Back after 5 years

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Well I'm Back.  I was diagnosed with bone mets to the spine and rib.  CLear Cat Scan in Oct.  Had Cat Scan for flu in March and lesions were found.  Had biopsy done and confirmed mets. Starting Zometa on Friday and having Chemo Training today for Xeloda.   I had agreed to be in a trial study, but after two doses of the trial med I landed in the hospital for 2 days, a bad reaction to the med. So came off that fast.  So far not much pain, I am very active, work out with weights and pool exercises.  I hope this will help keep the pain at bay.  So on the road to another unexpected, unwanted journey, but will do what I have to do to keep going.  In 2008 had a bi-lateral mastectomy, 4 out 14 lymph nodes were positive.  I am estrogen positive.  Had cytoxen and taxotere, 36 rads and have been on arimidex.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited June 2013

    Hi Concetta and welcome back.......so sorry that you need to come back. Come join in the stage IV threads, there are unfortunately, a lot of us over there. Hope your treatment kicks in and does good things for you with out too many SEs.



    Love n hugs. Chrissy

  • Annie62
    Annie62 Member Posts: 1,081
    edited June 2013

    Concetta, I am so sorry that you are back with bone mets. It's great that you are active and feeling pretty good.  Are you on a hormonal at this time or just the Zometa?

    I have some bone mets and in one area I had some (tolerable) pain and after 8 months I have no pain at all.

    There is lots of good info and lovely people over at the the Stage IV thread.

    Take care, Annie

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2013

    Concetta,

    We're so sorry to hear this news, and hate that you have to be here. But as ChrissyB mentioned the Stage IV forum is a wonderful, welcoming group of individuals who will surely be a great support to you!

    We hope this helps,

    The Mods

  • Concetta
    Concetta Member Posts: 9
    edited June 2013

    Thank you all for your suppport and advice.  I will post at the Stage IV Forum.

  • AmyQ
    AmyQ Member Posts: 2,182
    edited June 2013

    We are all so very sorry to hear this news.  But you can't find a nicer group of warriors here to support you and pray and advise.  Keep us posted on how you are doing.

    Amy

  • Melwilliamsrod
    Melwilliamsrod Member Posts: 2
    edited August 2013

    I am in almost the same boat. I had stage III B in 2006. Now in 5/2013 it is in my bones (various places). I just started Lupron, Xegeva, and I already take Tamoxifin. It has been a very difficult blow! I am 40 years old.

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