weeks (or less). The drains are the real stopper. My breast drains came out at 5 days, hips at 11. I was not overly medicated beyond the first 3 - 4 days. I didn't plan anything because I didn't want to go with the drains. My first big outing was a dinner with 40 people at day 15. I stood a lot at cocktails, walked up and down docks, climbed on my neighbor's new boat (with help). I only had lipo at the flanks. My movements might have been a bit inhibited more had the hips and thighs been done. That will be in August and I will attend a wedding at 15 days. Hope it works as smoothly for you!
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Can i please ask how long you were all advised to wait post mastectomy or post rads for recon as i am getting conflicting info from various surgeons i have consulted? I had lobular cancer in case that makes a difference
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Marty, can't believe you were even THINKING of putting the two of them together....LOL!
. One question.....does incapacitated mean bed-ridden, or would I most likely be able to fix breakfast and lunch for my mother? Since I had family here for 5 weeks (and paid help for mom for an additional 2 weeks courtesy of my family) not sure they will be up for another trip to Oregon from all four corners of the country...
. I know we're all different in terms of healing, but if I can get a "sense" of what's involved.....
Jackie
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