Any ER+, Her2+, node positive 3+ years??

Hi all,

Just reached my 2 year post dx anniversary, although I did have spread to both lungs from the start I beleive the herceptin is keeping me going and providing the stable status. I also take tamoxifen and now beta blockers for the migraines. Love to you all sarah xxx

{{{waves at missy}}}

Sarahlou1967 I have a now friend that I met just as I was doing herceptin. I joke and tell her that I've know her 30 minutes longer than our onc. She too is HER2+ and was just diagnosed with mets last month. Really hoping all this stuff gives her 10+… because there is "living proof" now that it can.

The longer you survive the more likely a new treatment or even cure will come along to extend life. They seem to be doing so much for HERe2+ these days. Many more options.

Wow Pat, 17 years!  You go girl!

Hello Ladies, I'm her 

Hello, Its been 2 years.. I had 2 lumpectomies -denied chemo and radiation -they didnt' get clean margins  so i tried hemp oil for a year and vegan diet but stopped on bothafter 1 year  2 years later i have a new lump its very large same breast with suspicious lymph nodes. Need to make some tough decisions now.  I am Her2 and er pos.  found a new oncologist that says she will consider Herceptin without chemo, unlike the one who did my surgery.  I'm considering massectomy.

Missy How are you doing now?

Thanks will go there now

yes, 7 years out.. dx at 36..herceptin for a year amoung other things.  sentinel node positive but took 11 out and now have lyphedema.  

I have a friend who had several lymph nodes involved and was H.E.R. positive and is 5 years out. I am getting on all of the breast cancer forums that I can find. PLEASE ladies pass this on. I was diagnosed a year ago with breast cancer. I was told that I was H.E.R. positive and was given herceptin that ruined my heart. I only had 4 rounds of it and it caused a blood clot in my heart, congestive heart failure, and an enlarged heart. The worst part about it is that a different hospital retested my slides and I was found to be negative for H.E.R. so I didn't even need this medication to begin with. I didn't know, and most ladies probably don't, that the test for H.E.R. is not real definite sometimes and if I had known that I would have gotten a second test done to be sure. Any woman out there who has been recently diagnosed as being H.E.R. positive please get another test at another facility to make sure that you need herceptin. I am trying my best to get the word out so that this will not happen to another woman. We sometimes put too much trust in our doctors and they make mistakes too. Be in charge of everything that is done to your body and don't be afraid to ask questions. It is your body and you have every right to get second opinions on everything. It is so devastating when you are diagnosed that it is very hard to make rational decisions about your treatment but you really need to. That is something that I learned the hard way. My email is finallyaborland@yahoo.com if anyone wants to ask any questions about my post. 

I had my surgeries in Feb. 2010 and treatment throughout 2010-2011.  Had Herceptin, Tamoxifin and am now on Exemestane since I am post menopausal.  Feeling absolutely great.  I was discharged by my oncologoist this June 2013.  I had been using a personal trainer for the past 2 years to help stay in shape and hopefully ward off lymphedema.  My advice is to stay active and think positive.....sometimes I have to remind myself that I ever had cancer!  All the best the ladies on these discussion boards.  You were an amazing source of support and strength to me when I really needed it.

Sallyw, That's awesome news! Congratulations!!

Glad to provide encouragement/inspiration.    I got it in truck loads from this site when I needed it.

★ ✩ ★ ✩ ★ Today marks 3 years NED for me. ★ ✩ ★ ✩ ★

No nodes but a really big (6.5cm in totally… 5.5 IDC) HER2+,Er+, Pr+ tumor
Plans on playing the lottery later today. Wish me luck.

BTW I thought it was more common for HER2+ to have node involvement. We have such fast growing tumors.

I was her2+ with positive nodes (2). Grade 3....not too good. I had a mastectomy and 22 nodes removed. I underwent Taxotere, Carboplatin, Herceptin. The cancer returned Her2+ and ER+ ....in the scar....right when my year of Herceptin had just finished. I went back into treatment Adriamycin, Cytoxin/Taxol , and then I did year of Tykerb/Herceptin. I underwent radiation (33 treatments) and now I am on Herceptin every three weeks (no big deal) and daily aromasin (also not a big deal). This will continue for an indefinite time. My hair is back....long and pretty....my reconstruction isn't looking too good because of the radiation and surgery I had to do last summer to remove a scar capsule that formed, so I don't wear tight tops anymore. I have lymphedema, but it isn't too noticeable and not that hard to manage.



I just passed my 5 year mark and I honestly feel good. These past 5 years I have had some amazing vacations with my hubby and kids....celebrated weddings with my nieces and nephews....watched my kids go from elementary to high school....and loved every minute of these events.



I am officially 5years and 1 month from original diagnosis and 3 1/2 years from recurrence. I am thinking it will only get easier from this point on and I am hoping I am right.

It will be 3 years since diagnosis on 9/27, had BMX on 11/1, but I usually count my cancerversary from the first week of Dec. since that was when my positive nodes were removed.