DIEP 2013
Comments
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I can't wait to ask questions about incisions, drains, pain and everything in between! I know I'm a bit kookie!
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Hey sherry....not kookie, just rookie!!!! just over a month to go for you...then you can be one to ANSWER the questions!
hmmm...how many of us are still up?
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jakig-glad to hear you are coming along!
My PS explained the belly button thing like this - she said she doesn't actually move your belly button....it is where it is internally....and it's attached to you internally. So they make an incision in your skin around it to free it from the flap. Then, after they pull the upper abdomen skin down towards your thighs, they make a new hole in that pulled down skin for the belly button.
Did you have mx with immediate reconstruction? The way you describe the scar you expected sounds like a mx scar does (with no reconstruction). Your eye-shaped scar (or football shaped as some people say) sounds like a flap scar. But maybe I am not getting what you are describing. I know that nipple sparing and skin sparing surgeries can affect scar shape too. -
bailey.....why are you still up???? Perfect explanation of the belly button change of address.
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Because I am awake. My turn for a bit of insomnia I guess. Although I am starting to yawn.....good sign.
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me too, I'm heading for the pillow, just as another storm rolls in.....hoping for thunder an lightning...for some bizarre reason that puts me right to sleep. Hope your yawns are a sign of a good snooze for you too.
Night.
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She chirple,
I was out of work for 7 weeks, I was headed back at 6 weeks but ended up getting vertigo ( holy hell!! )
I knew right away I had made a good choice but the healing took me longer than I expected too.
I am at 9 weeks post op and back at the gym run/walking 4 miles a day and thrilled that I had this as a choice.
I am so happy with the results and looking forward to completing this process before the end of the year.
Most of all I am happy that I am starting to get my old life back and doing the things I did pre BC 😊
Hope everyone is having a good week, goodnight all 😴 -
I'm always late to the party.......
. And I'm still sulking a little over the gloob reveal to the PS..... AND the TimTams....
I am really tired tonight, but wanted to wish the ladies up tomorrow good luck.....you will do just fine......this time tomorrow night you'll be on the other side!
Lilyun, what Nihahi said......your son sounds like he trusts that you will be okay with this, so he feels safe opening up to you. That's a good thing.
SheChirple-my DIEP experience was not one for the "Good" column.....but after seven weeks I started to feel a change in my energy (for lack of a better word).....I would go through it ALL again, to be where I am now, and where I hope to be by the end of the year. It DEFINITELY was worth it! You will get there, be patient, Grasshopper ( as a wise woman on this thread once said ).At some point, it will all click for you, I promise!
Kuka, that's good news on the knee! Now stay off it, and Ice Baby, Ice........
I know I am leaving lots of stuff out......can't stay focused.....laters......
Namaste and God bless - Jackie -
Well, here I am. I departed my bed in a huff after a leg cramp woke me up.
Jeannie, about the muffin top question--I asked my PS the exact same thing. I was worried they'd take the skin/fat from my lower abd and leave me a ledge up above. He laughed. The entire abdomen will be reshaped, he said, and he was right. I'm 2 months post-op, and there's still a little swelling above the incision, but overall it looks wonderful. And he said he'd make it even better with Stage II.
Shechirple, I'm so sorry you're suffering and questioning, even a little, if going through this was the right choice. I hope you continue to improve, day by day, and eventually decide it was worth it. And I'm also sorry if I seemed to rave a little too much. I've always tolerated this sort of thing pretty well, and don't get a lot of post-op nastiness or nausea. Just dumb luck, I guess.
Nihahi, I LOVE thunderstorms, and you can't buy one in So Cal. When we first moved here from Colorado in 1997, there was a mild thunderstorm, and we thought it was hilarious that the local news van was covering it as "Storm Watch '97." Now we understand!
Going back to bed now. Of course, my husby slept through all the screaming and dancing around. Darn it.
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SheChirple - I think that 'trying to be positive' is all we can do. If you don't really feel it - you can't fake it. I think it's worthwhile mentionning that you're not over the moon about the DIEP, and it's not instantaneous bliss. This is our bodies we are talking about - and I've had buyers remorse about much lesser things. For your sake though, I hope it gets better.
TypewriterJenny - The belly pain for me is about 6/10. I can get very comfortable, but if I twist or bend at the wrong angle, little stabs of pain. Mostly it's just restrictive - I can't stand upright and there's a tight pulling across my belly. But - I'm only five days post surgery - so I'm doing pretty well.
As for Dr No-Show, you ladies brought up some good points. I'm not familiar with operating room potocol, but I am going to find out. I'd like to know if they can give aneasthesia without the BS's presence. And I did indeed sign a consent form. Must get all the facts. My DH (Jim) is livid - but I told him that it's a waste of energy until we get the facts. So easy to be reasonable on morhpine.
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Isn't it supposed to be early to bed, THEN early to rise....wish that were true. sbelizabeth..my hubby used to get screaming leg cramps too, not fun! Not as much of a bang and flash last night as I'd hoped for, but lots of rain (again). Now they have heavy rainfall warnings out again. This weather is coming in from Montana, so would you guys PLEASE stop sending it up here!
Movie...your Waterton photos are going to be a little soggy! You must be having some really busy days, catching up from being away. Don't overwork yourself and get sick again.
Janet...you raise a good point, to be well listened to by our fellow flappers who wonder why they might not be "over the moon" happy. I don't think there is one person, who has nothing but joy and happiness throughout this whole process. We ALL have our moments, of dark clouds, but by "sharing" mostly the positive, is how WE get through it. Trust that we understand the words of doubt and frustration. We are all wired differently, and like often mentioned, no medals/ ribbons/awards are waiting for us.
Kuka...hope that knee is starting to improve.
Bailey...fancy lingerie on the schedule for today??? I'm waiting until I don't have so much "lubing" going on the tummy all the time. Just can't team up Glaxal base cream and lace!
Hope today's ladies got SOME sleep last night....probably starting to slide into the pre-surgery stuff by now. Sending positive vibes out to you both.
Coffee is ready....catch you all later.
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Hello all. I am 10 weeks post op and just noticed my left breast is leaking a small amount of clear/pink fluid and I can feel the tip of a stitch poking out but not enough to actually pull it and cut it. I just started back to work yesterday and have a business trip out of state tomorrow. My breast surgeon is in surgery today so I didn't bother calling. Do any of you think this is something to be concerned with. I have no pain or fever and feel fine and by small amount of leakage around incision, it's only drops...
Your thoughts?
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Cheri...sounds like your body is "spitting" out a suture. This often happens to me, the dissolvable ones just don't seem to all dissolve in me. Keep that area clean, a bit of antibiotic ointment on a piece of gauze, and monitor it. The stitch might dissolve, might poke out enough that you can remove it. If the opening gets bigger, redder, warmer, swollen, drainage becomes more goopy (yellow or greenish)....best to get it checked out. But, likely, it'll resolve on it's own. Sounds like you are doing well!
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Nihahi that was exactly what I think is happening and funny thing is instinctively I put antibiotic ointment and a piece of gauze on it this morning before I left for the office. I will just keep an eye on it then. Thanks!
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Well today's flapper girls are probably underway as I write....special prayers for their "people" as they wait, and wait and wait this long day. I always say cancer didn't just happen to me....it happened to everyone that loves me.
I may have jumped the gun on the VS panties....they look pretty in the drawer lol! And I am happy knowing they are there. But I find myself still too juicy or lubed up to wear them all day. So, new troops are at the ready, but I am sticking with the reserves for now. (Stomps her little foot and sticks her lip out).
But I am going to have Thing 2 (my youngest son) load bikes on the carrier and see how it goes. And I will start baking today for the fundraising bake sale / garage sale being put on this weekend for a girlfriend in need.
Find something to enjoy today! -
So as Liefie said, the feeling on your tummy does come back. I'm 22 years out from a tummy tuck/abdomnoplasty - my reference to DIEP. I thought "what the h did I do this for" after I had the surgery for weeks later. I didn't have the necessity of bc then, but was a recent widow and 4 kids with a tummy full of extra extra extra skin and no muscles underneath. Insurance even said it was a medical necessity so they paid for it.
My gall bladder scar, 1 emergency C section scar, and hysterectomy aftermath were all moved south - no longer horizontal and vertical scars , just new low bikini area scars. I had no feeling on tummy at all, had my same button, but the belly was new around it and they did the exact operation minus the boobs. This was before "mommy makeovers ". First son 12#14oz. BIG football player sons, 3 of them, born vaginally then one tiny 8# daughter emergency hysterectomy!
I didn't just want the tummy tuck, I NEEDED it. But, I too had doubts for a while after. Then at some point I was super happy I did it! That is until I found out I had bc and had killed my shot at using my own tissue for my breasts.
I like bargains - seems like 1 surgery to get 2 benefits is a pretty good deal! I didn't have a lot of "fat" on my tummy then, but had an over abundance of skin. It just got dumped. Dr said no way could I lose that by exercise!
So it's been 22 years and THIS morning I checked my tummy and my flap, and NO feeling in flap but yes feeling on tummy. I just never thought about it - didn't question IF it would have feeling, just thought it would, it does.
Belly button healed so good (the circle around where they put the new belly around the old button) that there is no way to know it was 'fixed'.
No way do you have to wait 22 yrs, but I'm just saying.... -
I can't stop thinking about getting my belly button pierced (yes I know lots of healing time and PS permission before) but every time I look at it I think, "That would be SOOOOOO COOL!"
LMAO! Then I think, I am 47 yo mom...they tucked your tummy not your age, dumbass!
But then I think TOWANDA! So who knows lol...
Also on belly button topic.....how many outies became innies at sx? Any outies still outies after sx? Did you have to request PS leave you an outie? Curious! -
Quick question: anyone have any deep itching above their TE placement? I don't know if it's nerves waking up, or what. It's deep internal itching at the top side of my breast from sternum curved towards my armpit. Making me CRAZY! Going to get my port installed today and more breast tissue removed to widen the margins. Nervous as always, I hate surgery. Anesthesia is not my friend. I have such a tough time recovering... Wish me luck!
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Bailey- I say Towqnda too, heck who cares about age!
My belly button looks like it did before I had kids, love it so far! -
Hang in there Dvygrl......necessary stops on the road. Surgery is never fun...we'll be keeping you in our thoughts. ((X))
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Dyvgrl- good luck! Prayers for you! Port in and out is a pain, but usually a small one, comparatively, hope it is for you today.. And port was my dear friend during chemo. Do you have a date to start chemo? Will be thinking of you!
Oh, deep itching...I never had TE, but still deep itching in same area sometimes. I have the little ice packs they gave me after biopsies and sometimes (not always) one of those on the spot for 20 minutes or so will stop the itch...sometimes a good stretching and walk will do it...sometimes nothing but time helps.
Sweetpickle- yeah, it's pretty sweet seeing the tummy of old again! -
Thank you, ladies, for all of your emotional support. I know I will 'get there' with the no regrets. I know most of my emotion is just that I have been through so much, as we all have, and it's still 'fresh'. This DIEP was more than just BC recon for me. I had been saving my money for a tummy tuck after losing over 100 lbs in the last few years, before I was diagnosed with BC. So, this DIEP is my silver lining. I've just had so many surgeries and can't wait for it all to be over.
I had a nice long talk with my husband last night and he is so encouraging and uplifting.
I feel somewhat better about the fact aht I am not there yet. It has been less than 4 wks and my belly still looks like a battlefield. Some of the edges and ends of the scars are well healed and look great, so I know the other portions will get there.
I slept very well last night. From about 11:00 pm to 7:30 this morning, with only one wake up that I am aware of. That is amazing for me.
I have my follow up appt today, every Wednesday, and I'll be thinking of all of you ladies under anesthesia while I'm there, and all day. I always treat myself to a nice Starbuck's "fru-fru" coffee after my PS appt. because it's right next to the hospital. Too many calories, but a nice treat.
My belly button pretty much looks the same, except for the little circle of sutures (internal) around it. On a real positive note, the scars that are healed are much thinner than I expected. I have one friend IRL that had DIEP and her scar looked to be about 1/2" thick and like a rope it was so hard. Mine are pretty level with my other skin, and look just like a discoloration. So this is promising! I also have no incision pain. My only pain is above the breast, like the pec muscles hurt after the TE expansions. I'm talking to doc today about going off the Norco and trying something less. I want my head clear. I also want some PT help in an exercise routine.
Has anyone talked about nipple recon, tattoos, etc.. in here? That is my cheery subject that keeps me looking forward. I am constantly researching tattoos, artists and designing breast covers as I'm not doing nipple recon, but will have beautiful full breast tats to cover all of my scars.
Well, off to my appointment. Happy thoughts for a more uplifting day!
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Went to my ps this morning. Blister looks so much better. The swelling is pretty much gone and I don't have that much skin to work with for him to be able to cone my breasts or to lower my tummy scar😞. If I loose some weight before stage 2, which will be in August, he'll be able to lower my scar. He will do lipo and fat injections and nipple reconstruction. Not very happy about him not being able to cone my boobs, but I'm hoping the will look good and I'll be able to fit into a regular bra.
I woke up this morning with no pain on my knee, yay! -
I agree on the welcome reunion with the old tummy. Three c-sections later, I appreciate the help. At first, I found it weird that my belly button so much her but I realized quickly that it was just back where it belongs. lol
Sherry - congratulations on the house selling. Hope all goes smoothly with the ex so it does not get fouled up. keeping you in prayers.
sbel- very exciting that you will be speaking as a survivor. Yours is a voice that should be heard by a wide audience.
dyvg - there are no words to express the proper sorrow for the loss of your friend to this stupid disease. I hope all goes well with your port placement today. -
All you new flappers seem like you're doing great. I'm keeping the new girls are in surgery today in my thoughts and prayers.
kuka- what does it mean to cone your boob? That's a new one to me.
SheChirple - so glad you're feeling better today! I still feel very up and down about the whole process. I love how my stomach looks but I'm not necessarily crazy about how my breasts look yet. Like you though, it's been just 4 weeks for me and I know it takes time. I was surprised you see your plastic surgeon every week. I got my drain out last week Thursday and they told me I should come back in 2 months, earlier of course if I have any concerns.
Has anybody had issues with the scar that goes across the breast kind of pushing in and making a line across the breast? It's almost like the scar is a little tighter than the skin and it pushes in. I just noticed that lately but on the right side it's almost like the breast tissue bulges a bit is on either side of the scar. -
Dyvgirl, I had a TE, and had that inner itching that you describe. It got much better, and went away over time. There's no way to scratch it - lol - so it's just grin and bear it as it is with so many other issues re bc. It sucks. Best wishes - I will be thinking of you today!
Movie, do you want me to sent you some Timtams? Can easily be done from here . . .lol.
Kuka, stay off that knee now. When you start exercising again, do it in the pool, okay?
Lilyun, your son is a wise, brave young man who realizes that he wants to lead an authentic life, and not hide in a closet for ever. He is still who he was before, that has not changed. It is just a part of him that is different. You are going through a lot right now, and our children's choices affect us so directly, eh? But your son is certainly much happier now that he has this tremendous weight off his chest, and in the end their happiness is what is important although they often don't choose what we would have wanted. I've been there with choices that my kids made, but they have to live with it. I'll always be there with support and unconditional love - that's all we can do when they are independent adults. Big hugs to you!
SheChirpie, I discussed nipple recon and tattoos with my PS yesterday. I' not sure at all that I want nipple recon, but DH is just assuming that I'm getting it, and the PS is not even considering the possibility that I may not want it. Seems I am a huge exception to the rule - lol. Will make my own decision, and not be pressured. It is MY nipple (or NOT) after all.
PS and I decided to wait till January before doing anything further. She thinks the healthy breast may need a little lift, but the radiated DIEP lefty first has to settle into its final resting place, and will still go lower, so we'll wait to see what happens. Suits me to the tee, because I am certainly not in any hurry to get more surgery. I've had enough.
Thinking of this week's flapper girls - hope you are all doing well!
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Lynda, is where they shape the breast. Right now to me they look like two hamburger buns. I can't really fit into a regular bra because breasts are usually coned out. All the milk ducts go towards the nipple which makes your boob cone. I don't really know how else to explain it.
About the scar, yes, I have this problem too. My ps said as everything settles that will go away. Also things change a bit after you get a nipple. -
I dont think I want nipple recon either, thinking about some pretty flower tatoos instead. DH seems to be on board with it.
Thinking of those in surgery and recently out, speedy recovery to you! -
Shechirple
I really do get what you are saying and I have been feeling this way too. I am really pleased you are feeling brighter.
I am awaiting my diep, first discussions with surgeon the week after next...
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My sister has an implant on her MXed bc side without nipple. She just does not want it.
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