May 2013 surgeries
Comments
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ahh good evening. I'm just catching up.. thanks for the welcome everyone. ((hugs)) to all. I went and was able to find two mastectomy friendly shirts that I can wear to work while I am healing. DH says they look good one me... so here's to retail therapy.. right cateyz? And congrats on driving for the first time.. how's the freedom feel??
So funny from my house today.. I was going to work this morning (just for a few hours, as it's all I can handle right now). So I was getting into the van, as it's pouring rain outside. I have my bag over my shoulder, instead of my arm so it's easier to carry. I have my water cup (lid with straw) in the same hand. So I waddled out to the van as fast I could so I don't get too wet and what do I do.. I open the van door only to reach my right arm up to get the bag inside.. to have water pour all over my head... yup... full water cup.. straw + tip = free shower. OY! ah well... at least it was raining, so no one really noticed. But I was shaking my head.. so glad no one was with me. DH wouldn't let me live it down.
I hope everyone has a peaceful evening.. I just took my happy pills and am going to crash
night all.. and thank you....
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I've done that Melissa, but with iced coffee and lemonade. At least yours was water. Hope you get a good night's sleep.
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Congrats sweetpickle on being drain free. Yeah! Congrats to cateyz2 for driving! Go, glad to hear your first rads went well.
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Thanks Ann. Hope you are doing well!
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Good Morning all! I'm hoping today is going to be good day!! I see my surgeon today. I'm hoping he has solution for the Sedona leakage yuck stuff. I'm willing to get a drain put back in..anything..Although it doesn't hurt. Ive gone to using maxi pads..as gauze changing 7-8 times a day..enough to catch it..is breaking the bank..well, you know what I mean..it gets pricey..maxi pads are thick too. Still MAJOR AGGRAVATION..and metallic smell on my nerves. Plus, hoping infection gone.
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Good morning, all!!
Ckmoss: Girl you sure need to have something done about that. Not only is it expensive, it's aggravating!! I sure hope your surgeon can do something about it. I hate you are having to go through all this. At least your body is getting rid of it.
I found something that feels like a bb right toward the center of my chest just under the skin. It feels solid and it moves around. I hope nothing was left in there. It feels really funny. Anyone had anything like that?
We are heading to Charlotte today to the IKEA store to get cabinets for my empty kitchen. I'm looking forward to having a functioning kitchen!! -
Ambnh-- we r on the same schedule! Have u lost any hair yet??? I've felt ok except for this port. Had 2 very tired days in bed. Prilosec has been on my list of drugs!!!! Are u having any problems sleeping??
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Chimneymae-Love Ikea!! You will def get your walking in today! Great places to eat, exit 54..University Place. Can't remember if thats exit before or after..I think after. But like only a mile or so up. Have a great day! I've no idea about bb..I thought to myself..as every time I have procedure done or see a doctor..there is someting knew I have never seen or heard of happens..so I thought when I read that..God only knows.. This has been one crazy ride.
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Hi Alibeths! Nice to meet you and I'm really glad to have someone in the same schedule!
Sleep-wise, it's been my tissue expanders that are affecting my sleep. Still in a recliner almost 5 weeks post surgery.
I have felt pretty good so far with the chemo up until last night. I awoke battling a fever - chills, 100.6. It broke towards the morning but I put a call in to my medical oncologist to be safe.
I haven't seen my hair falling out yet but my daughter said its thinning on the top of my head. I am constantly rubbing my head stubble to see if it comes out! I stopped having my eyebrows waxed in March when I got diagnosed in hopes that if they got good and bushy some of the hairs might not fall out! I'll let you know if my approach is successful or not?
When is your next treatment? Mine is 6/27.
Have a great day! -
Chinneymae, I felt that bb thing too, got grossed out by it, and am now ignoring it. LOL, my coping strategy. Probably should ask my PS about it!
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AMBNH-I HATE to hear you were up with fever last night and still in refliner, no less. I'm so sorry. I hate the chills..when I had the other day all I wanted was to crawl and lie down in hot bath..course couldn't do that..but it was almost like a drug pulling me. I sooo hope you feel better!
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AMBNH...Thank you SO much for posting your experience with chemo...I am starting the same drugs TOMORROW....I'm a nervous wreck!!! I didn't sleep much last night. Reading your experience and tips really, really helped. I have been told it is important to drink to flush your system, which will be difficult for me since I'm not a big drinker of anything. Hearing you say you think it makes a difference has kicked me in gear. I'm going to go buy flavored stuff for my water to help me drink more. Do you have any suggestions for what type of lotion to use? I also heard that your skin gets very dry. I bought the claritin for when I get the Neulasta shot. If I understood correctly you took the claritin the day of the shot and 4 days after. Is that correct? I'm going to run to the store today and pick up the other things you mentioned.
I have such a nervous stomach about tomorrow. The fear of the unknown is always difficult...so I'm anxious to get tomorrow over with.
Thanks again for posting your experience.
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Run4Us- Before bc, the only thing I drank was diet soda. When I started chemo I became very thirsty and while sprite or ginger ale settled my stomach, I began to crave water to quinch my thirst. Your tastebuds change too while on chemo and I got picky with my water and ice. We areona well and I had to havebottled water qnd bagged icefrom the store. Dont know why other than tastebuds changed. Im back to being able to drink tap water and Im glad. Water is so much better for you. Just wanted to let you know that switching to water may be easier than you think.
Good luck tomorow! -
Thanks sweetpickle...I have been trying to drink more water. I thought I was doing pretty good until I found out that I need to drink 8 - 10 glasses a day.
I'm not sure if my expanders are bothering me or I feel my port poking something in my chest. I woke up this morning with a very heavy feeling in my chest. When I swallow I almost feel like something is in there. Last night for the first time I slept part way on my left side ( non port side) and I'm wondering if I irritated my expanders or port somehow. I'm so tired of feeling miserable. I try to stay positive but some days are so difficult.
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Thanks ckmoss for showing me how to put my info under my posts.
I couldn't remember the exact dates for my surgery and treatments back in 2006. I knew the month and year but not the day. I guessed on that...hope that's ok. I never thought I would forget those dates but when I had a recurrence I pushed them right out of my mind.
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Run4us, I used whatever lotion was easiest. I did some philosophy lotion, then changed over to a lotion from a spa I went to last year. the pumps seem to be easiest for me. I also used udderly smooth on my feet. It's really good at moisturizing them since they tend to dry out. When I developed hand foot syndrome, I used udderly smooth a few times a day and also Burts Bees peppermint lotion because my feet felt like they were burining.
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Thanks Gowith... putting those lotions on my list for my store run!
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Run4Us, I'm so sorry you are so uncomfortable. My TEs are making me miserable, too.
I guess we can only take it one day at a time and know that the finish line is really there and things will get better.
You are hugged ( very, very gently) from here. -
Hi Run4Us, First, good luck tomorrow. You are going to be great!
Yes, I took the Claritin right after I have myself the shot. They told me to do that for 3 days but I ended up needing it for 4.
My skin seems to be doing ok so Zi just use Vaseline Intensive Care lotion. Always have used this.
Please let me know how your treatment goes! -
Thanks, Ckmoss. I just wanted to stay under my blankie forever. I even had to put on one of my head caps cuz my bald head was cold, too.
Muscle relaxer is not having much of an effect. Still feel like I have s throbbing chest 24/7.
Oh well. Beats the alternative. -
AMBNH-I'm sorry muscle relaxer is not working well. I've been taking a half one for a year now (originally prescr for pulled muscle in back)because they help me sleep so well. My gen Dr had prescribed me everything under the sun, even Ambian, and thought I fall asleep none would keep me that way..So that (Soma) works well. I have been taking whole one PLUS a motrin PM when Im not on Percocets to help sleep over the Lortabs (speed me up) and just plain pain. Where did you get your head caps to sleep in. I asked on chemo board and got some great websites,,but wonder is there a place around that sell cheap..just something to sleep in. I checked 2 walmarts..no luck.
Run4-My onc nurse said that Crystal Light can be counted as water..she is right too..If I drink like 24-32 oz of that I am in the bathroom non stop. ...the better to get the crappy chemo out! Pomegrante cherry is my favorite. followed by peach tea.
Sweetpickle-Aww is that you? You are kinda how I imagined you! Very pretty!
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Just came from surgeons..he is wanting to do emblazon (sp?) at site where fluid coming out (serona). I asked him to please tell me if I needed to come all drugged up as tired of being surprised with pain. He said no...hmm..I see ativan tomorrow in my system..still infected..he said can take weeks..sighhh..
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Ckmoss- aww thanks, that was me at chemo number two. My hair started falling out in clumps just hours sfter that treatment so I shaved my head. Just now getting some downy coverage back.
So sorry to the new TE folks who are in pain, I hope it lets up for you soon! -
All I can say is thank GOD for TV reruns! The Golden Girls and Law and Order are keeping me sane!!
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Just got back from IKEA and I can proudly say I will soon have my kitchen back!! I can't wait!!
AMBNH: This bb thing is freaking me out!! I go back to PS on July 2nd. I'll get him to look at it. I'll let you know what he says. I'm sorry you are having such a time with the TEs.
CKmoss: I hate you are having such a problem with infection. I hope is clears up soon. -
Chimenymae-Thank you! ..was that your first trip to IKEA? Its something else isnt it?
AMBNH-LMAO! I am soo there with you!!! Me is House (they are all worse off than me..and his sarcastism suits my mood..lol) and have ..Lord have mercy on me..got hooked on food network reality shows..Giving you the Business. Next Foodnetwork star, Rest Impossible..I hate reality shows!! I love Law and Order too..SUV and original one. At lease it gets your mind off yourself somewhat, right?
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Run, I understand about the TEs. I get a fill tomorrow so I hope it's not too uncomfortable.
Ckmoss, I wish I could give you real live-in-person hug. If I lived near you I would bring you dinner. You definitely need a break from all that's been happening!
Ann -
Ann-thanks so much! Exactly how far is Iowa from SC? LOl..I was just thinking through my lumpectomy and MX..people constantly bringing food ..which was nice..but when I needed was through this and port as no energy..husband working extra hours trying for all these bills..but its ok..by no means am I starving..Im gaining from sitting on butt all day~ How did your party go?
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ckmoss, my party is not until July 7 (it's hard to keep track of everyone). I am getting very excited about it. I've gotten a lot of comments from gals who have gotten their invitation and said they are coming. I will share highlights.
I hope everyone is having a good night. I am tired after three days of work. Tomorrow is a 3.5 hour drive to Mayo but my DH will drive so I can sleep!
Ann -
Ann-Oh sorry. My problem is keeping track of days/dates since being out of work. I waited 30 min on exterminator to come (centipedes on side of outside porch..ick) ..called and they are like that is tomorrow. I try to explain that I am on drugs and simply not responsible. lol
I hope all goes well tomorrow.
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