If you are not Stage IV but have questions, you may post here

Hi Ladies,



My name is Kathyrnn and I'm in the Triple Negative thread. I have come to your group for help with a specific question for anyone with Triple Negative BC:



I have recently been diagnosed with a regional recurrence. (3 nodes found in Level ll). I have to make some chemo decisions.



My question is for any TN who had a local or regional recurrence.



My question is: what chemo did you receive when you were first diagnosed....and what chemo did you receive for your recurrence and how effective was it?



I thank you all for your help and if there is another more relevant thread to ask this on I'd appreciate any suggestions.

Awesome News!!!!



I'm at the oncologist's right now, waiting on release from the R.N.

The bone surgeon looked over all my scans...bone scan, MRI, and pet scan. He said, no need for a bone biopsy. Everything looks good.



I never thought I'd be thankful for arthritis, but I am.



Blessings

Paula

That's great Paula!!!

Good news Paula! Hopefully you can find something to control the pain from the arthritis though.

Yay Paula, what wonderful news.It's so good to hear of someone winning in this battle we are fighting. You give me hope for our futures.

Does anyone know if Osteoporosis can contribute to bone mets?  Correlation or risk for?  Any studies out there?

Thx.

M.

Paula it is funny isn't it when arthritis is great news. Have similar stats to you and I too have severe arthritis- rheumatoid as well so know what the pain is like/ Sending special hugs. My docs are very good about checking up on new painand making sure its the arthritis.

Papillon....first off Big Hugs as this is not easy on so many levels.  I am not stage IV but read here sometimes & just happen to read your post.  I am a CNA in nursing/rehab.  I have taken care of patients in the past year with brain cancer & also BC brain mets in the past.  I also have a niece who has been battling a brain cancerous tumor for almost 20 years now.  As with Alzheimer's cancer eats at the brain slowly or fast.  Agitation can be a big problem as they know something is wrong but then as it progresses they can loose the reasoning to know why where & how.  All depending on the part of the brain that is being effected.  They can forget words to communicate effectively with us & thus creating agitation.  Pointing out this albeit with love & humor can increase this agitation on many levels & for many reasons.  I try & remain calm.  Some of the biggest points to remember as the memory fades is taking care of their daily needs as their ability to communicate their need fades.  Our daily activities....Food is she hungry?, thirsty?, does she have to go to the bathroom?, does she have pain?   Try to remain calm, use diversion, change the subject, too much noise, boredom.  It's like taking care of a baby/young child as they can't tell us anything & we have go through a list of things to figure out the right key!  Except this happens in the reverse in cancer patients at different levels.   We treat them as adults & I try to ignore the mix ups & guide where it is needed because humor & reasoning may be lost to them at some point but still can be used.  Frustration that they can't do for themselves let alone the ability to communicate what, why, where, & how!  Maybe a support group for caregivers can help lead you in the right direction.  Her Dr's office should be able to help.  Infections & pain can cause changes also in the ability to communicate effectively & mental abilities.  All the while YOU are dealing with the loss on many levels!!!!  Please PM me if you have any ?'s  I will try & help where I can.  Just remember there is No right or Wrong!  Only Love!  I hope this helps!

Hello ladies

I had a bit of a shock yesterday.

Went for an MRI scan of my orbits (eyes) and brain to look at a small cyst attached to the lacrimal (tear) gland in my eye. The technician asked me if I had had any metal implanted in my body and I said no. He said that he could see what he thought looked like metal in my brain. I think he may have meant mineral deposits. He said that the ophthalmologist might ask for a CT scan.

When I tried to find out more, he said he couldn't comment as he wasn't a doctor but would do the report as soon as he could and also send a copy to my oncologist.

I looked up mineral deposits and saw that they can be an indication of anything from MS to cysts to tumours to polyps to water spots. Don't seem to have any of the symptoms listed for these challenges apart from an ear infection that seems to come and go.

Has anybody else been through anything like this please?

Best wishes

Alice

Chrissy

You are magnificent.

Thanks so much for taking the trouble to respond to me and the many other people I've seen you helping who are worried sick and need someone to talk to who understands. Really appreciated.

Don't want to worry my family or friends before I know something definite but had to get the worry out of my system.

You're absolutely right, of course. Will just have to wait and see the ophthomologist.

Just getting this worry out of my system has helped.

Hope you are having a nice time in that wonderful country of yours.

Best wishes and thanks

Alice

Hi Chrissy

I've just come across an article online that will keep me going - and anyone else going through the same thing  - until I've seen the oph:

Incidental Findings Common with Brain MRI

http://www.medpagetoday.com/Neurology/GeneralNeurology/7164

Fingers crossed!

Best wishes

Alice

Alice - we will all be waiting with you hoping for nothing but B9 results from your scan.