Surveillance for me? Yeah, Right, Sure.

Thanks everyone. the biopsy was easy, but we are still waiting for results. Doc says it didn't look like fibroadenoma. But still confidant it's benign. Maybe tomorrow.

So,  I was relaxing Friday evening, eating my leftover pizza and the phone rang.  It was my bs calling me.  She said she got the pathology on this last biopsy and wanted to schedule an excisional biopsy to clear the margins....there were several foci of ALH.  I mentioned that we were so close to the PBMX date of May 15th and did she really want to do the biopsy?  She said no, but that she will do a sentinal node to clear me of any possible infiltrating cancer.

I keep trying to be positive, but this feels like it keeps getting worse day by day.  Of course, she did say that the chances were really slim, but in retrospect, the radiologist told me twice that she felt it would be benign.  I think it is just that little bitty chance of having something go wrong that makes LCIS and ALH really shitty to deal with.

33 days and counting....

Congrats on your biopsy results!  Your 16yo is right - it is benign.  Not the best benign, but still...  ALH is a lesser dx than the LCIS you already have.  LCIS is where it fills the lobule and ALH is where it only partially fills the lobule.  "Foci" of ALH - not a big deal, IMO.  That means it's very small.

Are you doing sentinel on both arms for your bmx?  I did no sentinel as we had done such a terribly complete workup.  Of course sometimes there is hidden invasive, but I took the gamble and it paid off.  Something to consider.

Maybe someone was confusing LCIS and DCIS?  If I understand things right, it is pretty much 'standard of care' to get clean margins with DCIS.  Some posters here have said their docs were recommending radiation for their LCIS, which I have only found reports in France, so I wonder if everyone understands that LCIS is not the same as DCIS.  When I've made appointments, and they ask my diagnosis, and I say LCIS, I've had some of them ask, "Do you mean DCIS?" I hope your docs aren't getting confused.

If you have PLCIS, then I've seen papers that recommend treating PLCIS like DCIS, so that may be a possibility too.  

It may also be a matter of terminology.  Some docs classify both LCIS and DCIS as 'benign' conditions (though I think that happens much more often with LCIS.) 

I sure support your ideas to get the report sent to you and ask questions.  As I'm sure you know, you want to have as few surprises as you can after surgery.  Let us know what they say, OK?

Marie - wishing you all the best tomorrow and praying for your careproviders as they perform your surgery.  Sounds like you have everything in order and a great attitude to boot!  Will look forward to hearing how you are doing on the other side and sending you big cyber ((((HUGS))))!

Congratulations Audrey,

A year goes by fast.  Next year I will be celebrating too!.  We had our one week appointment Wednesday and no drains out yet.  The nurse practitioner says my output means I am doing too much.  Well I haven't lifted a finger to housework but there is a lot of moving around to do all day.  Oh well, the left looks better that the right.

She did however give me a 60cc fill already to expand the creases forming under the nipple areas and Palmer's cocoa butter to massage around.  Seems to be working.  She mentioned she might do one small fill next week again.  The fills didn't bother me at all, but i guess these were just test runs!

Other than scheduling showers around my DH schedule and not having my hair combed for days, I look pretty sportin" !

Marie

Well, my drains are both out since Memorial day....I have had 3 small fills on each so we are up to 150 cc's.  On Monday to travel to Ardmore ( and the US Open better be over by then)  for a lymphatic massage and a 100 CC fill for each.

I have to say, I am a little scared. I have been doing the exercises pretty well, I can almost reach to my arm length limit on a wall, and the over head strretches aren't that hard, but i still feel stiff and tight.  Is this normal?  I feel like somebody put in those cardboard forms to prevent  new shoes from losing their form.

The right drain hole had a hard time closing and had some weird tissue protruding through it so it would not closed, but I fixed that with New-Skin!

I also still have some creases but I am rubbing in cocoa butter cream and pulling on them every day.  I have gone through half a jar already.  

I have had 2 emotional crashes that I blame on the anesthesia and one from having DH not understand how to be more emotionally supportive.....like when I see dust bunnies rolling around the floor that I know I am not allowed to clean. Or lift our 3 yr old granddaughter.

Tell me all this is normal and I will take it for what it is!