Summer 2013 Rads

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  • ChickaD
    ChickaD Member Posts: 1,025
    edited June 2013

    Miss Flow....LOVE your buttons...you are so creative..



    Good luck to all those starting rads ♥

  • Michele2013
    Michele2013 Member Posts: 350
    edited June 2013

    Gowiththeflow, I too experienced the pain you are referring to. My RO folded up two hand towels and placed them to where they would be under my shoulders. It gave it an elevated boost.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Thanks Michelle.  I will ask for that if I have problems monday.  Hopefully it will take less than the 45 scheduled minutes.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    I am nervous about starting rads next week because one end of my mastectomy scar is still very tender and sore. I dont think it can heal well after they start zapping it.



    Did anyone have this when they started?



    Thanks!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Your surgery was one day later than mine.  I can tell you I'm still sore myself.  I guess that's why they give us pain meds?  We can compare notes.  What day do you start?  I start monday

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    I see the RO this coming Friday with measuring & marking immediately after. I'm just now starting to get some energy back after chemo. Oh well, ready or not, here I come!



    Paula

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Hi GoWiththeFlow, I do the sims on Monday and they think the rads on wednesday if everything goes as planned



    Paula and Karyn too, all four of us start next week- here we go!



    Good luck to us all.

    :)

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Hi Sciencegal,



    My lumpectomy scar was still very sore when I started rads. Surprisingly, that has gotten better even as my skin has gotten much worse. I start boosts on Friday and my radiation therapist said I should have less problems with the boosts since they are aimed at the scar and the nerves have not really regenerated yet.



    Hope this helps

    -Chloe

  • encyclias
    encyclias Member Posts: 302
    edited June 2013

    Thanks, Heart.  You have given me some hope.  My surgical scar and the seroma under it from my April lumpectomy is still very sensitive, and when I started rads last Monday, later that afternoon it started to sting.  And it has been the same for the treatments later in the week.  My RO said it was not uncommon and that it probably will go away during rads.  It seems to hurt about 4-5 hours after treatment, and then mostly disappears a few hours later.

    Wishing all a relatively painless experience with their rads, and congrats to those who are about to graduate.

    Carol 

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    OMG, I so don't want to start radiation tomorrow.  I keep thinking about laying on that table again and all I can think of is "torture chamber".  

    Chemo had comfy chairs, therapy dogs, and lunch.  I just can't think of anything good about radiation, and I have to go every day.  

    i've been positive through testing, chemo and surgery, I just don't know how I"m going to do this. 

    Can I just crawl into bed and never come out?  Please?

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    GoWithTheFlow- it really is going to be ok. Rads is not that bad. The stuff I had envisioned was WAY worse than the reality. You get to know all the medical personnel and they know you since you are there everyday. Where I go we always have access to a fridge full of beverages, and one day even brownies. Everyone goes out of their way to be nice to me and always checks in to make sure I am ok. I always have access to my whole radiation team whenever I want to discuss any problem that comes up. Does you center have any free extra stuff? I get free reiki, yoga, or massage if I want it. I remember someone else getting acupuncture. Once you get started you might actually find that this is a lot easier than any of the other stuff, I know I did.

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Radiation is so much easier than chemo, you will see.  The biggest pain is the daily aspect of it, but even that you get used to.  I don't feel I get to know my caregivers as well as with chemo, but that is because even though you are there daily, you are in and out in 15 mins most days. My place has  a comfy waiting room, there is always a puzzle going on or somebody to chat with.. I have met some wonderful people.  There is coffee you can brew and a fridge full of juices and water and a big basket of snacks.

    You'll see.. don't even waste one minute worrying about it.. but I'm sure you will anyways... best of luck to you tomorrow.. you'll be fine!!! Honest!

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    GoWiththeFlow, Sciencegal, Paula & Karyn and to anybody I missed, wishing you all a painles journey through radiation.  You will be fine.. you can do this!!!

    So glad to have had the break this weekend.. 8 more to go for me... I see the finish line and I am sprinting towards it!!!

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    So worried that I am going to have to take a break from radiation. I only have 9 to go at this point and I don't want to have to come back to finish in a month or so. I just want to finish now !! The skin breakdown I had at the end of last week has gotten a lot worse over the weekend. The whole area is raw and bleeding now. Major ouch! Sigh.......

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    Heart - I feel for you.. I know you hope they can complete the rads at this point but you'll have to let them make the call.. I do hope it heals quickly for you..

    I have 7 treatments left ..  so far so good - its getting darker and pinker, a teeny bit sore but I am hopeful I'll get through this..

    and I agree with what others have said..this is so much easier than chemo... all the staff is friendly and kind.. there is juice, coffee, pudding, fruit, and other snacks available... tv in the waiting room, and others that are going through similar treatment you are.. the whole treatment takes 10-20 minutes.. I go on my way to work 7:45 and am only 15 minutes late to work.. 

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Oh no Heart :(  I'm not sure if that means they will stop, I sure do hope not, the last thing any of us wants is this delayed!!!  Hoping that it works out for you and you aren't too uncomfortable. (gentle hugs)

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Question for all of you using the cooling pads.....do you use them because your whole body feels hot or because your breast feels hot? The reason I am asking is that my breast itself feels hot to the touch and I am wondering if it is normal or a sign of infection. In the past, even with major infection (appendix ruptured over 3 days) I have never run a fever from an infection, so I don't think fever is a good indicator for me. Had a nasty post surgical infection and still never ran a fever.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    I can tell you my breast feels hot - not my whole body

  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    IamNancy, Thank you! I feel a lot better hearing that. I already have been told that if I get another infection, like after surgery, my radiation will be temporarily halted. Hearing this is normal and probably not an infection really eases my mind.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Thanks everyone.  I hope I can be as brave as you all are, I'm just not feeling it.

  • melody46
    melody46 Member Posts: 279
    edited June 2013

    Idesim and anyone else how are you doing on the Tamoxifen? I"m suppose to bump up to 20 tomorrow

  • Lin43
    Lin43 Member Posts: 108
    edited June 2013

    Heart--I am so, so sorry your skin broke down! I know what you mean about wanting to finish. My skin is close to breaking down under my arm and I have 8 more to go, the last 5 being boosts that will hit that area as well. Like you I have slathered on the ointment. My prescription is for the itchy radiation rash. It is a stronger steroid than hydrocortisone. I hope it can help you!

    I had a mastectomy so I lay the cool pad across my chest. It helps to take away that burning heat.



    GoWithTheFlow--I totally understand your cording problems as I also had bad cording after my surgery. Since my pathology was good and I am doing Herceptin,they let me have 5 weeks of PT before my simulation appointment for rads. You are amazing doing a 2 hour simulation with cording. Huge ouch!!! PT helped me a great deal so I am glad you will be getting that. At one point I had a huge bruise on my upper arm from a cord popping during PT but it felt so much better than before the PT. I bought flowers for my therapist when she finished with me cuz I was so thankful. You will feel better too. I took Vicodan before my early PT appts but did not need it later. Hang in there.

    It is 110 here again... like I don't make enough of my own heat!!! Arghhh!!!

    Linda 22/30

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Thanks Lin.  I know I'll feel better in a bit, but I honestly haven't had that much time to do the stretches at home.  I'm tired from running to appointments, and getting my son to swim practice.  I need to get better at doing them more than once or twice a day.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    https://www.facebook.com/photo.php?v=10201383181287147&l=2135373782380544825

    In light of friday's "xrays" that lasted 2 hours, I made this button to wear today to my first radiation treatment.

  • schoolmom
    schoolmom Member Posts: 458
    edited June 2013

    Ladies who are getting ready to do radiation....I had 33 treatments from Jan to March and wanted to share.  I used a lotion called Aloe Force that I bought online.  I bought two small bottles, one for the bathroom and one for my purse.  I used it daily after treatment and at night and midday towards the end of sessions.  I probably could have done with only one bottle but I wanted to be sure.  It has tree bark and aloe and someone on my radiation winter thread was in a pilot study with it.  Everyone is different but I had minimal pinking and a tiny peeling which was nothing to speak of.  Check with your doctor if you are thinking of it.  Some are picky.  My center was not going to give me anything for my skin until I showed issues but I did not want to wait...wanted to be proactive.  Good luck to all. 

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    How does the knitted foob work? I just can't envision it.. wouldn't it be lumpy and scratchy lol?

    It is raining AGAIN, it is like a mosquito paradise out there.. I'm so over it.  F the rain! F the mosquitos.

    I think I'll work from the top until my coffee table is laden with food.

    I can see now why it was the cruise from hell and they should have refunded ALL of your money.  I am laughing trying to envision what a Humpyback Spider dance might look like, perhaps it can be used on dancing with the stars.

    Yes, tourists and men who are pissed that piss haha. My office is like smack in the middle of tourist central with Fanueil Hall, the Aquarium, Paul Revere House, freedom trail.. etc., so from May to September it is impossible to navigate the sidewalks efficiently and it all adds up to a bunch of pissed off Bostonians, all in a rush to go nowhere. Not that Bostonians need tourists to make them cranky, we always have taxes and the weather to bitch about as well.

    Bobogirl, how on earth can you picture a humpyback spider dance? LOL.  I looked quickly at the spa you suggested and it does indeed look promising.  I am going to return to the site when I have more time to leisurely read through it.  Thankyou for a most excellent suggestion.   

    Frozen meatballs? Surely they are not meat??

    Moira, exactly what type of store ISN'T a candy store for you? Hmm?? I doubt you could appear to be snotty no matter where you were or what you are wearing... I should probably modify it to state that Boston Sephora girls are snotty.  And they aren't appearing that way, they are that way. The TV station (and the drag queens) sounded like a load of fun.  I can't believe all the things you've experienced!  It's hard to believe you are content in the country with your 500 types of lettuce hee hee.

    Are they green olives that you grow? I love olives! Only you would have a postman who brings things from his garden along with your abundance of packages!  I shouldn't talk the UPS guy is at my door quite often (not so often since this whole nasty business started).  I haven't signed for a package in like 5 years and if its raining, he hides the package under something in the yard, which is kind of like going on an easter egg hunt :)

    Oh gross, it must be low tide, there's quite a stink in the air.

    I know nothing about the panties vs. commando scenario and wonder how that relates to breast surgery?!!?  You're the opposite of me Zills, I have to read and read and read and find the worst possible scenario to be prepared. I hate surprises!!  Before my surgery I was sitting on this site for hours upon hours and it did calm me down quite a bit.

    Well, I didn't get that far in the catching up, but dinner has been served and I will have to finish up later :)




  • Heart2930
    Heart2930 Member Posts: 139
    edited June 2013

    Well...just got back from rads. It was a long visit today. Had to see my RO and nurse practitioner due to all the skin issues. After being so worried about having to take a break we actually ended up working it out. My skin was a little better this morning after the weekend of rest. At this point the whole area in the crease is raw, like a skinned knee. But it is no longer bleeding or running. I am sure this will probably change since treatment started again today, but it's mildly better for now. My RO and I had a long conversation about whether I was going to continue or not. If I had more than 4 whole breast treatments left he wouldn't have let me continue, but since I only have 4 and the boosts don't hit that area, he left it up to me. I decided to continue. He gave me a topical lidocaine gel, and will prescribe pain killers if I need them. Took the gel, but passed on the painkillers for now (due to tons of painkiller allergies). Might take him up on the painkillers tomorrow if I keep DH up all night again. Guess I yiped every time I moved last night. At least I can finish though and be done with this. Yeah!!



    Idesim- I agree about the rain and Mosquitos. Up here in NH you could become anemic just walking outside due to all the little bloodsuckers.



    I know a lot of people started rads today. I hope it went well for you!

  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    Ndgirl, that is awful about the non-sleeping we need to all combine our heads and find a solution for you that is non-narcotic, you can't wait until August... I don't see how you are even functioning :(  Hope you are having a blast with your granddaughter... 4 is a great age, does she talk non-stop? :)  

    I am with you on the doctor's visits, boy has all that changed.. I am dreading the annual and of course I will probably be doing 3 month mammos for a bit.  

    Moira, you need to get on the knitted knockers as we need a full report from our personal shopper!

    I love ginger, I buy it fresh and cut off a little piece that I chop up finely and just seep it in boiling water... it's supposed to be great for the stomach.  Joe hates ginger, so I can't really use it in food :(  What other trees do you have besides the olives?  

    Laughing over the dragging of the drain!  That poor man!  

    {{{{Granwe}}}} your cup runneth over! No kidding it's like having a baby.. every two hours physical therapy??  F that!!  So you've had almost a year non stop health issues between the two of you and how in HELL did they miss the splinter? I am dumbfounded about that one.  I am glad that you are getting help with the roof.. that is something a Steel Magnolia town would do.  Three meals for 8 men on little to no sleep is no small feat.. I wish I was close by to lend a hand.  I have to say I don't blame OG, I am much like that myself, uncomfortable asking for and recieving help, plus being a guy makes the situation even worse.  Good for you.. you keep pitching that B fit.. doesn't he know by now you know what is best for him?? His track record this past year hasn't been so hot!!

    How is his mobility coming along?  

    Zills, pickled green beans sound tasty. I've never heard of them before. Beets.. yuk! I have a lot to learn on gardening, we lived in an apartment up until 2 years ago, so we never had a yard previously that you'd plant in.  The house we bought hasn't had the yard tended in years, so there was a lot of labor involved and still a lot more to go, but some day I hope to have beautiful gardens, and maybe i will grow as many types of lettuce as Moira does!

    Why do boys always equate everything to the bathroom and bathroom functions? I am laughing over his concern! He sounds adorable.

    One day at a time on the treatment, I know.. easier said then done, I am in awe of you ladies that are going through all this with little children around and I am glad you have a great support system.  I looked at my hair loss as a vacation from shaving, I'm Italian, so body hair has always been an unwanted intruder.  I joke that I get 5 o'clock shadow on my legs and I'm really not stretching the truth much.  True, no PMS/period cycle, which is an added bonus.  I joked with my GF that at least I would lose some weight on chemo, but that was so not the case at all!

    Desert has arrived to my coffee table.. I will break again :)


  • ldesim
    ldesim Member Posts: 1,333
    edited June 2013

    haha.. I posted to long posts to the wrong forum!  Doh!  I have not lost my mind yet.. 

    omg Heart, the mosquitos are horrible!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    I survived.  One down, 27 to go.  Not anywhere as bad as friday on the table.

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