May 2013 surgeries

Heres a little ditty for you GoWith-

http://www.youtube.com/watch?v=KUmZp8pR1uc

Ckmoss- Some days your the windshield, and some days you're the bug. Hope your toe feels better!



Gowihtheflow- Sorry today is a down day for you! I didnt have rads but from what Ive heard, they are the easiest part of treatment. I understand being scared though.

Sweetpickle, I love your bug analogy. However I am sick of beinv the bug. lol.I love it.

Ck I am so sorry that you arehaving these issues. Every night just tell yourself that you have made it through 1 more day of this hell. Oh and move your chairs out of the way.

Go with rads is really going to be the easiest crap that you have had to go through until right at the end when you will have some kind of burn. Start now doing whatever they tell you to protect your skin. No sun for a long while. Oh and its quick every day. You are in and out in ten minutes. Most people work during radiation. I didnt cause I had bone pain and neuropathy from the chemo that took a good six months to go away.

Well ladies I hope all of you have a blessed day. Healing hugs

Go with: I had rads last year. Easy- peasy. Just keep up with your skin lotion: you can't overdo it on the lotion! My doctors loved the pins. Thank you so much! I wore the one you sent "tougher than cancer" the whole time I was in the hospital and gave the others away on the condition that they wear them on surgery day. All my friends were happy, so thanks again!



I have three drains: one for ea breast, and one for the tummy. The left breast is doing really well. I might be able to get that one out in a day or two. The right breast is putting out more and will take longer. The tummy? I think about 90 cc per day. That one will take awhile.



Questions: why are you not supposed to use you arms? Is it ok to use them so long as I don't hurt myself? Question 2: I get a giggle out of the 48 hours after chemo thing. My question, though, is WHY? Seriously. infection, or what? Question 3: those of you that got chemo: anyone that didn't get a port? Those that did: where is the port located? I guess that's it for now. I'll check in again in a few hours. Hope to take a shower today. Woohoo!

Steph-Answer to YOU MUST USE CONDOMS IF YOU HAVE SEX 48 HOURS AFTER CHEMO!!..lol..Right now, how I feel..plus thinking of more yuck to come with chemo..my husband would not be among the living if he even looked like the thought crossed his mind..lololol/ In my "Breast Cancer Manual"..it was among all the rules for protecting the people you live with and pets. Apparently, the first 48 hours after chemo is when your body secretes it..if it were to get in or on (not sure which or if both) someone else it can mutate their cells or something (ill have to read again..all I know is BAD)..So on top of that, you need to, after using your toilet, close the lid..flush twice..wash your hands with hot soapy water..dry on paper towel..throw away paper towel..tie up trash bad (this I would prob do because of my cocker who loves scot towels from trash)..Don't let anyone drink after you..and plates, glasses, forks, etc you eat..make sure they are washed in very hot water or dishwasher and not with the other persons plates, etc..I've hit Sams and bought paper plates, silverware, cups, even foam cups for my coffee..told husband don't touch and I will throw away after each use..Anyway, my response was WHO THE HELL WOULD WANT SEX RIGHT AFTER CHEMO??...but ...thats just me!..lol.

*********Hey sorry about so many post in a row..percocet dulling my brain*****

chimneymae-Wasn't your decision about a trial..like adding the Red Devil or not?  If so, I believe that with these trials, isn't it like a 50% chance you want get the stuff?  Like some do and some dont?  And, I wonder if this is a trial thats what they are trying to do is get a percentage rate of recurrance.  Or is your whole decision to have chemo or not?

Steph-Didn't you have onc test year or so back and said you didn't need chemo...but then cancer came back? Or am I remembering this wrong?

Ckmoss: glad to hear your chemo got pushed out. After all you've been dealing with, the body needs a rest and recovery period. LOL, am I not the person who wanted to be super woman yesterday???



Went back to work today for the first time since my surgery and my goal was to work until 1 then pack it up. I did pretty well (1:30) and now I'm home on my couch. Don't want to push my luck 4 days post 1st chemo treatment.



AnnBR, hope the Skype session went really well for you.



Jenren4: Welcome!

Skype session went very well, thanks for asking. All my questions were answered and I decided to switch to a Mayo oncologist. I think the communication will be a LOT better with Mayo having all my records plus they are SO thorough. They check you out from head to toe, take all the time in the world with you and make sure all your questions are answered. The last 2 times I saw my local oncologist I swear she had one foot out the door as she was talking to me. She barely made eye contact - she was too busy typing on the computer. I realize I am not a severe case, but doggone it, I am worth a few minutes of someone's time. I also found out that I may get to go off of Tamoxifen. I would LOVE that.

So may posts since last time I was on, Im just going to be brief and say i hope everyone keeps going in the right direction and have improvement on a daily basis.

However Chinneymae who got me rollin with laughter "knosexphomy"!!!!!

I WILL share that one with my husband!!! LMAO

You're all a hoot. Your poor hubby, I almost feel badly for him. I'm so happy for you that he has a sense of humor 😊

Going down without a fight...I love it!!

Steph01: You are so right!! It is great that he has a sense of humor. He picks me up when I'm down. He loves to make me laugh.



AnnBr: It's important to be comfortable with your MO. I'm glad you were able to find one. I know you will be much happier.



Good night everyone. I hope tomorrow will be much brighter for us all!!!



Love and hugs,

hello, just wanted to introduce myself.  I had a bilateral mastectomy on May 29.  Almost 3 weeks out and went to work for 3 hours today.  I'm still swollen and still finding myself in pain.  Actually it's the skin that feels on fire is the only way I can describe it.  With pain meds it's controlled so that I can wear a top.  I briefly skimmed the posts, but not all.  Has anyone else felt this? I am also having some swelling around my surgery sites, and drain sites.  I feel like I have "boobs" again, when, well.. they are gone.  Just hoping to connect with someone to tell me.. "your normal" and "it's all O K".  thanks all.

Hello Honeybunny96 and welcome. Sorry you have to be here!



I don't know if you had the TEs put in. I'm a little over 4 weeks post BMX and I feel that burning discomfort 24/7. Putting my surgical stuffed bra over it makes it even worse. The sites where the drains were finally no longer hurt so I think that does go away.



I am going to bring this up with my PS next week to see if PT can help. My recon won't be until around this time next year due to chemo and rads so I need to figure this out.



Hang in there!

Hello and thanks for the welcome.  I work as an office manager in a chiropractic office.  I love my job...ok I take that back.  I don't just love my job, I love my career.  This office means a lot to me.  We are close nit so they will not have me over doing things just to have me back to work sooner - things are falling apart there   Anyway.. I did not have any recon at all.  The surgeon did not want to have to wait for me to get in with the PS.  It was really fast, like a WHAM, BAM, thank you! My head is still spinning to be honest.  

For the fire feeling, I am always massaging it and touching my skin.  The ONLY thing I have found was a tight fitting shirt (and drugs)  Now I found one yesterday in my so called wardrobe, but the only issue was.. the arms were too tight.  I might have to make that into a T-top.  So funny thing is.  I got into the shirt yesterday.  It was ohhh so comfortable for me and my skin and it kind of felt hugging me.  So..ok don't laugh.. ok do because I am too.  I almost had to call someone or cut off the shirt when I had to take it off (due to arms)  OMG I so did not think of this when I put it on.  OOOPS.  won't be doing that again.  But oh I want to wear that shirt!  So I am in the process of finding clothes to wear other than the one or two shirts I wear all the time because they are button up the front and soft feeling. 

No idea if i am having chemo or not.  I am waiting for the cancer centre to call me to set up an appointment to talk to their onco.  I am basically in limbo is what you can call it.  UGhhh.  Frustrating.