Hats off to any that wrap
Comments
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hugz~for all it's worth I find when my wrist is wrapped too tightly my fingers turn blue.
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Gotta brag here, I just wrapped the best wrap ever. Oh yah babe, it's coming together for me. It's comfy and everything. I will prevail as the master wrapper after all.
Funny how some days wrapping doesn't work out and other days it is just perfect. It all has to do with being super relaxed and not in a hurry I think. -
hugz, I guess you're training for the Olymphics!
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I've been wrapping for years and yet I still reply on my DH to pass the wraps to me as they go around my arm. I think he has heard more curse words than ........... well than anyone has.
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Hugz...........bravo, kudos and WAY to go girl. What a feeling of accomplishment.
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So, Marple, what you're saying is that wrapping is a relay event in the Olymphics! Sounds like it's a spirited event at your house!
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The wonderful therapists who have taken the time to seek the needed training are surely not candidates for our cynical fun-poking!
So true , Carol. I have to applaud my LEist who travels all over the country as a Vodder trained instructor. -
Lymphedemaproducts.com incorrectly sent me 6 cm x 4 m gauze instead of 4 cm x 4 m gauze. They were amazingly fast at sending me the correct stuff and told me to keep the wrong ones or donate them to a clinic.
I'm not in active treatment and the LE clinic that I used to go to is 2 hours away, so I thought someone reading this thread might want them. Please PM me if you would like them.
15 BOXES of Transelast Classic 6 cm x 4 m (300 rolls!)
I'll post to this thread when I have given them away.
KS1
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Ks1, I am interested and will pm you, thx
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Unfortunately, the gauze won't work out for hugz4u, so i PM me if you want:
=>> 15 BOXES of Transelast Classic 6 cm x 4 m (300 rolls) <<=
It probably makes more sense for someone living in the US because the box is big (23" x 15" x 11 and 10 lbs) so it's kind of pricey to ship. I just calculated it and, for UPS ground, it's about $23.50 to California, $18.50 to Chicago and $15.50 to NYC. (For comparison, the gauze cost $175 +S/H for Lymphedemaproducts.com)
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I use Transelast Classic or Mollelast 6 x 4 and am interested, but if you find someone in need please send them to them. I am in South Carolina. Thanks Cathy
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I have wrapped my arm just once now and didn't do a very good job of it. Thankfully I have a DH who doesn't mind doing it for me, but I can't imagine how you women can manage to wrap yourselves. So a BIG hats off to all of you. The problem for me is that when my DH or therapist does the wrap, after a few hours my hand gets really crampy and painful. So when I wrapped it myself yesterday I didn't do it as tight and I think I didn't get sufficient compression over my total arm. When I took the bandages off this morning, it looked like the swelling didn't go down at all. How frustrating.
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dreidlteacher ... If you would like the gauze private message me your address. KS1
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OK time to give this thread a boost. I know it's probably meant more for us ourselves who wrap, but I want take my hat off to my LEist. Ive been struggling with my arm flaring up for months now with varying degrees of success wrapping, results ranging from disgusting swollen lumps and bumps to mediocre reduction in swelling. I've been so brassed off with my efforts I fully admit to backing off the wrapping and just giving up partly because of pure negligence and partly because of other important responsibilities to attend to.
That negligence has even had me believing my case is impossible.
Well my LEist wrapped me at my appt couple of days ago and the result was stunning. It gives me hope not to give up (and I have been) and that it can actually be done with time... I guess some of us are just slow learners. (me included). -
Musical, GOOD FOR YOU!!
What an encouraging post! With LE, we're all slow learners.
It's SO HARD to keep on with such a steep learning curve ('specially when it's something we never wanted to learn in the first place
), and seeing that it's POSSIBLE is super important. Self-wrapping is such a great tool to have in your "LE Toolbox" because it gives you the confidence to try things you might not otherwise. Not to mention that powerful sense of taking back control of your life
. You rock! (and so does your awesome LE therapist
).
Ah, Lainey, I hear you! It does appear impossible, but it yields to practice. Try it some time when you're not already frustrated with the stupid LE, and keep on trying until you start to get bits of it right. I sat in the middle of my bed to learn, so the bandages didn't unwind all over when I dropped them (of course, they did sail all over the room when I heaved them, but that's another story...
). You can do this!!
Just a reminder to all, do practice at least once a month just to keep your skill level up, even if you're not swelling. There's nothing more crazy-making than trying to remember all the stupid wrapping steps when you're already over-the-top with a flare.
Onward!
Binney -
Thanks Binney. When good things happen yu'all will be sure to hear about it!
The advice on this board which says there's nothing that competes with wrapping (done correctly)is absolutely correct. Even though there's new garments coming out all the time and unless there's one I haven't heard of yet, I take it wrapping is still the gold standard.
Another great thing Ive experienced with wrapping is that LEist put in a little sponge spot at the crease of the elbow. WELL WHAT A DIFFERENCE! It was the difference between being able to bend my arm almost normally and thus do my daily chores or the whole thing feeling like a useless unbendable batten hanging at my side. -
Have questions for you ladies who have issues with hands/fingers.
I was able to get back to see a LE OT (which I'm hoping does not add up to thousands of dollars). And we're "experimenting" what to do with my hand. We've tried the conventional finger wrap but it pushes the fluid into the webs of my fingers which is where it tends to go anyway. Never paid attention before LE but it seems I have pretty good webs between my fingers. Perhaps that's why I've always had Labrador Retrievers.Lol.
Anyway...the thing that seems to be working best is wrapping with kinesio tape underneath. I asked the therapist today what would happen if I slept with my hand wrapped and not the arm. She waffled and never really said. I haven't had good luck with my arm wrapped, it hurts and I am allergic to the stockinette...had a really bad allergic reaction when we did it last week. (Like intense itching and red welts for a few hrs after taking it off).
I guess my question is ... Those of you who primarily have swelling in your hand and fingers...what works for you? What do you do at night? Am I playing Russian roulette if I wrap only my hand at night? I don't want it moving up my arm ... But until we figure out how best to wrap my arm I don't know what to do.
I'm really thankful for the kinesio tape ... that seems to be helping more than anything.
Love to hear your thoughts.
Thank you. -
I dont have bad hand le but when I burnt my whole hand really bad(blisters) my LEist dressed and wrapped it for me and I wore it day and night for a week or two(cant remember how long) I wasn't wearing sleeves at that time either because this was in my stage 0 time. I only had the gauze on and not the brown wraps. It kept things from swelling.
Btw. I believe my burnt hand gave me a little nudge forward in the LE race.
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Hi Dawne-Hope,
I had a very bad hand flare about a year and a half ago, with the rest of the limb being only mildy affected. At first, my LE therapist had me wrap my whole arm 24/7, but that only seemed to make my hand worse. Then she had me wrap just the forearm and hand 24/7. I made a bit of progress, but not a whole lot. Then, she had me wrap forearm/hand during the day, but just wrap the hand at night (gauze, bandages and a bunch of pieces of foam).
It took months and months of wrapping my hand, but eventually my hand reduced to the point that I could wear day glove. These days I wear day garments (custom juzo glove + sleeve) for 12 hours a day and at night I wrap my hand in gauze and then wear an axilla-to-finger tip Tribute sleeve over it.
The other night my Tribute was still a tad damp when I went to bed. I wore an old too-small Tribute over the gauze wrapping, but it got very uncomfortable and I took the Tribute off after a couple of hours and slept the rest of the night with JUST a gauze wrapped hand. My fingers and hand looked pretty darn good in the AM.
Bottom line, I think you should try just wrapping your hand at night and carefully monitor what happens. KS1
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Dawne-Hope, I wrap the whole arm at night, and don't really wear day time compression much, at this point.
Those web spaces are tough, and what helps me, is foam "carrots" that I put in the web spaces. My wrap is stockinette--and your reaction suggests to me that you should consider the cotton stockinette and wash it first ( my LE therapist buys it, and she always puts a new one on me, and it washes just fine, so I have drawers of it...I keep telling her to reuse it--something like this--http://www.lymphedemaproducts.com/products/tg-jersey-tubular.html
Once, LindaLou posted an image of how she used very aggressive foam carrots--the orange foam.
I have a set up that a LE therapist created for me--there is a palm piece of grey foam, the carrots, a dorsum piece of grey foam that goes to the forearm, and a piece of grey foam to cushion the elbow. I put it all on with artiflex, do the finger wrap over it, then put on the rosidal soft, and then the short stretch bandages.
I did wrap only to the elbow for a while, early on, and got a pocket above the elbow.
As time is going on, I've cut back on the number of short stretch bandages and may try just to the elbow again.
I think the Linda Lou carrots picture is in her images thread, and so is an image of a bandage Steve Norton did on her: the key is to build up the dorsum and the palm as you get more compression, the "rounder" you make the hand.
The arm is a natural cylinder, but the hand is kind of flat. If you wrapped a book, the most pressure would be over the binding, and the pages--the ends. A hand is kind of shaped that way, but if you make it more like a circle, the pressure goes to the palm and dorsum. It's the "law of laplace".
When I took the Klose training class to become a CLT, they said to us, "You can call for help with a difficult case, but not before you try grey foam first."
Try some foam. There's all kinds, and KS1 did a really cool thing with the komprex spaghetti foam where she cut it so her fingers popped through, and it folded back on her palm and dorsum.
Listen to KS1, she's had really tough hand swelling and she's overcome it.
Hang in there.
Kira
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Thank you for your replies.
Hugz - sorry the burns were not good for the LE. I'm glad, though, that the compression on the hand didn't seem to have adverse effects on your arm.
KS1 - Thank you for sharing your story. It encourages me that mine will get better too. I will wrap and monitor carefully. Thank you!
Kira - thank you. I checked the suso site on the kinesio tape section but will look on the foam section (is there a foam section?) to see what you're talking about with the 'carrot foam.' We're doing something similar with cutting the tape with strips and that seems to be working pretty well, although the fluid hasn't completely gone away yet. I see my therapist tomorrow and ask her about the foam. It sounds pretty complicated to wrap over it, though. How do you keep the foam in the proper position while you wrap over it? I have to wrap my dominate hand ...not a pretty sight with no foam, although I am getting better at it.
We tried the tape over the dorsal and palmar part of the hand...like in the picture on suso...down at the bottom...but the tape cut in strips works better than the piece over both sides of the hand.
Is the foam better than the tape? Or is it just because the tape is a relatively new treatment option...is that why foam is considered better than kinesio tape?
I will ask about it tomorrow and keep you all posted.
Thanks again for all your suggestions. It helps so much to know others have been here...and it can get better.
Thank you. -
Dawne-Hope, I think Kira is referring to LindaLou's pictures here at bc.org. Here's the link (I think!):
http://community.breastcancer.org/forum/64/topic/794153?page=1#post_3229671
Hope that helps!
Binney -
Oh, and also, on LindaLou's pictorial about how to recognize LE, on the first and second pages, there are pictures and descriptions of her wrapping technique (scroll down a ways to find them--then go to the next page and scroll down again for more pictures, with one picture of the "carrots" of foam) That's here:
http://community.breastcancer.org/topic_post?forum_id=64&id=751566&page=1
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Binney - thank you!
Will check them out tmrw. -
Ok, so I can't sleep...the pink tape is exactly what my therapist has been doing on me. I've wondered if it would be ok to wear a glove over...and that's what Lindalou did. Hmmm. We have not taken the tape all the way up the finger...just to top of finger webs...I'll mention this tmrw too.
I'm feeling better...
Also, I think it was Kira who mentioned washing the stockinette...total "duh" moment for me. I break out in a rash anytime I don't wash any new bras, cami's, etc., ...the day I was wrapped was extremely hot and humid. Will wash stockinette and try again. -
My therapist wants to stick right now with the taping. She did MLD on me today (which she always does), put the kinesio tape with the 'carrots' running alongside my tendons in the hand and then she put some tape on top of that tape (cut the same way) but had the 'carrots' running to the pinkie finger side of my hand. She then wrapped my finger webs and hand (fingers free) and then I put my farrow glove on top of it. I'm curious to know if the tape going to the side on top of the tape going down will make a difference. We'll see ...
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Dawn-Hope, I got permission from KS1 to share her innovative use of komprex to deal with web space swelling
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Great piks kira! thankyou and thanks to KS1 for allowing the piks....
Those finger bandages look so much better than what we get in NZ, or at least an my local chemist. Please tell me:
- Brandname?
- Are they sort of sticky(ish) where they self grip (looks like it where its folded at the top of hand in pik just above)
- Are they re-usable and if so how many times approx
- Are the edges salvaged (I think thats the word) -
Musical, I think KS1 just used transelast bandages, which are typically tossed after a few uses. I remember she had issues that they tore up her cuticles, so she used zinc oxide ointment. There are resuable cotton finger wrap bandages by KT. You can wash transelast, but they get ragged.
Transelast is usually folded in half to double it, I think for fingers it's the 6 cm: http://www.lymphedemaproducts.com/products/transelast-classic.html
Here's a link to the cotton fingerwrap: http://www.lymphedemaproducts.com/products/fingerband.html
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Quote
Transelast Classic is a white colored, firm grip bandage with a soft, close weave. The special knitting technique yields highly-elastic properties without containing elastic threading. This long-lasting bandage is both breathable and durable conforming well to body contours and is ideal for applications on edematous fingers and toes.
Unquote
Thanks kira. Your 1st link doesnt work, but is OK pasting into browser. WOW! this sound really great and everything I'd want if I can score it here. I'll be showing this to my LEist. Its soooo cheap. My bandages I get are great, slightly sticky extremely convenient BUT EXPENSIVE and if you spend a LOT of time carefully unwinding them, laying them out flat and gently washing, you might at a pinch get 3 uses, but usually its only 2. Theyre 3$ a pop!
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