Exercising with a sling?

Options
Tamiami
Tamiami Member Posts: 396
edited June 2014 in Lymphedema

I have been dying to get back to walking, but everytime I tried it seems like I've had an LE setback.  So, today I had the idea to use a sling for my LE arm.  I took it fairly easy...only 1.5 miles in 22 minutes, but I'm so out of shape that it felt like a really good work out!  The sling worked great supporting my arm and it's doing great 6 hours later.  Has anyone else tried this?  Pros and cons??? 

Comments

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2013

    Its funny how we have to reinvent the wheel to be able to cope with LE. Looks like you did a good job.

    So when you go for longer walks you may want to take your arm out of your sling and stick it straight up in the air and slowly fist pump about 25-30 times. This will help move your fluid out of your arm and seeing that you will have it stuck in one position I think this would be a good idea.

    I heard there is a purse out there that looks rectangle like and it has a arm sling support on the backside to slide your arm through. I am not sure if they stopped manufacturing it but it is the same principle that you are using: support. Just watch that you are not putting too much pressure on your neck and getting it sore.

    I am such a big fan of nordic poles because you hold them at a 90 degree angle and that gets your arm in that same sling position. You need to get the lightest pair. Once you build up using them slowly then you can put a bit of muscle into using them.  They are a fantastic way to get upper body exercise and you are walking anyway. Burns more calories.

    I like Exerstriders (no I don't work for the company) because they have no straps but yet stay in your hands when you walk and they are telescopic so you can take the anywhere. They also have rubber booties on the end that are erognomically built to making the pole move seamlessly.

    Please do join our exercise thread. We all go at our own pace and are not competitive as we each have our own limitations.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Tamiami, is this an over-the-shoulder sling or the sort that velcros around your body? After bilateral surgery both sides are at risk, so pressure on either shoulder can become a problem, especially for new truncal swelling. Just something to be aware of going forward.

    So glad you're back to walking and feeling energized! Onward!Cool
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    A few months ago DH and I were in a beautiful place and we could not resist walking miles and miles each day. I was in my sleeve and I'm accustomed to walking 4-6 miles at a clip, but we were doing 10-12 miles daily and I could tell on the second day that my arm was feeling it.  So I did what you did, tamiami--I had a big pashmina with me, and I fashioned it into a kind of sling, and it was a great solution. I also did the fist pumping every so often, but really I think the sling had a lot to do with keeping me out of trouble.  

    Binney makes a very good point. Make sure that you're rigging it up so that the top of the sling--that holds the weight of the arm--distributes weight as broadly as possible.  Using a pashmina, my 'sling' was quite wide, and so even though it was on my other shoulder, I think the weight of my left, LE arm was spread out on my right side. It was winter, too, so my jacket gave a lot of cushioning under the sling, which I suppose also minimized pressure on that shoulder.

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Oh my gosh everyone...I love all the suggestions! 

    Hugz~  The fist pumping is a definite add, and I'd love to try the Nordic poles in the future.  At this point, my arm couldn't handle it.  Even driving for more that 30 minutes takes it's toll.  Yes to the excrecise group as well! 

    Binney~  Yes, the sling is an over the shoulder one that I had in the house from one of the kids injuries...I didn't realize they made the around your body types.  I'll look further into it since it worked so well.  Good point on the shoulder strap.

    Carol~  Is a pashima kind of like a very large scarf that could be tied into a "sling"?  If so, I'll ponder on that Smile

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    tamiami, yes- pashmina is a very large scarf, like one you might put around your shoulders if you get cold in a meeting room.  Wool or similar, so for summer something lighter would work better.  I think the best point to ponder is how you can make something like a sling that spreads your arm's weight over an area wider than just one little strip of that opposite shoulder.

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Thanks Carol!  I have an off topic question for you.  I know that you live in a wooded area and have read your posts about prevention, but I'm wondering what you do for the random spider bite.  I'm in MI on a lake as well, and have received bites while I sleep.  We bug sprayed the house this year just in case, but I got bit in the LE arm last month and got cellulitis within hours of the bite, and just yesterday was bit in the contra-lateral finger and am headed to the ER this morning for probable cellulitis.  What can I do to prevent the infection that happens almost as soon as I realize I was bit?  Also, is it strange that I have had cellulitis 3 times since January...the first time was in the contra-lateral breast after BMX, then last month from a bite and now contra-laterally for another bite?  Is it possible that the cellulitis is still in my body from one of the other times and just reappears at the littlest thing?

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    tamiami, yikes, that's a terrible string of issues you're dealing with!  What an interesting question about cellulitis lingering, and unfortunately, I have no clue.  With luck, some of our very knowledgeable LE ladies will see and answer your question.

    I'm almost afraid to type this, but I've never had cellulitis despite life's little incidents, like bug bites, cuts, minor burns. The other day I cut my LE thumb, and yesterday I got some kind of bite on my arm, right where I have most of my LE issues. That bite is a total mystery, because I was in a sleeve/gauntlet all day and I'd just love to know how that critter got in.  When I noticed it, it looked just like a spider bite.  

    I do have some routines that ***may*** be helping, and I'll post them here but I sure don't want to say that I think they're remedies or preventatives that will help LE problems. Heck, I have no clue if they work for me, could be that I just THINK so!  And they are:  1) drink two or more cups of green tea each day; green tea is known for its anti-inflammatory properties and I figure it cannot hurt.  2) put ginger in my green tea (slices of ginger root), also an anti-inflammatory. 3) When I get a bite, or at least as soon as I notice it, I dab it with tea-tree oil mixed with emu oil (50/50 mix). Both are anti-microbial and anti-inflammatory. The tea-tree oil is pretty caustic, and by experimentation I found that mixing it with emu oil seems to do the trick of stopping my itch-and-swell response from mosquito and spider bites (meaning the swelling that comes from the bite, not any arm swelling from a lymphedema reaction). Maybe that's helping to prevent infection from the bite?  I can say for sure that it calms down the usual bite irritation pretty fast.

    Here's a study about tea-tree oil: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1360273/.  I don't find emu oil studies except those sponsored or reported by emu oil vendors. The reason I even have any emu oil at home is that I tried it for its purported scar-reduction properties after my diep recon. Truly that did not work, but last summer I was experimenting with tea-tree oil for mosquito bites, planning ahead for a week of kayaking in Michigan's UP where the mosquitoes make you have a real swat-fest. That oil was too strong and turned my skin white around bites (believe me, I was not experimenting on my LE quadrant), so on a hunch I mixed it with the emu oil.  I have it in a little bottle that has a brush inside and I find that it really works to calm the bites down.  So maybe--just maybe--the antibacterial/anti-inflammatory properties of this potion are helping to keep me out of cellulitis trouble.

    Your history might be suggesting that you're just prone to it?  I guess immune systems are not standard-issue, just as humans seem to have lots of variation in how robust our lymphatic systems are.

    I do know that I'll never clear my living quarters of spiders.  We spray the perimeter, but I don't want those chemicals  spread throughout the house, and even if we did that, I cannot imagine we'd get rid of all the bugs. Our house is 100% located in the woods and as you know, being on a lake multiplies the problem.

    Please post when you're able to, after you see a doctor today.  I sure hope you can dodge cellulitis or at least nip it in the bud so that oral antibiotics are all you need to take care of it.  So, so sorry you have to deal with this.

    Carol

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Tamiami, thinking of you this morning as you head for the ER!Frown May they be swift and sure in treating this and getting it under control!

    Three bouts of cellulitis in that short a time might indicate it's time for a visit to an Infectious Disease specialist. If you can find one with LE experience, so much the better. A long-term very low-dose antibiotic is sometimes prescribed in this situation to put the cellulitis to rest once and for all. Definitely worth looking into, as repeat bouts of this sure do take their toll!Yell

    Get well quick!
    Binney

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Oh Carol and Binney!!!  I can't even believe what is happening.  I saw my primary dr. instead of going to the ER, and he was very concerned about the location of the cellulitis.  Apparently cellulitis in the finger can get to the tendons quickly and you can permanently lose the use of your finger.  He gave me a shot of rocephin and wanted me to see a hand surgeon immediately.  He got me in right away and long story short, I am having surgery tomorrow morning to drain the finger, culture the fluid, and clean out the tunnels that hold the tendons!  Usually you are in the hospital for 4-5 days on IV antibiotics, but he called a friend who is an infectious disease dr. and they are going to put a pick line in and have me go for IV infusions outpatient for 7 days.  I have to be off work for at least 4 more weeks...I just went back yesterday from my exchange Cry  Beating cancer was the easy part of this journey for me, it's all the other crap that sucks!  I know you both understand what I mean.  Thank you again for all of the LE help, and for letting me vent!

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    tamiami, how incredibly, horribly frustrating!  It's of course amazing that you were perceptive enough to see what was happening and get help asap, and what a relief that your team got its act together so fast and so well.  The outpatient approach is easier to live with than in-hospital treatment, but still. Good luck for tomorrow's surgery. You might not be typing for a while, so I'll hold a good thought and assume all went as planned, and look forward to an update when you can post one.  Hugs and chocolate coming your way through cyber-space, to fortify you for the next few weeks.

    Carol

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Oooh, what an on-the-ball team you have! I am so impressedSurprised--well, and also so sad for youYell. What a dizzying bit of news to have to cope with!

    Actually four or five days in the hospital on IV antibiotics IS fairly common, but it can stretch to a couple of weeks too, so getting to do this at home is a real gift. Glad you've got an ID doctor on boardSmile.

    Huge hugs, and my thoughts and prayers will be with you tomorrow and in the days ahead. Thinking healing thoughts for you as well as chocolate!
    Binney

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2013

    Tami, So sorry that you are having the go around, we'll be hear in the background cheering you on for 4 star treatment and a speedy recovery. If you can, once you are rested have someone type for you and dictate a response to us if you feel up to it. We would love to know what is going on. Take care. DANG LE, there I spat it out!

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Thinking of you this morning, Tamiami! Be well, y'hear?!
    Binney

  • NatsFan
    NatsFan Member Posts: 3,745
    edited June 2013

    Tami - I'm so sorry, but I'm glad you picked up on it ASAP and your doctor didn't dismiss your concerns.  Once this is all done, maybe your doctor will give you a scrip for antibiotics you can fill and keep on hand - that way you can start antibiotics immediately when you notice something happening, and not have to wait the hours it takes to get them in ER. 

    I'm glad that they'll do your IV treatments on an outpatient basis.  I'm one of those that had to do the 5 days in the hospital on vancomycin IVs after a brown recluse spider bite got me in the leg and the skin started going necrotic.  They tried a few other antibiotics at first, but only the vancomycin started reversing in.  I think it makes more sense to be able to go home and just come in 2x a day for treatments.  I felt physically fine and spent most of my days pacing the halls because I was so bored.  Go figure - they'll give us chemo on an outpatient basis, but not IV antibiotics.  Even if I had to stick around for a few hours after each infusion to make sure there was no reaction, that'd be a lot better than being in the hospital 24/7, exposed to gawd knows what.  Undecided 

    Good luck and let us know how you're doing when you're up to it - we're all sending you good wishes!

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    home and typing left handed so this will be short.  vancomyacin caused an allergic reaction...dont know what they ended up giving me but the id dr sees me at 9am so he will know.  my allergy list just keeps growing.  they did a nerve block from my neck down to my fingers so i have a dead arm right now.  surgeon said i had several bites on the finger and infection throughouy both tendon sheaths.  i guess antibotic wouldnt have helped without cleaning out the sheaths.  google tendon sheath infection if you are interested.  thanks for all the support.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Ouch! So glad you're on this side of the surgery and all set to begin healing. Rest up, elevate, take your pain meds, and know we're all here rooting for youKiss!
    Gentle hugs,
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    tamiami, you're incredible for even thinking of typing us an update!  What a day you've had!  Cheering you from over on the other side of the state!!

    Carol

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Hi guys~  Started rehab on my hand yesterday...ouch!  PT thinks they can get me to 75% in 12 weeks, with the most progress being in the first 6 weeks.  They feel I will be able to cut hair again after the 6-12 weeks!  Hand surgeon opened a zigzag pattern on my ring finger from the first knuckle to the middle of my palm and also cut out 2 areas on the side at each knuckle where the bites were.  I had 5 days of out patient IV antibiotics and am now on Augmentin.  All of the cultures came back ok...whatever that really means, since they diagnosed it as cellulitis, tendon sheath infection with several abcesses.  From bite to surgery was less that 40 hours.  I wish I could figure out how to post a link to tendon sheath infections to help everyone understand how serious they are!

    From the time of my BMX on 1/4/13 til I'm released to work in July/August, I will have worked a total of 3 weeks this year!  Short term disability paid me 65% for 12 of those weeks, and because I was only back to work 1 day from my exchange I have no claim for this issue.  You have to be back 2 weeks before they will consider a new claim.  At this point, I wonder if I will have any clients left?!?!  Lots of thoughts going through my head about my career and life...maybe turning 50 in less than 2 weeks has something to do with it, or just too much time on my hands to feel sorry for myself.  Whichever it is, I'm over it LOL!

    If anyone can tell me how to link to an article that doesn't have a "copy link" option, please let me know.  I think its important to anyone prone to infections.

    Tami

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Oh Natsfan~  You are so right about the outpatient IV vs. inpatient!  It was so much better to just go there for a couple of hours a day.  Much less risk of developing other infections/complications that way...that's why they did it for me!  I'm sorry you were stuck in the hospital, although I think being bitten by a brown recluse if way more dangerous!  How long ago was that?  Did you lose a lot of the tissue in your leg?

  • carol57
    carol57 Member Posts: 3,567
    edited June 2013

    Tamiami, let me know when you're back at work, and I'll drive the few hours your way for a haircut!!!

    For the link, can you just have the article open in your browser and do a right mouse and ctrl C on the URL, and then ctrl V in the bco posting window?  I've never had that not work. But of course, there are quite a few browsers and nothing's really standard about them.

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    http://orthopedics.about.com/od/fingerconditions/qt/Flexor-Tendon-Infections.htm         

    Thanks Carol!  For the link info AND the new client offer LOL!

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Tamiami, so good to hear how quickly this was taken care of, and that you're already on the PT path toward healing. Yikes! What a huge, sudden interruption of your life, and you're so right that we all need to be aware of this. Really good to know about. When you first posted about it I googled and was impressed with this no-nonsense information:

    http://www.ncbi.nlm.nih.gov/pubmed/22661567

    Patience and chocolate for the recovery period! And gentle hugs, too,
    Binney

  • Tamiami
    Tamiami Member Posts: 396
    edited June 2013

    Yes, thank goodness Binney!  If it wouldn't have been quick, I would have lost my finger!  Your link is concise, but I wanted to make sure to list the symptoms with my link.  Most of the adults I know would not have gone to the Dr. as quickly as I did and their outcome could be devastating.  Even knowing my cellulitis history, I just assumed I'd get an antibiotic...not emergency surgery!

  • LeeLeeLynn
    LeeLeeLynn Member Posts: 23
    edited July 2013

    Individuals who have cancers that are sensitive to hormones, such as breast cancer,  and those who have a high risk of these cancers should avoid applying lavender  and tea tree oils to their skin. There is some research that suggests that these  oils may act like estrogen in the body. (fyi Carol)

    Read more: http://www.cancer.ca/en/cancer-information/diagnosis-and-treatment/complementary-therapies/aromatherapy/?region=ab#ixzz2ZphDeGO0

Categories