May 2013 surgeries

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  • Run4Us
    Run4Us Member Posts: 78
    edited June 2013

    Oh my goodness... ckmoss.  I have been off the boards and just saw this.  I hope you are doing ok...my prayers are with you!!!

    Hi everyone I'm doing pretty good from my chemo...only thing is the anti nausea meds seem to work...but O sleep all the time from them.  BUT i can't complain..that's all I'm feeling right now.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Sleep is a good thing Run!



    Ckmoss- How are you doing?

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Hey Guys, still in hospital..other than my hand rhat they have stuck to death..trying to get in IV. Not much pain..drain.s not bothering me ..but rarely up... very sleepy as they are in here constantly..as I'm sure yall all know..,surgeon said chemo was going to be put off for weeks...they've had me on infusion antibiotics..I'm pretty much over this whole cancer thing. Don't want to play anymore!,

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    I'm so sorry CKmoss.  (((HUGS))).  Glad you aren't in pain and hope you are home soon.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Oh man ckmoss! Im sure you are beyond frustrated with it all!

  • AnnBR
    AnnBR Member Posts: 853
    edited June 2013

    Run, that's great news about your treatments, I pray they continue to go well.



    ckmoss, I cannot imagine what you're going through but you have remained SO STRONG. We're all pulling for you!

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    I'm Home!! I was reading my post before..please know that was typed on a phone and on morphine..lol..I AM incredibly tired. I haven't had more than 4 hours straight sleep since Thursday....I have TWO DRAINS...but its ok! As he said we are going to make sure that we fix me up right! He ordered 8 bags of antibiotics over the past 3 days..during surgery cleaned it all out resewed..he has ordered me not to use hand at all for 2 weeks..do nothing (typing doesnt count does it?..Im just using my fingers!..and I can't not have ya'll!)..I am over this cancer thing, though...just feel like I need a breather from it all. So I am glad that he is pushing back chemo another 2 weeks..I don't think my body can take it.  The hospital wouldn't have been that bad, except them trying to get vein..at one point this fool (trying to be G rated) found one in my pinky knuckle..he was all big heaeded..saying "I can find veins where no one else can" ..I endured 24 hours of that and couldn't stand anymore..another nurse found a better one.  Who puts a huge thick iv needed in your pinky finger??? They took so much blood that first day, when they walked in at 3am Sat..I burst into tears just seeing that little tote they carry needles in..this kind lab tech..found a vein..took extra vials of blood..and said not to let anyone else touch me to tell them she had extra!

    Well enough of me!  I hope everyone is doing good. I saw all of your post and I THANK YOU for them!!! Prayers and kind words meant the world to me..help me keep me out of Pity Party land!

    MShelton=Congratulations on no chemo!!  That so fantastic!!

    For all of you having chemo-I hope and pray is not too hard on you.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Glad you made it home.  I hope you finally get the rest you deserve and you are soon pain-free.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Ck: so glad you are home. It makes my want to cry (and that's unusual for me!) jousting thinking about everything you've had to deal with!! I truly believe that He will not give you more than you can handle, so I know that you are an incredibly strong, courageous woman! If I had to endure what you've gone through.... I don't know if you are a Believer, but the homily today at mass, was about how suffering brings us closer to Jesus. You are there Lady! AND you are an inspiration!



    Hey, too, to everyone else. I am doing incredibly well. This morning I had a shower and my dd drove me to town for mass. Afterwards, we had lunch together in town. It really wore me out, but felt sooo good to be normal for a few hours! (Even if I do walk like an "old lady!" I am still taking alot of ibupropon, but nothing stronger. I have my follow up with my BS on Tuesday, and am hoping that he will allow me to go back to work part-time. I know I shouldn't push it, but I thin going back part time next week will be easier than jumping in full time in a week or two. Besides, if I can put in a few hours, I can work on the stuff my coworkers are bound to mess up, and that will save me from extra work later.



    I'm not even really having problems with my drain (already had two removed) My only real complaints are a back ache that won't quit, and this STUPID compression belt I have to wear. My hips are so much bigger than my waist, (esp. now) that the darn thing won't stay where it's supposed to! Any suggestions?

  • mshelton
    mshelton Member Posts: 66
    edited June 2013

    ckmoss--so glad to hear that you are home and recovering.   

    steph--wow already down two drains.  great!!! When they removed my first two, the remaining two more than double their output.  Here's hoping that tomorrow they are gone finally.  

    Found out that the plastic surgeon put in 700 cc each and I'm fully expanded.  I had asked for small breasts but I guess he thinks he knows what will look more normal on me.  I will have to think about this.  Putting in such a large amount of saline at one time has made it very uncomfortable.  I'm still using hydocodone at night to sleep due to discomfort.  

  • Chinneymae
    Chinneymae Member Posts: 339
    edited June 2013

    Steph01: It was one of the hardest decisions I've ever had to make. I did so much research, talked with so many women, and prayed, prayed and prayed some more. I'm just going to put it in God's hands now and move on. I'm so tired of fretting over this thing. I've had two relatives that had mx and they didn't do Chemo or AI (they didn't have it then) and they lived over 30 years and died of something different. I figure maybe I'll be like them. I plan to boost my immune system too and eat healthy. I sure hope you don't have to go through this. I'm praying for a low score for you.

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Gowith-Thanks!..and I plan on getting some great rest tonight...tried to sleep some today, but too tired I guess.

    Steph-Thank you so much for your words of support...and yes, I am a believer. And...Im stil hanging on to my rainbow sign.

    MShelton-I so hope those give you some relief soon...so you asked for small breast and he is making you bigger?..Is he by chance a bosom man???...lol..just kidding..!

    Chimney-How was your beach trip?

    Run4, Anne AMBNH--How are ya'll?..Anne, you still have sinus infection? Was that what it was?

  • AnnBR
    AnnBR Member Posts: 853
    edited June 2013

    mshelton, wow, 700 ccs. We're you prescribed a muscle relaxer? I had my first fill last week and they put in 125 on each side. I have my second fill on Thursday and they indicated they may put in 150 or more. Last night and today I had a few spasms, but they weren't too bad.



    ckmoss, rest, rest, rest!!!

  • honeybunny96
    honeybunny96 Member Posts: 120
    edited June 2013

    ckmoss.... so scary.. so glad that you are OK though.  My thougths are with you and that you get to have those drains out in a week or so.  ~~Quick healing~~ for you

    mshelton.. yay about no chemo and a drain out! Here's for ~~quick healing~~ for the next one.

    AMBNH.. I hope no drugs for you, but if so, that they catch it early ((hugs))

    ((hugs)) to all and anyone I have missed, I am sorry.

    It's very surreal here in Calgary, as the whole of Southern Alberta has been dealing with flooding and evacuations ect.  We were very lucky that we don't have to deal with it except to help where we can.  I feel very, very luck. But oh the devasation around has been horrible.  Please pray for everyone if you can.  

    I have an appointment with the oncologist to find out what's next.  Chemo, Radiation or Nothing. I'm really praying for the nothing part.. but what will be will be.  I know I believe I have said that before.. but it's getting scary as the apointment time is coming around.  

    I have a question I am hoping you all or at least some of you can answer.  After your surgery did you just have stiches and steri strips? or what did you have holding you together? I have steri strips.  It's been 3 weeks and I still have a lot of them still on... which to tell you the truth, can come off... I have just been too chicken to do.  Last week I tried in the shower as it's easier and less pulling, but did I get dizzy, so I had to stop.  On of my fears is, if I take them off, am I going to open up again?  Well I know the answer, no.. but still... It's hard.. especially when I find it hard to take a look in the mirror.  I am going to have my DH help me take them off... I am going to take an ativan and let him go at it.  I know it's all in my head.. but still..  Talk about wierd dreams, I had a dream where they made boobies in the freaken buffet line out of food Embarassed.   Oh why yes.. I'd like a nice medium prime rib please.. make it a full one, not too much cat. Yell (yeah it's ok to laugh.. because I am) but wow.. what a dream.  

    well.. time for a nap. I did good and walked for an hour today.  YAY me! I tell you I was able to walk twice as far this week as last week!! Whooo Hooo!

    Thank everyone night.  Sweet dreams for everyone.  XoXo

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    HoneyB-LOL...Now thats a dream!!!   My surgeon has told me both times (MX and port) to take off steri stips after 10-14 days..But he said to have my husband take tweezers..clean them with alcohol...and pull off very, very, slowly.  Steri strips stick stronger than any other tape or bandaid.  So we did that..it didn't hurt at all..mainly because there is no feeling there from nerves cut.  Just tell him to go slow..After you have had warm shower would help.

    Thanks for the word of support as well!  I was lying in the hospital bed last night..flipping through tv channels...It was on the news about the flooding.  I thought of you and I prayed for everyone affected by those floods up there.

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    AMBNH-I got you and Ann mixed up. Well, just the writing of the names...How are YOU and the sinus infection?

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Oops! Almost forgot!  For those of you who are either going through chemo or will be ...I found this woman on ebay the day I went into the hospital,  who sells sleep caps and scarves for chemo patients. She started making them for a friend that was having chemo..ended up tweaking it to make more comfortable..and now sells on ebay.  Whats great about them is they are cheap 5.95 a piece..no shipping..It was just what I was looking for..something simple that I could sleep in and not have to pay 20,00 for.  http://myworld.ebay.com/englishtraditions/&_trksid=p3984.m1439.l2754

  • AnnBR
    AnnBR Member Posts: 853
    edited June 2013

    Honey, isn't it absolutely crazy what happens in our dreams? That is too funny!



    My incisions were held together with glue and I had internal dissolving stitches. I was told not to rub the area when showering but I wouldn't have wanted to anyway, it was too tender. After three weeks I could remove the residue with antibiotic cream of all things. Came off beautifully. Good luck with yours!



    Ann

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    honeybunny, I took mine off at about 3 weeks. I had stitches inside, then the strips.  I would slowly peel it from one side, then the other, then gently pull from incision.  Couldn't feel a thing.  There was a few spots that I didn't think were healed enough, and I left those on for a few more days.  Just do a couple at a time.  You'll see that it doesn't hurt a bit.

  • Chinneymae
    Chinneymae Member Posts: 339
    edited June 2013

    ck: We are still here. It's great and relaxing. We just got back from cruising on the golf cart. Are you feeling better?



    I woke up this morning and my incision on my right breast has opened up in two places. After six weeks!! I can't believe this. I put some Neosporin and a bandage on it after my shower this morning. I sure hope it doesn't get infected. I will call the PS in the morning and see what I need to do. If it's not one thing it's another.



    Huneybunny: I had the glue and steristrip. My PS said to put vaseline on it and it will loosen up. That did help, mine just started coming off.

  • honeybunny96
    honeybunny96 Member Posts: 120
    edited June 2013

    OMG melt down... I was ok with the steri strips on.. but the moment they were ALL off.. meltdown in the shower.  I'm still crying.. I don't even have the energy to look at myself now  Cry Please drugs.. kick me into oblivion.... 

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Oh HoneyB-I'm so sorry!! Just go ahead and cry and let it out!  It helps to relieve the stress! I know I never cried over diagnosis (just a tear or two), lumpectomy..when that didnt work the MX..but had complete meltdown when I couldn't get MX side stuffed to match other side..I am generally very positive person (I seriously hate negartive feelings)..so I've been constantly surprised at what sends me into tears..I think we are all holding on so tight inside to our emotions that we don't realize it until it just comes. So I think is good to cry..for whatever reason. 

    Chimneymae-I sooo want to be there with you! The ocean always did wonderful things for my spirit.  Prop me up on a loungechair in the sand with a book and my coffee first thing in the morning and I am in 7th heaven!

    I'm doing well.  The surgeon sent off Friday a culture of I guess whatever was in my MX site..Im curious to hear what that was..All those antibiotic infusions and he sent me home with 1500 mg daily antibiotic for next two weeks. He gave me strict orders not to use arm at all..so Im not.  I have cooked pretty much through this and have done light housework..just because..well it was there and I was bored..but not doing anything now.  If I could go back and change anything..it would be not to have used my arm so much.  I thought you should want it to produce and get as much flu id out as you can..I was wrong. You want it to dwindle and dry up.  He said that didn't mean that was what caused it...he said it just happens sometimes...OH BY THE WAY...This time he didn't glue and do internal stictches..he DID OLD FASHION REAL STITICHES  OMG..!!!!...The fun never ends here at House O Moss!  lol..

    Sweetpickle-are you back at work now? I know you did a couple hours the other day..didn't know if you were back.  Also, someone at hospitaly said that when they cut your abdom for DIEP or any kind of plastic surgery ..pain was horrible...is this so?

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Ckmoss- I dont work, staying at home and healing up. My stomach pain from surgery sucks but is getting better.



    I spent most of yesterday crying and feeling sorry for myself. I think the impact of the past year ia catching up with me now that Im cancer free. In the past three years Ive had dh had his third heart attack, my twins were diagnosed with autism, my dad died and then mu FIL died a few months later. The week my FIL died is when I found my lump. So y life has been one thing after another for a very long time. I keep looking over my shoulder afraid of what might be next.

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Sweetpickle-I am sooo sorry for all of your losses.  You have, indeed, had a very rough year..but think of it this way..its already started turning around..because you BEAT THE HELL OUT OF CANCER! You are now are able to take care of your children and your husband and will be here for a long time to do so. So no more bad news for you, as you have had your share...I know we say this a million times to each other..but you are sooo in my prayers and in my thoughts every day..

    All of you are.

  • AnnBR
    AnnBR Member Posts: 853
    edited June 2013

    sweetpickle, I too, am so sorry for your losses. I don't understand why so many things happen all at once and you've certainly had your share. You have a right to break down and feel sorry for yourself, we can only handle so much. Anytime you need to pour out your emotions, remember we are here for you.

    Take care.

    Ann

  • Chinneymae
    Chinneymae Member Posts: 339
    edited June 2013

    sweetpickle: I too know what it is to have so many losses. (My eighteen year old daugher being one). You just have to hang in there because with time it will get better. You have definitely been in my prayers and I will say an extra prayer for you for strength. God doesn't put any more on us than we can handle (although sometimes we wonder). You will get through this and be victorious in the end. :)

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Sweetpickle, ((HUGS)).  I'm so sorry for your losses.  

    CKmoss, glad you are doing better at home.  Hopefully you got some good sleep last night.

    Honeybunny, cry away!  I've read that a lot of women cry after the surgery.  It hasn't bothered me yet.  I'm embracing wearing tank tops and camisoles with no bras.  I don't think I was ever really attached to my breasts.

    I hope everyone has a great day.  Today is my 6th rad and I"m holding up (much better than my sharpie drawings are).  I've tried to use my lotions around the markings, but between those 3 or 4 times a day and showering, and sweating from the heat, it's not looking good.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Honey buns, so glad I am not the only one with crazy dreams. Kind of makes you wonder what Freud would say, huh? My incisions are held together with dissolvable stitches and glue; I am allergic to the steristrips. As for. The breakdown in the shower: we all need some tears! Its not just the way you look, it's everything. And you have a lot to cry about! Get it all out!



    Sweet pickle, no wonder you picked this screen name. You've been in a real pickle foe a few years now! Go ahead and feel sorry for yourself once In a while. You're allowed! AND it will help you cope with everything else if you allow the occasional sad thought to overtake you.



    We all handle things differently. For me, my breakdown came when I slammed my finger in the door. I took one look at my blackening fingernail, thought "I am going to lose that nail" and burst into tears. Who woulda thunk it?



    Go with: when I had rads last year, they actually gave me 3 tiny tattoos. So I still have my marks. 😊



    Hope you all have a great day!

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Thanks guys, feeling a bi better today. Took a hot shower which helped me relax some. Going to try and walk to the mailbox and back today. Baby steps.



    Hope everyone has a great day!

  • Isellrejer
    Isellrejer Member Posts: 38
    edited June 2013

    Ck, I had my dmx on may 17th. First 3 drains out 1 week after surgery. Last drain finally out almost 3 weeks after surgery ( cancer side right ). I have a sarcoma on on the cancer side now, drained 85cc out last Tuesday. I go see ps tomorrow for pre-op and to drain again so he can operate on it on Monday to scrape it all out then put new drains in. Just scared and wondering how bad this surgery is going to be. I won't get my expanders in until after this is all taken care of and cleared up.

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