Starting radiation - Advice???

Options

Starting radiation this week... woohoo!

Just wondering if anyone did anything the day before to "prepare"? I wasn't really told to do anything in particular, in terms of getting the skin ready... except not to put anything on it before the actual treatment. I'll be loading up on various lotions and aloe. Anything else I should do?

I guess I am just used to chemo and all the pre-drugs and all the anxiety before treatments. Pretty nice not to have that with this... I'm already liking it a lot more!

Comments

  • Maakmezorgen
    Maakmezorgen Member Posts: 55
    edited June 2013

    Hello youngwithbc, I myself have just started rads, 5th session today, and did nothing to prepare. Just went to the appointment where they did the CT-scan and drew all the lines. The also added three dots on my body for positioning purposes. At the moment I am still not using any creams or anything. Skin is still the same. I believe side-effects on the skin won't appear until 2-3 weeks into it. And sometimes you don't get any at all! Good luck with you first radiation!

  • corky60
    corky60 Member Posts: 726
    edited June 2013

    I was told to start treating the skin right from the beginning if not before. I apply a lotion twice per day, once right in the dressing room after treatment. The nurse said not to use aloe until I need it, better to have the skin moist and supple now. Just finished treatment seven and not red yet.

  • LibraryLynn
    LibraryLynn Member Posts: 83
    edited June 2013

    Hi all!

    I am almost done with rads, and I feared a skin reaction so badly that I had nightmares about it. I am pleased to say that with 7 boosts left in a 33 day schedule, my skin is red but uncompromised. I HIGHLY recommend emu oil. I have used it religiously right after treatment and again at night, and my doctor is very pleased with my skin. 

    I have also made much use of a product put out by Lindi Skin called Lindi Skin Cooler Roll. It's like a great gel on a roll, and you cut off the size of piece that you want. I would slap some on right after I got home from work, and that seemed to draw out the reddness. I also kept it in the fridge, so it was nice and cool on my hot skin. www.lindiskin.com is the site.

    One thing I've had that surprised me was an ache in my breast. It is more uncomfortable than I'd anticipated...not the red skin part but inside. I have fibromyalgia, so perhaps that has something to do with it, but don't be surprised if you get a bit of an ache. It's not horrible, but it was something unexpected. 

    Good luck. I have had a positive experience, mainly because I had such a great team in radiology. I was there such a short time every day, but they made me feel very comfortable. Don't hesitate to ask them any questions that you have. I was concerned about what "boost" meant, and they very patiently explained it all to me. I am much less frightened when I have lots of information.

    Lynn

  • Maakmezorgen
    Maakmezorgen Member Posts: 55
    edited June 2013

    Hi all, I was never told to use any creams... mmm... Think I will bring it up today as it does make sense to keep the skin moist.

  • wenweb
    wenweb Member Posts: 1,107
    edited June 2013

    I used aloe after every treatment (that I kept in the fridge).  I breezed through.  I'm not saying it was the aloe, I have olive skin, but my breasts had never seen the light of day :)  By the end, the radiated breast looked slightly red, becoming very red when I showered.  No pain or discomfort though.  Good-luck!

  • Youngwithbc
    Youngwithbc Member Posts: 167
    edited June 2013

    Done two treatments... not too difficult yet! How early do skin reactions usually pop up? I think I had heard it can take a couple weeks. But I'm pretty sure I see a few little red bumps already. Although who knows, I have such sensitive skin that it reacts to anything. Hoping it doesn't get too bad. But in terms of the treatment, I've found that extremely easy. It is over so quickly... a nice change from chemo!

  • SheilaR
    SheilaR Member Posts: 10
    edited June 2013

    Hi. I didn't do anything to prepare - aside form not putting any lotion on the area. I just went to radiation in the morning and then, off to work.

    I was actually told NOT to use anything on the skin during treatment and that if I became itchy, etc.,they would give me something. That never happened. I have a helluva "tan" as I call it but aside for that, my skin was a tad try once when the temps dropped to very chilly here.

    I am happy to say that I finished my 28th and final rad yesterday, Thursday. No boost. And today I put on some Aveeno and imagined my skin saying 'ahh'.... Last Friday was the first time I felt sluggish, dragging but not so much that I could not get out of bed. I just did not want to. But for the most part, no fatique per se. I simply got tired earlier at night and could not push through it.

    Just be good to yourself, drink lots of water (I wanted to keep my skin hydrated) and when you are tired, don't push it.

  • Maakmezorgen
    Maakmezorgen Member Posts: 55
    edited June 2013

    I asked about putting cream or lotion on and they, again, told me not to use anything. In case I had any problems with my skin I would have to tell them and they would prescribe me some cream, fingers crossed I don't need anything! Having my first weekend break, 7 done, 14 left to go... So far it is very doable!

  • Youngwithbc
    Youngwithbc Member Posts: 167
    edited June 2013

    Hi everyone - just wondering for those who did get burns/reactions to the radiation, when do these typically appear? Or when did the first "change" appear during your treatment? Just would like to know what to expect...

  • RMlulu
    RMlulu Member Posts: 1,989
    edited June 2013

    Hi Youngwithbc - there are some great threads to check out...

    2013 Summer Rads and 2013 Spring Rads. Both may help answer many of your questions.

    Everyone's skin is different and so are the protocols.

    I'm very fair skin burn easily, but my skin did excellent. I used 1% hydrocortisone and emu oil and then around 15/33 developed rad rash. RO gave RX for 2.5% hydrocortisone & emu oil.

    Emu oil can be ordered on amazon. All my Drs were amazed at how my skin did.

    My incision were across the top of girl and SND. And I was in fear of holes in my skin...never ever happened:). Pink yes, tan yes, very easy peeling...luv emu oil!

    Best advice. Hydrate hydrate hydrate, eat extra protein, rest, walk, and free boob when you can...girl skin do best free.

    Rads do not hurt...it is mental grind of showing up and getting on that table...zip zap!

    Have fun with your rad techs and ask or show your RO any issues with your skin!

    You will do great laser tag warrior!

    Cindy

  • Youngwithbc
    Youngwithbc Member Posts: 167
    edited June 2013

    Thanks Cindy! I've been avoiding oil because my rad onc said no oils. It seems different centres have different rules. So far I've just been slathering on lotion after treatment and at night. I have small implants so I don't wear a bra. And I don't really wear tight clothes, so there's lots of breathability. So hopefully that works in my favour!

  • Alcie1
    Alcie1 Member Posts: 68
    edited June 2013

    Use no oils.  Make sure the skin is as free of oils as possible.  Take your alcohol-free aloe with you when you go in and use it while dressing.  A man's white handkerchief in your very soft, loose bra will keep it from showing through your shirt.

    Refuse tatoo.  They can use permanent marker just as well.  We don't need to be labeled like concentration camp prisoners.

    Look at your pre-rad x-rays and ask what is going to be hit and what will be the consequences.  If it's hitting your stomach you will get nausea and red blood count will drop (anemia).

    If you are old and have low oncotype read the article about whether you even need rads.

  • RMlulu
    RMlulu Member Posts: 1,989
    edited June 2013

    Hi Youngwithbc - RO said emu oil, but I apply it 3x a day last being at night...then showered in the morning prior to rads. After rads lubed girl with oil. The precaution is NO oil on skin during rad...like cooking oil...burns...thus the warning on how when to use. Especially do not want oil under or on stickers.

    Yes, each RO and center has its preferred standard of care...RO knows best.

    Zip zap laser warriors!

  • lunchlady61
    lunchlady61 Member Posts: 19
    edited June 2013

    I had my first appointment with the RO yesterday and I am just curious if anyone here has been told to avoid sun exposure to the chest area prior to radiation?  I am going on vacation prior to my treatments starting. We will be fishing/boating etc... plus I have a pool in my backyard so needless to say I am a sun lover!! She told me to cover my chest area with not just a tee shirt but to buy sun clothing that has at least an spf of 50.  I will do what I have to, but seriously I can't picture myself in a buttoned up shirt when it's 90 degrees and I'm sittin' in the middle of the lake.  The area she pointed to is well above where my boobs are and where I will be recieving radiation I would hope.... I have another apppointment Monday the 17th to do the simulation so I guess I can ask them what this would be all about.  Any input would be greatly appreciated!! Oh and I was told to buy Udderly Smooth Udder Cream.... any input about that?  Thanks everyone and I hope you are all doing well with this stuff! 

  • newbie1
    newbie1 Member Posts: 11
    edited June 2013

    FYI, I'm scheduled to start radiation on Tuesday, 6/18 and my radiation oncologist has already given me a cream to start using on day 5. You should question your radiation oncologist. Why haven't they prepared you for the radiation irritation?

  • newbie1
    newbie1 Member Posts: 11
    edited June 2013

    I was told not to get any sun exposure to the radiation area for at least one year. I went onto Landsend and bought some "rash guards" that are made for female surfers. They are the same material as a bathing suit so you can swim in them and they dry quickly (unlike a T-shirt that is apt to stay wet and irritate irradiated skin). There are also some very attractive styles!!!

  • lunchlady61
    lunchlady61 Member Posts: 19
    edited June 2013

    Newbie1... I will check the "rash guards" out.... I also read in my radiation booklet about the sun exposure AFTER radiation but I haven't even started yet and when I told my RO that I would be on vacation the week before I start my treatments she told me to have no sun exposure to my whole chest area while on vacation..... I didn't know what problems could occur since I haven't even begun radiation yet????

Categories